Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Hi, Sounds like Katelyn is doing great, how are mom and dad? Glad she came through the surgery just fine. Michele "nicknkate20705 <candy.fosta@...>" <candy.fosta@...> wrote: Katelyn had her "second look" surgery yesterday. The c-toma had returned and had eroded the top hearing bone (sorry I don't know the technical name -- it is the one that looks like a hammer). The first surgery was in May 2002 so I was a little surprised when I was told that the bone was eroded. Her eardrum was also reconstructed (second time) as the c-toma was hanging from it. She is feeling pretty good today (a little grouchy) and hasn't asked for any pain medication. She was also able to come home last night instead of spending the night at the hospital. We were told that she would have hearing loss in that ear but that it was possible that it might only be temporary. I believe that she will be given a hearing test on January 10. Right now the course of treatment is several post op follow ups and then seeing the doctor every 2 months. He also has her on an antibiotic for the next 3-4 weeks. Around 12 months from now, he will do an additional "look" surgery and if the c-toma has not returned will possibly insert a prothesis where the missing bone was located. I am very thankful that I found this site prior to the surgery as I felt very informed when the surgeon was explaining everything. If anyone has any comments or suggestions about what we should ask at the January 10 visit, please respond. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Michele -- Thanks for asking. Other than being a little tired, I am feeling fine. I think my husband is pretty drained -- mainly because he didn't want to know any details so he didn't have to worry. Once the surgeon started talking, he just turned pale. Once he realized I knew what the surgeon was talking about and I didn't seem upset, he seemed to digest the information a little bit better. I changed her dressings tonight and the incision behind the ear looks great. He did not shave her hair and the incision is right on the hair line so it is not going to show at all. She has had minimal drainage from the ear. He used gel-foam to pack the ear (same as last time) so no packing will have to be removed, and he said the stitches behind the ear will disolve on their own (which made Katelyn happy). Katelyn had her " second look " surgery yesterday. The c-toma had > returned and had eroded the top hearing bone (sorry I don't know the > technical name -- it is the one that looks like a hammer). The first > surgery was in May 2002 so I was a little surprised when I was told > that the bone was eroded. Her eardrum was also reconstructed (second > time) as the c-toma was hanging from it. She is feeling pretty good > today (a little grouchy) and hasn't asked for any pain medication. > She was also able to come home last night instead of spending the > night at the hospital. We were told that she would have hearing loss > in that ear but that it was possible that it might only be > temporary. I believe that she will be given a hearing test on > January 10. Right now the course of treatment is several post op > follow ups and then seeing the doctor every 2 months. He also has > her on an antibiotic for the next 3-4 weeks. Around 12 months from > now, he will do an additional " look " surgery and if the c-toma has > not returned will possibly insert a prothesis where the missing bone > was located. I am very thankful that I found this site prior to the > surgery as I felt very informed when the surgeon was explaining > everything. If anyone has any comments or suggestions about what we > should ask at the January 10 visit, please respond. Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2003 Report Share Posted April 16, 2003 , Your post have made me laughing off my brain, and makes me smiles. It sounds like you are too way comformable MORE than us olies' and youngiles' (I know, my grammar is wrong, but who cares? I might am 13 years old but I might am oldie' grandpa LOL). Wow, sounds like you are improviding too way better, and congruations on the surgeny. When is your hook up date? I hope your kids don't notice you are wearing cochlear processor because they will think that you changed to 'robot' and they won't hug you because they think you are too cold ! LOL ! =-P Well, I have to go, oh, yea, i hope you won't get the truck over your head and honk the horn of the fire truck to makes your brain go BOOM to Mars! LOL Just teasing you. Smile and wonderful experience and this is good CI memories I could hear of with great humor! =-) Pace Kentucky Implant Nucleus 22 on April 1994 Hook up around May and June 1994 Worn Spectra since 1994 and stopped in 2003. Upgrade ESPrit 22 on Feb 18th, 2003 God Bless America -- I STRONGLY Support the war! