RE: FDA Research Study (really just a survey)

[Guest guest]

I agree with both of you – I chose “Gluten-Freeâ€Â  but what I

want that to mean is that it does not contain gluten (below a certain very low level

such as 20 ppm – they will never say absolutely none) and is also made in a

safe manner.  There is a comment section at the end where this can be written

in.

Unfortunately the survey doesn’t offer that level of distinction

at all (what the words actually mean) and doesn’t address cross-contamination

from manufacturing practices very well.

I do agree that it’s great to see them doing this survey!

Thanks,

From:

[mailto: ] On

Behalf Of Harper

Sent: Thursday, April 15, 2010 9:08 AM

Subject: Re: [ ] FDA Research Study (really just a survey)

I believe that Gluten-Free is the more restrictive, all-inclusive

statement.

H.

when asked which of the following labels would lead me to buy the

product, I checked the " made in a gluten free facility " over " no

gluten ingredients " and " gluten free, "

-----Original Message-----

From: TrVerb@...

Sent: Thu, Apr 15, 2010 8:48 am

Subject: Re: [ ] FDA Research Study (really just a survey)

I think you must have only thought you checked the " I follow

a gluten free diet " box, because that's what I did and I did the whole

survey - they are obviously only interested in people who are either following

it for themselves or preparing food for someone who is. I am guessing you

checked the " I don't follow a gf diet " by mistake.

I am surprised by the negative response to this survey. I am

thrilled that they are asking me these questions, which are clearly designed to

ascertain what kind of labeling laws they need to consider - we are being given

the opportunity to encourage the government to make it a law that labels need

to be as specific as possible (when asked which of the following labels would

lead me to buy the product, I checked the " made in a gluten free

facility " over " no gluten ingredients " and " gluten

free, " which I would hope would encourage whoever reads this survey to

understand the issue goes beyond the actual ingredients to where the product is

processed). It sounds to me like some of us are offended that they are

asking " how much do we really understand about celiac " and how smart

or stupid or educated we are. But they do need to know how much more education

they need to provide. Look, I have friends who have diagnosed celiac who are

convinced spelt is fine and " a little " wheat now and then is fine,

too, and who don't ever think about cross contamination issues. I don't want

those people driving the discussion and influencing the law! So PLEASE,

everybody do this survey and take the opportunity at the end to stress that we

need to know about EVERY gluten ingredient, not just wheat, and EVERY cross

contamination issue...

Tristan

-----Original Message-----

From: <kristin_boston@...>

Sent: Thu, Apr 15, 2010 8:38 am

Subject: Re: [ ] FDA Research Study (really just a survey)

Pam,

What a strange

" survey " ! I answered the first few questions, until the

diagnosis question and the " do you follow a gluten-free diet "

question. As soon as I checked the box that said that I followed a

gluten-free diet, it told me I did not qualify for the survey! What kind

of survey about gluten labeling disqualifies people who are on a gluten free

diet? The Celiac Disease Foundation is supporting this?

Best,

From: Pam Newbury <pknewbury@...>

Sent: Wed, April 14, 2010 11:57:18 PM

Subject: [ ] FDA Research Study (really just a survey)

Below is the

information from the FDA and the link to the survey (this is a reposting from

my previous post today). My understanding is that their survey is what

they refer to as a “research studyâ€. If you click on the link below it

will take you to the survey. Participation just means completing

the survey. Pam

Celiac

Disease Foundation is assisting the FDA in seeking Participants for a

Research Study on Gluten-Free Claims on Food Labels and is

requesting your assistance.

The U.S. Food and Drug Administration (FDA) is seeking adults diagnosed

with celiac disease or gluten-intolerance or caregivers to such

individuals to participate in a research study on their grocery shopping

habits. Participants will be asked to take an Internet survey, which will

take approximately 10 minutes to complete.

The survey is available at www.synovate. net/forgluten

Please contact Kosa at kkosa@... or

1-800-334-8571, extension 23901, if you have any questions about the

study. To request a paper copy of the survey, please call 1-877-4GLUTN1.

