Surgery Scheduled

[Guest guest]

> Monday the 13th at noon...hmmm time again. My husband is growing

> olderrr just waiting for me to get around better. I am 56 and for

the

> first in 37 years of marriage we have an empty nest and I do want

to

> go the beach and work in the yard and just a few simple things.

Wish

> me luck Monday. I t will be a year in Nov. since I had the last

> surgery. The plate has shifted and the bolts causing problems and

> another ruptured disc...they are unsure but suspect T1 too.

Well best of luck Sandy with your appot... it can sure be un-nerving

to go through these things...I op'ed for the fusion procedure...I did

a fair amount of reaserch and couple with the fact that if I had to

go through an operation, I didn't care to have 2 locations of

discomfort...and so I op'ed for the bone bank which has worked of so

far...I have read so much if's;and's and but's on this issue..I

suppose others have there reasons to be so concerened...oh

well...anyway Sandy..please do let me know how things go...Nick

[Guest guest]

Hi .

Thanks for for recent e-mail. As you know I live in the Vancouver area and would like to know the name of the Dr. who will be performing surgery on you on Feb 4th. I would like to see another surgeon just out of curiosity.

This is a great support group which I've only just found after 40 years of c-toma problems.

Rae Ellingham

Surgery Scheduled

Hi everyone,Today I received a second opinion about my C-toma and also in hopes of getting a closer surgery date of May. I am now scheduled for Feb 4 and he will do a CWD surgery. The Dr. was EXCELLENT and I would highly recommend him if anyone needs a name in the Vancouver, Canada area.He asked me why I never considered reconstructive surgery on my left ear which now depends on a hearing Aid. My response was, I never knew it was an option for me with my severe loss and also I only recently knew about it through this Group.He said he would like for me to think about this and give him an answer when I see him for the surgery. Can ANYONE share the experience of reconstructive surgery?Am I excited prematurely of the possibility on being able to put my Aid away for good?Any stories would be greatly appreciated.Thanks in advance, purr_30

[Guest guest]

---Hi ,

I have had a total of 5 surgeries on left ear and the second one

was a reconstructive surgery. Had a prostetic stapes put in. My

hearing was really bad before surgery and has improved significantly

since. It is amazing what they can do now!

Since you are already going in for surgery, I would say the

reconstructive surgery would be worth it. I wish you the best.

Kind regards,

Tenaya

[Guest guest]

Three types? I thought there was only two? The acquired and the congenital. Does anyone know what the 3rd one is?

Hi Kat

Your doctor could be referring to the fact that apart from congenital ctoma, there are two kinds of acquired ctoma which appear in different locations and are thought to have different origins. Very briefly:

Cholesteatoma may be classified according to presumed aetiology into two general categories: congenital and acquired. Acquired cholesteatomas can be further divided into primary and secondary acquired

Congenital cholesteatoma is thought to arise from embryonic skin cells trapped inside the middle ear. It is usually evident as a white or pearly mass behind or inside an intact eardrum.

Primary acquired cholesteatoma arises in the clinical setting of accumulation of skin debris in a pre-existing retraction pocket. It's also known as pars tensa cholesteatoma

Secondary acquired cholesteatoma is the commonest and usually a result of a perforation followed by skin migration into the middle ear. It arises from the upper part of the eardrum. Also called pars flaccida cholesteatoma.

Or he could even be referring to a third type ctoma altogether (it isn't very common). I'm only familiar with it because I've been dealing with it for some time though initially I had it along with the normal kind of acquired ctoma. i.e.

Different types of cholesteatoma exist and are broadly classified as congenital or acquired. A separate and unusual type is the canal cholesteatoma.

Canal cholesteatoma originates outside the eardrum with embedding of the cholesteatoma in the bony wall.

And the best of luck with your surgery in March

Phil

[Guest guest]

That clears it up for me. Vary informative.

Thank you Phil!

Kat

> Three types? I thought there was only two? The acquired and the

> congenital. Does anyone know what the 3rd one is?

>

> Hi Kat

>

> Your doctor could be referring to the fact that apart from

congenital ctoma, there are two kinds of acquired ctoma which appear

in different locations and are thought to have different origins.

