help

[Guest guest]

Thanks Jan for the lovely note!!!and thanks to all of you who sent me words

of encouragement...I do feel trully lost. Between the RA getting terribly

bad and pain medication not working(just went through my 2nd foot fusion on

the same foot-different joint!) and the fact that my significant other (a

R.N.) dumped me after 10 yrs...I am physically, emotionally and financially

destroyed...

Sorry for the downer...I am so unlike this but trying to do for myself now

alone is more than anyone deserves.....Plus we moved to Az for my health and

my family is back east....so support is little or none. Sadly he being a RN,

he knew exactly what the disease was and guess he couldn't handle it. And

unfortunaelty without 2 incomes I can't get the treatment or medication

needed. I just wonder how he sleeps at night!!!Sorry but my heart is broken

in addition tomy body..

Joanne

[Guest guest]

Hi

Thanks! I am already on Oxycontin 20 mg 2x day....and another medication

for break thru pain...NOT TOUCHIN IT!! I see the Internist today(no

rheumatologist whereI live) so I will talk with him

Joanne

[Guest guest]

Joanne: Sweetie, I am so sorry about your significant other, SHAME ON HIM.

As a RN he knows about RA and the ramifications of the disease, he is just

not man enough to live with it and believe me, you are better off without

him. I know how difficult it is to try get the medicines you need. Thought

I am married, I am responsible for my own medications, etc. as my husband

had his own bills when we got married. However, Al is very considerate to me

and understands RA. He knows there are days when I can barely move and he

pitches in and helps. Maybe the age difference of 20 yrs has something to do

with it.

Has anyone told you about the Medicine Program where you can try to get some

of your meds free. Also, a lot of drug companies have a program for giving

meds to people who can't afford them. I get my Prilosec free and that saves

about $90 a month. I was just dx'd with Asthma recently and have to use a

nebulizer twice a day and the Albuteral is very expensive and one of the few

meds that Medicare pays for and they have a program where you can ask for an

exemption, if you can't afford to pay. You can go to themedicineprogram.com

and download a form. It might be worth a try for you.

Don't let the events in your life get you down. Just remember, you are a very

special person, and there are a lot of people here who understand and care

about you. Keep your spirits up, though it is okay to cry, throw things or

scream, I know I have done all these more times than I care to think about.

Talk with you soon.

Jan

[Guest guest]

Dear Joanne,

I wish I could be with you to give you a hug and to

let you know in person, that even though it may not

seem that way, you're not alone. And as for your

" significant other " , if he, as an RN can't be there

for the person who needs his support the most, he's

not worth your little finger! And it makes me wonder

how good a nurse he was in the first place. I have a

medical background and can't belief how you've been

treated. Now's the time to concentrate on you and you

alone. Try to keep your chin up and remember there

are a whole lot of people, plus God, on your side.

B. in MD

--- boop <boop@...> wrote:

> Thanks Jan for the lovely note!!!and thanks to all

> of you who sent me words

> of encouragement...I do feel trully lost. Between

> the RA getting terribly

> bad and pain medication not working(just went

> through my 2nd foot fusion on

> the same foot-different joint!) and the fact that my

> significant other (a

> R.N.) dumped me after 10 yrs...I am physically,

> emotionally and financially

> destroyed...

>

> Sorry for the downer...I am so unlike this but

> trying to do for myself now

> alone is more than anyone deserves.....Plus we moved

> to Az for my health and

> my family is back east....so support is little or

> none. Sadly he being a RN,

> he knew exactly what the disease was and guess he

> couldn't handle it. And

> unfortunaelty without 2 incomes I can't get the

> treatment or medication

> needed. I just wonder how he sleeps at

> night!!!Sorry but my heart is broken

> in addition tomy body..

>

> Joanne

>

>

__________________________________________________

[Guest guest]

Nacy,

Thank you so much for your kindness..Not only was he a nurse but a nursing

instructor in Pa & NJ......great compassion HUH? but may he never need

someone when he is ill and receive the same treatment.....