From: [mailto:celiacbayar eagroups (DOT) com] On

Behalf Of Ahroon Yoch

Sent: Wednesday, April 14, 2010 4:36 PM

Subject: Re: [ ] FDA Research Study

How can we get to be a part of the

study?

Sent from my iPhone

On Apr 14, 2010, at 3:15 PM, " Pam Newbury " <pknewbury@earthlink .net> wrote:

They want to

know what consumers think about different ways of labeling foods

gluten-free. I think they want to know what is confusing and what people

will trust when it comes to how the gluten-free claim is presented on a

label. I don’t like how they went about it, but I’m trying to be glad

they are at least asking us what we think. I wrote a lot in the comments

section at the end….

Pam

_

[Guest guest]

"Gluten free" seems to refer only to the ingredients in that particular product, and doesn't tell me anything about the facility and equipment it was produced in/on. I feel much more reassured by a label that tells me that there is no chance of cross-contamination. Unless and until the FDA insists that any product labeled "gluten free" has been tested as such, I want to know it was made in a gluten free facility.

-----Original Message-----

From: Harper <flatcat9@...>

Sent: Thu, Apr 15, 2010 9:07 am

Subject: Re: [ ] FDA Research Study (really just a survey)

I believe that Gluten-Free is the more restrictive, all-inclusive statement.

H.

when asked which of the following labels would lead me to buy the product, I checked the "made in a gluten free facility" over "no gluten ingredients" and "gluten free,"

-----Original Message-----

From: TrVerb@...

Sent: Thu, Apr 15, 2010 8:48 am

Subject: Re: [ ] FDA Research Study (really just a survey)

I think you must have only thought you checked the "I follow a gluten free diet" box, because that's what I did and I did the whole survey - they are obviously only interested in people who are either following it for themselves or preparing food for someone who is. I am guessing you checked the "I don't follow a gf diet" by mistake.

I am surprised by the negative response to this survey. I am thrilled that they are asking me these questions, which are clearly designed to ascertain what kind of labeling laws they need to consider - we are being given the opportunity to encourage the government to make it a law that labels need to be as specific as possible (when asked which of the following labels would lead me to buy the product, I checked the "made in a gluten free facility" over "no gluten ingredients" and "gluten free," which I would hope would encourage whoever reads this survey to understand the issue goes beyond the actual ingredients to where the product is processed). It sounds to me like some of us are offended that they are asking "how much do we really understand about celiac" and how smart or stupid or educated we are. But they do need to know how much more education they need to provide. Look, I have friends who have diagnosed celiac who are convinced spelt is fine and "a little" wheat now and then is fine, too, and who don't ever think about cross contamination issues. I don't want those people driving the discussion and influencing the law! So PLEASE, everybody do this survey and take the opportunity at the end to stress that we need to know about EVERY gluten ingredient, not just wheat, and EVERY cross contamination issue...

Tristan

-----Original Message-----

From: <kristin_boston@...>

Sent: Thu, Apr 15, 2010 8:38 am

Subject: Re: [ ] FDA Research Study (really just a survey)

Pam,

What a strange "survey"! I answered the first few questions, until the diagnosis question and the "do you follow a gluten-free diet" question. As soon as I checked the box that said that I followed a gluten-free diet, it told me I did not qualify for the survey! What kind of survey about gluten labeling disqualifies people who are on a gluten free diet? The Celiac Disease Foundation is supporting this?

Best,

From: Pam Newbury <pknewbury@...>

Sent: Wed, April 14, 2010 11:57:18 PM

Subject: [ ] FDA Research Study (really just a survey)

Below is the information from the FDA and the link to the survey (this is a reposting from my previous post today). My understanding is that their survey is what they refer to as a “research studyâ€. If you click on the link below it will take you to the survey. Participation just means completing the survey. Pam

Celiac Disease Foundation is assisting the FDA in seeking Participants for a Research Study on Gluten-Free Claims on Food Labels and is requesting your assistance.