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2003 Report Share Posted April 16, 2003 Hi , Congratulations! The hard part is over. I know you are not feeling like doing sprints and this is your time to complain and ask for every bit of TLC you can get. You earned it. You will probably notice that you feel like this for a couple more days before you realize that the after effects are lessening. I would definitely not plan on going to work on Monday. This was surgery and you should be taking time off. Most people take at least two weeks. I'm glad you are protecting yourself from falls if you get dizzy. Try sleeping in a recliner if you have one as this is normally more comfortable right after surgery. Now rest and take care of yourself. You have something wonderful to look forward to. After all this heals, you'll be hooked up and hearing. Your post was really fun to read. I appreciated your sense of humor. I'm glad the surgery part is over for you. <smile> Alice N24 11/99 N24C 04/03 Bilateral Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2003 Report Share Posted April 16, 2003 Good to hear all is well with the surgery. My son calls me the bionic woman LOL. Take care and take at least 2 weeks off as you will need it. Surgery update > Like they say, the surgery outcome is unique for each person. No one needs > to think that their experience will be the same as mine. If you are > staying at the hospital overnight and they ask what you want for supper, > don't tell them a sandwich, because the bread is dry and hard to swallow!! > Seems to me that a 'soft diet' should be soup and jello! > > Anyway, I'm home and recovering. A turban is really not my favorite hair > style so I will be glad to get it off when i go to Post-op tomorrow. > It is not any picnic getting one of these things. I got pain in totally > unexpected places but the vicodin takes the edge off (and gives me a dull > mind). It will get better and I'm being careful. No nausea, no major > dizziness (unless I move my head too fast) and I'm using a walker to get > around the house 'just in case' I suddenly do get dizzy, sure don't want to > fall and bang my head and have to start all over again. Actually feel > better at home cuz I was tied up in the hospital bed with cathether and IV > and could not move around much. " They " never told me my left butt would be > sore, my lower jaw would hurt, my chest would hurt, > although I did expect a sore throat from the respirator. It is a riot > trying to get comfortable. Feels better to joke about it, i guess it > would hurt worse to get run over by a truck??? > Shoot just saw a soldier on TV this morning who got shot in eight places > and he is grinning and happy and able to joke about it too, and he's only 18 > yrs old, what a guy! . > The ear under the turban is itchy and I can't scratch it either. (whine > moan complain) Now you can see why I don't want visitors, I even told the > kids to keep the grandkids away cuz they will think I had all my brains > removed too. But thanks for the prayers, I know they helped. > After the surgeon came into recoveriy room and told me all was well and it > went fine, etc., I saw him > rubbing his shoulders like he was real sore so I guess it wore him out too. > This proves what I already knew, that I'm hard-headed. (grin) > I am going to beg the doc to order me to stay home a few extra days because > I sure don't think I will feel like going back to work on Monday. > > H in Houston > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2003 Report Share Posted April 17, 2003 ha ha, , you are a peach, I love the idea of getting shot to Mars by tooting the truck horn that ran me over hugs H Re: Surgery update , Your post have made me laughing off my brain, and makes me smiles. It sounds like you are too way comformable MORE than us olies' and youngiles' (I know, my grammar is wrong, but who cares? I might am 13 years old but I might am oldie' grandpa LOL). Wow, sounds like you are improviding too way better, and congruations on the surgeny. When is your hook up date? I hope your kids don't notice you are wearing cochlear processor because they will think that you changed to 'robot' and they won't hug you because they think you are too cold ! LOL ! =-P Well, I have to go, oh, yea, i hope you won't get the truck over your head and honk the horn of the fire truck to makes your brain go BOOM to Mars! LOL Just teasing you. Smile and wonderful experience and this is good CI memories I could hear of with great humor! =-) Pace Kentucky Implant Nucleus 22 on April 1994 Hook up around May and June 1994 Worn Spectra since 1994 and stopped in 2003. Upgrade ESPrit 22 on Feb 18th, 2003 God Bless America -- I STRONGLY Support the war! .