Conference

[Guest guest]

I just got home to central NYS after attending the Conference

yesterday, combining it with a visit to my cousin who lives and works in

the NYC area (big savings for my Mastercard ). She came to the

conference with me knowing virtually nothing about LDN and went home with

the promise to that she would see if her company (who has in-house

printing) could print the 5000 copies of the LDN book. She also had the

serendipity to have been assigned to the international discussion group

in the afternoon--a terrific fit as one of her causes is working to

eliminate AIDS in Africa.

I second all I've read from the other post conference posters.

It was an inspiring and informative conference--so much packed into one

conference--so many came to present and from such distances for many.

It's a sign of the dedication and belief in LDN. As was mentioned at the

Conference, LDN is a whole different animal than most pharmaceuticals--it

is a grassroots up movement instead of from the top down.

I too want to thank Dr. Gluck and and the whole Gluck family

for both the hard work of organizing and putting on this conference (I've

organized conferences before and know how extremely time consuming they

are) and for setting up the LDN website. As someone else mentioned, the

website and this related email list is what has led to so many of us

learning about LDN and Dr. Bihari's work.

Although it is too late for my son to realize Dr. Gluck's stated

vision--that children in the future will be able to be screened for Type

1 diabetes antibodies and then those positive for it can be put on LDN

and saved from a lifetime of needle sticks--I do believe that my son will

be able, now that he is on LDN, to stay in the honeymoon period he

currently is still in and never get to the point of high insulin doses,

difficulty controlling blood sugar, and the related bodily deterioration.

And my husband is in what is considered Parkinson's honeymoon

period--early in the progression when PD symptomatic medications work

effectively. So my family now has the wonderfully positive outlook of

two continuing honeymoons instead of downward progression.

I thank all who have so generously shared their time and efforts

on spreading the word about LDN and thank Dr. Bihari, and his ever

supportive wife Jackie, for the discovery of LDN. It is and will be life

changing in such positive ways for so many of us.

Kathie

[Guest guest]

,

Please clue us in on the conference you are speaking of.

I have never heard of either Dr. Temple Grandin or Dr. Jeanette

McAfee of Eustacia, Cutler. Is this taking place in the USA?

Thanks, Michele

[Guest guest]

Thank you, Michele

[Guest guest]

Hi Michele...the Autism/Asperger's Syndrome Conference

was held yesterday, August 12th in Dixon, Illinois.

There were approx 800 people that attended...it was

awesome! Temple Grandin is the most famous person with

autism in the WORLD. She is in her late 50's and

earned her PhD in Animal Science from the University

of Illinois. She then went on to become an associate

professor at Colorado State University, and has

written several books on autism. I would recommend

that you start with 'Thinking In Pictures' because it

gives you a wonderful perspective on how people with

autism think and perceive OUR world. The second book

you should read is Emergence: Labeled Autistic by

Temple. Temple is one of the most celebrated, and

effective, animal advocates on the planet. She

revolutionized animal movement systems and spearheaded

reform of the quality of life for the world's

agricultural animals. Jeanette McAffee is a doctor who

specializes in helping children with autism acquire

social skills. The entire afternoon was devoted to

this subject alone! Eustacia Purvis Cutler is Temple

Grandin's mother. She was a wonderful speaker and

truly had a gift with words. She has also written a

book entitled 'A Thorn in My Pocket'. She talks about

how she dealt with all the doctors, Temple's

behavioral issues and her husband's denial. Next

summer Tony Attwood from Austrialia is coming to

Dixon, Illinois for the conference!!

Jan

('s wife)

--- isoaa@... wrote:

> ,

>

> Please clue us in on the conference you are speaking

> of.

> I have never heard of either Dr. Temple Grandin or

> Dr. Jeanette

> McAfee of Eustacia, Cutler. Is this taking place in

> the USA?

>

> Thanks, Michele

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

__________________________________

Stay connected, organized, and protected. Take the tour:

http://tour.mail./mailtour.html

[Guest guest]

, I had hoped to meet you in Atlanta, I hope your weren't feeling

too lousy to attend. It was an excellent conference with so much info

given that my head was spinning.Luckily almost all of the presenters had

handouts so we could go over them at a later time One thing I found

encouraging was how healthy and upbeat people seemed. The big message

of the week was to join clinical trials because there are too few people

and too many forms of CLL/SLL. I want to share that I went off my

special diet- no sugar, dairy, nightshades, fried foods, fruit only 2X

per week, andafter three days of eating all the wonderful food they had

at the conference, my stomach felt bloated and my joints ached so I am

thinking that my restrictive diet is really helping. If anyone wants

more diet details let me know.