The U.S. Food and Drug Administration (FDA) is seeking adults diagnosed with celiac disease or gluten-intolerance or caregivers to such individuals to participate in a research study on their grocery shopping habits. Participants will be asked to take an Internet survey, which will take approximately 10 minutes to complete.

The survey is available at www.synovate. net/forgluten

Please contact Kosa at kkosa@... or 1-800-334-8571, extension 23901, if you have any questions about the study. To request a paper copy of the survey,

please call 1-877-4GLUTN1.

From: [mailto:celiacbayar eagroups (DOT) com] On Behalf Of Ahroon Yoch

Sent: Wednesday, April 14, 2010 4:36 PM

Subject: Re: [ ] FDA Research Study

How can we get to be a part of the study?

Sent from my iPhone

On Apr 14, 2010, at 3:15 PM, "Pam Newbury" <pknewbury@earthlink .net> wrote:

They want to know what consumers think about different ways of labeling foods gluten-free. I think they want to know what is confusing and what people will trust when it comes to how the gluten-free claim is presented on a label. I don’t like how they went about it, but I’m trying to be glad they are at least asking us what we think. I wrote a lot in the comments section at the end….

Pam

_

[Guest guest]

I thought the survey was pretty good. The only part I found kind of wacky was

when they showed the egg label. They asked if the labeling was clear, but there

was NO mention of gluten at all on it. I thought eggs were a poor choice for

this question, because they are a natural product that would not ever contain

gluten.

Lori

[Guest guest]

>

> " Gluten free " seems to refer only to the ingredients in that particular

product, and doesn't tell me anything about the facility and equipment it was

produced in/on. I feel much more reassured by a label that tells me that there

is no chance of cross-contamination. Unless and until the FDA insists that any

product labeled " gluten free " has been tested as such, I want to know it was

made in a gluten free facility.

-------------------------------

I had to really think about this one. If you hadn't mentioned it, I probably

would have checked " gluten free " . But after thinking about what you wrote, I

realized that if the facility is " gluten-free " , then the product couldn't have

gluten in it. It's tricky, tho.

Lori

[Guest guest]

yet hasn't there recently been a discussion on this listserv about the possibility that the products of gluten-eating animals containing gluten?

-----Original Message-----

From: fiestacranberry <fiestacranberry@...>

Sent: Fri, Apr 16, 2010 7:42 am

Subject: [ ] Re: FDA Research Study (really just a survey)

I thought the survey was pretty good. The only part I found kind of wacky was when they showed the egg label. They asked if the labeling was clear, but there was NO mention of gluten at all on it. I thought eggs were a poor choice for this question, because they are a natural product that would not ever contain gluten.

Lori

[Guest guest]

See, everyone says there is no way to make

it zero ppm. I think that is TOTAL BS. That is Canada’s standard, and they are

really great place to live with celiac.

So whenever people say it can’t be done –

it IS done. It is sheer laziness on the part of manufacturers…

Oh, and I added in the comments section

that I thought GF should only be ZERO ppm.

From: [mailto: ] On Behalf Of Darcy

Sent: Thursday, April 15, 2010

10:10 AM

Subject: RE: [ ] FDA

Research Study (really just a survey)

I agree with both of you – I chose “Gluten-Free” but what

I want that to mean is that it does not contain gluten (below a certain very

low level such as 20 ppm – they will never say absolutely none) and is also

made in a safe manner. There is a comment section at the end where this

can be written in.

Unfortunately the survey doesn’t offer that level of distinction

at all (what the words actually mean) and doesn’t address cross-contamination

from manufacturing practices very well.

I do agree that it’s great to see them doing this survey!

Thanks,

From:

[mailto: ]

On Behalf Of Harper

Sent: Thursday, April 15, 2010

9:08 AM

Subject: Re: [ ] FDA

Research Study (really just a survey)

I believe that Gluten-Free is the more

restrictive, all-inclusive statement.

