Boston Dinner

[Guest guest]

---

Ann,

glad to hear the " other " surgery went well!!

I have one of those teenagers..actaully 2 of them..!!!

Can't wait to meet everyone and have dinner...it will be nice to put

faces with ALL those names!!!

I will meet where ever you want , just let me know!!!mARY,PA

In , " ae_mcd2003 " <ae_mcd2003@...>

wrote:

>

> I am very excited about having dinner and seeing some of my old

pals

> and meeting some new ones. I also just wanted to jump in on the

> discussion to volunteer to pick people up who don't have

transportation

> if we decide on a place in Chestnut Hill. I would be happy to do

that.

> You know, since the primary purpose is to meet up and chat....maybe

we

> should be focusing on where we can just hang out? I think NEBH

should

> lend us their conference room. Although...a cocktail would be nice.

I

> assume we are talking about an early dinner. Do we know how many? I

> could make some calls this week.

>

> I look forward to catching up with everyone.

>

> Just a quick update on me for those that are interesed. I had my 9

> month check up a couple of weeks ago. My fusion is good and solid

and

> and I am standing better than I have since childhood. Good news

except

> for the fact that the cat scan revealed that my SI joints are

pretty

> arthritic. Rand doesn't touch those joints so I don't know what I

will

> do if things get worse. I also had a hysterectomy on January 20th.

It

> ended up being day surgery and by 4:30 that afternoon, I was home

> unloading the dishwasher. I am glad to have that behind me. I can

sleep

> through the night now without having to pee constantly and the

improved

> sleep has helped the back pain. I do still have pain and I do still

> take medication but I really can't complain that much. My newest

> challenge is dealing with a daughter who is hitting the teenage

years

> early and hard.

>

> Best to you all, Ann

>

[Guest guest]

Ann,

I had the same idea about the NEBH meeting room...I suppose it is a

possibility...but for those so inclined (and narcotic free)it might

be nice to be able to have a beverage. I do remember thinking the

chairs were very uncomfortable at the conference room I was at spine

class in.

I may take you up on the offer of a ride since I think I will be

coming from downtown and and her sister are out in in. We

can figure those details later... and if you can think of a better

place to meet just sing out.

When you were talking SI joints with Rand did he have any sense of

how quickly they have progressed from old xrays? I had questioned

him about this and he said he had only had one other patient who

experienced this (and it wasn't you)....but maybe not enough time

has elapsed since the advent of revisions to say for sure what the

course of events will be with our backs. Gel insoles R US!

Love that you had your hysterectomy and were unloading your

dishwasher that afternoon...you make the rest of us look like

slackers!!!

Take Care and congrats on your solid fusion, Cam

[Guest guest]

Thanks Nan - I wish we lived closer too!

Lorrie

[ ] Boston Dinner

Hi everyone

To those of you meeting in Boston in a few weeks, I am extremely

jealous! I really feel a deep connection to all of you & what your

input has done for me emotionally, and it would be so nice to meet.

If it were a few days later, I might be able to justify the trip as

my daughters spring break starts on March 20th, and we could always

visit my brother in Sandy Hook Ct. ( a few hrs. from Boston ) But

such is life, we will do it another time.

Cam, I'm sorry I have not gotten back with you to verify my surgery

date with Dr. B. It is on May 2nd. I am going to St. Louis this

weekend for a follow up and to have those lovely pictures taken.

Kam, I am so sorry that you are still not feeling well. I know that

I will probably be the same way. Anxious to get on with it, and

being in the summer, I know that I will want to get out & play. My

friend here always looks forward to summer, as do I, so we can lay

around her pool and have a few cool beverages to beat the heat. I'm

afraid that it is not going to happen this year.

Lorrie, I'm so sorry that we do not live closer. I would watch your

daughter for you. I don't consider myself a senior, but have had

experience with my grandkids. Like Cam said, do check around. I

can only imagine how hard it must be for you. Mine is pretty self

sufficient at 16, and she now has her license, and my husband works

from home, so I will be doubly blessed.

