lots of questions...

[Guest guest]

Most important first step is to eliminate iron ... make sure your multi vitamin

doesn't have any iron in it, cut down on iron containing foods (red meat, etc.)

and never take vitamin c around meal times as it increases absorption of iron.

Iron provides a breeding ground for the virus...or the virus feeds off

iron...not sure which way it goes.

Watch your vitamin A intake...don't ever take more than 15000ius daily and try

to keep it around 10000iu. If you take a multi vitamin and an antioxident

vitamin, you are probably getting too much vitamin A. Too much vitamin A can

cause liver damage ... but you need vitamin A ... especially for your eyes.

Seems the most important vitamins are an iron free multi vitamin, milk thistle,

vitamins E and C, selenium and calcium. There are lots more that are good for

you but I think those are pretty much the most important. MSM will help joint

aches and brain fog along with other things.

Drink lots of water...it helps to flush toxins out of your body.

Avoid tylenol and other drugs containing acetaminophen.

Lots of things are hard for the liver to process. Fats, sugars (liver converts

sugars into fat), fake sugars, caffeine, etc. But we can't stop living. It took

me a year to get totally switched from soda pop to ice tea sweatened with

honey...but I still have my daily mocha expresso. High grain diets are good for

the liver. Try to cut back on red meat if you are a red meat eater and switch to

fish and skinless white poutry meat. Beta carotene is good for the liver so try

to include things like sweet potatoes, yams, beets, carrots in your diet. If you

are a person who cooks meals, Dr. Cabot has a book, The Liver Cleansing

Diet, with some excellent recipes. I don't really cook so eat things like brown

rice with steamed veges or steamed fish or white poultry meat (I love my steamer

<g>)...and I love sweet potatoes so in the winter am always baking sweet

potatoes. I also eat a lot of oatmeal with dried fruits added.

There is an extremely low percentage of sexually transmitted HCV...it is a blood

borne virus so your husband is probably safe. I don't know about mother's who

have HCV passing it on to their unborn children so someone else will have to

answer that. This page at hepatitis-central.com has information on that:

http://www.hepatitis-central.com/hcv/hepatitis/mtctoc.html. I don't know of

anyone who wears an alert bracelet although I always remind my dentist that I

have Hep C just to be on the safe side.

Guess beginning basics are to stay away from iron, sugars and high fat products.

I'm sure that you'll get lots of responses to this post...so will have lots of

things to think about. Just thought I'd try to cover some of what I consider

important as beginning steps. You'll be making a lot of lifestyle changes as

time goes on...just don't try to do everything at once...

Blessings

Tatezi

lots of questions...

Okay, I know that I should be asking my Dr. these questions, but since I can't

get in to see my Dr. yet (I have my first appt on 7/29 he is on vacation til

then) I am going to ask you. They may seem silly, but I don't have a clue...

I know I have to stop drinking alcohol, but what about tea, coffee, soda? Are

certain dyes in soda's, foods off limits? For example: the red dye in the code

red mountain dew... is that a no-no? Should I mainly be drinking more water? Are

there foods I need to stay away from?

What about my kids? Since I don't know how long I have had this could I have

passed this to my kids (born 91, 96, 98)? My husband will be getting checked

this week, but do the kids need to also?

Am I going to need to get some sort of alert tag to wear?

I guess that is it for now.

Thank you so much,

Jill

[Guest guest]

Most important first step is to eliminate iron ... make sure your multi vitamin

doesn't have any iron in it, cut down on iron containing foods (red meat, etc.)

and never take vitamin c around meal times as it increases absorption of iron.

Iron provides a breeding ground for the virus...or the virus feeds off

iron...not sure which way it goes.

Watch your vitamin A intake...don't ever take more than 15000ius daily and try

to keep it around 10000iu. If you take a multi vitamin and an antioxident

vitamin, you are probably getting too much vitamin A. Too much vitamin A can

cause liver damage ... but you need vitamin A ... especially for your eyes.

Seems the most important vitamins are an iron free multi vitamin, milk thistle,

vitamins E and C, selenium and calcium. There are lots more that are good for

you but I think those are pretty much the most important. MSM will help joint

aches and brain fog along with other things.

Drink lots of water...it helps to flush toxins out of your body.

Avoid tylenol and other drugs containing acetaminophen.