H.

when asked which of the following labels would lead me to buy the

product, I checked the " made in a gluten free facility " over " no

gluten ingredients " and " gluten free, "

-----Original Message-----

From: TrVerb@...

Sent: Thu, Apr 15, 2010 8:48 am

Subject: Re: [ ] FDA Research Study (really just a survey)

I think you must have only thought you checked the " I follow

a gluten free diet " box, because that's what I did and I did the whole

survey - they are obviously only interested in people who are either following

it for themselves or preparing food for someone who is. I am guessing you

checked the " I don't follow a gf diet " by mistake.

I am surprised by the negative response to this survey. I am

thrilled that they are asking me these questions, which are clearly designed to

ascertain what kind of labeling laws they need to consider - we are being given

the opportunity to encourage the government to make it a law that labels need

to be as specific as possible (when asked which of the following labels would

lead me to buy the product, I checked the " made in a gluten free

facility " over " no gluten ingredients " and " gluten

free, " which I would hope would encourage whoever reads this survey to

understand the issue goes beyond the actual ingredients to where the product is

processed). It sounds to me like some of us are offended that they are

asking " how much do we really understand about celiac " and how smart

or stupid or educated we are. But they do need to know how much more education

they need to provide. Look, I have friends who have diagnosed celiac who are

convinced spelt is fine and " a little " wheat now and then is fine,

too, and who don't ever think about cross contamination issues. I don't want

those people driving the discussion and influencing the law! So PLEASE,

everybody do this survey and take the opportunity at the end to stress that we

need to know about EVERY gluten ingredient, not just wheat, and EVERY cross

contamination issue...

Tristan

-----Original Message-----

From: <kristin_boston >

Sent: Thu, Apr 15, 2010 8:38 am

Subject: Re: [ ] FDA Research Study (really just a survey)

Pam,

What a strange " survey " ! I answered the first few

questions, until the diagnosis question and the " do you follow a

gluten-free diet " question. As soon as I checked the box that said

that I followed a gluten-free diet, it told me I did not qualify for the

survey! What kind of survey about gluten labeling disqualifies people who

are on a gluten free diet? The Celiac Disease Foundation is

supporting this?

Best,

From: Pam Newbury <pknewburyearthlink (DOT) net>

Sent: Wed, April 14, 2010 11:57:18

PM

Subject: [ ] FDA

Research Study (really just a survey)

Below is the information from the FDA and the link to the survey

(this is a reposting from my previous post today). My understanding is

that their survey is what they refer to as a “research study”. If you

click on the link below it will take you to the survey.

Participation just means completing the survey. Pam

Celiac Disease

Foundation is assisting the FDA in seeking Participants for a Research

Study on Gluten-Free Claims on Food Labels and is requesting your

assistance.

The U.S. Food and Drug Administration (FDA) is seeking adults diagnosed

with celiac disease or gluten-intolerance or caregivers to such

individuals to participate in a research study on their grocery shopping

habits. Participants will be asked to take an Internet survey, which will

take approximately 10 minutes to complete.

The survey is available at www.synovate. net/forgluten

Please contact Kosa at kkosa@... or

1-800-334-8571, extension 23901, if you have any questions about the

study. To request a paper copy of the survey, please call 1-877-4GLUTN1.

From: [mailto:celiacbayar eagroups (DOT) com] On Behalf Of Ahroon Yoch

Sent: Wednesday, April 14, 2010

4:36 PM

@ groups.

com

Subject: Re: [ ] FDA

Research Study

How can we get to be a part of the study?

Sent from my iPhone

On Apr 14, 2010, at 3:15 PM, " Pam Newbury " <pknewbury@earthlink .net> wrote:

They want to know what consumers think about different ways of

labeling foods gluten-free. I think they want to know what is confusing

and what people will trust when it comes to how the gluten-free claim is

presented on a label. I don’t like how they went about it, but I’m trying

to be glad they are at least asking us what we think. I wrote a lot in

the comments section at the end….

