Do doctors have a remedy/treatment for accidental gluten exposure?

[Guest guest]

Currently

undergoing clinical trials, Larazotide Acetate is

a new drug that may prevent the “leaky gut” syndrome associated

with celiac disease. This is something you would take to prevent side

effects of accidental gluten exposure. Don’t look for it any time

before 2012.

Pam

Here are some links if you want to know more:

http://calgary.ctv.ca/servlet/an/local/CTVNews/20100305/edm_gluten_100305/20100305/?hub=CalgaryHome

http://celiac-disease.com/new-data-larazotide-acetate-drug/

http://www.medicalnewstoday.com/articles/124585.php

From:

[mailto: ] On Behalf Of

Sent: Saturday, April 03, 2010 11:17 AM

Subject: [ ] Do doctors have a remedy/treatment for

accidental gluten exposure?

But, thanks for bearing with me here, I'm wondering, what do

doctors say about gluten exposure. What do they say to do? Has anyone on this

list been given advice for how to handle this? It seems like they just say stay

off gluten but don't really have any scientifically grounded knowledge that

would help us when we do get glutened.

So I'd be curious if any of you have been told something worthwhile from their

doctors on this subject, or maybe you've found something on the web -- I

couldn't find anything. All I see are Celiacs improvising their own home

remedies -- some enzymes, laxatives, a lot of water, etc.

thanks!

[Guest guest]

I have a practitioner who has me keep a product on hand for accidental gluten

exposure.

A product called, GCF:

http://www.theramedix.net/index.php?sid=h9976o80374t2dtc55794775i97c3477 & app=ccp\

0 & ns=prodsearchp & ccp0--prodsearch--string=gluten

and

Glutenzyme:

http://www.amazon.com/Pharmax-Glutenzyme-60-Vegetarian-Capsules/dp/B000NE7NT4

I have used both and find them effective.

> >

> > Hi guys,

> >

> > Last week I realized that I had been glutening myself for maybe six weeks.

During that time I was miserably ill, but because part of the time I had a cold

and then a sinus infection, and kept a strict diet, I didn't realize that it was

gluten.

> >

> > But one day, in the midst of terrible eye-crossing head fog, I realized that

it could be gluten exposure. I did research on the Scharffenberger powdered

cocoa that I had been drinking with water in the mornings. The ingredients just

said cocoa, but when I went to their website they said certain of their products

were made in an unsafe facility (their chocolate bars are safe) and the powdered

cocoa was one of them. So I cut it out and the next day could see a huge

difference.

> >

> > This is probably the most prolonged exposure I've had since my first year

after my diagnosis. I feel okay, but not normal. Still not much energy to

exercise. Weak. Dizzy. Shaky. Cold hands. Bad digestive problems. Depressed.

> >

> > I'm taking the expensive probiotic VSL#3 (450 billion strains of bacteria

per dose) and some enzymes (bromelain), which I think help.

> >

> > But, thanks for bearing with me here, I'm wondering, what do doctors say

about gluten exposure. What do they say to do? Has anyone on this list been

given advice for how to handle this? It seems like they just say stay off gluten

but don't really have any scientifically grounded knowledge that would help us

when we do get glutened.

> >

> > So I'd be curious if any of you have been told something worthwhile from

their doctors on this subject, or maybe you've found something on the web -- I

couldn't find anything. All I see are Celiacs improvising their own home

remedies -- some enzymes, laxatives, a lot of water, etc.

> >

> > thanks!

> >

> >

>