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Hi Snoopy Good to hear that your DR. uses the small incision technique.The only implant that this can be used with is the N24C ..that is because the receiver is flexible and can actually be folded <or bent> and then placed into the well ...then unfolded.I think that more and more DR " S are hearing about this and beginning to use the technique.With the smaller incision there is less of a chance of infection as well as you found out..less hair needs to be shaved. Love Dora surgery update Hi everyone--Late last night my lovely turban fell off which was a nice sigh of relief for me because that thing was a bit too tight for my comfort. Anyway here are some interesting observations to report: There is some minimal swelling where the reciever is and it is in roughly in the same spot as my left reciever is. That is very nice. What is so interesting is that for my first implant my surgeon used the S incision and for this implant he used the C incision. So now I sport 2 different type of scars. He hardly shaved any hair for what I am grateful for . The tip of my ear is kinda numb now. As each day goes by I am feeling better and I am looking forward to the day when I am truly hearing in stereo. :-) -- snoopy -- now bilateral-- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Good to hear that things are going well with your surgery.When I had my surgery and had my turban taken off I got an allergic reaction to the bandage,my forehead was all red and swollen which was a surprise to the surgeon as he had never seen that before. Hopefully if I have another CI done it won't happen again. surgery update > > Hi everyone--Late last night my lovely turban fell off which was a nice sigh > of relief for me because that thing was a bit too tight for my comfort. Anyway > here are some interesting observations to report: There is some minimal > swelling where the reciever is and it is in roughly in the same spot as my > left reciever is. That is very nice. What is so interesting is that for my > first implant my surgeon used the S incision and for this implant he used the > C incision. So now I sport 2 different type of scars. He hardly shaved any > hair for what I am grateful for . The tip of my ear is kinda numb now. As each > day goes by I am feeling better and I am looking forward to the day when I am > truly hearing in stereo. :-) > > -- > snoopy -- now bilateral-- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 Snoopy...Glad to hear you are doing so well. Can't wait to hear about your hookup and how you like " stereo " sound....Sharon Myers...already " stereo " and loving them. snoopy1964@... wrote:Hi everyone--Late last night my lovely turban fell off which was a nice sigh of relief for me because that thing was a bit too tight for my comfort. Anyway here are some interesting observations to report: There is some minimal swelling where the reciever is and it is in roughly in the same spot as my left reciever is. That is very nice. What is so interesting is that for my first implant my surgeon used the S incision and for this implant he used the C incision. So now I sport 2 different type of scars. He hardly shaved any hair for what I am grateful for . The tip of my ear is kinda numb now. As each day goes by I am feeling better and I am looking forward to the day when I am truly hearing in stereo. :-) -- snoopy -- now bilateral-- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2003 Report Share Posted April 25, 2003 Hey Snoopy, Glad to hear all is progressing well. I can imagine the relief at having that turban off.. It's like a huge weight removed. Keep us posted as to how things are going and looking forward to your surround sound hook up. Hugs, Silly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 Well, I was implanted last Wednesday, the 18th, with my second implant (now bilateral) and was having a bit of time recuperating.....this time around it wasn't as easy as the first time but now things have settled down and where for the first 24 hours I would let go of my med bottle, I just took one last night before bed time (LOL)!!!! So it does get better!!!! Still " lifting " to one side when walking but I'm sure that will improve. I am just so thankful that the worse it over and also thankful that we only have two ears (LOL)!!!!!!! Activation will be 7/16 and 7/17 which I'm looking forward to! Am finding that I have to go real slow this time around but I guess each time/person reacts different. Just so relieved that it's over and I'll be hearing in " stereo " in a few weeks; hopefully, just in time for our trip to Seattle in the end of July!!!! Glad to hear that others have come through surgery okay and I'm sure they're just as relieved as I am to have it over! Don't we live in miraculous times!!!!!! Lois implanted 8/23/03 activated 9/23/03 second implant 6/18/03 activated 7/16/17/03 N24 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 Congratulations Lois!!! Take it easy, get lots of rest! I'm very excited for you, going bilateral!! :-) Keep us posted! You are being activated the 2 days after I finally get high resolution processing on my Clarion!! *Hugs* Cortland NY CII 5/01 ~~~~~~~~~~~~~~~~~~~~~ ----- Original Message ----- From: " Lois Itchkawitz " <loisi@...> > Well, I was implanted last Wednesday, the 18th, with my second implant (now > bilateral) and was having a bit of time recuperating.....this time around it > wasn't as easy as the first time but now things have settled down and where > for the first 24 hours I would let go of my med bottle, I just took one last > night before bed time (LOL)!!!! So it does get better!!!! Still " lifting " > to one side when walking but I'm sure that will improve. I am just so > thankful that the worse it over and also thankful that we only have two ears > (LOL)!!!!!!! Activation will be 7/16 and 7/17 which I'm looking forward to! > Am finding that I have to go real slow this time around but I guess each > time/person reacts different. Just so relieved that it's over and I'll be > hearing in " stereo " in a few weeks; hopefully, just in time for our trip to > Seattle in the end of July!!!! > > Glad to hear that others have come through surgery okay and I'm sure they're > just as relieved as I am to have it over! Don't we live in miraculous > times!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 Hi, Lois: <<Still " lifting " to one side when walking but I'm sure that will improve. " >> Do you feel the CI surgery affected your walking (and is it because of the balance impact)? Did others experienced this, as well? Thanks! Anne _________________________________________________________________ MSN 8 with e-mail virus protection service: 2 months FREE* http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 Hi, Anne, I think my small balance problem is related to the surgery and just the idea of getting over it; I'm moving slower and it's really not too bad. I remember having it a bit the first time also but just think it is something that happens after surgery. Better when I move slowly! Some people (from what I've read) have it more than others. I consider myself lucky that it's only a little bit and will abate once I get my strength back. Lois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 Now you are bionic!!! Great that you have bilaterals and hope it will be what you have been waiting for.Take it slow and everything will work out.Can't wait for your hook up and see how you make out as I would like to have another implant myself so that I will be able to hear with 2 ears. Take it easy! Re: surgery update Well, I was implanted last Wednesday, the 18th, with my second implant (now bilateral) and was having a bit of time recuperating.....this time around it wasn't as easy as the first time but now things have settled down and where for the first 24 hours I would let go of my med bottle, I just took one last night before bed time (LOL)!!!! So it does get better!!!! Still " lifting " to one side when walking but I'm sure that will improve. I am just so thankful that the worse it over and also thankful that we only have two ears (LOL)!!!!!!! Activation will be 7/16 and 7/17 which I'm looking forward to! Am finding that I have to go real slow this time around but I guess each time/person reacts different. Just so relieved that it's over and I'll be hearing in " stereo " in a few weeks; hopefully, just in time for our trip to Seattle in the end of July!!!! Glad to hear that others have come through surgery okay and I'm sure they're just as relieved as I am to have it over! Don't we live in miraculous times!!!!!! Lois implanted 8/23/03 activated 9/23/03 second implant 6/18/03 activated 7/16/17/03 N24 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2003 Report Share Posted June 22, 2003 Does this make 7 bilaterals? I lost count. Anyway, good luck on your hookup Lois. Keep us posted. Sharon Myers Bilateral N24C 3G piglet@... wrote: Now