Pam

_

[Guest guest]

Can someone please point out research which discusses a commercially available gluten test which tests to the level of zero ppm?I have never seen this. Sent from my iPhoneOn Apr 16, 2010, at 8:00 AM, "Lillyth Denaghy Keogh-Quillan" <lillythdenaghykeogh@...> wrote:

See, everyone says there is no way to make

it zero ppm. I think that is TOTAL BS. That is Canada’s standard, and they are

really great place to live with celiac.

So whenever people say it can’t be done –

it IS done. It is sheer laziness on the part of manufacturers…

Oh, and I added in the comments section

that I thought GF should only be ZERO ppm.

From: [mailto: ] On Behalf Of Darcy

Sent: Thursday, April 15, 2010

10:10 AM

Subject: RE: [ ] FDA

Research Study (really just a survey)

I agree with both of you – I chose “Gluten-Free†but what

I want that to mean is that it does not contain gluten (below a certain very

low level such as 20 ppm – they will never say absolutely none) and is also

made in a safe manner. There is a comment section at the end where this

can be written in.

Unfortunately the survey doesn’t offer that level of distinction

at all (what the words actually mean) and doesn’t address cross-contamination

from manufacturing practices very well.

I do agree that it’s great to see them doing this survey!

Thanks,

From:

[mailto: ]

On Behalf Of Harper

Sent: Thursday, April 15, 2010

9:08 AM

Subject: Re: [ ] FDA

Research Study (really just a survey)

I believe that Gluten-Free is the more

restrictive, all-inclusive statement.

H.

when asked which of the following labels would lead me to buy the

product, I checked the "made in a gluten free facility" over "no

gluten ingredients" and "gluten free,"

-----Original Message-----

From: TrVerb@...

Sent: Thu, Apr 15, 2010 8:48 am

Subject: Re: [ ] FDA Research Study (really just a survey)

I think you must have only thought you checked the "I follow

a gluten free diet" box, because that's what I did and I did the whole

survey - they are obviously only interested in people who are either following

it for themselves or preparing food for someone who is. I am guessing you

checked the "I don't follow a gf diet" by mistake.

I am surprised by the negative response to this survey. I am

thrilled that they are asking me these questions, which are clearly designed to

ascertain what kind of labeling laws they need to consider - we are being given

the opportunity to encourage the government to make it a law that labels need

to be as specific as possible (when asked which of the following labels would

lead me to buy the product, I checked the "made in a gluten free

facility" over "no gluten ingredients" and "gluten

free," which I would hope would encourage whoever reads this survey to

understand the issue goes beyond the actual ingredients to where the product is

processed). It sounds to me like some of us are offended that they are

asking "how much do we really understand about celiac" and how smart

or stupid or educated we are. But they do need to know how much more education

they need to provide. Look, I have friends who have diagnosed celiac who are

convinced spelt is fine and "a little" wheat now and then is fine,

too, and who don't ever think about cross contamination issues. I don't want

those people driving the discussion and influencing the law! So PLEASE,

everybody do this survey and take the opportunity at the end to stress that we

need to know about EVERY gluten ingredient, not just wheat, and EVERY cross

contamination issue...

Tristan

-----Original Message-----

From: <kristin_boston >

Sent: Thu, Apr 15, 2010 8:38 am

Subject: Re: [ ] FDA Research Study (really just a survey)

Pam,

What a strange "survey"! I answered the first few

questions, until the diagnosis question and the "do you follow a

gluten-free diet" question. As soon as I checked the box that said

that I followed a gluten-free diet, it told me I did not qualify for the

survey! What kind of survey about gluten labeling disqualifies people who

are on a gluten free diet? The Celiac Disease Foundation is

supporting this?

Best,

From: Pam Newbury <pknewburyearthlink (DOT) net>

Sent: Wed, April 14, 2010 11:57:18

PM

Subject: [ ] FDA

Research Study (really just a survey)

Below is the information from the FDA and the link to the survey

(this is a reposting from my previous post today). My understanding is

that their survey is what they refer to as a “research studyâ€. If you

click on the link below it will take you to the survey.