Very briefly:

>

> Cholesteatoma may be classified according to presumed aetiology

into two general categories: congenital and acquired. Acquired

cholesteatomas can be further divided into primary and secondary

acquired

>

> Congenital cholesteatoma is thought to arise from embryonic skin

cells trapped inside the middle ear. It is usually evident as a white

or pearly mass behind or inside an intact eardrum.

>

> Primary acquired cholesteatoma arises in the clinical setting of

accumulation of skin debris in a pre-existing retraction pocket. It's

also known as pars tensa cholesteatoma

>

> Secondary acquired cholesteatoma is the commonest and usually a

result of a perforation followed by skin migration into the middle

ear. It arises from the upper part of the eardrum. Also called pars

flaccida cholesteatoma.

>

>

> Or he could even be referring to a third type ctoma altogether (it

isn't very common). I'm only familiar with it because I've been

dealing with it for some time though initially I had it along with

the normal kind of acquired ctoma. i.e.

>

> Different types of cholesteatoma exist and are broadly classified

as congenital or acquired. A separate and unusual type is the canal

cholesteatoma.

>

> Canal cholesteatoma originates outside the eardrum with embedding

of the cholesteatoma in the bony wall.

>

> And the best of luck with your surgery in March

>

> Phil

[Guest guest]

Hey Doug,

Like you I’ve had problems with my

ears all of my life. I just had my surgery yesterday and it went really well.

I do have a hearing bone that has been destroyed but it will be replaced next

year in a follow-up surgery with a prosthetic. I’m not sure which bones

of the ear are capable of having this reconstruction but it is certainly

something you might want to ask about. Here are a couple of websites that I

found useful in learning about my condition and the surgery. I have to warn

you though they do contain graphic and bloody images so if you’re squeamish

you might not want to look at them:

http://www.earsurgery.org/

http://www.ghorayeb.com/Cholesteatoma.html

Both of these sites are very informative.

Aside from the c-toma information they discuss some of the reconstruction

issues as well as mastoidectomy, a procedure to expose the mastoid air pocket

to check for c-toma there. I wish you the best and let us know how it goes for

you.

Best wishes,

From: Doug1634@...

[mailto:Doug1634@...]

Sent: Wednesday, June 16, 2004

1:00 PM

cholesteatoma

Subject: Surgery

scheduled

Hi all:

I was diagnosed with a left ear aquired

cholesteatoma just last

month. I have had problems with both of my

ears most of my life.

I'm 47 now and have a hearing aide in my right

ear. My ENT physician

was hopeful that his initial diagnosis was

incorrect because the

surgery would have to be on my " hearing "

ear. Well, the CT Scan in

May confirmed the c-toma and validated the

doctor's initial visual

diagnosis.

I am scheduled for surgery on July 22, 2004.

My surgeon, Jed

Kwartler, came highly recommended by my ENT

physician. I had my

first appointment with his associate, Dr. Eden,

just this past

Monday. Dr Eden does not perform surgery but

was very helpful and

knowledgable on the subject. I meet with Dr.

Kwartler June 29 and

I'm sure he will give me any additional

information I will need. I

was real impressed with the office and how quickly

they were able to

schedule me. Dr. Kwartler and Dr. Eden are

at the Ear Specialty

Group in Springfield,

NJ, in case anyone in the area is

looking for a

surgeon.

I've resigned myself to the fact that I may have

some hearing loss,

the c-toma has probably destroyed at least 2 of

the 3 bones right

above the eardrum.

I'm glad that I found this group and I would

appreciate any advice,

and or experiences from those of you who have had

the surgery already.

Thanks for listening!

Doug

This

Cholesteatoma support group offers and provides information of a general nature

about cholesteatoma as well as members personal experiences with this disease.

The information provided is not intended to replace surgical or medical advice

or recommendations. Any information in the messages, postings or articles on

the web site should not be considered a substitute for consultation with a

medical professional to address individual medical needs. Individuals'

particular facts and circumstances will determine the treatment which is most

appropriate.

[Guest guest]

Hi Doug…

My DH may reply to you as well. We have surgery scheduled for our 5 year

old son on June 24th (next week) with Dr. Kwartler,

as well. He will be eventually

doing his reconstructive surgery, replacing the lost bones with

prosthetics. Hopefully, his hearing

will be somewhat in the normal range by the time we’re all done with

this.

