Guest guest Posted April 3, 2010 Report Share Posted April 3, 2010 Hi guys, Last week I realized that I had been glutening myself for maybe six weeks. During that time I was miserably ill, but because part of the time I had a cold and then a sinus infection, and kept a strict diet, I didn't realize that it was gluten. But one day, in the midst of terrible eye-crossing head fog, I realized that it could be gluten exposure. I did research on the Scharffenberger powdered cocoa that I had been drinking with water in the mornings. The ingredients just said cocoa, but when I went to their website they said certain of their products were made in an unsafe facility (their chocolate bars are safe) and the powdered cocoa was one of them. So I cut it out and the next day could see a huge difference. This is probably the most prolonged exposure I've had since my first year after my diagnosis. I feel okay, but not normal. Still not much energy to exercise. Weak. Dizzy. Shaky. Cold hands. Bad digestive problems. Depressed. I'm taking the expensive probiotic VSL#3 (450 billion strains of bacteria per dose) and some enzymes (bromelain), which I think help. But, thanks for bearing with me here, I'm wondering, what do doctors say about gluten exposure. What do they say to do? Has anyone on this list been given advice for how to handle this? It seems like they just say stay off gluten but don't really have any scientifically grounded knowledge that would help us when we do get glutened. So I'd be curious if any of you have been told something worthwhile from their doctors on this subject, or maybe you've found something on the web -- I couldn't find anything. All I see are Celiacs improvising their own home remedies -- some enzymes, laxatives, a lot of water, etc. thanks! Quote Link to comment Share on other sites More sharing options...
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