[Guest guest]

Carole - I'm getting many good reports on the conference - very glad about

that - How was Dr. Furman? So sorry I could not attend, would have been a

disaster, was in the hospital all last week -

[Guest guest]

Does anyone know the exact dates of the conference?

-- [low dose naltrexone] Re: LDN in Canada> >> >>> >> >>Where is the next LDN Conference being held? > >> >>Peace, Donna> >> >>www.freewebs.com/lovelaugh/ > >> >>> >> >>> >> >>> >> >>> >> >> >>> > I understand the lab rat thing and i'm all this is getting> >> >>> done-hopefully at the next ldn conferance i'll be taping some very> >> >>> exciting research studies.> >> >>> > the one thing I love about LDN besides the fact that it works is > >> >>that> >> >>> it is PEOPLE POWERED -correct me if I'm wrong -i don't know any > >> >>other> >> >>> medication that people feel so passonately about.> >> >>> > i just think about my friend margaret who is sitting in a wheel > >> >>chair> >> >>> -her hands are curled up and her doctor refused period end of story.> >> >>> > to me that cruel.> >> >>> > cyndi> >> >>>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >> > >> >>

[Guest guest]

not yet -i don't think. november 2007 or somewhere around there??

cyndi

[low dose naltrexone] Re: LDN in Canada

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[Guest guest]

not 2006?

-- [low dose naltrexone] Re: LDN in Canada>>> >>>> >>>>> >>>> >>Where is the next LDN Conference being held? >>> >>>> >>Peace, Donna>>> >>>> >>www.freewebs.com/lovelaugh/ >>> >>>> >>>>> >>>> >>>>> >>>> >>>>> >>>> >>> >>>> >>>> >>> > I understand the lab rat thing and i'm all this is getting>>> >>>> >>> done-hopefully at the next ldn conferance i'll be taping some >>very>>> >>>> >>> exciting research studies.>>> >>>> >>> > the one thing I love about LDN besides the fact that it works >>is >>> >>>> >>that>>> >>>> >>> it is PEOPLE POWERED -correct me if I'm wrong -i don't know any >>> >>>> >>other>>> >>>> >>> medication that people feel so passonately about.>>> >>>> >>> > i just think about my friend margaret who is sitting in a >>wheel >>> >>>> >>chair>>> >>>> >>> -her hands are curled up and her doctor refused period end of >>story.>>> >>>> >>> > to me that cruel.>>> >>>> >>> > cyndi>>> >>>> >>>>>> >>>> >>>>> >>>> >>>>> >>>> >>>>> >>>> >>>>> >>>> >>>>> >>>> >>>>> >>>> >>>>> >>>> >> >>> >>>> >>

[Guest guest]

no there was one last april but you guys can be planning regional meetings.

jamie you live in florida right whose to say we can't have a southeast regional

meeting next winter in orlando -like in april before it gets hot after the

holidays so it won't cost so much or someplace -

cyndi

[low dose naltrexone] Re: LDN in Canada

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[Guest guest]

-- [low dose naltrexone] Re: LDN in Canada>>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >>Where is the next LDN Conference being held? >>>>>>> >>>>>>>> >>Peace, Donna>>>>>>> >>>>>>>> >>www.freewebs.com/lovelaugh/ >>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >>> >>>>>>>> >>>>>>>> >>> > I understand the lab rat thing and i'm all this is getting>>>>>>> >>>>>>>> >>> done-hopefully at the next ldn conferance i'll be taping some >>>>>>very>>>>>>> >>>>>>>> >>> exciting research studies.>>>>>>> >>>>>>>> >>> > the one thing I love about LDN besides the fact that it works >>>>>>is >>>>>>> >>>>>>>> >>that>>>>>>> >>>>>>>> >>> it is PEOPLE POWERED -correct me if I'm wrong -i don't know any >>>>>>> >>>>>>>> >>other>>>>>>> >>>>>>>> >>> medication that people feel so passonately about.>>>>>>> >>>>>>>> >>> > i just think about my friend margaret who is sitting in a >>>>>>wheel >>>>>>> >>>>>>>> >>chair>>>>>>> >>>>>>>> >>> -her hands are curled up and her doctor refused period end of >>>>>>story.>>>>>>> >>>>>>>> >>> > to me that cruel.>>>>>>> >>>>>>>> >>> > cyndi>>>>>>> >>>>>>>> >>>>>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >>>>>>>>> >>>>>>>> >> >>>>>>> >>>>>>>> >>

[Guest guest]

>> LA or Florida would be better locations.

