Re: follow up procedures

[Guest guest]

Repeat blood tests. No repeat endoscopy. Please excuse my brevity. Sent from mobile.On Jan 21, 2010, at 3:54 PM, "swoodsf" <swoodsf@...> wrote:

How many people get repeat endoscopies and blood tests? Is that considered standard practice?

Thanks,

Sharon Wood

[Guest guest]

My daughter's gastroenterologist wants her to have an endoscopy every year; but I bet it's a case-by-case thing.Melis B----- "swoodsf" <swoodsf@...> wrote: > > > > How many people get repeat endoscopies and blood tests? Is that considered standard practice? > Thanks,> Sharon Wood>

>

[Guest guest]

I suspect, as Melis B noted, that it is a case-by-case basis. My wife's CS caused severe anemia, and she is still taking ProCrit, but her GE has not suggested another edoscopy in the two years since her diagnosis one. HogleFreelance academic librarianInstructor, online researchEmail:

jjhogle@...Web: (under de- and re-construction) www.blueroom.comReality ain't what you think it isArt Graphics & Photographs[http://www.blueroom.com/realityaint.htm]From: "melbatavia@..." <melbatavia@...> Sent: Thu, January 21,

2010 4:08:10 PMSubject: Re: [ ] follow up procedures

My daughter's gastroenterologist wants her to have an endoscopy every year; but I bet it's a case-by-case thing.Melis B----- "swoodsf" <swoodsf (DOT) com> wrote: > > > > How many people get repeat endoscopies and blood tests? Is that considered standard practice? > Thanks,> Sharon Wood>

>

[Guest guest]

As I understand it, performing a second endoscopy about six months after GF is common, accepted practice.

However, I don't think (I don't know) that having a series of endoscopies is common. My having four in seven years was due to unusual circumstances.

Endoscopies look for problems in the stomach and esophagus, as well as for the CD check in the small intestine. My most recent endoscopy showed a stomach condition that I'm able to improve with medication.

H.

-----Original Message-----

From: j. hogle <jjhogle@...>

Sent: Thu, Jan 21, 2010 6:12 pm

Subject: Re: [ ] follow up procedures

I suspect, as Melis B noted, that it is a case-by-case basis. My wife's CS caused severe anemia, and she is still taking ProCrit, but her GE has not suggested another edoscopy in the two years since her diagnosis one.

HogleFreelance academic librarianInstructor, online researchEmail:

jjhogle Web: (under de- and re-construction) www.blueroom.com

Reality ain't what you think it is

Art Graphics & Photographs

[http://www.blueroom.com/realityaint.htm]

From: "melbataviacomcast (DOT) net" <melbataviacomcast (DOT) net>

Sent: Thu, January 21,

2010 4:08:10 PM

Subject: Re: [ ] follow up procedures

My daughter's gastroenterologist wants her to have an endoscopy every year; but I bet it's a case-by-case thing.

Melis B

----- "swoodsf" <swoodsf (DOT) com> wrote:

> > > > How many people get repeat endoscopies and blood tests? Is that considered standard practice?

> Thanks,

> Sharon Wood

>

>

[Guest guest]

Our daughter’s doctor had no plans to do a repeat

endoscopy/biopsy ever, but as she had continuing problems with pain, he did another

one at 1 year after starting the diet. She appeared fully healed (after having

been a text-book case of damage). Kids may heal more quickly than adults

however (she’s 10). He recommended a repeat blood test at 6 months and at

1 year. The 6 month antibodies were much lower but not normal, and the 1-yr

test was normal. (After other negative tests as well, she was told she also has

IBS – a diagnosis of exclusion.) I don’t believe she will be given

a blood test again for at least 2 years.

Based on all I read from others who replied, this question appears

to lack any standard answers. It was very nice to know that her villi had

healed and her antibodies were normal, however. We didn’t know for sure whether

the diet was allowing her to heal until we got those results.

From:

[mailto: ] On

Behalf Of swoodsf

Sent: Thursday, January 21, 2010 3:54 PM

Subject: [ ] follow up procedures

How many people get repeat endoscopies and

blood tests? Is that considered standard practice?

Thanks,

Sharon Wood

[Guest guest]

Yes, from what I read, healthy chidren heal far more quickly than adults -- sometimes in days! This makes testing trickier, as signs of damage may have vanished if there's been no gluten in their diet just beforehand.

I'm glad to hear things are turning out well for her, except for the IBS.

H.

-----Original Message-----

From: Darcy <ddarcy@...>

Sent: Thu, Jan 21, 2010 9:22 pm

Subject: RE: [ ] follow up procedures

Our daughter’s doctor had no plans to do a repeat

endoscopy/biopsy ever, but as she had continuing problems with pain, he did another

one at 1 year after starting the diet. She appeared fully healed (after having

been a text-book case of damage). Kids may heal more quickly than adults

however (she’s 10). He recommended a repeat blood test at 6 months and at

1 year. The 6 month antibodies were much lower but not normal, and the 1-yr

test was normal. (After other negative tests as well, she was told she also has

IBS – a diagnosis of exclusion.) I don’t believe she will be given

a blood test again for at least 2 years.

Based on all I read from others who replied, this question appears

to lack any standard answers. It was very nice to know that her villi had

healed and her antibodies were normal, however. We didn’t know for sure whether

the diet was allowing her to heal until we got those results.

From:

[mailto: ] On

Behalf Of swoodsf

Sent: Thursday, January 21, 2010 3:54 PM

Subject: [ ] follow up procedures

How many people get repeat endoscopies and

blood tests? Is that considered standard practice?

Thanks,

Sharon Wood