Lots of things are hard for the liver to process. Fats, sugars (liver converts

sugars into fat), fake sugars, caffeine, etc. But we can't stop living. It took

me a year to get totally switched from soda pop to ice tea sweatened with

honey...but I still have my daily mocha expresso. High grain diets are good for

the liver. Try to cut back on red meat if you are a red meat eater and switch to

fish and skinless white poutry meat. Beta carotene is good for the liver so try

to include things like sweet potatoes, yams, beets, carrots in your diet. If you

are a person who cooks meals, Dr. Cabot has a book, The Liver Cleansing

Diet, with some excellent recipes. I don't really cook so eat things like brown

rice with steamed veges or steamed fish or white poultry meat (I love my steamer

<g>)...and I love sweet potatoes so in the winter am always baking sweet

potatoes. I also eat a lot of oatmeal with dried fruits added.

There is an extremely low percentage of sexually transmitted HCV...it is a blood

borne virus so your husband is probably safe. I don't know about mother's who

have HCV passing it on to their unborn children so someone else will have to

answer that. This page at hepatitis-central.com has information on that:

http://www.hepatitis-central.com/hcv/hepatitis/mtctoc.html. I don't know of

anyone who wears an alert bracelet although I always remind my dentist that I

have Hep C just to be on the safe side.

Guess beginning basics are to stay away from iron, sugars and high fat products.

I'm sure that you'll get lots of responses to this post...so will have lots of

things to think about. Just thought I'd try to cover some of what I consider

important as beginning steps. You'll be making a lot of lifestyle changes as

time goes on...just don't try to do everything at once...

Blessings

Tatezi

lots of questions...

Okay, I know that I should be asking my Dr. these questions, but since I can't

get in to see my Dr. yet (I have my first appt on 7/29 he is on vacation til

then) I am going to ask you. They may seem silly, but I don't have a clue...

I know I have to stop drinking alcohol, but what about tea, coffee, soda? Are

certain dyes in soda's, foods off limits? For example: the red dye in the code

red mountain dew... is that a no-no? Should I mainly be drinking more water? Are

there foods I need to stay away from?

What about my kids? Since I don't know how long I have had this could I have

passed this to my kids (born 91, 96, 98)? My husband will be getting checked

this week, but do the kids need to also?

Am I going to need to get some sort of alert tag to wear?

I guess that is it for now.

Thank you so much,

Jill

[Guest guest]

Hi Jill,

First off NO ALCOHOL. They say that drinking alcohol is like pouring gasoline

on an already burning fire. Now there are a few people who have almost no liver

damage who might have a drink once or twice a year, but that's it. Mostly tho,

heppers just don't drink. Too much like suicide.

As for caffeine etc. I'd say do what feels good until your doc tells you

otherwise. I have reduced my caffeine quite a bit. I'm a southern sweet ice

tea drinker. I used to drink a pitcher a day, now I drink a glass a week.

I also keep Koolaid and popscicles around because the treatment that I'm on

makes me very thirsty.

Drink lots of " good " water. You may want to get filtered water or bottle water.

Heppers always need water.

I drink colas now and then. Again, this will all depend on the results of your

liver biopsy.

I would get the kids tested for sure. It would give you peace of mind, cuz they

aren't gonna have it, I'm 99% sure. But there is always that little doubt. I

had my hubby and both kids tested in 90 when I found out about mine. Nobody

else had it thank goodness.

Be sure hubby and kids know not to share you toothbrush, nor your razors, or

anything that could get blood on it, not even a loofsa scrubber. I'm a clutz so

I keep a lot of bandaids in the house for me to use.

Some heppers do get the med alert tags. I think before long, there will be med

alert tags for people who have nothing wrong with them, cuz so many people have

hep Just a little cynical humor!

Well I just woke up. I'm sure others have some good advice also. For now, just

remember to rest when you can, drink lots of water, avoid drugs and herbs you

don't need, and avoid alcohol and you'll do great. Then when you see your hep

doc, yall can discuss all that stuff. I always take a list of questions with

me.

Good luck!

alley

Grand Prairie, Tx

[Guest guest]

Hi Jill,

First off NO ALCOHOL. They say that drinking alcohol is like pouring gasoline

on an already burning fire. Now there are a few people who have almost no liver

damage who might have a drink once or twice a year, but that's it. Mostly tho,

heppers just don't drink. Too much like suicide.