************************************************

Not for alot of us that don't fly (especially now).

This is not a conference that has an employer subsidizing the individual's costs. Many (most) of us are on a limited income because of MS.

I think TN is a great location with the conference traveling every year to give as many people as possible a chance to attend.

cindred@...

EarthLink Revolves Around You.

[Guest guest]

- I guess that it all depends on where one lives, as to a better place

for the conference. (in L.A.)

-- In low dose naltrexone , " cindred@... " <cindred@...>

wrote:

>

>

> >> LA or Florida would be better locations.

> ************************************************

> Not for alot of us that don't fly (especially now).

> This is not a conference that has an employer subsidizing the

individual's costs. Many (most) of us are on a limited income because

of MS.

> I think TN is a great location with the conference traveling every

year to give as many people as possible a chance to attend.

> cindred@...

> EarthLink Revolves Around Yo

[Guest guest]

Now the way it works with Cyn and I is that she tells me a couple of months ahead of time that I am going someplace and what I am going to be talking about. I start my lecture notes, slides etc and give them to Adam. He makes them pretty and explains to me how to use the computer thingie. I go, she puts me up front and turns me on. I do my thing. She comes and gets me and puts me in the car and takes me home. I am very portable.

I will go to where ever, when ever. I always ask for a gazzlion dollars, but nobody has come up with it yet, so I will just keep trying.

Seriously though. Putting together one of these things is an enormous undertaking. The strategic planning is something else. Some of the speakers will probably want an honorarium, as well as travel costs. Not an unheard of thing, but has to be planned for. Weather and travel costs for the folks comming also has to be taken into account. Usually these things are covered by a big drug company. Maybe we can get some compounders together to put up some buck, but I wouldn;t hold my breath.

Anyway I am rambling, but maybe we should all think about giving some help to brenda and make this a real grass root effort.

A song for Cyndi, How about A-1A.

Skip

[Guest guest]

I was wondering why the weekday this time....thanks!

DonnaSee what's free at AOL.com.

[Guest guest]

, I will keep my fingers crossed you get the scholarship. The conferences are so wonderful and I encourage all to contact their local AF for potential scholarships. It is so worth going> I have been to many and regret I cannot go...I know quit crying, lol......

DonnaSee what's free at AOL.com.

[Guest guest]

Donna,

I’m sorry to hear that you won’t

make it to the conference. You’ll be missed by many.

For anyone who wonders about the rooms~~ the

conference is being held Sunday thru Wednesday rather than the usual Thursday

thru Sunday because of room cost. The $149 is a HUGE discount and it took a lot

of work to get the price down to that.

Liz

From: [mailto: ] On Behalf Of ajaoky@...

Sent: Friday, April 27, 2007 4:18

PM

;

ajao_young_adults

Subject: conference

I received the 2007 Juvenile Arthritis

Conference Brochure today and after looking it over I know I will most likely

NOT be attending (sob,sob). Considering it is during the week and the holiday

(july4) travel will likely be higher and the rooms alone are 149.00 + tax per

night so unless we win a lottery or the AF gives us a full scholarship (not

likely) my family wont make it and we are all a bit said. Maybe next year!

Donna

See what's free at AOL.com.

[Guest guest]

I'm with you. I really, really want to come to the conference but for our family of 6, it is A LOT of money. Makes me sad too because I am new to all of this and some of the parent session topics look fantastic. Bummed here too, Hadleyajaoky@... wrote: I received the 2007 Juvenile Arthritis Conference Brochure today and after looking it over I know I will most likely NOT be attending (sob,sob). Considering it is during the week and the holiday (july4)

travel will likely be higher and the rooms alone are 149.00 + tax per night so unless we win a lottery or the AF gives us a full scholarship (not likely) my family wont make it and we are all a bit said. Maybe next year! Donna See what's free at AOL.com.

[Guest guest]

Just a reminder to all~~

There are usually some scholarships

available from your local chapter. If you cannot afford to go on your own,

please contact your chapter office. This is especially important if you are a

newly diagnosed family or have never been to a conference.

Liz

From: [mailto: ] On Behalf Of Hadley Messner

Sent: Friday, April 27, 2007 4:32

PM

Subject: Re: conference

I'm with

you. I really, really want to come to the conference but for our family

of 6, it is A LOT of money. Makes me sad too because I am new to all of

this and some of the parent session topics look fantastic. Bummed here

too, Hadley

ajaoky@...

wrote:

I received the 2007 Juvenile Arthritis

Conference Brochure today and after looking it over I know I will most likely

NOT be attending (sob,sob). Considering it is during the week and the holiday

(july4) travel will likely be higher and the rooms alone are 149.00 + tax per

night so unless we win a lottery or the AF gives us a full scholarship (not

likely) my family wont make it and we are all a bit said. Maybe next year!