Joyce, Please don't work yourself to hard. I can imagine that you

are glad to get back to some sort of a routine again.

Well all, it's time to get busy. I have 15 women coming tonight, and

I have things to do. Been trying to get everything in . Only 2 mos.

left.

Hugs to all,

Nan

scoliosis veterans * flatback sufferers * revision candidates

[Guest guest]

---

All folks for dinner in Boston..I threw it out to Cam about NEBH

too..I did contact the PR dept and Joe Dinisio, the Pres, who is from

PA too like me, still lives here..how you run a hospital from Pa I

don't know, but he does..I emailed Kim, laptop lady..vonnie remember

her name...and from Nh..she will get you whatever you need..

she.talked to Joe and I got an email from him a few minutes ago..IF

we are interested the Pres of the hospital will not only host us,

they will provide dinner....I will not be offened if you all don't

want to do it..I just figured some of us have spent alot of time at

NEBH and some will be going soon...could not hurt to ask..and the

answer was a big, big YES..he would love to host us!!Just one more

option for us.., PA

In , " cammaltby " <cammaltby@...>

wrote:

>

> Ann,

>

> I had the same idea about the NEBH meeting room...I suppose it is a

> possibility...but for those so inclined (and narcotic free)it might

> be nice to be able to have a beverage. I do remember thinking the

> chairs were very uncomfortable at the conference room I was at

spine

> class in.

>

> I may take you up on the offer of a ride since I think I will be

> coming from downtown and and her sister are out in in. We

> can figure those details later... and if you can think of a better

> place to meet just sing out.

>

> When you were talking SI joints with Rand did he have any sense of

> how quickly they have progressed from old xrays? I had questioned

> him about this and he said he had only had one other patient who

> experienced this (and it wasn't you)....but maybe not enough time

> has elapsed since the advent of revisions to say for sure what the

> course of events will be with our backs. Gel insoles R US!

>

> Love that you had your hysterectomy and were unloading your

> dishwasher that afternoon...you make the rest of us look like

> slackers!!!

>

> Take Care and congrats on your solid fusion, Cam

>

[Guest guest]

,

Good on ya! It sounds okay to me...for those that are not sure...the

food is very acceptable there, and for those that want to move on to a

more social venue we can always move on if need be. At least there

wouldn't be a hovering waitress looking for us to pay up and move on.

In this case, I guess we have already paid, one way or the other.

I think everyone knows where NEBH is, or could find it. The parking is

plentiful, although there is a small charge for that.

Thoughts? Cam

[Guest guest]

,when is it you were all meeting for dinner at NEBH? I have an apt there thursday the 23rd..Vonnieheatherbenjaminnicholas <heatherbenjaminnicholas@...> wrote: ---All folks for dinner in Boston..I threw it out to Cam about NEBH too..I did contact the PR dept and Joe Dinisio, the Pres, who is from PA too like me, still lives here..how you run a hospital from Pa I don't know, but he does..I emailed Kim, laptop lady..vonnie remember her name...and from Nh..she will get you whatever you need.. she.talked to Joe and I got an email from him a few minutes ago..IF we are interested the Pres of the hospital will not only host us, they will provide dinner....I will not be offened if you all don't want to do it..I just figured some of us have spent alot of time at NEBH and some will be going soon...could not

hurt to ask..and the answer was a big, big YES..he would love to host us!!Just one more option for us.., PAIn , "cammaltby" <cammaltby@...> wrote:>> Ann,> > I had the same idea about the NEBH meeting room...I suppose it is a > possibility...but for those so inclined (and narcotic free)it might > be nice to be able to have a beverage. I do remember thinking the > chairs were very uncomfortable at the conference room I was at spine > class in.> > I may take you up on the offer of a ride since I think I will be > coming from downtown and and her sister are out in in. We > can figure those details later... and if you can think of a better > place to meet just sing out.> > When you were talking SI joints with Rand did he have any sense of > how quickly they have progressed from old xrays? I had

questioned > him about this and he said he had only had one other patient who > experienced this (and it wasn't you)....but maybe not enough time > has elapsed since the advent of revisions to say for sure what the > course of events will be with our backs. Gel insoles R US!> > Love that you had your hysterectomy and were unloading your > dishwasher that afternoon...you make the rest of us look like > slackers!!!> > Take Care and congrats on your solid fusion, Cam>

Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars.

