Guest guest Posted June 6, 2008 Report Share Posted June 6, 2008 Hi everyone! I've spent the last few months battling UTIs and incompetent people in doctor offices, pharmacies, & insurance companies. But this past Monday I finally had my dose of novantrone - yay! It was only about 6 weeks after it should have been. I had a wonderful steroid high for 2 days (they give a small dose of dexamethasone with the chemo) which has unfortunately worn off now. But I was standing and walking better than I had done in months while it was there! I was really tired from everything - the UTIs and the chemo - but am doing better now. The chemo treatment was an interesting experience. Instead of home health, I ended up having to go in to my neuro's hospital 90 miles away. I won't go into the details of all the problems, but the whole ordeal took 10 hours, which was absolutely ridiculous since it should have been closer to 5-6 hours (including travel time). The nurse was horrid and among other things, at the very end of the treatment I had some blue drips running down my arm - not a good thing to have chemo leaking out of the IV and touching your skin! But it's all over for 3 more months anyways. I did see my new PCP this week too (my old one moved away), and I was very happy with her. She is very easy to talk to, and she is more than happy to coordinate care with my various specialists. Now next week I get to see my new urologist, due to the subpar care I got from the previous doc's office with my various bladder infections. So hopefully that will go smoothly too! I am at almost 11 months post-revision. My back is doing well for the most part. The pre-surgical pain is gone. But my biggest problem with pain now still is sleeping comfortably. I don't think it's my mattress (fairly firm), but more with the positioning. It doesn't matter where I cram or don't cram pillows, I just always wake up really sore. And oftentimes at the end of the day I feel really tight from sitting all day in my wheelchair. I've been trying to change positions more often, and it only slightly helps. But other than that stuff, things are going well here. My husband is putting up a swingset for the kids (now ages 3 and 4), and they are so excited It's fun to watch them! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.