you are bionic!!! Great that you have bilaterals and hope it will be what you have been waiting for.Take it slow and everything will work out.Can't wait for your hook up and see how you make out as I would like to have another implant myself so that I will be able to hear with 2 ears. Take it easy! Re: surgery update Well, I was implanted last Wednesday, the 18th, with my second implant (now bilateral) and was having a bit of time recuperating.....this time around it wasn't as easy as the first time but now things have settled down and where for the first 24 hours I would let go of my med bottle, I just took one last night before bed time (LOL)!!!! So it does get better!!!! Still " lifting " to one side when walking but I'm sure that will improve. I am just so thankful that the worse it over and also thankful that we only have two ears (LOL)!!!!!!! Activation will be 7/16 and 7/17 which I'm looking forward to! Am finding that I have to go real slow this time around but I guess each time/person reacts different. Just so relieved that it's over and I'll be hearing in " stereo " in a few weeks; hopefully, just in time for our trip to Seattle in the end of July!!!! Glad to hear that others have come through surgery okay and I'm sure they're just as relieved as I am to have it over! Don't we live in miraculous times!!!!!! Lois implanted 8/23/03 activated 9/23/03 second implant 6/18/03 activated 7/16/17/03 N24 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2003 Report Share Posted June 22, 2003 Lois, Congratulations on joining the bilateral club..as a uni CI with a HA in my other ear, I think that you'll like having 2 ears. I think the slower recovery you've experienced this time will be worth it because you'll have two ears to help you hear. Keep that thought in mind as you continue to recover...spoil yourself. I'll look forward to hearing your hookup report. In the meantime, if you can, take a spa approach to surgery recovery. This means sleeping on downy or cushy pillows, taking gentle baths/showers, massaging your head after your turban comes off, maybe lying in the sun if you have sun where you are. M., age 37, Sacramento, CA R ear N24C surgery 04/03/03 Hooked up with SPrint BWP 05/07/03 Getting 3G BTE 07/03/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Hi Carla, I'm so glad the surgery is over for you and your son. It sounds like you were very fortunate in getting the c-toma before it destroyed the hearing bones. Dr. uses the the packing that disolves so your son will not have to have this taken out. That's the reason that his hearing won't be good for about six weeks so the packing can disovle. As far as the cotton balls, your son's sounds about the same as my son's. The difference in the length of the surgery and part of the recovery process is having someone who has done it many times before and knows what they are doing. Unfortunately my son had two surgeries done by a really " nice " local ENT who did surgery about 2 or 3 times a month before we found Dr. . Dr. 's office is really good about answering any of your questions. I called them 4 or 5 times and was surprised when a real " Doc " always called me back. Most of the time it was one of the " fellows " but sometimes Dr. called himself. I know it is difficult but you must try to keep your son quiet for several more days to accomodate the healing process. My best to you and your family. Let me know if I can answer any questions for you. Audrey (orginally from Kentucky) 7/15/2004 1:08:30 PM Eastern Daylight Time, " Robbie " <bush@...> writes: >Hello and thanks again everyone.  My son, now seven years old, had >his surgery on Tuesday, July 13th.  A tympanoplasty with >mastoidectomy were done.  Part of the cartledge in front of his left >ear was taken to repair/reinforce his ear drum.  He has quite a bit >of swelling and bruising right now.  The docs said that it would go >away.  His surgery only took a little over an hour.  He goes back in >three weeks for a follow-up.  He has no external sutures.  Dr. > said that he had the internal ones that would dissolve.  My >son hasn't had as much drainage as I was told he would.  I was >expecting to need to change the cotton ball 5-6 times a day, but >have only had to change it a couple of times a day.  Is that normal, >or should it be draining more?  He doesn't seem to have a lot of >pain except for when he gets up of a morning and around bed time.  >In most of the posts that I have read, everyone has had to go back >to get " packing " removed, Dr. didn't say anything about my >son needing to have this done.  Also, they don't seem to think at >this time my son will need to have a second surgery.  