It gets better...I just returned from the Internist and he said he has no

other treatment to offer me because I cannot afford what is out

there...Imazing....I worked in the medical field for 25 yrs.....and that is

a sad state of affairs in this country when you are better off pregnant, 16

yrs old and unmarried to get all of the benefits you need rather than myself

who worked all of my life and can get no help now...And I worked for a

hospita!!I just can't help but think it can't get any worse.

My home is now for sale in AZ due to medical debt and I am considering

returning to PA to be near family....Feel terribly lost

Thanks again for you kind words...it keeps me from doing something

desperate!

Joanne

[Guest guest]

Joanne: Be careful of the Oxycondin as I know it is very habit forming. Are

you taking anything for depression? I hear the frustration in your voice and

I worry about you not " being able to handle it " alone. You might want to

consider talking to your dr about giving you something to help you cope.

Depression comes with the pain and the changes in your daily living habits

that RA puts on you. You basically have a life style change and you have been

through so much with the break up with your friend. If it really gets too

bad, please see your doctor about some help. I guess I am super sensative to

picking up on depression as I am manic/depressive and I hate to see anybody

get so depressed that it gets ahold of them. Just for your consideration and

said with concern.

By the way, how old are you, I may have missed that part. I will be thinking

about you and praying for you. Take care and hope tomorrow is a painfree and

brighter day for you. God Bless.

Jan

[Guest guest]

Thanks Jan,

I do get oxycontin from Purdue free and I will also check the site you gave

me..I am more afraid right now that I have lost the will to try

anymore....the fight seems to much for me to handle alone although I do say

lots of prayers for myself and all of you who I know are suffering too.

One time, a rheumatologist told me RA only happens to nice people and I

truly believe that....only it is so unfair!!!

thanks for your good thoughts

Joanne

[Guest guest]

Hi Jan

I am 51 yrs old and have been on Wellbutrin for a short time..You are right

about the depression...it many times comes with the disease as a result of

the pain. but you did pick up on it...it is severe this time.

Jan, I have been on it all in 18 yrs.....I even went to California in 1998

to be treated by a rheumatologist there who was touting the antibiotic

therapy for RA, Lupus, etc.....which I did for 18 mo....even iv's...but it

did not work and many people in serious shape were defeated once again...It

also of course cause a great deal of debt as a result.....the frustration

in my voice is exactly that....But it is people like yourself that keeps me

breathing. I am trying.....

Bless you also

Joanne

[Guest guest]

Joanne,

I am so sorry that your husband did such a rotten thing to

you. It would seem that someone in his profession would

never do such a thing. I hope he is at least paying you

support.

It seems wrong that someone that has dedicated their life to

helping others is now in your position. Jan has told you

about the medicine program, and I'll send in a few more

links to assistance programs. I'm glad to hear that you are

considering moving back with your family. If I were in your

shoes, I would do the same thing. Right now things seem

unbearable, but once you're around people that love you,

things will get better. It's just hard to see the light at

the end of the tunnel when you're so upset.

hugs,

a

[Guest guest]

Joanne,

I certainly feel your pain, and I have only just begun fighting the

fight. For 3 years I didn't know what was wrong (but I suspected RA

from the beginning, I just didn't have all the symptoms, yet). the

past 7 months have been spent finding a drug that will work for me and

not kill me. I also have Fibromyalgia, which set in a couple months

after my RA got really bad. Thought it was under control, but the

Elavil seems to have stopped working. And of course thew RA is also

chiming in again. (had an almost 10 day reprieve) Not currently

taking anything for the RA. Waiting for my liver to get right again.

It was really getting me depressed, one let down after another. Here

I was finally diagnosed, thinking finally some hope only for one drug

after another to fail. Doesn't seem like there is a light at the end

of the tunnel. Sometimes it is just knowing that there are people out

there going through the same thing, that I can chat with and get

encouragement from, that keeps me going.

I'm so sorry you are going through it, hang in there and don't leave 5

minutes before the miracle. If you leave (give-up) you might miss it.

> Hi Everyone,

> I just want to thank you for your concern....and support. It was

good to see

> your emails this morning

>

> I will admit after 18 yrs of RA, fibromyalgia, Raynauds,and the

resulting

> pain...crippling that I see that .I am losing the will to fight it

anymore.

