Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Sharon, First of all - congrats on such a wonderful 2-year check up visit! It's so wonderful to hear how well you are doing. As far as the sutures go - I've had sutures work their way out of my body a good year & a half after they were put in (most recently I pulled one out in September from a scar where my IV port-a-cath was removed in Apr 2007). I had several pieces of sutures work their way out of my revision scars too since summer 2007. I don't know if I'm allergic to them, but my skin was very irritated as they worked their way out. I would love to hear more details about the shoulder blade exercise that you mentioned, when you have the chance. Take care, and congrats on the great checkup > > Funny how the first anniversary of revision is a big deal, while the > second goes hardly noticed. Mine passed Sept. 27. I saw Dr. Rand on > Nov. 13th for my 2-year follow-up, and he said my x-rays still look great. > > I told him my pool PT had helped a lot, but I thought I needed more help > in the upper back/shoulder blade area. Instead of a PT referral, he > gave me a simple exercise I can do against the kitchen counter. He said > he had learned it from a therapist and it had helped another of his > patients (credit where credit is due!) Since my revision included new > hardware all the way up to T4, my shoulder blade muscles were affected, > and have been very uncomfortable since, as well as numb. Of course the > exercise won't touch the numbness, but it does seem to help with the > muscle pain/discomfort. I'll be happy to describe the exercise if > anyone is interested. > > I also asked him if it's common to get eczema on the incision scars. > I've had a lot of redness and itching on and near my back incision, > though none on the abdominal one. He had a look, and concluded I must > be allergic to the absorbable sutures he used to close it. I was > surprised to learn that it takes several years for them to fully > absorb! That must explain the tiny bit of foreign material that was > sticking out of my skin and driving me nuts with itching until I handed > my husband my tweezers and told him to go at it. (It pulled out easily, > much to my relief.) I didn't inquire, but I assume Dr. Rand used > something different on my abdominal incision. He said I was doing the > right thing to put hydrocortisone on it. Nice to be able to complain > about something so minor! It was also fun telling him I'd recently > heard my squeaky hardware, while working in the yard with ear plugs. He > had told me pre-operatively that is an idiosyncrasy of titanium. > Sometimes patients can hear it, but also he hears it squeaking while he > installs it. > > I mentioned that I had seen Cam's broken rod x-ray, and we discussed > what causes broken rods, etc. He seems to feel that just the cumulative > stresses of normal living can build up and cause a break, and that he > feels it's less likely Cam broke it by falling while x-country skiing. > He also says that such breaks usually don't cause or indicate a problem > for the patient. I asked if it was ok to try ice skating again, and he > said if I already know how, then sure. > > I don't know why it surprised me, but I get the distinct impression that > Dr. Rand takes a great deal of pleasure in seeing his patients whom he > has successfully helped and who are looking good and enjoying life. I > told him I don't even need the nifty kneeling bench now to do my > gardening, and that I also get exercise swimming, bicycling, and > sailing. He was literally beaming. After all the apprehensive > questions, the pre-op concerns, the long hours of meticulous, messy > work, the post-op visits to a gorked-out patient in pain and barely able > to walk, I guess these happy follow-ups have got to be a real high point > in a surgeon's work. Of course I had understood intellectually that > back surgeons are not big meanies who like to poke, prod, stretch, cast, > and cause pain, but I guess " Little Sharon " still tends to feel that way > deep down. There's something healing about this sort of " sharing the > joy " visit. > > Sharon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Sharon, Congrats on yet another good checkup and milestone achieved! You will no doubt continue to see small progresses...they just come farther and farther apart...and you suddenly say " Hey! I can do _________ now! " Its funny. I think it would be a lovely idea to share your upper back/shoulder exercise routine with the group. I would also recommend you make a word doc and upload it to the files section so we will have a permanent, easy reference to it. I know DrRand doesn't think it was a one time event broke my rod, and I dont either. However, sometime between the xray of June 07 and Oct 08 the rod DID break. If there was a weakness in the rod from being shaped and from during the time of early healing...then I am guessing that between the crisp, sub zero Norwegian temps I was in, and the very hard " sit down " that I had....it is possible that is when the rod decided to split apart. Regardless...nothing else indicates anything is amiss. I trusted DrRand with my life, so certainly trust his judgement to assume that nothing is necessarily wrong! I think we were/are lucky to share a surgeon who seems to take personnal joy in seeing the long term positive effects of his work. He is a bit of an oddity in that he does try to do follow on care. I know he has been up front with me that he sees us older scolis as " works in progress " . He doesn't see our earlier surgeries necessarily as " mistakes " ...but he sees that the the idea that we would go on to live completely normal lives as overly optimistic. I know that was a good part of the reason that he chose to leave the group he was with. Apparently that gives him more time and control over how he manages his patients. I would guess if you are in a " sugical " group you are depended upon to do a certain amount of surgeries to carry your share. I think that is a difficult proposition for a surgeon who focuses on deformities. Just like a lot of us found after our primary surgeries...we get followed for a few years....and then what? Are we really supposed to rely on the the same local orthos that couldn't diagnose or care for our spines for the last 20 years? Its very difficult. Anyway...congratulations on 2 years! Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Hi, Sharon: Dr. Rand gave me the same exercise at each of my visits. He swears by it. I've started doing it this week...I'll let you know if I see a difference. > > > > > > Funny how the first anniversary of revision is a big deal, while > > the > > > second goes hardly noticed. Mine passed Sept. 27. I saw Dr. Rand > > on > > > Nov. 13th for my 2-year follow-up, and he said my x-rays still look > > great. > > > > > > I told him my pool PT had helped a lot, but I thought I needed more > > help > > > in the upper back/shoulder blade area. Instead of a PT referral, > > he > > > gave me a simple exercise I can do against the kitchen counter. He > > said > > > he had learned it from a therapist and it had helped another of his > > > patients (credit where credit is due!) Since my revision included > > new > > > hardware all the way up to T4, my shoulder blade muscles were > > affected, > > > and have been very uncomfortable since, as well as numb. Of course > > the > > > exercise won't touch the numbness, but it does seem to help with > > the > > > muscle pain/discomfort. I'll be happy to describe the exercise if > > > anyone is interested. > > > > > > I also asked him if it's common to get eczema on the incision > > scars. > > > I've had a lot of redness and itching on and near my back incision, > > > though none on the abdominal one. He had a look, and concluded I > > must > > > be allergic to the absorbable sutures he used to close it. I was > > > surprised to learn that it takes several years for them to fully > > > absorb! That must explain the tiny bit of foreign material that > > was > > > sticking out of my skin and driving me nuts with itching until I > > handed > > > my husband my tweezers and told him to go at it. (It pulled out > > easily, > > > much to my relief.) I didn't inquire, but I assume Dr. Rand used > > > something different on my abdominal incision. He said I was doing > > the > > > right thing to put hydrocortisone on it. Nice to be able to > > complain > > > about something so minor! It was also fun telling him I'd recently > > > heard my squeaky hardware, while working in the yard with ear > > plugs. He > > > had told me pre-operatively that is an idiosyncrasy of titanium. > > > Sometimes patients can hear it, but also he hears it squeaking > > while he > > > installs it. > > > > > > I mentioned that I had seen Cam's broken rod x-ray, and we > > discussed > > > what causes broken rods, etc. He seems to feel that just the > > cumulative > > > stresses of normal living can build up and cause a break, and that > > he > > > feels it's less likely Cam broke it by falling while x-country > > skiing. > > > He also says that such breaks usually don't cause or indicate a > > problem > > > for the patient. I asked if it was ok to try ice skating again, > > and he > > > said if I already know how, then sure. > > > > > > I don't know why it surprised me, but I get the distinct impression > > that > > > Dr. Rand takes a great deal of pleasure in seeing his patients whom > > he > > > has successfully helped and who are looking good and enjoying > > life. I > > > told him I don't even need the nifty kneeling bench now to do my > > > gardening, and that I also get exercise swimming, bicycling, and > > > sailing. He was literally beaming. After all the apprehensive > > > questions, the pre-op concerns, the long hours of meticulous, messy > > > work, the post-op visits to a gorked-out patient in pain and barely > > able > > > to walk, I guess these happy follow-ups have got to be a real high > > point > > > in a surgeon's work. Of course I had understood intellectually > > that > > > back surgeons are not big meanies who like to poke, prod, stretch, > > cast, > > > and cause pain, but I guess " Little Sharon " still tends to feel > > that way > > > deep down. There's something healing about this sort of " sharing > > the > > > joy " visit. > > > > > > Sharon > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 your doctor may be different, but Dr Bridwell likes to do yearly exams for the first 5 years. > > > > Sharon, > > > > Congrats on yet another good checkup and milestone achieved! You > > will no doubt continue to see small progresses...they just come > > farther and farther apart...and you suddenly say " Hey! I can do > > _________ now! " Its funny. > > > > I think it would be a lovely idea to share your upper back/shoulder > > exercise routine with the group. I would also recommend you make a > > word doc and upload it to the files section so we will have a > > permanent, easy reference to it. > > > > I know DrRand doesn't think it was a one time event broke my rod, > > and I dont either. However, sometime between the xray of June 07 and > > Oct 08 the rod DID break. If there was a weakness in the rod from > > being shaped and from during the time of early healing...then I am > > guessing that between the crisp, sub zero Norwegian temps I was in, > > and the very hard " sit down " that I had....it is possible that is > > when the rod decided to split apart. Regardless...nothing else > > indicates anything is amiss. I trusted DrRand with my life, so > > certainly trust his judgement to assume that nothing is necessarily > > wrong! > > > > I think we were/are lucky to share a surgeon who seems to take > > personnal joy in seeing the long term positive effects of his work. > > He is a bit of an oddity in that he does try to do follow on care. I > > know he has been up front with me that he sees us older scolis > > as " works in progress " . He doesn't see our earlier surgeries > > necessarily as " mistakes " ...but he sees that the the idea that we > > would go on to live completely normal lives as overly optimistic. I > > know that was a good part of the reason that he chose to leave the > > group he was with. Apparently that gives him more time and control > > over how he manages his patients. I would guess if you are in > > a " sugical " group you are depended upon to do a certain amount of > > surgeries to carry your share. I think that is a difficult > > proposition for a surgeon who focuses on deformities. Just like a > > lot of us found after our primary surgeries...we get followed for a > > few years....and then what? Are we really supposed to rely on the > > the same local orthos that couldn't diagnose or care for our spines > > for the last 20 years? Its very difficult. > > > > Anyway...congratulations on 2 years! > > > > Take Care, Cam > > > > > Quote Link to comment Share on other sites More sharing options...
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