Dr. >didn't remove any of the three hearing bones.  He said that they >weren't damaged to the extent that they would have to come out.  He >said that my son had a 20% chance for recurrence.  As for his >hearing, Dr. said not to expect much improvement for 6-8 >weeks.  He also said not to expect any improvement in his high >frequency hearing.  He said that my son had damage to his hearing >nerve that couldn't be repaired which was causing the high frequency >hearing loss.  I am finding it very hard to keep him from being the >active seven year old he was before his surgery.  I have two other >children (8 & 10 yrs. old) and they want him up >running/jumping/playing with them, and it is so hard to tell him >that he can't right now.  All he is wanting to eat is ham.  He said >that is the only thing that tastes right to him.  Dr. said >to expect the metallic taste to last anywhere from 3 months to a >year.  School is starting back soon.  Dr. has taken him out >of P.E. until Sept. 7th.  What all do I need to tell his school?  >He's normally VERY active at school.  Ok, I will stop for now.  I am >sorry this is so long.  Thank you all again for all the advice you >have given me over the last few months and for future advice.  I >will keep everyone updated. > >Sincerly >Carla in Kentucky  > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hi Carla, Our daughter (now 7 too) had surgery last December, and also didn't have much drainage at all - we just changed the cotton ball twice a day when we put in the drops. She had dissolvable packing also, so never had to have anything removed - at her first post-op visit, her Otologist looked in her ear and said that it was dissolving as expected and he didn't need to remove anything. As for the activity, she was out of gym class for about six weeks, but could do most everything else (though she stayed in at recess for about a month due to the cold weather). I went in and talked to her teacher, and the Principal, who had me talk to the school nurse and write a note to all of the "specials" teachers (art, gym, etc.) telling them that she wasn't to be running/ jumping etc., and might need to sit with her good ear towards them, and just letting them know what had happened so they would notice if anything seemed strange. Best wishes for a speedy recovery to your son, Surgery Update Hello and thanks again everyone. My son, now seven years old, had his surgery on Tuesday, July 13th. A tympanoplasty with mastoidectomy were done. Part of the cartledge in front of his left ear was taken to repair/reinforce his ear drum. He has quite a bit of swelling and bruising right now. The docs said that it would go away. His surgery only took a little over an hour. He goes back in three weeks for a follow-up. He has no external sutures. Dr. said that he had the internal ones that would dissolve. My son hasn't had as much drainage as I was told he would. I was expecting to need to change the cotton ball 5-6 times a day, but have only had to change it a couple of times a day. Is that normal, or should it be draining more? He doesn't seem to have a lot of pain except for when he gets up of a morning and around bed time. In most of the posts that I have read, everyone has had to go back to get "packing" removed, Dr. didn't say anything about my son needing to have this done. Also, they don't seem to think at this time my son will need to have a second surgery. Dr. didn't remove any of the three hearing bones. He said that they weren't damaged to the extent that they would have to come out. He said that my son had a 20% chance for recurrence. As for his hearing, Dr. said not to expect much improvement for 6-8 weeks. He also said not to expect any improvement in his high frequency hearing. He said that my son had damage to his hearing nerve that couldn't be repaired which was causing the high frequency hearing loss. I am finding it very hard to keep him from being the active seven year old he was before his surgery. I have two other children (8 & 10 yrs. old) and they want him up running/jumping/playing with them, and it is so hard to tell him that he can't right now. All he is wanting to eat is ham. He said that is the only thing that tastes right to him. Dr. said to expect the metallic taste to last anywhere from 3 months to a year. School is starting back soon. Dr. has taken him out of P.E. until Sept. 7th. What all do I need to tell his school? He's normally VERY active at school. Ok, I will stop for now. I am sorry this is so long. Thank you all again for all the advice you have given me over the last few months and for future advice. I