Re: Do doctors have a remedy/treatment for accidental gluten exposure?

[Guest guest]

Our doctors have told us they don't have a remedy. We do probiotics, ginger tea,

lots of water. Sorry, and good to know about the scharfenberger cocoa, I think

we actually have some in our cabinet! (grr)

>

> Hi guys,

>

> Last week I realized that I had been glutening myself for maybe six weeks.

During that time I was miserably ill, but because part of the time I had a cold

and then a sinus infection, and kept a strict diet, I didn't realize that it was

gluten.

>

> But one day, in the midst of terrible eye-crossing head fog, I realized that

it could be gluten exposure. I did research on the Scharffenberger powdered

cocoa that I had been drinking with water in the mornings. The ingredients just

said cocoa, but when I went to their website they said certain of their products

were made in an unsafe facility (their chocolate bars are safe) and the powdered

cocoa was one of them. So I cut it out and the next day could see a huge

difference.

>

> This is probably the most prolonged exposure I've had since my first year

after my diagnosis. I feel okay, but not normal. Still not much energy to

exercise. Weak. Dizzy. Shaky. Cold hands. Bad digestive problems. Depressed.

>

> I'm taking the expensive probiotic VSL#3 (450 billion strains of bacteria per

dose) and some enzymes (bromelain), which I think help.

>

> But, thanks for bearing with me here, I'm wondering, what do doctors say

about gluten exposure. What do they say to do? Has anyone on this list been

given advice for how to handle this? It seems like they just say stay off gluten

but don't really have any scientifically grounded knowledge that would help us

when we do get glutened.

>

> So I'd be curious if any of you have been told something worthwhile from

their doctors on this subject, or maybe you've found something on the web -- I

couldn't find anything. All I see are Celiacs improvising their own home

remedies -- some enzymes, laxatives, a lot of water, etc.

>

> thanks!

>

>

[Guest guest]

I use bromeline (sp?) it was recommended by a naturapathic dr. and if taken

before or after it seems to help reduce the severity of my symptoms. kc

> >

> > Hi guys,

> >

> > Last week I realized that I had been glutening myself for maybe six weeks.

During that time I was miserably ill, but because part of the time I had a cold

and then a sinus infection, and kept a strict diet, I didn't realize that it was

gluten.

> >

> > But one day, in the midst of terrible eye-crossing head fog, I realized that

it could be gluten exposure. I did research on the Scharffenberger powdered

cocoa that I had been drinking with water in the mornings. The ingredients just

said cocoa, but when I went to their website they said certain of their products

were made in an unsafe facility (their chocolate bars are safe) and the powdered

cocoa was one of them. So I cut it out and the next day could see a huge

difference.

> >

> > This is probably the most prolonged exposure I've had since my first year

after my diagnosis. I feel okay, but not normal. Still not much energy to

exercise. Weak. Dizzy. Shaky. Cold hands. Bad digestive problems. Depressed.

> >

> > I'm taking the expensive probiotic VSL#3 (450 billion strains of bacteria

per dose) and some enzymes (bromelain), which I think help.

> >

> > But, thanks for bearing with me here, I'm wondering, what do doctors say

about gluten exposure. What do they say to do? Has anyone on this list been

given advice for how to handle this? It seems like they just say stay off gluten

but don't really have any scientifically grounded knowledge that would help us

when we do get glutened.

> >

> > So I'd be curious if any of you have been told something worthwhile from

their doctors on this subject, or maybe you've found something on the web -- I

couldn't find anything. All I see are Celiacs improvising their own home

remedies -- some enzymes, laxatives, a lot of water, etc.

> >

> > thanks!

> >

> >

>

[Guest guest]

I bought something suggested here -- GlutenFlam -- for a trip. With luck, I'll never know whether it works! I asked my doctor if any of the ingredients might be risky for someone with an autoimmune liver disorder. She said it looked harmless. I ordered it on-line, and it arrived in a couple of days. I don't really have any belief in it, but what the heck.

Right now I'm on the 11th floor of a hotel in LaJolla. This afternoon's quake sent us heading down the stairs, followed by families with many children. No damage is visible here. Heavy aftershocks. The quake itself was stronger and longer-lasting than any my husband and I have experienced.

H.

-----Original Message-----

From: rooneys86 <rooneys86@...>

Sent: Sun, Apr 4, 2010 10:53 am

Subject: [ ] Re: Do doctors have a remedy/treatment for accidental gluten exposure?

I use bromeline (sp?) it was recommended by a naturapathic dr. and if taken before or after it seems to help reduce the severity of my symptoms. kc

> >

> > Hi guys,

> >

> > Last week I realized that I had been glutening myself for maybe six weeks. During that time I was miserably ill, but because part of the time I had a cold and then a sinus infection, and kept a strict diet, I didn't realize that it was gluten.

> >

> > But one day, in the midst of terrible eye-crossing head fog, I realized that it could be gluten exposure. I did research on the Scharffenberger powdered cocoa that I had been drinking with water in the mornings. The ingredients just said cocoa, but when I went to their website they said certain of their products were made in an unsafe facility (their chocolate bars are safe) and the powdered cocoa was one of them. So I cut it out and the next day could see a huge difference.

> >

> > This is probably the most prolonged exposure I've had since my first year after my diagnosis. I feel okay, but not normal. Still not much energy to exercise. Weak. Dizzy. Shaky. Cold hands. Bad digestive problems. Depressed.

> >

> > I'm taking the expensive probiotic VSL#3 (450 billion strains of bacteria per dose) and some enzymes (bromelain), which I think help.

> >

> > But, thanks for bearing with me here, I'm wondering, what do doctors say about gluten exposure. What do they say to do? Has anyone on this list been given advice for how to handle this? It seems like they just say stay off gluten but don't really have any scientifically grounded knowledge that would help us when we do get glutened.

> >

> > So I'd be curious if any of you have been told something worthwhile from their doctors on this subject, or maybe you've found something on the web -- I couldn't find anything. All I see are Celiacs improvising their own home remedies -- some enzymes, laxatives, a lot of water, etc.

> >

> > thanks!

> >

> >

>