Guest guest Posted April 11, 2010 Report Share Posted April 11, 2010 This out-dated misconception, that only thin people have CD, has been a serious diagnostic stumbling block for many people. One can have CD and be fat or thin. My daughter grew up quite thin and athletic. Then she developed an AD that changed her metabolism. She certainly "pays attention to what she eats". She weighs and assesses everything she eats, noting its carbohydrate content. Dessert for her is usually bell peppers with chopped lettuce. Sweets are totally outside her world. We often share a couple of houses and have done so for several years; I know what she eats and what's in the refrigerator. No one could pay more attention to a proper diet, yet her weight stays the same. If she didn't eat very, very carefully, she would become seriously obese. I was underweight but muscular until I began taking prednisone for a life-threatening AD. In spite of extremely severe illness, I gained 45 pounds within a month, losing all muscle tone; this was all due to the medication. This is a rather common story. Try not to be judgmental or to assume you understand weight gain factors. I know you didn't intend to be so. I'm sorry to say that when I was extremely thin I, too, thought weight was easily controllable, that will power would solve any problem. Best wishes. H. -----Original Message----- From: Cheryl and Jim Lucas <csjdlucas@...> Sent: Sat, Apr 10, 2010 8:58 pm Subject: RE: [ ] RE: Asia trip, and Italy So glad that we "fat people" can make you feel better! That was uncalled for. You can actually have trouble with your weight AND be a celiac. But that is beside the point. > > From: palmersmccd (DOT) edu > Date: Fri, 9 Apr 2010 10:43:53 -0700 > Subject: [ ] RE: Asia trip, and Italy > > Hi Sue, > > A couple of tricks I use are to look around me at all of the fat people and feel thankful that I have to pay attention to what I eat. > > Also, I try to make sure that my daughters and I do get to eat delicious treats (i.e. like you did with gelato in Italy). > > Finally, for me I feel so sick when I accidentally eat gluten that gluten-containing food looks like poison to me, even if it might look tasty to someone else. > > On the other hand, your comments on Italy have me worried. My family and I, including 4 celiacs, will be living in Florence next spring, for 6 six months. I had heard it wasn't that hard to eat gf there . . . Please share any tips or good restaurants that you found. > > Take care-- > > (palmersmccd (DOT) edu) > > ________________________________________ > From: [ ] On Behalf Of CalicoSue [susan.hersomgmail] > Sent: Friday, April 09, 2010 9:51 AM > > Subject: [ ] More thoughts on my Asia trip > > Thank you for your responses! Celiacs can sometimes feel emotions that most people don't - i.e., feeling deprived when you can't eat something everyone else is enjoying, sometimes feeling isolated and different, not being able to totally enjoy eating out. Boy, we could go on and on, couldn't we? > > When we visited Italy a few years ago, I had heard so many stories of how easy it was to eat g-f in Italy. I found that not to be true, for me anyway. Of course, I had my own food and the pharmacies in Italy had g-f food that I could snack on, but to be able to easily eat lunch or dinner somewhere was very hard. We took taxis at night to certain restaurants that I had researched before we left to make sure they had g-f pasta and pizza, so I knew I had at least one meal a day I could look forward to, but it was so hard to walk around the cities in Italy during the day and not be able to enjoy a slice of pizza, etc. for lunch like everyone else. All I could find to safely eat was gelato (and my snacks). By the 5th day or so, I was starting to cry and dreaded eating the same old thing again. I think I even started feeling resentful. I think my deep-seeded fear is that I'm going to ruin our vacation to our son's wedding by not controlling my emotions – and I know I WILL be deprived because I cannot eat most of what will be offered to me in Asia. Thank goodness we will only be gone for a week, but I'm a bit disappointed in myself for not being a stronger person. Geez, I'm really opening up, aren't I? > > Any thoughts on how to control these emotions of feeling deprived and a bit resentful? > > Sue > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2010 Report Share Posted April 11, 2010 Ditto, ditto, ditto!!!Thank you for speaking up!!Melis B----- "Harper" <flatcat9@...> wrote: > > > > > This out-dated misconception, that only thin people have CD, has been a serious diagnostic stumbling block for many people. One can have CD and be fat or thin. > > My daughter grew up quite thin and athletic. Then she developed an AD that changed her metabolism. She certainly "pays attention to what she eats". She weighs and assesses everything she eats, noting its carbohydrate content. Dessert for her is usually bell peppers with chopped lettuce. Sweets are totally outside her world. We often share a couple of houses and have done so for several years; I know what she eats and what's in the refrigerator. No one could pay more attention to a proper diet, yet her weight stays the same. If she didn't eat very, very carefully, she would become seriously obese.