will keep everyone updated.SincerlyCarla in Kentucky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Welcome back Sajit it's good to know you did well with your surgery. Hopefully, you will have a speedy recovery. Take it easy and keep us informed of your progress! Bettie > > > Hey all - Had c-toma surgery CWD on Monday. The surgery went well, > but I developed some larynx (spelling?) spasms, experienced shortness > of breath post-op and had to stay at the hospital overnight. Finally, > I was able to come home last night. My ear is still heavily bandaged > and burns a little, but it is not as bad as I expected. I still have > my taste buds intact but have difficulty swallowing. The > painkillers and antibiotics are a huge relief. Hopefully, the worst > is over. I will keep you guys posted on my recovery. Thanks all for > your support! > > Sajit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2005 Report Share Posted April 29, 2005 Lara: Sorry to hear you are haveing so many problems but hope you are now on the road to recovery. Take care and get well soon. Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 Congrats on being on the losing side!! I just love to hear about everyones wonderful experience. The burning sensation is about normal and should go away from what I have read. Take advantage now of the no hunger feeling because after the swelling has gone down, you will start getting the hunger pains. (See post to ) I am curious as to why the doc gave you a fill and wondering if he has changed his view on this. Maybe Nina can answer that Q? In Texas 3/1/05 280/210/160 http://www.tracyslapband.com surgery update Hey everyone. I am back and banded. Now I am on the losing side. Dr. A. and Yolanda were great! I also really liked the anesthesiologist . The hospital was great it was so quiet at night. I feel a little sore when I bend down around the port. It is kind of a burnig sensation. Has anyone experienced this feeling? Well my mom and I have changed our airline tickets and I will be staying in San Diego with my nephew and his wife until Wednesday. They are expecting their second child any time so we are staying to help out. and Barbara it was great to meet you. I did have an excellent experience. It is so amazing how wonderful the experience was! Hope things continue to go well for both of you. Hey Dawnna hope you are on the net soon. Oh by the way Dr. Aceves did give me a small fill. He said about .08cc. My swallow study still showed the band to be open. But so far I have no appetite I have been able to drink sips of water and some broth and apple juice watered down. Jello at this point is a no go. I get a lot of pressure and pain in my chest when I eat jello. said this will get better. I am sure It will. Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 Hi , it is always good to hear when all works out as hoped! Continue feeling better! Thinking of you, Barbaramamapicklejuice <emilyjk@...> wrote: Hey allI had surgery on Thursday - mastoidectomy and tympanaplasty revisionsurgery. When the surgeon opened me up, his first thought apparentlywas "it's everywhere" - he meticulously cleaned it all out and thendiscovered an open space in my ear with a golf-ball sized ctoma hidingthere. Nice!I ended up staying overnight due to extreme nausea from the anesthesia(and a five hour surgery). That night was miserable, but I went homethe next day, and I have to say since mid-day Friday, I haven't hadany nausea or dizziness at all. Since I've been home I've only takenthe occasional tylanol for pain, along with my 4x daily antibiotics,of course. Not too much drainage, either. I set up my post-op appt before the surgery (my surgeon's office isEFFICIENT!) so I see him on June 5th...not too long to wait.The last time I had ctoma as a child, it had reached my brain and gonedown my esophagus - I believe it was an 8 hour surgery and I stayed aweek. This time around has been MUCH better! :)That's all from me for now - thanks for all the well wishes, and goodluck to all getting surgery soon, or going through recovery. Heck,for that matter, good luck to everyone! Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 , When you had Ctoma as a kid was it congenital? Did you see an otologist for that? Do they have any reasons for why they think it came back? I'm asking from a mom's point of view for my young son. We are in the beginning stages with one surgery down and a few to go. Just trying to learn all we can. Thanks, BJ Surgery update Hey allI had surgery on Thursday - mastoidectomy and tympanaplasty revisionsurgery. When the surgeon opened me up, his first thought apparentlywas "it's everywhere" - he meticulously cleaned it all out and thendiscovered an open space in my ear with a golf-ball sized ctoma hidingthere. Nice!I ended up staying overnight due to extreme nausea from the anesthesia(and a five hour surgery). That night was miserable, but I went homethe next day, and I have to say since mid-day Friday, I haven't hadany nausea or dizziness at all. Since I've been home I've only takenthe occasional tylanol for pain, along with my 4x daily antibiotics,of course. Not too much drainage, either. I set up my post-op appt before the surgery (my surgeon's office isEFFICIENT!) so I see him on June 5th...not too long to wait.The last time I had ctoma as a child, it had reached my brain and gonedown my esophagus - I believe it was an 8 hour surgery and I stayed aweek. This time around has been MUCH better! :)That's all from me for now - thanks for all the well wishes, and goodluck to all getting surgery soon, or going through recovery. Heck,for that matter, good luck to everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 My ctoma as a child was congenital. It was dx'd when I was around 7, after being scheduled to get tubes! Whoops, may want to get that huge growth out of there, first! My surgeon at the time was an otolarygologist - 25 years ago, they were the go-to docs, as far as I know. My ENT was the Chief ENT at Children's Hospital in Boston, and very in demand from patients all over the world. Today, as my current doc has told me, the trend in medicine is to specialize, so I'm not just seeing an otologist, I'm seeing a neurotologist (specializing in tumors of the head and neck). Then, my congenital ctoma did come back, so I guess it was 2 years later I had a second surgery (I was 8 or 9) and then, no more ctoma. I'm 33 now, and they think this current ctoma is " acquired " due to recurrent infections, and the surgeon made some remark to my parents that it could have been growing for 10 years? (I was out of it at this point, so I'll clarify at my follow-up.) The worrisome thing to me is - yeah, okay, I slacked off a bit in check-ups in the past 10 years, but it's not like I never had ANY check-ups...and I certainly presented on occasion with nasty infections...Why wasn't it caught earlier??? I am with a new doc now - and believe me, I'm going to go over this with him at my post-op on June 5th. (I just mean, going forward, how are we going to keep on top of ctoma, not who to blame for not catching it earlier - that's water under the bridge.) Good luck with your son. I've lived with a severe hearing loss in that ear for pretty much my whole life - I was a music minor in college, sang with an a-capella group and play flute, banjo, piano (badly), etc. I only mention that because I know hearing loss is a possibility with ctoma and is often very scary to parents getting this dx, but it's never slowed me down or kept me from enjoying life! Please email me if you have any further questions! > > , > When you had Ctoma as a kid was it congenital? Did you see an otologist for that? Do they have any reasons for why they think it came back? I'm asking from a mom's point of view for my young son. We are in the beginning stages with one surgery down and a few to go. Just trying to learn all we can. > Thanks, > BJ > Surgery update > > > Hey all > > I had surgery on Thursday - mastoidectomy and tympanaplasty revision > surgery. When the surgeon opened me up, his first thought apparently > was " it's everywhere " - he meticulously cleaned it all out and then > discovered an open space in my ear with a golf-ball sized ctoma hiding > there. Nice! > > I ended up staying overnight due to extreme nausea from the anesthesia > (and a five hour surgery). That night was miserable, but I went home > the next day, and I have to say since mid-day Friday, I haven't had > any nausea or dizziness at all. Since I've been home I've only taken > the occasional tylanol for pain, along with my 4x daily antibiotics, > of course. Not too much drainage, either. > > I set up my post-op appt before the surgery (my surgeon's office is > EFFICIENT!) so I see him on June 5th...not too long to wait. > > The last time I had ctoma as a child, it had reached my brain and gone > down my esophagus - I believe it was an 8 hour surgery and I stayed a > week. This time around has been MUCH better! > > That's all from me for now - thanks for all the well wishes, and good > luck to all getting surgery soon, or going through recovery. Heck, > for that matter, good luck to everyone! > > > Quote Link to comment Share on other sites More sharing options...
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