As for caffeine etc. I'd say do what feels good until your doc tells you

otherwise. I have reduced my caffeine quite a bit. I'm a southern sweet ice

tea drinker. I used to drink a pitcher a day, now I drink a glass a week.

I also keep Koolaid and popscicles around because the treatment that I'm on

makes me very thirsty.

Drink lots of " good " water. You may want to get filtered water or bottle water.

Heppers always need water.

I drink colas now and then. Again, this will all depend on the results of your

liver biopsy.

I would get the kids tested for sure. It would give you peace of mind, cuz they

aren't gonna have it, I'm 99% sure. But there is always that little doubt. I

had my hubby and both kids tested in 90 when I found out about mine. Nobody

else had it thank goodness.

Be sure hubby and kids know not to share you toothbrush, nor your razors, or

anything that could get blood on it, not even a loofsa scrubber. I'm a clutz so

I keep a lot of bandaids in the house for me to use.

Some heppers do get the med alert tags. I think before long, there will be med

alert tags for people who have nothing wrong with them, cuz so many people have

hep Just a little cynical humor!

Well I just woke up. I'm sure others have some good advice also. For now, just

remember to rest when you can, drink lots of water, avoid drugs and herbs you

don't need, and avoid alcohol and you'll do great. Then when you see your hep

doc, yall can discuss all that stuff. I always take a list of questions with

me.

Good luck!

alley

Grand Prairie, Tx

[Guest guest]

Tatezi and Alley,

Thank you, it all sounds like good advice. I will

make sure I start listing everything so I can take it to my Dr. when I go.

Jill

Re: lots of questions...

Hi Jill,

First off NO ALCOHOL. They say that drinking alcohol is like pouring gasoline

on an already burning fire. Now there are a few people who have almost no liver

damage who might have a drink once or twice a year, but that's it. Mostly tho,

heppers just don't drink. Too much like suicide.

As for caffeine etc. I'd say do what feels good until your doc tells you

otherwise. I have reduced my caffeine quite a bit. I'm a southern sweet ice

tea drinker. I used to drink a pitcher a day, now I drink a glass a week.

I also keep Koolaid and popscicles around because the treatment that I'm on

makes me very thirsty.

Drink lots of " good " water. You may want to get filtered water or bottle

water. Heppers always need water.

I drink colas now and then. Again, this will all depend on the results of

your liver biopsy.

I would get the kids tested for sure. It would give you peace of mind, cuz

they aren't gonna have it, I'm 99% sure. But there is always that little doubt.

I had my hubby and both kids tested in 90 when I found out about mine. Nobody

else had it thank goodness.

Be sure hubby and kids know not to share you toothbrush, nor your razors, or

anything that could get blood on it, not even a loofsa scrubber. I'm a clutz so

I keep a lot of bandaids in the house for me to use.

Some heppers do get the med alert tags. I think before long, there will be

med alert tags for people who have nothing wrong with them, cuz so many people

have hep Just a little cynical humor!

Well I just woke up. I'm sure others have some good advice also. For now,

just remember to rest when you can, drink lots of water, avoid drugs and herbs

you don't need, and avoid alcohol and you'll do great. Then when you see your

hep doc, yall can discuss all that stuff. I always take a list of questions

with me.

Good luck!

alley

Grand Prairie, Tx

[Guest guest]

Tatezi and Alley,

Thank you, it all sounds like good advice. I will

make sure I start listing everything so I can take it to my Dr. when I go.

Jill

Re: lots of questions...

Hi Jill,

First off NO ALCOHOL. They say that drinking alcohol is like pouring gasoline

on an already burning fire. Now there are a few people who have almost no liver

damage who might have a drink once or twice a year, but that's it. Mostly tho,

heppers just don't drink. Too much like suicide.

As for caffeine etc. I'd say do what feels good until your doc tells you

otherwise. I have reduced my caffeine quite a bit. I'm a southern sweet ice

tea drinker. I used to drink a pitcher a day, now I drink a glass a week.

I also keep Koolaid and popscicles around because the treatment that I'm on

makes me very thirsty.

Drink lots of " good " water. You may want to get filtered water or bottle

water. Heppers always need water.

I drink colas now and then. Again, this will all depend on the results of

your liver biopsy.