> I was underweight but muscular until I began taking prednisone for a life-threatening AD. In spite of extremely severe illness, I gained 45 pounds within a month, losing all muscle tone; this was all due to the medication. This is a rather common story. > Try not to be judgmental or to assume you understand weight gain factors. I know you didn't intend to be so. I'm sorry to say that when I was extremely thin I, too, thought weight was easily controllable, that will power would solve any problem.> Best wishes.> H.> > > > > -----Original Message-----> From: Cheryl and Jim Lucas <csjdlucas@...>> > Sent: Sat, Apr 10, 2010 8:58 pm> Subject: RE: [ ] RE: Asia trip, and Italy> > > > > So glad that we "fat people" can make you feel better! That was uncalled for. You can actually have trouble with your weight AND be a celiac. But that is beside the point. > > > > From: palmer@...> > Date: Fri, 9 Apr 2010 10:43:53 -0700> > Subject: [ ] RE: Asia trip, and Italy> > > > Hi Sue,> > > > A couple of tricks I use are to look around me at all of the fat people and feel thankful that I have to pay attention to what I eat.> > > > Also, I try to make sure that my daughters and I do get to eat delicious treats (i.e. like you did with gelato in Italy).> > > > Finally, for me I feel so sick when I accidentally eat gluten that gluten-containing food looks like poison to me, even if it might look tasty to someone else.> > > > On the other hand, your comments on Italy have me worried. My family and I, including 4 celiacs, will be living in Florence next spring, for 6 six months. I had heard it wasn't that hard to eat gf there . . . Please share any tips or good restaurants that you found.> > > > Take care--> > > > (palmer@...)> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2010 Report Share Posted April 11, 2010 What happens often is that due to the digestive system not working properly, one cannot absorb the nutrients in food eaten, even good, wholesome food, which tells the body that you're starving, which triggers a massive slow down in metabolism. And Prednisone is just a huge pain in the rear and so awful to have to take.And - calling people "fat" is about as enlightened as calling people a host of other names that would get one thrown off a decent email list. You owe this list an apology.LynnDaughter of a, Type 1 diabetes, Hashimoto's hypothyroid, Who has Celiac and Hashimoto'swho has a daughter with Type 1 diabetesand all have weight problemsOn Apr 10, 2010, at 10:36 PM, Harper wrote: This out-dated misconception, that only thin people have CD, has been a serious diagnostic stumbling block for many people. One can have CD and be fat or thin. My daughter grew up quite thin and athletic. Then she developed an AD that changed her metabolism. She certainly "pays attention to what she eats". She weighs and assesses everything she eats, noting its carbohydrate content. Dessert for her is usually bell peppers with chopped lettuce. Sweets are totally outside her world. We often share a couple of houses and have done so for several years; I know what she eats and what's in the refrigerator. No one could pay more attention to a proper diet, yet her weight stays the same. If she didn't eat very, very carefully, she would become seriously obese. I was underweight but muscular until I began taking prednisone for a life-threatening AD. In spite of extremely severe illness, I gained 45 pounds within a month, losing all muscle tone; this was all due to the medication. This is a rather common story. Try not to be judgmental or to assume you understand weight gain factors. I know you didn't intend to be so. I'm sorry to say that when I was extremely thin I, too, thought weight was easily controllable, that will power would solve any problem. Best wishes. H. -----Original Message----- From: Cheryl and Jim Lucas <csjdlucashotmail> Sent: Sat, Apr 10, 2010 8:58 pm Subject: RE: [ ] RE: Asia trip, and Italy So glad that we "fat people" can make you feel better! That was uncalled for. You can actually have trouble with your weight AND be a celiac. But that is beside the point. > > From: palmersmccd (DOT) edu > Date: Fri, 9 Apr 2010 10:43:53 -0700 > Subject: [ ] RE: Asia trip, and Italy > > Hi Sue, > > A couple of tricks I use are to look around me at all of the fat people and feel thankful that I have to pay attention to what I eat. > > Also, I try to make sure that my daughters and I do get to eat delicious treats (i.e. like you did with gelato in Italy). > > Finally, for me I feel so sick when I accidentally eat gluten that gluten-containing food looks like poison to me, even if it might look tasty to someone else. > > On the other hand, your comments on Italy have me worried. My family and I, including 4 celiacs, will be living in Florence next spring, for 6 six months. I had heard it wasn't