> How I once laughed at everything....now there are tears....I

understand that

> depression is a large part, as a result of these diseases ...but I

am so

> tired of the fight to keep going...I am on medication to help with

the

> depression but it is obviously not working...

>

> I think I have tried every RA medication available(almost) and I am

out of

> options.....money wise...I have even gone to California to do the

antibiotic

> therapy, which I did for 18 months...and that was a rheumatologist

getting

> rich off of people in pain....Now he is on the elevision selling

some other

> product.

> II have no Rx coverage!!so you can imagine my debt...

>

> Also it seems impossible to fight this disease and take care of

myself

> living alone. The majority of my family is in PA and I am in AZ..

>

> I feel dead inside and don't know where to turn......

> So sorry for being a downer...I am not usually that way...I am

usually

> giving the upbeat conversations....I have taught the Arthritis

Foundation

> seminars on Fibromyalgia!! Just losing hope I think

>

> How do we stay independant and take care of ourselves? It scares me

to

> death thinking how I am going to dress myselff in a few years..

> Thanks ...tears,

[Guest guest]

Dear Joanne,

You poor thing. I understand what your going through, Two

years ago my husband of 20 years walked in and said he

didn't want to be married anymore and had already rented a

place an hour away...Well, It was a horribly rough first

year BUT,,,,Even being diagnosed with Fibro, RA, Lupus,

Stuff Life has gotten better and better without Him. I've

met someone else, named -and we've been together for a

wonderful year. He drives me to Drs Appts and goes in and

asks questions and nurses me on bad days. So there is hope.

I've rediscovered my spirituality, and tried to focus on MY

needs. I'm still learning and growing and you will too. Try

and think positive-We are all here for you, and won't let

you down. Liz

Re: [ ] Help

> Thanks Jan for the lovely note!!!and thanks to all of you

who sent me words

> of encouragement...I do feel trully lost. Between the RA

getting terribly

> bad and pain medication not working(just went through my

2nd foot fusion on

> the same foot-different joint!) and the fact that my

significant other (a

> R.N.) dumped me after 10 yrs...I am physically,

emotionally and financially

> destroyed...

>

> Sorry for the downer...I am so unlike this but trying to

do for myself now

> alone is more than anyone deserves.....Plus we moved to Az

for my health and

> my family is back east....so support is little or none.

Sadly he being a RN,

> he knew exactly what the disease was and guess he couldn't

handle it. And

> unfortunaelty without 2 incomes I can't get the treatment

or medication

> needed. I just wonder how he sleeps at night!!!Sorry but

my heart is broken

> in addition tomy body..

>

> Joanne

>

>

>

[Guest guest]

Thanks a!

No he was not my husband but we were together for 10 yrs and no of course

no support when you are not married. He is living well in fact and has

plently of income (he is retired) and I am fighting to stay alive. It

hurts that another human being can do that to you....I could never leave

someone ill if I was their partner no matter what it was...but he obviously

could......It is devastating as (I thought)he was with me for the long haul.

as he said he was. We bought a house together and It is not like he is a

kid...he is 65...so I just don't understand how he can sleep at night. May

God forgive him because I can't..!

thanks

Joanne

[Guest guest]

Dr. Callahan of the Callahan Eye Foundation in Birmingham. He will be performing my daughters surgery next year. Her name is Jordan, she is five. She has had one surgery when she was 15 months old, that was performed by Dr. Cogen, also of the Callahan Eye Foundation. He is her optomologist, he perscribed glasses for her. She has mild astigmatism, not caused be blephs. He did a wonderful job. He lifted her eyes and created a fold. She is very intelligent, which is usually common in children with blephs. My husband has three children from a previous marriage, two which have blephs, both are straight A students, and i have two by a previous marriage, and we have Jordan together. My husband also has blephs. He had surgery over twenty four years ago. The Dr. who performed his surgery was Alston Callahan. Dr. Callahan's father. They are wonderful. Dr. Cogen's phone number is 205 325-8620. He can help you. I live in Tuscumbia, Alabama. Hope this helps.

blepharophimosis Help

We were hoping that some of you would recommend Dr.s. We live in central Florida and noone around here has any experience with this. We want a surgeon who had had experience. We are willing to travel to a bigger city. Like Atlanta GA or Mobile AL. Any ideas would be appreciated. Thanks!Hope

[Guest guest]

Thank you so much! I have family in Birmingham so we would

have a place to stay.