My broth-in-law is in family practice in

upstate NY and consulted his colleagues regarding who we should go to. So, he was highly recommended to us as

well. We will post and let you know

the results. So far, the office has

been great. I believe we’re

blessed to live in an area of the country with so much fine health care at our

fingertips!

Sincerely, Tara

Surgery

scheduled

Hi all:

I was diagnosed with a left ear aquired

cholesteatoma just last

month. I have had problems with both of my

ears most of my life.

I'm 47 now and have a hearing aide in my right

ear. My ENT physician

was hopeful that his initial diagnosis was

incorrect because the

surgery would have to be on my " hearing "

ear. Well, the CT Scan in

May confirmed the c-toma and validated the

doctor's initial visual

diagnosis.

I am scheduled for surgery on July 22, 2004.

My surgeon, Jed

Kwartler, came highly recommended by my ENT

physician. I had my

first appointment with his associate, Dr. Eden,

just this past

Monday. Dr Eden does not perform surgery but

was very helpful and

knowledgable on the subject. I meet with Dr.

Kwartler June 29 and

I'm sure he will give me any additional

information I will need. I

was real impressed with the office and how quickly

they were able to

schedule me. Dr. Kwartler and Dr. Eden are

at the Ear Specialty

Group in Springfield, NJ, in case anyone in the

area is looking for a

surgeon.

I've resigned myself to the fact that I may have

some hearing loss,

the c-toma has probably destroyed at least 2 of

the 3 bones right

above the eardrum.

I'm glad that I found this group and I would

appreciate any advice,

and or experiences from those of you who have had

the surgery already.

Thanks for listening!

Doug

This

Cholesteatoma support group offers and provides information of a general nature

about cholesteatoma as well as members personal experiences with this disease.

The information provided is not intended to replace surgical or medical advice

or recommendations. Any information in the messages, postings or articles on

the web site should not be considered a substitute for consultation with a

medical professional to address individual medical needs. Individuals'

particular facts and circumstances will determine the treatment which is most

appropriate.

[Guest guest]

Hi Tara:

Thanks for the info and please accept my best wishes for your son's

surgery. I keep hearing good things about Dr. Kwartler. We really

did luck out having top notch care in the Northeast US. I'll also

keep you all posted as my surgery date gets closer.

Thanks.

Doug

> Hi Doug.

> My DH may reply to you as well. We have surgery scheduled for our 5

> year old son on June 24th (next week) with Dr. Kwartler, as well.

He

> will be eventually doing his reconstructive surgery, replacing the

lost

> bones with prosthetics. Hopefully, his hearing will be somewhat in

the

> normal range by the time we're all done with this.

>

> My broth-in-law is in family practice in upstate NY and consulted

his

> colleagues regarding who we should go to. So, he was highly

recommended

> to us as well. We will post and let you know the results. So far,

the

> office has been great. I believe we're blessed to live in an area

of

> the country with so much fine health care at our fingertips!

>

> Sincerely, Tara

>

> Surgery scheduled

>

> Hi all:

>

> I was diagnosed with a left ear aquired cholesteatoma just last

> month. I have had problems with both of my ears most of my life.

> I'm 47 now and have a hearing aide in my right ear. My ENT

physician

> was hopeful that his initial diagnosis was incorrect because the

> surgery would have to be on my " hearing " ear. Well, the CT Scan in

> May confirmed the c-toma and validated the doctor's initial visual

> diagnosis.

>

> I am scheduled for surgery on July 22, 2004. My surgeon, Jed

> Kwartler, came highly recommended by my ENT physician. I had my

> first appointment with his associate, Dr. Eden, just this past

> Monday. Dr Eden does not perform surgery but was very helpful and

> knowledgable on the subject. I meet with Dr. Kwartler June 29 and

> I'm sure he will give me any additional information I will need. I

> was real impressed with the office and how quickly they were able

to

> schedule me. Dr. Kwartler and Dr. Eden are at the Ear Specialty

> Group in Springfield, NJ, in case anyone in the area is looking for

a

> surgeon.