that hard to eat gf there . . . Please share any tips or good restaurants that you found. > > Take care-- > > (palmersmccd (DOT) edu) > > ________________________________________ > From: [ ] On Behalf Of CalicoSue [susan.hersomgmail] > Sent: Friday, April 09, 2010 9:51 AM > > Subject: [ ] More thoughts on my Asia trip > > Thank you for your responses! Celiacs can sometimes feel emotions that most people don't - i.e., feeling deprived when you can't eat something everyone else is enjoying, sometimes feeling isolated and different, not being able to totally enjoy eating out. Boy, we could go on and on, couldn't we? > > When we visited Italy a few years ago, I had heard so many stories of how easy it was to eat g-f in Italy. I found that not to be true, for me anyway. Of course, I had my own food and the pharmacies in Italy had g-f food that I could snack on, but to be able to easily eat lunch or dinner somewhere was very hard. We took taxis at night to certain restaurants that I had researched before we left to make sure they had g-f pasta and pizza, so I knew I had at least one meal a day I could look forward to, but it was so hard to walk around the cities in Italy during the day and not be able to enjoy a slice of pizza, etc. for lunch like everyone else. All I could find to safely eat was gelato (and my snacks). By the 5th day or so, I was starting to cry and dreaded eating the same old thing again. I think I even started feeling resentful. I think my deep-seeded fear is that I'm going to ruin our vacation to our son's wedding by not controlling my emotions – and I know I WILL be deprived because I cannot eat most of what will be offered to me in Asia. Thank goodness we will only be gone for a week, but I'm a bit disappointed in myself for not being a stronger person. Geez, I'm really opening up, aren't I? > > Any thoughts on how to control these emotions of feeling deprived and a bit resentful? > > Sue > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2010 Report Share Posted April 11, 2010 Hi Everyone – I think the point has been made and my guess is feels terrible about her choice of words.   Please…..can we all forgive and move forward? Thank you, Cara de Urioste From: [mailto: ] On Behalf Of melbatavia@... Sent: Sunday, April 11, 2010 9:59 AM Subject: Re: [ ] CD and weight Ditto, ditto, ditto!!! Thank you for speaking up!! Melis B ----- " Harper " <flatcat9@...> wrote: > > > > > This out-dated misconception, that only thin people have CD, has been a serious diagnostic stumbling block for many people. One can have CD and be fat or thin. > > My daughter grew up quite thin and athletic. Then she developed an AD that changed her metabolism. She certainly " pays attention to what she eats " . She weighs and assesses everything she eats, noting its carbohydrate content. Dessert for her is usually bell peppers with chopped lettuce. Sweets are totally outside her world. We often share a couple of houses and have done so for several years; I know what she eats and what's in the refrigerator. No one could pay more attention to a proper diet, yet her weight stays the same. If she didn't eat very, very carefully, she would become seriously obese. > I was underweight but muscular until I began taking prednisone for a life-threatening AD. In spite of extremely severe illness, I gained 45 pounds within a month, losing all muscle tone; this was all due to the medication. This is a rather common story. > Try not to be judgmental or to assume you understand weight gain factors. I know you didn't intend to be so. I'm sorry to say that when I was extremely thin I, too, thought weight was easily controllable, that will power would solve any problem. > Best wishes. > H. > > > > > -----Original Message----- > From: Cheryl and Jim Lucas <csjdlucas@...> > > Sent: Sat, Apr 10, 2010 8:58 pm > Subject: RE: [ ] RE: Asia trip, and Italy > > > > > So glad that we " fat people " can make you feel better! That was uncalled for. You can actually have trouble with your weight AND be a celiac. But that is beside the point. > > > > From: palmer@... > > Date: Fri, 9 Apr 2010 10:43:53 -0700 > > Subject: [ ] RE: Asia trip, and Italy > > > > Hi Sue, > > > > A couple of tricks I use are to look around me at all of the fat people and feel thankful that I have to pay attention to what I eat. > > > > Also, I try to make sure that my daughters and I do get to eat delicious treats (i.e. like you did with gelato in Italy). > > > > Finally, for me I feel so sick when I accidentally eat gluten that gluten-containing food looks like poison to me, even if it might look tasty to someone else. > > > > On the other hand, your comments on Italy have me worried. My family and I, including 4 celiacs, will be living in Florence next spring, for 6 six months. I had heard it wasn't that hard to eat gf there . . . Please share any tips or good restaurants that you found. > > > > Take care-- > > > > (palmer@...) > > Quote Link to comment Share on other sites More sharing options...
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