Hope

On Wed, 23 Apr 2003 21:39:18 -0500

Kim Beaver <kbeaver@...> wrote:

> Dr. Callahan of the Callahan Eye Foundation in

> Birmingham. He will be performing my daughters surgery

> next year. Her name is Jordan, she is five. She has had

> one surgery when she was 15 months old, that was

> performed by Dr. Cogen, also of the Callahan Eye

> Foundation. He is her optomologist, he perscribed

> glasses for her. She has mild astigmatism, not caused be

> blephs. He did a wonderful job. He lifted her eyes and

> created a fold. She is very intelligent, which is

> usually common in children with blephs. My husband has

> three children from a previous marriage, two which have

> blephs, both are straight A students, and i have two by a

> previous marriage, and we have Jordan together. My

> husband also has blephs. He had surgery over twenty four

> years ago. The Dr. who performed his surgery was Alston

> Callahan. Dr. Callahan's father. They are

> wonderful. Dr. Cogen's phone number is 205

> 325-8620. He can help you. I live in Tuscumbia,

> Alabama. Hope this helps.

> blepharophimosis Help

>

>

> We were hoping that some of you would recommend Dr.s.

> We live in

> central Florida and noone around here has any

> experience with this.

> We want a surgeon who had had experience. We are

> willing to travel

> to a bigger city. Like Atlanta GA or Mobile AL. Any

> ideas would be

> appreciated. Thanks!

> Hope

>

>

>

[Guest guest]

In addition to exploring your options in getting your implants removed, read the book "The Yeast Connection" . . . or one of the books in that category . . .

And . . . read "Patient Heal Thyself . . . available at health food stores, or you can read a very comprehensive review at www.primaldefense.com . . . Rubin's premise is that due to modern farming via chemicals, modern sanitary food processing, chlorinated water, antibiotics, and toxins (breast implants), the beneficial bacteria in our body is being killed off . . . This allows the bad bacteria (candida) to get the upper hand. . . causing a systemic problem. . . He recommends a product to restore that bacteria. In addition to products like those suggested in the book, eating raw, crushed garlic, acidopholis, yogurt are helpful . . . Sugar and white bread is out!

Understanding and working on the candida problem should stop your IBS problems!

I've tried a couple of the products - Fungal Defense and Primal Defense. After years of trying various products, I think these are the best. . . . I have to confess that, while I can omit sugar, I have a very hard time following the diet recommended for candida.

Rogene

c_bergman_2000 <c_bergman_2000@...> wrote:

I was implanted with saline breast implants in Sept of 1998 at age 36. I enjoyed good health all my life until recently. Over the past 2 years, my health has progressively gotten worse. I have been diagnosed with Irritable Bowel Syndrome and am taking medication for that. I also have really bad joint pain and swelling in my ankles, knees, wrists and hands. I am taking medication for that too. I have gained about 25 pounds that I can't lose not matter what. I feel too fatigued to exercise most days. I have numbness and tingling in my hands and feet sometimes. I need to know what my options are and where I can go for help. Any information would be appreciated.

[Guest guest]

I dont know if this will help but I got this from a lab report I had done. The clinical significance of each lympocyte markers namely cd3,cd19,cd4,cd8.cd15+56 and cd26(ta1) are as follows: Decreased numbers of cd3+(tcells) lympocytes are found in patients with autoimmune disorders including ms,systemic lupus and eczema and also thymic aplasia (digeorge syndrom). also low numbers of cd16+56 cells are found in patients with CFIDS. I dont know if it will help or if it is the same lyompocytes involved .

[Guest guest]

Hi KC,

Just post it to the group, and I will set up the file for you. It is mostly a cut and paste job for me!