[Guest guest]

Wow! Thanks for organizing things, ! Not all is the Baptist hosting us, they are giving us options. I feel as though I am going to a wedding or bar mitzvah. Count me in for a veggie dish!

Kim

In a message dated 3/3/06 11:59:59 AM, heatherbenjaminnicholas@... writes:

I received a call from NEBH today about the dinner. The room is booked

and they want to know about meal choices. Please let me know the count

and if you would like chicken, beef or vegetarian...I need to call them

back early next week to let them know. THanks, PA

[Guest guest]

, I don't want to leave things hanging, so, much as I'd love to be

there, I'd better decline. My hubby is in for plenty with this whole

surgery thing, and I don't want to use him up, so to speak. Driving an hour

(assuming reasonable traffic flow) into the city by myself is normally

sufficient cause for trepidation; doing it during rush hour and with

flatback pain is more than I can do and call it a good time.

I really appreciate that you and Cam opened this up to the whole group, and

I do hope I'll be up for the next one. If we can schedule it on a Sunday

like the first one 2 years ago, that will be best.

Sharon

[ ] Boston Dinner

>I received a call from NEBH today about the dinner. The room is booked

> and they want to know about meal choices. Please let me know the count

> and if you would like chicken, beef or vegetarian...I need to call them

> back early next week to let them know. THanks, PA

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

---

Kim,

THanks for your reply, I have noted your choice. If you know anyone

else that plans on attending,tell them to email or call me. I put my

phone number and private email address in a post on the board. I

can't wait to meet you!! , PA

In , kim1450@... wrote:

>

> Wow! Thanks for organizing things, ! Not all is the Baptist

hosting

> us, they are giving us options. I feel as though I am going to a

wedding or

> bar mitzvah. Count me in for a veggie dish!

>

> Kim

>

> In a message dated 3/3/06 11:59:59 AM, heatherbenjaminnicholas@...

> writes:

>

>

> > I received a call from NEBH today about the dinner. The room is

booked

> > and they want to know about meal choices. Please let me know the

count

> > and if you would like chicken, beef or vegetarian...I need to

call them

> > back early next week to let them know. THanks, PA

> >

> >

> >

>

[Guest guest]

---Carole,

I am so sad you and Sharon can';t make it.....no itty bitty chance that

could change??BOO HOO for us!! ,PA

In , scolioly2@... wrote:

>

> Gee the whole dinner arrangement sounds so good! But, like Sharon,

I have

> to decline. You folks who will already be in the city are very

lucky, and I

> hope that you have a great time! I can't get over how hospitable

the NEBH is

> being!

>

> Carole M.

>

[Guest guest]

In a message dated 3/4/06 2:31:17 PM, heatherbenjaminnicholas@... writes:

---Carole,

I am so sad you and Sharon can';t make it.....no itty bitty chance that

could change??BOO HOO for us!! ,PA

Very sad! I had been looking forward to meeting you both, but I understand the difficulties.

[Guest guest]

Does anyone want me to mention our dinner to Joe O'Brien, who heads the National Scoliosis Foundation, which is based in this area? He had his revision surgery with Dr. Rand at the Baptist several years ago.

By the way, what time are we meeting on the 15th?

