RE: Thryoid Disorder and Celiac Disease

[Guest guest]

I had a thyroid issue, Graves Disease, prior to CD diagnosis.On Mar 8, 2010, at 12:26 PM, catchrenee wrote:Hi All,I was wondering if any of you have had thyroid issues pop up after your celiac diagnosis (or during).I just kinda wanted to take a poll and see how common it was.Thanks Everyone.

[Guest guest]

Hashimoto's Disease (thyroid disorder) and CD both are autoimmune disorders. People who have one AD are at increased risk of developing another.

I've heard a great many people say they have both.

You might find it interesting to look up the prevalence figures for HD (I can't remember it right now). We know that for CD it's about 1%.

H.

-----Original Message-----

From: catchrenee <catchrenee@...>

Sent: Mon, Mar 8, 2010 12:26 pm

Subject: [ ] Thryoid Disorder and Celiac Disease

Hi All,

I was wondering if any of you have had thyroid issues pop up after your celiac diagnosis (or during).

I just kinda wanted to take a poll and see how common it was.

Thanks Everyone.

[Guest guest]

I’m hypothyroid.

From: [mailto: ] On Behalf Of Harper

Sent: Monday, March 08, 2010 4:17

PM

Subject: Re: [ ]

Thryoid Disorder and Celiac Disease

Hashimoto's Disease

(thyroid disorder) and CD both are autoimmune disorders. People who have one AD

are at increased risk of developing another.

I've

heard a great many people say they have both.

You

might find it interesting to look up the prevalence figures for HD (I can't

remember it right now). We know that for CD it's about 1%.

H.

-----Original

Message-----

From: catchrenee <catchreneegmail>

Sent: Mon, Mar 8, 2010 12:26 pm

Subject: [ ] Thryoid Disorder and Celiac Disease

Hi

All,

I was wondering if any of you have had thyroid issues pop up after your celiac

diagnosis (or during).

I just kinda wanted to take a poll and see how common it was.

Thanks Everyone.

[Guest guest]

My mother, who has Celiac, also has Hashimotos. She's known about the Hashimotos for years, but the Celiac was only diagnosed last year when I took her to see new doctors in the Bay Area rather than in the Central Valley where she lives (her old doctors had never heard of Celiac Disease). She's 70 years old but has been so ill that she's been bedridden for the past 10 years and survived on "Boost" only, as per her doctor's recommendations, for the last 3 years. Now that she is gluten free she is able to eat solids again and *some* of her symptoms have gone away or improved.

[Guest guest]

I'm very sorry to hear about your mother's situation. Somehow I assume that by now, doctors routinely think about CD. Unfortunately that wasn't the case for your mother. What a great pity.

I hope her bones aren't affected by malabsorption. Has she had a bone density scan, looking for osteoporosis?

Best wishes.

H.

-----Original Message-----

From: Dany <miscetc01@...>

Sent: Mon, Mar 8, 2010 5:22 pm

Subject: Re: [ ] Thryoid Disorder and Celiac Disease

My mother, who has Celiac, also has Hashimotos. She's known about the Hashimotos for years, but the Celiac was only diagnosed last year when I took her to see new doctors in the Bay Area rather than in the Central Valley where she lives (her old doctors had never heard of Celiac Disease). She's 70 years old but has been so ill that she's been bedridden for the past 10 years and survived on "Boost" only, as per her doctor's recommendations, for the last 3 years. Now that she is gluten free she is able to eat solids again and *some* of her symptoms have gone away or improved.

[Guest guest]

Even doctors here in the Bay Area proper don't know about it. Recently, my wife (she had Graves Disease (treated with radioactive iodine)) asked to be screened for gluten intolerance, and her doctor didn't know what she was talking about. I had to relay information to the doctor about what tests she needed to have done for screening. As it is, he wrote a scrip for " anti-gluten " testing, though I had told him " anti-gliadin " (even spelling it twice). When she goes in for her blood test, she'll take a copy of my results to ensure that she gets the correct tests done (IgA, IgG and TtG).

When I was diagnosed a few months ago, it was because my rheumatologist was the one who requested the blood tests. Evidently, according to my nutritionist, they're getting a lot more diagnoses from the Rheumatology department than the GI department these days.

On Mon, Mar 8, 2010 at 5:41 PM, Harper <flatcat9@...> wrote:

I'm very sorry to hear about your mother's situation. Somehow I assume that by now, doctors routinely think about CD. Unfortunately that wasn't the case for your mother. What a great pity.

I hope her bones aren't affected by malabsorption. Has she had a bone density scan, looking for osteoporosis?

Best wishes.

H.

[Guest guest]

I think, if I remember correctly, at the

2006 Stanford Celiac Conference, someone mentioned they get more diagnoses from

Osteoporosis docs than GI’s!

From: [mailto: ] On Behalf Of Bulloch

Sent: Monday, March 08, 2010 10:11

PM

Subject: Re: [ ]

Thryoid Disorder and Celiac Disease

Even

doctors here in the Bay Area proper don't know about it. Recently, my

wife (she had Graves Disease (treated with radioactive iodine)) asked

to be screened for gluten intolerance, and her doctor didn't know what she was

talking about. I had to relay information to the doctor about what tests she

needed to have done for screening. As it is, he wrote a scrip for

" anti-gluten " testing, though I had told him " anti-gliadin "

(even spelling it twice). When she goes in for her blood test, she'll take a

copy of my results to ensure that she gets the correct tests done (IgA, IgG and

TtG).

When I was diagnosed a

few months ago, it was because my rheumatologist was the one who requested the

blood tests. Evidently, according to my nutritionist, they're getting a lot

more diagnoses from the Rheumatology department than the GI department these

days.

On Mon, Mar 8, 2010 at 5:41 PM, Harper <flatcat9aol> wrote:

I'm very sorry to hear about your

mother's situation. Somehow I assume that by now, doctors routinely think about

CD. Unfortunately that wasn't the case for your mother. What a great pity.

I hope her bones aren't affected by malabsorption. Has she had a bone density

scan, looking for osteoporosis?

Best wishes.

H.

[Guest guest]

That's not surprising. Rheumatologists are specialist in autoimmune disorders.When I was diagnosed a few months ago, it was because my rheumatologist was the one who requested the blood tests. Evidently, according to my nutritionist, they're getting a lot more diagnoses from the Rheumatology department than the GI department these days.

[Guest guest]

Yep, Hashimoto's. Found out about it prior to Celiac, however, I actually think

the Celiac was there first and I just didn't know.

S

>

> Hi All,

>

> I was wondering if any of you have had thyroid issues pop up after your celiac

diagnosis (or during).

>

> I just kinda wanted to take a poll and see how common it was.

>

> Thanks Everyone.

>

[Guest guest]

I went GF almost 2 years ago. At the time of diagnosis, I was having so many

thyroid symptoms that my dr. tested my thyroid -- the results were normal at

that time (and also when retesting a year later). However, my symptoms continued

& recently I have tested positive to hypothyroid. Go figure -- 2 years later?

My question to all of you is -- have any of you who are hypothyroid found that

your condition has reversed over the years on a GF diet? Are any of you now off

thyroid meds?

Many thanks.

>

> Hi All,

>

> I was wondering if any of you have had thyroid issues pop up after your celiac

diagnosis (or during).

>

> I just kinda wanted to take a poll and see how common it was.

>

> Thanks Everyone.

>