Looking forward to hearing from you and how your life has been affected by your implants. Hope we can help...

Patty

----- Original Message -----

From: krystina_crawford

Sent: Monday, July 28, 2003 6:11 PM

Subject: help

Hi there,I would like to share my story of breast augmentation + problems. How do I submit my story so it is in the "files" category?thanxKC

[Guest guest]

Just send any stories and or photos to either Patty or me (carrie)

and we can get them up there for you.

Hugs

In , " krystina_crawford "

<krystina_crawford@y...> wrote:

> Hi there,

>

> I would like to share my story of breast augmentation + problems.

> How do I submit my story so it is in the " files " category?

>

> thanx

> KC

[Guest guest]

<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<,

My niece has an enlarged liver, mild pancreatitis, gallbladder

problems, reflux, and gout. She is in big trouble. I am in the

process of changing her diet with some success. Due to all the

problems she has and the diet restrictions from her MD, she is almost

down to just air and water:-(

She wants to come off all her medications and go to herbal remedies.

We are looking for a liver detox that will not trigger the reflux.

Currently using milk thistle and beet. using slippery elm to help

with digestive problems...elm not working very well at present.

I also wonder about colloidal silver---does anyone know the effects

CS may have on the liver/GI tract? (helpful or toxic to liver?)

thanks to anyone who can offer help...la

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

It may be that she has food allergies and just hasn't been checked on that

possibility. If she's eaten lots of white flour products, as most of us have

growing up in an advanced society as ours, there is a strong likelihood of an

allergy to that, which is most notable from a GERD reaction anywhere from 45

minutes to two hour after a meal with some form of it.

The next possible problem can relate to milk. So, the first things I would

suggest would be no wheat, no milk, and then no aspartame.

Things to take in would be to start drinking a lot of water. Adding to that

would be essential fatty acid supplements, Lecithin and taurine would be high on

that list. Of the taurine only 500mg a day or less would certainly work towards

getting a better bile going along with the essential fatty acids to feed the

liver what it needs so desperately.

There is plenty of extra information on this.

The use of colloidal silver would be for an ulcer or some other type of

bacterial or viral infection. However, it is fine as an extra supplement to help

in avoiding diseases and will not hurt the liver at all. I have made lots of it

over the years for my family, friends and myself and can assure you of its

benefits.

Dale

[Guest guest]

It sometimes takes a couple of weeks before some people sleep properly

after starting LDN. If after two or three weeks you are not sleeping well

at night you might want to reduce your dosage.

B.

Original Message:

-----------------

From: cheystay c_chey@...

Date: Wed, 07 Jan 2004 12:01:18 -0000

low dose naltrexone

Subject: [low dose naltrexone] HELP

<html><body>

<tt>

I'm on LDN fot 5 days now and I'm soooo tired. Wanna sleep all day. <BR>

Have no energy to do anything. Is that normal? Will it pass?<BR>

<BR>

Chey<BR>

<BR>

</tt>

<br>

<tt><hr width= " 500 " >

<b>

[Guest guest]

Now let me see if I got this right. And please feel free to correct me anyone.Since ldn.blocks the opiod receptors for the time it is in your system,fooling your body into believing you need more "T" cells to do the job the ones you have now arn't doing, then any good or bad results will happen around 6:00 am. Any quick reaction is either the filler or the "placebo" effect, right? Man I hate typing "Placibo effect"mainly cause we went around on that one a month ago. I think I am on the right track but need confirmation. Reg.

-------Original Message-------

From: low dose naltrexone

Date: 01/24/04 07:58:59

low dose naltrexone

Subject: [low dose naltrexone] help

Started LDN 3 nights ago. Noticed improvement in a general way, very sleepy and woke rested the first night. Problem is with stiffness, muscle spasms and spasticity. Woke up the first night with mild symptoms but they have been worse every night, last night had trouble breathing. Symptoms start about 1 hour after taking med, and last for maybe 2 hours. After that I sleep great, which is very rare. Think I may be having allergic reaction to the filler, using Calcium. Need to stop LDN for now, don't want to have a worse reaction, but think it is helping. Please write if this has been your experience, or if you think I should try a particular filler.Thanks,F.