>

> I've resigned myself to the fact that I may have some hearing loss,

> the c-toma has probably destroyed at least 2 of the 3 bones right

> above the eardrum.

>

> I'm glad that I found this group and I would appreciate any advice,

> and or experiences from those of you who have had the surgery

already.

>

> Thanks for listening!

>

> Doug

>

>

>

>

>

[Guest guest]

Hi :

Thanks for the kind words of support. I'm glad that things seem to

be going well in your recovery. I'm hopeful that I too will be as

fortunate. I have alot of faith in my doctors and surgeon, which is

a real plus.

Thanks to all of you again for the forum. This place seems to be a

great source of knowledge. Even though I've spent the past month

checking out c-toma websites on the net, it's great to be able to

connect with people who have been or are going to be involved in

surgery

for this condition.

Best wishes for continued recovery.

Doug

> Hey Doug,

>

>

>

> Like you I've had problems with my ears all of my life. I just had

my

> surgery yesterday and it went really well. I do have a hearing

bone that

> has been destroyed but it will be replaced next year in a follow-up

surgery

> with a prosthetic. I'm not sure which bones of the ear are capable

of

> having this reconstruction but it is certainly something you might

want to

> ask about. Here are a couple of websites that I found useful in

learning

> about my condition and the surgery. I have to warn you though they

do

> contain graphic and bloody images so if you're squeamish you might

not want

> to look at them:

>

>

>

> http://www.earsurgery.org/

>

>

>

> http://www.ghorayeb.com/Cholesteatoma.html

>

>

>

> Both of these sites are very informative. Aside from the c-toma

information

> they discuss some of the reconstruction issues as well as

mastoidectomy, a

> procedure to expose the mastoid air pocket to check for c-toma

there. I

> wish you the best and let us know how it goes for you.

>

>

>

>

>

> Best wishes,

>

>

>

>

>

>

>

> _____

>

> From: Doug1634@a... [mailto:Doug1634@a...]

> Sent: Wednesday, June 16, 2004 1:00 PM

> cholesteatoma

> Subject: Surgery scheduled

>

>

>

> Hi all:

>

> I was diagnosed with a left ear aquired cholesteatoma just last

> month. I have had problems with both of my ears most of my life.

> I'm 47 now and have a hearing aide in my right ear. My ENT

physician

> was hopeful that his initial diagnosis was incorrect because the

> surgery would have to be on my " hearing " ear. Well, the CT Scan in

> May confirmed the c-toma and validated the doctor's initial visual

> diagnosis.

>

> I am scheduled for surgery on July 22, 2004. My surgeon, Jed

> Kwartler, came highly recommended by my ENT physician. I had my

> first appointment with his associate, Dr. Eden, just this past

> Monday. Dr Eden does not perform surgery but was very helpful and

> knowledgable on the subject. I meet with Dr. Kwartler June 29 and

> I'm sure he will give me any additional information I will need. I

> was real impressed with the office and how quickly they were able

to

> schedule me. Dr. Kwartler and Dr. Eden are at the Ear Specialty

> Group in Springfield, NJ, in case anyone in the area is looking for

a

> surgeon.

>

> I've resigned myself to the fact that I may have some hearing loss,

> the c-toma has probably destroyed at least 2 of the 3 bones right

> above the eardrum.

>

> I'm glad that I found this group and I would appreciate any advice,

> and or experiences from those of you who have had the surgery

already.

>

> Thanks for listening!

>

> Doug

>

>

>

>

>

[Guest guest]

I know it has been awhile since I lasted posted, but I have scheduled

my surgery. I wanted to wait to post on the Internet until I told my

family (mother & sister) and friends. My husband was the only person

beside me to know.

In October of 2007 when I went to see Dr. Boachie, he wanted me to

have Pulmonary Test before he would let me schedule the surgery. I

had the tests the end of February and then final got to see Dr.

Boachie again on May 19th (earlier appointment got canceled). I took

the earliest surgery date that was available at that time. I will be

having A/P surgery on October 21, 2008. I have my pre-op

appointments all scheduled for Oct. 13...That will be a long day. My

first appointment is at 10am and the last one is at 3pm with Dr.