[Guest guest]

--Cam,

Your assumption is correct 5/5:30, give folks a chance to get in and

get settled before we eat etc. I have no strong feelings either way

on who comes to the dinner...I am happy to meet anyone who is

connected to the world of flatback....I have extended to Rand and

PRiscilla to stop by and say hello, I did not want them to " hear " we

were at the hospital and not give them the chance to stop in..I know

they are very busy and may not be able to do so but the offer has

been extended....I made that executive decision on my own..sorry in

advance if it bothers anyone....,PA

P.S> Cam, when did you start driving again after revision..I am

getting a hankering to get out on my own...I won't do it until I talk

to Priscilla but was curious???

- In , " cammaltby " <cammaltby@...>

wrote:

>

> Kim,

>

> I would think we would like to keep this dinner more a chance to

> continue to build on relationships we have started here in this

group,

> and since Joe has not paricipated...perhaps that would change the

> dynamic of the dinner?... just my opinion, and I would galdly go the

> other way if there was energy around the idea of inviting him. I

know

> Ann knows him from her days volunteering at NSF.

>

> I did correspond with Joanne Chertok, a member in Boston we have not

> heard from lately, and she will be joining us. (I will get her

dinner

> choice to you soon). I also sent a note to in RI and Franca

to

> see if they are up for joining in.

>

> I don't know if we set a time yet...? I am assuming 5 or 5:30?

>

> Cam

>

[Guest guest]

I'd certainly like to meet him as well, if I were going, which I don't think

I am...

(As I always say, f you're going to be wishy-washy, at least be definite

about it!)

Sharon

[ ] Re: Boston Dinner

> --FIne by me!! I told them we would start arriving between 5:00/5:30,

> i'd love to meet him, I had some coorespondence with him when I first

> started searching on the internet about this thing

> called 'Flatback " ...<PA

>

>

> - In , kim1450@... wrote:

>>

>> Does anyone want me to mention our dinner to Joe O'Brien, who heads

> the

>> National Scoliosis Foundation, which is based in this area? He had

> his revision

>> surgery with Dr. Rand at the Baptist several years ago.

>>

>> By the way, what time are we meeting on the 15th?

>>

>

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

Sharon...I think from NH has contacted PA off line to say she

is coming down...I don't know how close you are milage wise but she is

in the member directory as " marturtlesong " ....maybe you can arrange to

hook a ride and come on down! Cam

[Guest guest]

Another good idea, Cam.

Thanks.

Sharon

[ ] Re: Boston Dinner

> Sharon...I think from NH has contacted PA off line to say she

> is coming down...I don't know how close you are milage wise but she is

> in the member directory as " marturtlesong " ....maybe you can arrange to

> hook a ride and come on down! Cam

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

---

Cam,

Yes, she is coming. We spoke on the phone. ,PA

In , " cammaltby " <cammaltby@...> wrote:

>

> Sharon...I think from NH has contacted PA off line to say

she

> is coming down...I don't know how close you are milage wise but she

is

> in the member directory as " marturtlesong " ....maybe you can arrange

to

> hook a ride and come on down! Cam

>

[Guest guest]

I have been in touch with him over the years and thought that it would be nice to meet him. He was the one from whom I learned about Rand, who did his surgery, as my original orthopedic surgeon referred me elsewhere. I understand how you feel that he has not been part of the list. Hopefully, I will meet him in another context.

In a message dated 3/5/06 11:01:35 AM, cammaltby@... writes:

Kim,

I would think we would like to keep this dinner more a chance to

continue to build on relationships we have started here in this group,

and since Joe has not paricipated...perhaps that would change the

dynamic of the dinner?... just my opinion, and I would galdly go the

other way if there was energy around the idea of inviting him. I know

Ann knows him from her days volunteering at NSF.

I did correspond with Joanne Chertok, a member in Boston we have not

heard from lately, and she will be joining us. (I will get her dinner

choice to you soon). I also sent a note to in RI and Franca to

see if they are up for joining in.

I don't know if we set a time yet...? I am assuming 5 or 5:30?

Cam

scoliosis veterans * flatback sufferers * revision candidates

[Guest guest]

FYI....dinner 3/15 5:00pm, dinner at 6:00 NEBH....., PA

[Guest guest]

See ya tomorrow....cam