Participation just means completing the survey. Pam

<image001.jpg>

Celiac Disease

Foundation is assisting the FDA in seeking Participants for a Research

Study on Gluten-Free Claims on Food Labels and is requesting your

assistance.

The U.S. Food and Drug Administration (FDA) is seeking adults diagnosed

with celiac disease or gluten-intolerance or caregivers to such

individuals to participate in a research study on their grocery shopping

habits. Participants will be asked to take an Internet survey, which will

take approximately 10 minutes to complete.

The survey is available at www.synovate. net/forgluten

Please contact Kosa at kkosa@... or

1-800-334-8571, extension 23901, if you have any questions about the

study. To request a paper copy of the survey, please call 1-877-4GLUTN1.

From: [mailto:celiacbayar eagroups (DOT) com] On Behalf Of Ahroon Yoch

Sent: Wednesday, April 14, 2010

4:36 PM

@ groups.

com

Subject: Re: [ ] FDA

Research Study

How can we get to be a part of the study?

Sent from my iPhone

On Apr 14, 2010, at 3:15 PM, "Pam Newbury" <pknewbury@earthlink .net> wrote:

They want to know what consumers think about different ways of

labeling foods gluten-free. I think they want to know what is confusing

and what people will trust when it comes to how the gluten-free claim is

presented on a label. I don’t like how they went about it, but I’m trying

to be glad they are at least asking us what we think. I wrote a lot in

the comments section at the end….

Pam

_

[Guest guest]

Canada has a 20 parts per million standard (not 0); Europe has a 200 ppm standard. Easy google search reveals this: http://www.celiac.com/categories/Gluten%252dFree/

I don't recall ever having any kind of blood test that could test to 0. There always seems to be a range of 0 to something, not simply "0." I think it probably is impossible to be accurate to that small a degree - 0 parts per million. The most important thing we need to know is if there is an amount of gluten we can ingest that won't trigger an autoimmune response. Europe says 200 ppm is okay. What does the data show on celiacs in Europe under these dietary laws? Ha, is there data? Maybe not. Unfortunately, the science is out on a lot of important info to celiacs...

-----Original Message-----

From: Joe Herman <jhinsf@...>

< >

Cc: < > < >

Sent: Fri, Apr 16, 2010 8:41 am

Subject: Re: [ ] FDA Research Study (really just a survey)

Can someone please point out research which discusses a commercially available gluten test which tests to the level of zero ppm?

I have never seen this.

Sent from my iPhone

On Apr 16, 2010, at 8:00 AM, "Lillyth Denaghy Keogh-Quillan" <lillythdenaghykeoghcomcast (DOT) net> wrote:

See, everyone says there is no way to make

it zero ppm. I think that is TOTAL BS. That is Canada’s standard, and they are

really great place to live with celiac.

So whenever people say it can’t be done –

it IS done. It is sheer laziness on the part of manufacturers…

Oh, and I added in the comments section

that I thought GF should only be ZERO ppm.

From: [mailto: ] On Behalf Of Darcy

Sent: Thursday, April 15, 2010

10:10 AM

Subject: RE: [ ] FDA

Research Study (really just a survey)

I agree with both of you – I chose “Gluten-Free†but what

I want that to mean is that it does not contain gluten (below a certain very

low level such as 20 ppm – they will never say absolutely none) and is also

made in a safe manner. There is a comment section at the end where this

can be written in.

Unfortunately the survey doesn’t offer that level of distinction

at all (what the words actually mean) and doesn’t address cross-contamination

from manufacturing practices very well.

I do agree that it’s great to see them doing this survey!

Thanks,

From:

[mailto: ]

On Behalf Of Harper

Sent: Thursday, April 15, 2010

9:08 AM

Subject: Re: [ ] FDA

Research Study (really just a survey)

I believe that Gluten-Free is the more

restrictive, all-inclusive statement.