Donna

See what's free at AOL.com.

[Guest guest]

Don't feel bad Donna, we may not get to attend either. We have applied for a scholarship with our local AF, but if we don't get a full one, we won't be able to attend either. Just think positive though and maybe it will happen. Who knows! Right, doesn't hurt to wish for it and maybe, just maybe it will happen.

conference

I received the 2007 Juvenile Arthritis Conference Brochure today and after looking it over I know I will most likely NOT be attending (sob,sob). Considering it is during the week and the holiday (july4) travel will likely be higher and the rooms alone are 149.00 + tax per night so unless we win a lottery or the AF gives us a full scholarship (not likely) my family wont make it and we are all a bit said. Maybe next year!

Donna

See what's free at AOL.com.

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

I have been checking on other motels close by too, just to compare. They aren't as nice, but there are some less expensive. The rooms are usually like $369 a nite so $149 is a great price. I am hoping everything works out for us to go.

conference

I received the 2007 Juvenile Arthritis Conference Brochure today and after looking it over I know I will most likely NOT be attending (sob,sob). Considering it is during the week and the holiday (july4) travel will likely be higher and the rooms alone are 149.00 + tax per night so unless we win a lottery or the AF gives us a full scholarship (not likely) my family wont make it and we are all a bit said. Maybe next year!

Donna

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[Guest guest]

The Yohnk's had totally planned on going....until I found out it was the week of the 4th of July. There is no way I that 1. I can get off work (I think I'm like 7 on the waiting list) and 2. Hannah has a mandatory performance on the 4th.

Bummed in Wisconsin. :-(

Beth & Hannah, 10, unspecified arthritis; gerd; asthma; migraines

Sending prayers & happy thoughts,

Beth :-)

conference

I received the 2007 Juvenile Arthritis Conference Brochure today and after looking it over I know I will most likely NOT be attending (sob,sob). Considering it is during the week and the holiday (july4) travel will likely be higher and the rooms alone are 149.00 + tax per night so unless we win a lottery or the AF gives us a full scholarship (not likely) my family wont make it and we are all a bit said. Maybe next year!

Donna

See what's free at AOL.com.

[Guest guest]

Donna,

I am with you on this. Plus many other's. If the AF here want's me to go and I will go but other wise I will wait for next year. I will fill out the Scholarship papers. But I feel since and I have been to one We know how important it is for every Newly Diagnosed needs to go to one. So I would step back and let someone who hasn't been go in my place.

I ENCOURAGE Everyone to call their Local Arthritis Foundation and have them send you a Scholarship Paper. You will not come back as you went as it is a Most uplifting experience you will ever have.

Since this Year's Date is not my cup of Tea to travel Plus I do family gatherings on July 4th as Tradition.

It's not the best of time for Families.

So I hope each does go for it as it doesn't hurt to fill out papers. If you can't attend this year There's next year. We all will know where that will be on the last day of the Conference. This way we can plan on taking this off through putting in for it at work. Some Jobs require you to tell which Vacation days you want on the first of the year. So I can't wait til July 4th to know where the next one will be.

RobbinSee what's free at AOL.com.

[Guest guest]

Each year I hope we will be able to go to a conference. This year it will not happen again. My daughter just found a summer job so she will not be able to take off a week for this. And her next Remicade is due on the 5th. $149 may be a bargain for the hotel but I have never paid $149 a night to stay anywhere. That is WAY out of my league. e, mom to "joe" 20 poly + lupusajaoky@... wrote: I received the 2007 Juvenile

Arthritis Conference Brochure today and after looking it over I know I will most likely NOT be attending (sob,sob). Considering it is during the week and the holiday (july4) travel will likely be higher and the rooms alone are 149.00 + tax per night so unless we win a lottery or the AF gives us a full scholarship (not likely) my family wont make it and we are all a bit said. Maybe next year! Donna See what's free at AOL.com.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Thank you Kim! I am so happy you guys will be there and of course still sad that we won't. There is always next year. In KY only one scholarship is given and the process is it is first offered to families who have never attended. Beings I have been to a bunch this lessens my chances of getting the help need to make the trip. Tell Adrienne hello from Bran!

DonnaSee what's free at AOL.com.