I would get the kids tested for sure. It would give you peace of mind, cuz

they aren't gonna have it, I'm 99% sure. But there is always that little doubt.

I had my hubby and both kids tested in 90 when I found out about mine. Nobody

else had it thank goodness.

Be sure hubby and kids know not to share you toothbrush, nor your razors, or

anything that could get blood on it, not even a loofsa scrubber. I'm a clutz so

I keep a lot of bandaids in the house for me to use.

Some heppers do get the med alert tags. I think before long, there will be

med alert tags for people who have nothing wrong with them, cuz so many people

have hep Just a little cynical humor!

Well I just woke up. I'm sure others have some good advice also. For now,

just remember to rest when you can, drink lots of water, avoid drugs and herbs

you don't need, and avoid alcohol and you'll do great. Then when you see your

hep doc, yall can discuss all that stuff. I always take a list of questions

with me.

Good luck!

alley

Grand Prairie, Tx

[Guest guest]

Hi Jill, I had both my sons tested and ex. All were negative. I was advised

to get the hep B series and the hep A. vaccination, so we all did that as

well. This is very important for us heppers to get vaccinated. And I take a

flu shot every year.

I hardly ever get sick anyway.

Sincerely,

Donna

[Guest guest]

Hi Jill, I had both my sons tested and ex. All were negative. I was advised

to get the hep B series and the hep A. vaccination, so we all did that as

well. This is very important for us heppers to get vaccinated. And I take a

flu shot every year.

I hardly ever get sick anyway.

Sincerely,

Donna

[Guest guest]

Hi Lea. You have chosen an excellent group to have your questions answered. No

one will be offended by your questions. We have a number of members who have

children with CI's, and they can better reply to your questions than I can. Your

questions are good ones. I am 69 years old and will be implanted on September

13th. This group has really been informative in the year and some in which I

have been a member. It has been said that the deaf culture in the US frowns upon

CI's. That is their problem, and you should not be pursuaded by them. CI's are

wonderful, and I look forward to hearing again. I wish your nephew the best, and

advise you to read all the posts. You will learn things about which you haven't

even asked!

Irv in California

textradingperu <textradingperu@...> wrote:

Hi All,

I am new to this site and new to cochlear implants as well. I am 27

years old and my nephew who is almost 10 months old has been

diagnosed with profound hearing loss. We live in Lima, Peru so my

sister and brother in law took my nephew to Los Angeles a few months

ago to have his hearing tests and preliminary tests. Apparently he

is a candidate for a cochlear implant and they are seriously

considering this possibility. I have so many questions regarding my

nephew's future and would like to hear from others who have had CI's

or parents of children with CIs. I do not mean to be rude by asking

any of the following questions so please excuse me if they are in any

way offensive. First of all, I would like to know how well one can

hear with a CI. Will my nephew attend regular schools or should he go

to special schools? Do patients with CIs still have to have speech

therapy? Do patients with CI depend on lip reading at all? How well

do patients with CIs speak (specially those who were prelingually

deaf)? I am currently reading a book called Train Go Sorry by Leah

Cohen which has been interesting as an introduction to deaf culture

in the States. Of course we don't really have a deaf culture here in

Peru and no official sign language either. The book was written over

10 years ago so I was curious to find out if the new hearing aids and

CI technology has affected deaf culture in the States or if it is

still as tight a community. Are patiens with CIs shunned from this

community? Answers to any (or all!) of these questions would be

great! Thanks a lot, Lea.

[Guest guest]

Hi Lea,

I am a deaf adult awaiting my first cochlear implant. I recently lost

the help of my hearing aid, which I used quite well for 43 years since

the age of 5.

First of all, my hats off to you for taking the time to research your

nephews options. While I cannot answer all your questions I can give

some advice. First and foremost, is be sure that your nephew has

access to language! This alone will impact his ability to process

information and keep him up to level with other babies his age.

I wrote a research paper regarding language and deaf children. You may

be interested in reading it...here is a link:

http://users.zoominternet.net/~cindy4baskets/research.html

My personal experience growing up...moderate to severe loss, in school

speech therapy as well as after school at a local hearing and speech

clinic and an all time high level of motivation!! I wanted to know how

to pronounce words correctly...I was and still am, a sponge soaking up

new information. My speech today is such that most people have no clue

that I am deaf. Everyone is different; it all depends on life

experience and how motivated children are to learn. I never learned

American Sign Language until I was in my late 20's, and while in

school, I struggled a lot and did not have much of a social life. Back

then, there wasn't any educational support services until the year I

graduated. Then after I learned ASL, I went to college. What a

difference this made in my ability to learn!! I made the deans list!

