Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 Dear jwm?, I glad that your side effects weren't that horrible, and true, for most people they aren't (thankfully!) But that's not the way it is for everyone. For a lot of the time I was on the combo, even with anemia I still was able to function fairly well, but I did go through a couple of months part way into that year where I wasn't jumping or running. I wasn't even walking from one room to the next without stopping for a rest. And since my husband is a truck driver I was often on my own if I needed to go somewhere. I didn't know I could apply for a temp. handicap sticker but it would have made some things a lot easier for me during that time period if I would have had it. I remember the nurse in my doctor's office telling me that some people weren't hardly effected at all, and others couldn't even get out of bed. You need to keep in mind that the medications can effect all people differently. Claudine >From: jwm116@... >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Re: Handicapped Sticker >Date: Mon, 6 Mar 2000 22:38:09 EST > >Funny, isn't it? You rarely see anyone park in a handicap space that is >truly handicapped! Most that I've seen JUMP out of the car and RUN into >some >place. Often a health club! >Try to lighten up on those HORRIBLE side effects. They make good >conversation, sure. But they're not really so bad that you can't walk a >few >feet further in the parking lot. >I thought those spaces were for people in wheel chairs. ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 Funny, isn't it? You rarely see anyone park in a handicap space that is truly handicapped! Most that I've seen JUMP out of the car and RUN into some place. Often a health club! Try to lighten up on those HORRIBLE side effects. They make good conversation, sure. But they're not really so bad that you can't walk a few feet further in the parking lot. I thought those spaces were for people in wheel chairs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 Funny, isn't it? You rarely see anyone park in a handicap space that is truly handicapped! Most that I've seen JUMP out of the car and RUN into some place. Often a health club! Try to lighten up on those HORRIBLE side effects. They make good conversation, sure. But they're not really so bad that you can't walk a few feet further in the parking lot. I thought those spaces were for people in wheel chairs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 Hey Sara thanks for the info. I have considered asking my doc if he'd help me get one. On a mild day, walking from the north forty to the grocery store might not be a biggy.. I can sit and rest after getting to the front door.. however on a usual Dallas Texas summer day, temp 99+ F, no way. I'm embarrassed to ask tho.. cause Im not in a wheel chair and I " look " healthy.. you know? I hate to think of myself as " weak " . Funny how we hold these things in our heads. alley/ ICQ 12631861 alleypat@... http://micromagic.net/~alleypat <center> <a href= " /subscribe/DFW_Liver_Disease " > <img src= " /images/join.gif " border=0><br> Click to subscribe to DFW_Liver_Disease</a> </center> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 You know what jwm I don't have one either. But I sure could use one. You never know what another persons health is like. I not only received Hepatitis B and C from the fire that I was in and the 28 pints of blood I received from grafting surgery. I have ended up with COPD and many other things. My first month on the Combo was a breeze but as time went on I got worse to the point was hardly able to move. I have lost my home, my job, and now am off meds because of no insurance. So before you make fun of people that have them try walking in their shoes. I understand what you are talking about I have seen plenty of healthy looking and acting people with them. It is the Dr's at least here in FL that enable you to get them. So it is the Dr's that need to be reprimanded. I was given a signed form for a temp one but could not afford the $14.00 that it cost and was for just 3 months so I figured so what, I was getting sicker on a day to day basis. So, I just handle it in my own way. My side effects did not start till after about 6 weeks and saying to lighten up on them really bothers me. Maybe you were normal and had them the usual way I did not, and I am sure there are others out there like me. I had side effects the Dr's could not even explain for one I was born with naturally curly hair and went to bed as normal with a bit longer than shoulder length, washed curly hair woke up in the morning with straight hair reaching almost to my waist. Explain that one to me, no one else can........sorry I am just venting I have a toothache and dentists won't touch me because of bleeding time, say it needs to be pulled and that I would bleed to death.........As I said sorry, but needed someone to talk to. --- jwm116@... wrote: > Funny, isn't it? You rarely see anyone park in a > handicap space that is > truly handicapped! Most that I've seen JUMP out of > the car and RUN into some > place. Often a health club! > Try to lighten up on those HORRIBLE side effects. > They make good > conversation, sure. But they're not really so bad > that you can't walk a few > feet further in the parking lot. > I thought those spaces were for people in wheel > chairs. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 True, Claudine.......JWM: another point that I've thought about as a woman, is that I am more vulnerable than ever in a parking lot.....because I am fatigued, " foggy " , weak, and distracted much of the time......not a good way to be when you're female, alone, and walking from way out in a parking lot.....It is a " handicap " in a way...more for some than others.....and more some days than others.....D.T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 True, Claudine.......JWM: another point that I've thought about as a woman, is that I am more vulnerable than ever in a parking lot.....because I am fatigued, " foggy " , weak, and distracted much of the time......not a good way to be when you're female, alone, and walking from way out in a parking lot.....It is a " handicap " in a way...more for some than others.....and more some days than others.....D.T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 In a message dated 2/26/02 10:19:33 PM Pacific Standard Time, writes: > > JOan, > You mentioned that you have a handicapped sticker. Did you get this for > Andy? I have been thinking about this. Matt is too big for me to pick up > and carry anymore, and there are days that I just " know " that he will be > difficult to control in a parking lot. He doenst' fit in a basket any > more, even in the " back " . At Walmart, I use the wheelchairs they provide, > with a basket on front. This " contains " him so I can get what I need to > get. But I wasnt' sure if we could get a regular handicapped parking > sticker, since he really doens't have any " trouble " walking-he will in > fact, try to sprint away! > Is yours just for Andy? > > JMJ > S > > I have a handicapped sticker for . It is for the reason that he will refuse to walk or run away from me when upset. Here we just have to get our dr. to sign a form that you get from the dept of transportation. It is renewable every 4 years or so. I also like it for community festivals where we wouldn't be able to attend because of the long walk to the event. Most of them have close by handicapped parking. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 We have a handicapped hanger for the rear-view mirror of our car. We use it maybe 25% of the time, depending all a lot of factors. PB's darting away from us has improved, but just as soon as I say that, he's been fascinated with trying to open the backs of vans and trucks, as well as check on the cover to the gas cap on cars, to try and pry them open. We use it also like Karyn, at large public places like the zoo and some of the parks. One thing I have noticed is that his MacLaren stroller has been unused for at least six months, I think. It is still in the back of the car, but it's not been necessary. Stamina has not been a problem for Ben. But the safety issue- there is no going back once something happens. I initially felt very guilty when I got the MacLaren stroller (that was two years ago already) and I felt guilty initially using the handicapped hanger. Since PB has had zero health problems associated with DS I guess I felt even worse about it. Not any more! Especially with this kid getting bigger and stronger- there are just fewer problems when we are up close to the entrance of places. Beth Mum to Ben, age 11 1/2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Beth, Glad you snapped out of the guilt having a handicapped hanger because my mom kept telling me to get one due to those difficult behavior and boy do I now regret it. Bird brain(me) kept saying he knows how to walk, needs to learn how to cooperate and so much other stuff. So true, as they get older & stronger, the struggles in the past when on or off the vehicle due to those behavior situations. I should of started back when he was younger. is cooperating now, but every now and then he'll have his moments . Now I'm the one with an injured back of a lot of wear & tear disc, maybe I should still look into it. So who cares of what others think, its for our kids safety & our health. Irma, 13,DS/ASD > We have a handicapped hanger for the rear-view mirror of our car. We use > it maybe 25% of the time, depending all a lot of factors. PB's darting > away from us has improved, but just as soon as I say that, he's been > fascinated with trying to open the backs of vans and trucks, as well as > check on the cover to the gas cap on cars, to try and pry them open. > > We use it also like Karyn, at large public places like the zoo and some of > the parks. One thing I have noticed is that his MacLaren stroller has been > unused for at least six months, I think. It is still in the back of the > car, but it's not been necessary. > > Stamina has not been a problem for Ben. But the safety issue- there > is no going back once something happens. > > I initially felt very guilty when I got the MacLaren stroller (that was two > years ago already) and I felt guilty initially using the handicapped > hanger. Since PB has had zero health problems associated with DS I guess I > felt even worse about it. Not any more! Especially with this kid getting > bigger and stronger- there are just fewer problems when we are up close to > the entrance of places. > > Beth Mum to Ben, age 11 1/2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 In a message dated 2/28/02 9:19:22 AM Eastern Standard Time, ICANFIELD@... writes: > maybe I should still look > into it. So who cares of what others think, its for our kids safety & > our health. > Definitely Irma. I plan on filling out the form AGAIN.....maybe this time, they won't lose it...sheesh! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 Cam, Here and in the state where I used to live, the DMV has a form that just needs to be completed by the patient and his/her doctor. Bonnie [ ] Re: So, are there any real stats on this flatback thingy?/ ,Your are not whining if you are experiencing pain and tell people! Most people (maybe not your boss) are willing to and want to help. It is difficult to make people understand what chronic pain is and how difficult it may be for you to do certain things. I don't know what your situation is but perhaps if you at least went through the exercise of obtaining a license plate for the disabled your boss and co-workers would recognize that just because they can't see it you have real serious issues. I am not sure what the process is but I know of several people who were told they qualified for this. That was after revision, but I know I was more disabled before than after surgery! I am sorry I can't remember what they told you at the Austin Spine Clinic...have they given you any answers or are they recommending or prescribing anything for your pain?Take Care, Cam Quote Link to comment Share on other sites More sharing options...
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