[Guest guest]

If that’s true I have to ask then why on Dec 31st

after taking 1.5 mg for a week and within an hour of taking my 3mg caplet did

my left leg come back to what it was prior to the attack.. how was I able to

walk without help? It was all in my mind? And if that’s the case why did

that not happen with Avonex supplements or Teriflunomide? What is it about LDN’s

placebo effect if that’s what is suggested that makes it better than the

others????

Inquiring mins wanna know! LOL

From: Reg Kreil

[mailto:regkreil@...]

Sent: Saturday, January 24, 2004

12:00 PM

low dose naltrexone

Subject: Re: [low dose naltrexone]

help

Now let me see if

I got this right. And please feel free to correct me anyone.Since ldn.blocks

the opiod receptors for the time it is in your system,fooling your body into

believing you need more " T " cells to do the job the ones

you have now arn't doing, then any good or bad results will

happen around 6:00 am. Any quick reaction is either the filler or the

" placebo " effect, right? Man I hate typing " Placibo

effect " mainly cause we went around on that one a month ago. I think

I am on the right track but need confirmation. Reg.

-------Original

Message-------

From: low dose naltrexone

Date: 01/24/04 07:58:59

low dose naltrexone

Subject:

[low dose naltrexone] help

Started LDN 3 nights ago. Noticed improvement in

a general way, very sleepy and woke rested the first night. Problem is with

stiffness, muscle spasms and spasticity. Woke up the first night with mild

symptoms but they have been worse every night, last night had trouble

breathing. Symptoms start about 1 hour after taking med, and last for maybe 2

hours. After that I sleep great, which is very rare. Think I may be having

allergic reaction to the filler, using Calcium. Need to stop LDN for now,

don't want to have a worse reaction, but think it is helping. Please write if

this has been your experience, or if you think I should try a particular

filler.

Thanks,

F.

Groups Links

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____________________________________________________

IncrediMail - Email has finally evolved - Click Here

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To

visit your group on the web, go to:

low dose naltrexone/

To

unsubscribe from this group, send an email to:

low dose naltrexone-unsubscribe

Your

use of is subject to the Terms of Service.

[Guest guest]

Dr. B has always used lactose filler. When I questioned him about using Cal. Carb. he said that he is somewhat lactose intolerant and the lactose is so small an amount it should not make a difference. The pharmacy he recommends IRMAT , has made CC filler for me without questioning it. I am now using lactose again and am fine with it.

I did not get the impression that Dr. B thinks only lactose works, I just think this is what he has always used( even on himself) He must base his results on the LDN + lactose filler because he is most familiar with results from that combo. Kiki

[Guest guest]

I wanna know too,,, Lets see is it cause it's taken orally no needles? If that were the case then those little pink pills the doc gave me should have worked for my bladder but they were ineffective to say the least.(Lots of embarrasment here) . Why did that annoying scalded feeling on my arm and side leave? Why can't I walk right yet? Why am I Still soooo dizzy? When did I decide the placibo effect was done?

Is my pharmacy making every dose the same as the last one? I guess we will never know the answers, but until then I guess each person will react different and who are we to ask why? lets just revel in our new found freedom!

Oh by the way I think I am well enough now to go on a week long trip to Vancouver, by car! We will see by April if I still want to. That will be the first time since my retirement due to M.S. that I have felt like leaving for a long trip. Reg.

-------Original Message-------

If that’s true I have to ask then why on Dec 31st after taking 1.5 mg for a week and within an hour of taking my 3mg caplet did my left leg come back to what it was prior to the attack.. how was I able to walk without help? It was all in my mind? And if that’s the case why did that not happen with Avonex supplements or Teriflunomide? What is it about LDN’s placebo effect if that’s what is suggested that makes it better than the others????

