follow-up appointment

[Guest guest]

Tim How old wer you when this started? Tell me about side affects Did you go back to work If so how lond were you off? Did anything change for you taste smell feeling in the face

Follow-up Appointment

I had my 3 week post-op follow-up this morning. The doctor examined my ear and then did the suction/vacuum thing. I was a little nervous to have this done; I thought it might be painful. Well, it wasn't painful at all! It was a little weird to hear the suctioning going on, but it wasn't uncomfortable. There was a piece of that dreaded packing down in there still, and that came out via the suction with no problem. I was VERY dizzy for about 30 seconds after the cleaning was over. My doctor told me that everything looks like it is healing great. This made me feel at ease, because I was afraid that I went back to exercising/lifting weights too soon (1 & 1/2 weeks post-op). I have to keep applying the cortisporin ointment daily for another month until I see him again in a month. I have some pictures of my ear that I have been meaning to post here. I should have them up tomorrow. Take care, and good luck to everyone.Tim

[Guest guest]

Hi Everyone,

I'm very newly diagnosed with CD... This site has been a great source of

information, but being a newbee, I still have so much to learn. Next week I'm

having my first appointment with the GI at Kaiser (Dr Sun) following my

endoscopy (which was positive). I'm just so thankful that my primary doctor

listened to me when I asked for the blood test and let me get it. Six months ago

I didn't even know what celiac disease was, but my cousin told me about her

coworker with celiac and their story seemed so closely related to mine- anemia

and migraines that never went away not matter what i tried...

I've already met with the nutritionist which was great. But I'm trying to put

together a list of questions/concerns for my GI. What kinds of follow-up tests

are standard after diagnosis? I'm in my mid-twenties, have had severe anemia for

over 10 years, and migraines my entire life, oh and a rash on my elbows which

might be DH but was diagnosed by a dermatologist as something non-specific. Its

frustrating to think I have been going to specialists for over 10 years and

noone could put two and two together. So I think there could be some

nutritient-deficiencies other than just iron. Is it common to have a bone

density scan after diagnosis? And other blood work to check for other nutritient

deficiences? Can anyone suggest what they've had done? I think I am in good

hands, but I also think it's a good idea to play an active role in my health

care and make sure I'm getting everything checked out!

I'm the first in my family to be diagnosed.. but other celiac-related issues are

evident- my dad has an autoimmune disorder and is going to get tested for

celiac. other people in my family have thyroid issues and most women have

osteoporosis.

Thanks for suggestions, comments and help!

I hope you all have a wonderful weekend.

Alison

[Guest guest]

Good for you on every count!

Find out just how much your Kaiser GI knows about celiac. Does Dr. Sun currently treat any patients for celiac disease? If not, I urge you to respectfully decline his counsel and insist that Kaiser provide a GI WITH experience. If they can't find one that is geographically convenient, then you must insist (again) that they pay for a GI that IS celiac-savvy outside of Kaiser.

As many in this group will tell you, there are a myriad of health issues that are associated with celiac disease. A bone density scan is definitely warranted, as is a formal diagnosis for DH, as is whatever you believe you need to know about your current health. Depending on the extent of damage in your gut, an annual endoscopy may be necessary.

It's YOUR health, you be the architect of its healing path. Don't be afraid to ask Dr. Sun as many questions as you have, and press for the whys and wherefores of whatever responses you don't understand.

This is a great group. I'm glad you found us.MB----- "alisonjhughes25" <alison.j.hughes@...> wrote: >

> > > Hi Everyone,> I'm very newly diagnosed with CD... This site has been a great source of information, but being a newbee, I still have so much to learn. Next week I'm having my first appointment with the GI at Kaiser (Dr Sun) following my endoscopy (which was positive). I'm just so thankful that my primary doctor listened to me when I asked for the blood test and let me get it. Six months ago I didn't even know what celiac disease was, but my cousin told me about her coworker with celiac and their story seemed so closely related to mine- anemia and migraines that never went away not matter what i tried...> I've already met with the nutritionist which was great. But I'm trying to put together a list of questions/concerns for my GI. What kinds of follow-up tests are standard after diagnosis? I'm in my mid-twenties, have had severe anemia for over 10 years, and migraines my entire life, oh and a rash on my elbows which might be DH but was diagnosed by a dermatologist as something non-specific. Its frustrating to think I have been going to specialists for over 10 years and noone could put two and two together. So I think there could be some nutritient-deficiencies other than just iron. Is it common to have a bone density scan after diagnosis? And other blood work to check for other nutritient deficiences? Can anyone suggest what they've had done? I think I am in good hands, but I also think it's a good idea to play an active role in my health care and make sure I'm getting everything checked out!> I'm the first in my family to be diagnosed.. but other celiac-related issues are evident- my dad has an autoimmune disorder and is going to get tested for celiac. other people in my family have thyroid issues and most women have osteoporosis. > Thanks for suggestions, comments and help!> I hope you all have a wonderful weekend.> Alison>

>