Boachie. I am hoping he will not be running to late. I will be

taking the train down and back from Grand Central.

Looks like ie and I will both be in HSS at the same time.

I would like a mentor if there is one available, I think it will be

helpful to have someone to talk to that has been through this and

will understand what I am going through.

Arlene

[Guest guest]

Arlene-

I am having surgery with Dr. Boachie on Oct. 8th. All my pre-op

tests there are on Sept. 29th. Not sure if I'll see you but I think

I'll see ie.

Good luck to you and hope we might get to meet. We'll see.

Jeanie

>

> I know it has been awhile since I lasted posted, but I have

scheduled

> my surgery. I wanted to wait to post on the Internet until I told

my

> family (mother & sister) and friends. My husband was the only

person

> beside me to know.

>

> In October of 2007 when I went to see Dr. Boachie, he wanted me to

> have Pulmonary Test before he would let me schedule the surgery. I

> had the tests the end of February and then final got to see Dr.

> Boachie again on May 19th (earlier appointment got canceled). I

took

> the earliest surgery date that was available at that time. I will

be

> having A/P surgery on October 21, 2008. I have my pre-op

> appointments all scheduled for Oct. 13...That will be a long day.

My

> first appointment is at 10am and the last one is at 3pm with Dr.

> Boachie. I am hoping he will not be running to late. I will be

> taking the train down and back from Grand Central.

>

> Looks like ie and I will both be in HSS at the same time.

>

> I would like a mentor if there is one available, I think it will be

> helpful to have someone to talk to that has been through this and

> will understand what I am going through.

>

> Arlene

>

[Guest guest]

Cam,

> Wow....it must have been crazy having such long delays between your

> pre-op evaluations and surgery. I know once I made the decision to

> go ahead with surgery, I wanted it done yesterday!

Yes it has been very hard, especially since I had no one to talk about

it, since I wanted to wait until closer to tell my family.

> I will get your surgery date on the calendar...so now its REAL!

Thanks. But I see you entered it on Monday, my surgery is Tuesday,

Oct. 21.

Arlene

[Guest guest]

Arlene,

OOOPPS! Sorry for the date mix up...didn't mean to bring it one day

closer. All fixed now.

Looking at that calendar its hard to believe that there isn't going to

be quite a party up on the ortho floor the middle of October. Between

you and ie and Jeanie....who knows who else will turn up?

Take Care, Cam

[Guest guest]

Arlene,

I will respond to you privately to get you setup with a mentor.

VC

>

> I know it has been awhile since I lasted posted, but I have

scheduled

> my surgery. I wanted to wait to post on the Internet until I told

my

> family (mother & sister) and friends. My husband was the only

person

> beside me to know.

>

> In October of 2007 when I went to see Dr. Boachie, he wanted me to

> have Pulmonary Test before he would let me schedule the surgery. I

> had the tests the end of February and then final got to see Dr.

> Boachie again on May 19th (earlier appointment got canceled). I

took

> the earliest surgery date that was available at that time. I will

be

> having A/P surgery on October 21, 2008. I have my pre-op

> appointments all scheduled for Oct. 13...That will be a long day.

My

> first appointment is at 10am and the last one is at 3pm with Dr.

> Boachie. I am hoping he will not be running to late. I will be

> taking the train down and back from Grand Central.

>

> Looks like ie and I will both be in HSS at the same time.

>

> I would like a mentor if there is one available, I think it will be

> helpful to have someone to talk to that has been through this and

> will understand what I am going through.

>

> Arlene

>

[Guest guest]

HI Arlene and Jeanie,

Dr. Boachie performed my revision surgery. He is an excellent surgeon and a very warm and caring individual. You are in great hands!

Bonnie

[Guest guest]

Hello Arlene:

If we are both in deed at HHS at the same time, maybe I will see you there, I wish you all the very best. By the way can you recommend any good hotels where family might stay? I am having truly a difficult time finding something that is financially feasible. But of course I will be in the hospital for at least two months and that is if there is no complications. So the accommodations that I need for my two caregivers can be very expensive over the time

Thanks again, I wish you all the very best, iewww.ieBush.comPsssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com.

[Guest guest]

ie,

I sent you an email (I think it went through).

Arlene