H.

when asked which of the following labels would lead me to buy the

product, I checked the "made in a gluten free facility" over "no

gluten ingredients" and "gluten free,"

-----Original Message-----

From: TrVerb@...

Sent: Thu, Apr 15, 2010 8:48 am

Subject: Re: [ ] FDA Research Study (really just a survey)

I think you must have only thought you checked the "I follow

a gluten free diet" box, because that's what I did and I did the whole

survey - they are obviously only interested in people who are either following

it for themselves or preparing food for someone who is. I am guessing you

checked the "I don't follow a gf diet" by mistake.

I am surprised by the negative response to this survey. I am

thrilled that they are asking me these questions, which are clearly designed to

ascertain what kind of labeling laws they need to consider - we are being given

the opportunity to encourage the government to make it a law that labels need

to be as specific as possible (when asked which of the following labels would

lead me to buy the product, I checked the "made in a gluten free

facility" over "no gluten ingredients" and "gluten

free," which I would hope would encourage whoever reads this survey to

understand the issue goes beyond the actual ingredients to where the product is

processed). It sounds to me like some of us are offended that they are

asking "how much do we really understand about celiac" and how smart

or stupid or educated we are. But they do need to know how much more education

they need to provide. Look, I have friends who have diagnosed celiac who are

convinced spelt is fine and "a little" wheat now and then is fine,

too, and who don't ever think about cross contamination issues. I don't want

those people driving the discussion and influencing the law! So PLEASE,

everybody do this survey and take the opportunity at the end to stress that we

need to know about EVERY gluten ingredient, not just wheat, and EVERY cross

contamination issue...

Tristan

-----Original Message-----

From: <kristin_boston >

Sent: Thu, Apr 15, 2010 8:38 am

Subject: Re: [ ] FDA Research Study (really just a survey)

Pam,

What a strange "survey"! I answered the first few

questions, until the diagnosis question and the "do you follow a

gluten-free diet" question. As soon as I checked the box that said

that I followed a gluten-free diet, it told me I did not qualify for the

survey! What kind of survey about gluten labeling disqualifies people who

are on a gluten free diet? The Celiac Disease Foundation is

supporting this?

Best,

From: Pam Newbury <pknewburyearthlink (DOT) net>

Sent: Wed, April 14, 2010 11:57:18

PM

Subject: [ ] FDA

Research Study (really just a survey)

Below is the information from the FDA and the link to the survey

(this is a reposting from my previous post today). My understanding is

that their survey is what they refer to as a “research studyâ€. If you

click on the link below it will take you to the survey.

Participation just means completing the survey. Pam

<image001.jpg>

Celiac Disease

Foundation is assisting the FDA in seeking Participants for a Research

Study on Gluten-Free Claims on Food Labels and is requesting your

assistance.

The U.S. Food and Drug Administration (FDA) is seeking adults diagnosed

with celiac disease or gluten-intolerance or caregivers to such

individuals to participate in a research study on their grocery shopping

habits. Participants will be asked to take an Internet survey, which will

take approximately 10 minutes to complete.

The survey is available at www.synovate. net/forgluten

Please contact Kosa at kkosa@... or

1-800-334-8571, extension 23901, if you have any questions about the

study. To request a paper copy of the survey, please call 1-877-4GLUTN1.

From: [mailto:celiacbayar eagroups (DOT) com] On Behalf Of Ahroon Yoch

Sent: Wednesday, April 14, 2010

4:36 PM

@ groups.

com

Subject: Re: [ ] FDA

Research Study

How can we get to be a part of the study?

Sent from my iPhone

On Apr 14, 2010, at 3:15 PM, "Pam Newbury" <pknewbury@earthlink .net> wrote:

They want to know what consumers think about different ways of

labeling foods gluten-free. I think they want to know what is confusing

and what people will trust when it comes to how the gluten-free claim is

presented on a label. I don’t like how they went about it, but I’m trying

to be glad they are at least asking us what we think. I wrote a lot in

the comments section at the end….

Pam

_