In school, I actually graduated with a 1.75 GPA! Imagine! Today I use

ASL when in the company of deaf individuals and speech when with

hearing people.

I am married to a deaf man, and he is also looking into getting a

cochlear implant. (he very recently lost the gift of vision in one

eye) We both feel it would be an added boost with our jobs.

Yes,there are some deaf people who are totally against cochlear

implants; and many of them oppose implantation in children under the

age of 18. The Deaf culture is a beautiful world with a language of

its own. I feel that all deaf children should be exposed to Deaf

culture and ASL. As far as choosing to implant ones child, I am

neutral because there are so many things that factor into this

decision.

My life has been good since then while I await my cochlear implant. I

am unable to benefit from hearing aids now so I look forward to my new

journey! Also, I intend to stay actively involved in the Deaf community!

Good Luck!

> Hi All,

>

> I am new to this site and new to cochlear implants as well. I am 27

> years old and my nephew who is almost 10 months old has been

> diagnosed with profound hearing loss. We live in Lima, Peru so my

> sister and brother in law took my nephew to Los Angeles a few

months

> ago to have his hearing tests and preliminary tests. Apparently he

> is a candidate for a cochlear implant and they are seriously

> considering this possibility. I have so many questions regarding

my

> nephew's future and would like to hear from others who have had

CI's

> or parents of children with CIs. I do not mean to be rude by asking

> any of the following questions so please excuse me if they are in

any

> way offensive. First of all, I would like to know how well one can

> hear with a CI. Will my nephew attend regular schools or should he

go

> to special schools? Do patients with CIs still have to have speech

> therapy? Do patients with CI depend on lip reading at all? How well

> do patients with CIs speak (specially those who were prelingually

> deaf)? I am currently reading a book called Train Go Sorry by Leah

> Cohen which has been interesting as an introduction to deaf culture

> in the States. Of course we don't really have a deaf culture here

in

> Peru and no official sign language either. The book was written

over

> 10 years ago so I was curious to find out if the new hearing aids

and

> CI technology has affected deaf culture in the States or if it is

> still as tight a community. Are patiens with CIs shunned from this

> community? Answers to any (or all!) of these questions would be

> great! Thanks a lot, Lea.

[Guest guest]

Thank you for your insight. I will definitely check out your research

paper and pass it along to my sister in law!

Lea

[Guest guest]

Thank You Irv. I will definitely keep reading since I agree with you

that there is a lot I can learn from this group!

Lea

[Guest guest]

OK, I've been doing the diet for a few days and now I have a ton of

questions..hopefully I can get them all answered in one post instead

of posting about 10 times separately.

1) Is rhubarb allowed? I can never figure out if it's a vegetable or

a fruit.

2) What about snap peas (in the shell)? I know regular peas aren't

allowed, but do they have fewer carbs in the shell?

3) Is there a purpose to the electolyte drink besides getting in the

recommended amount of sea salt? I don't have any problem drinking

lemonade (with stevia) with meals, and I use quite a bit of salt in my

food, but the electrolyte drink tastes gross.

4) Is it possible to eat too much coconut oil? I've been eating

around 8 Tbsp per day. I can't eat butter due to my nursing baby's

dairy allergies. (I was eating about 4 Tbsp. of coconut oil per day

before the diet so I didn't jump up to 8 Tbsp from none.)

5) The article about cookware says that magnets will only stick to

18/0 stainless steel. I have some stainless steel pots that say they

are 18/10 and a magnet definitely sticks to them. Anyone know why

this might be?

6) Can I start stage 2 & 3 at the same time? I can't order the

supplements until after the 1st of July, but my die off symptoms are

pretty minimal now so I'm wondering if I can start stage 3 when I

start the supplements.

7) I know kefir isn't allow, but what about just eating water kefir

grains? I have some in storage and they keep growing, so I was

wondering if I could get some benefit by eating the extra grains,

without any of the drawbacks of dairy, sugar, or juice in kefir drinks.