Inquiring mins wanna know! LOL

From: Reg Kreil [mailto:regkreil@...] Sent: Saturday, January 24, 2004 12:00 PMlow dose naltrexone Subject: Re: [low dose naltrexone] help

Now let me see if I got this right. And please feel free to correct me anyone.Since ldn.blocks the opiod receptors for the time it is in your system,fooling your body into believing you need more "T" cells to do the job the ones you have now arn't doing, then any good or bad results will happen around 6:00 am. Any quick reaction is either the filler or the "placebo" effect, right? Man I hate typing "Placibo effect"mainly cause we went around on that one a month ago. I think I am on the right track but need confirmation. Reg.

-------Original Message-------

From: low dose naltrexone

Date: 01/24/04 07:58:59

low dose naltrexone

Subject: [low dose naltrexone] help

Started LDN 3 nights ago. Noticed improvement in a general way, very sleepy and woke rested the first night. Problem is with stiffness, muscle spasms and spasticity. Woke up the first night with mild symptoms but they have been worse every night, last night had trouble breathing. Symptoms start about 1 hour after taking med, and last for maybe 2 hours. After that I sleep great, which is very rare. Think I may be having allergic reaction to the filler, using Calcium. Need to stop LDN for now, don't want to have a worse reaction, but think it is helping. Please write if this has been your experience, or if you think I should try a particular filler.Thanks,F.

[Guest guest]

Wahooo hope you feel like it and can do it Reg!!! I’ll

be prayin’ for ya!

From: Reg Kreil

[mailto:regkreil@...]

Sent: Saturday, January 24, 2004

3:02 PM

To:

low dose naltrexone

Subject: RE: [low dose naltrexone]

help

I wanna know

too,,, Lets see is it cause it's taken orally no needles? If that were the

case then those little pink pills the doc gave me should have worked for my

bladder but they were ineffective to say the least.(Lots of embarrasment

here) . Why did that annoying scalded feeling on my arm and side leave?

Why can't I walk right yet? Why am I Still soooo dizzy? When did I

decide the placibo effect was done?

Is my pharmacy

making every dose the same as the last one? I guess we will never know the

answers, but until then I guess each person will react different and who are

we to ask why? lets just revel in our new found freedom!

Oh by the way I

think I am well enough now to go on a week long trip to Vancouver, by car! We will see by April if

I still want to. That will be the first time since my retirement due to M.S.

that I have felt like leaving for a long trip. Reg.

-------Original

Message-------

If that’s true I have to

ask then why on Dec 31st after taking 1.5 mg for a week and within

an hour of taking my 3mg caplet did my left leg come back to what it was

prior to the attack.. how was I able to walk without help? It was all in my

mind? And if that’s the case why did that not happen with Avonex

supplements or Teriflunomide? What is it about LDN’s placebo effect if

that’s what is suggested that makes it better than the others????

Inquiring mins wanna know! LOL

From: Reg Kreil [mailto:regkreil@...]

Sent: Saturday, January 24, 2004

12:00 PM

low dose naltrexone

Subject: Re: [low dose naltrexone]

help

Now let me see

if I got this right. And please feel free to correct me anyone.Since

ldn.blocks the opiod receptors for the time it is in your system,fooling

your body into believing you need more " T " cells to do

the job the ones you have now arn't doing, then any good or bad results

will happen around 6:00 am. Any quick reaction is either the filler or

the " placebo " effect, right? Man I hate typing " Placibo

effect " mainly cause we went around on that one a month ago. I

think I am on the right track but need confirmation. Reg.

-------Original Message-------

From: low dose naltrexone

Date:

01/24/04 07:58:59

low dose naltrexone

Subject:

[low dose naltrexone] help

Started LDN 3 nights ago. Noticed improvement

in a general way, very sleepy and woke rested the first night. Problem is

with stiffness, muscle spasms and spasticity. Woke up the first night with

mild symptoms but they have been worse every night, last night had trouble

breathing. Symptoms start about 1 hour after taking med, and last for maybe

2 hours. After that I sleep great, which is very rare. Think I may be

having allergic reaction to the filler, using Calcium. Need to stop LDN for

now, don't want to have a worse reaction, but think it is helping. Please

write if this has been your experience, or if you think I should try a

particular filler.

Thanks,

F.

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