Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Thanks Ken. One thing, you didn't mention Biaxin as any of your choices...is there a reason you haven't tried this yet? I hear its very similiar to Zith. The reason I ask is because I was going to start on Biaxin (don't do good on doxy or mino) when I started but wanted to first see why you didn't use it? Is it a bad choice? O' also, any suggestions on if taking antibiotics every other day is bad? I don't want to give the " bugs " a chance to grow stronger on the days I don't take the antibiotics. Do you think this is a valid concern or does Jadin and others sometimes do the every other day protocal? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 I've just finished the last round of [prescription] antibiotics and we[MD and I] are going on Olive Leaf Extract only -- because I still herx from it. The MD prefers not to go on to the next classes of antibiotics -- given her past experiences with them and my apparent symptomless state. OLE has no reported problems -- so she much prefers it. I had dropped off bromelain and olive leaf extract when I last changed antibiotics -- so I could determine if I herxed from it... didn't. Then high-ball the bromelain and again didn't -- but did from Olive Leaf Extract (as I have for some 8 months now). Currently its 2 capsules of East Park (190 mg of Oleuropin per capsule) at bedtime if I need to be fresh in the morning by 7 am, or 3 capsules if I can 'herx' in. I usually have one or more during the day (in single capsules). I had been up to 8-9 earlier. I'm still taking bromelain -- but now only as part of anti-hypercoagulation supplements. I have not had any apparent problem with yeast or candida - had problems with gas etc but taking probiotics resolved it for me. Laurie is the one that has had the candida fun.... If you can't find her posts in the archives, I'm sure she will gladly write up her experience... The prescription antibiotics were: * doxcycline for ~ 5 months 300 mg/day * changed to minocycline because of low herxing (with high bromelain) and Rhem. Arth. symptoms (better penetration) for another 3-4 months 300 mg/day * low herxing again - changed to zithromaz - 6 weeks- immediate response was a very good feeling with high energy, no herxing - symptomless ... - Zpak NON-prescription - * Whey (Imuplus and then ImmunePro) - up to 40 gm/day but now at 20 gm/day for breakfast... * Olive Leaf Extrace - up to 900+ mg of Oleuropin/day - generally taken at night (since the herxing promoted sleep) - currently 570+ mg/day It has evolved as a composite between Jadin and Nicholson (the protocol that originally we (MD and I) started from) plus Cheney's etc... I had always planned on keeping Whey and OLE as 'preventative' after finishing the course... so " I'm done " in one sense -- just into monitoring phrase... Suggestions (to be discussed with your MD always): * take milk thistles and bioflavonids to help the liver and reduce some possible coagulation.... before starting - ~ 1 month at least * start with a low dosage (get 50 mg capsules if you can) - discuss switching to minocycle if yeast problems become major - and slowly (every 4 days or longer) slowly increase the dosage until you herx. If you pay for your own prescriptions (instead of being 100% covered by insurance) then at 50 mg increase bromelain >slowly< to 3000 gdu until you herx, if not, go to 100 mg and repeat. Once you herx, stay there until you stop herxing as much, then increase again -- remember herxing is releasing toxins (which are not healthy) so don't over herx!!!!! Join CFSFM_antibiotics also - for antibiotic questions and support it is good... M Lassesen, M.S. ex " Dr.Gui (MSDN) " , " Dr. VB " cv: http://www.folkarts.com/kenl/ KenL@... Phone: 360 297.4717 Cell: 360 509.8970 Fax 520 832.6836 ----- Original Message ----- From: lbinujrsy@... Lastly, do you mind posting what your antibiotic schedule was/is? If you have it on your website someplace just let me know and I will check it out so you won't have to type all of it but I am just interested in what you started with and how much and what you are doing now-schedule wise. I am actually thinking of trying anitibiotics again because I felt better while on them. I just got terrible yeast in the gut while on them and it also did some damage to my kidneys while on them. That is why I am so afraid to start up on them again. Maybe I will just go slow, like one every other day...do you think this will give the " bugs " to much of a chance to get stronger if I do it this way? Thanks, ------------------------------------------------------------------------------ ------------------------------------------------------------------------------ This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Ken Lassesen wrote: > > NON-prescription - > * Whey (Imuplus and then ImmunePro) - up to 40 gm/day but now at 20 gm/day for breakfast... > * Olive Leaf Extrace - up to 900+ mg of Oleuropin/day - generally taken at night (since the herxing promoted sleep) - currently 570+ mg/day > > > M Lassesen, M.S. Hello Ken, before starting antibiotics I had already done a lot (diet, EPD) for food and chemical sensibilities. With me one of the more common symptons of a reaction to food is sleepiness. Before getting into trying bromelain I tried if I was still sensitive to pineapple. I fell asleep after eating 2 parts of pineapple. Are you sure that your reaction to bromelain is herxing? How would you know? Do you think eating pineapple could also cause herxing? Hope you don't mind me asking nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Biaxin may have sulfites, or sulfa. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 In a message dated 8/1/00 10:36:33 AM Pacific Daylight Time, RGray80533@... writes: << Biaxin may have sulfites, or sulfa. Ruth >> Is this bad or something? Does Zithromax have them? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 No, Zithromax doesn't. I know because I am allergic to sulfa antibiotics and am fine with Zithromax. lbinujrsy@... 08/01/00 11:00 AM Please respond to egroups cc: Subject: Re: Ken In a message dated 8/1/00 10:36:33 AM Pacific Daylight Time, RGray80533@... writes: << Biaxin may have sulfites, or sulfa. Ruth >> Is this bad or something? Does Zithromax have them? This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2000 Report Share Posted August 27, 2000 Yes, I'm planning to stay around for a while definitely -- Laurie will definitely be on the list for some time more. Although in >>REMISSION<<, I believe that the best attitude is to keep pro-active in acquiring knowledge about the factors to prevent a future relapse. For example, tonight while doing an evening walk with Laurie, I got a call on the cell that guests had dropped in -- so I left her and 'double time' home ... it was real interesting to find myself feeling especially refreshed by the accelerated walking -- and I understand the whys: the walking / activity improves the blood (and oxygen) circulation resulting in improved health and feeling. I know that I must make sure that I do vigorous exercise daily to keep the remission up. A sedatary life-style is tempting a relapse. Just call me the 10th leper... M Lassesen, M.S. ex " Dr.Gui (MSDN) " , " Dr. VB " cv: http://www.folkarts.com/kenl/ KenL@... Phone: 360 297.4717 Cell: 360 509.8970 Fax 520 832.6836 Ken > Are you going to still keep in touch with all of us as you start to work??? > I will miss your opinions greatly and I am sure everyone else will to. I am > really proud of you for coming as far as you have and for taking charge of > your illness and defeating it.....GREAT JOB!!! Please stay around, if you > can, as you begin to work to help bring us through this. You have always > been such a huge influence in helping me find ways to try and get better. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2000 Report Share Posted October 1, 2000 , Good timing for the question. Yesterday I had a visitor : " S " (17yr old CFIDS girl with her mother " D " and younger sister) drop by to talk CFIDS. The last time that I saw this S was in June when D asked about what treatment Laurie and I had been taking. S had been going to a CFIDS specialist in Seattle for 3+ year with no major results. S had difficulty focussing, spoke slowly, had difficulty gathering thoughts. Earlier S had been accepted into the local gifted-child program of the school district - today, D and S are battling the school district for accomondation, problems with attendance etc.... A couple of weeks later, I meet with S's dad (they are divorced) and went over the medical publications and literature - he is the one that comes up with any extra money for D's CFIDS. He was willing to go along with it (the literature and talking with an example of the treatment). They dropped the CFIDS MD, and became a patient of our family practise MD (fortunately, D's sister is also a patient, so they slipped to the top of the waiting list as " family of current patients " ). Today, S was a shockingly different person: alert, bright eyes, very quick on the uptake of ideas, excellent short term memory, moved naturally (rather than the appearance of dragging herself around). S has reached month 2 of antibiotics (minocycline) and has developed skills in carefully handling the herxheimer reaction. She is only doing 200 mg/day (prescription is for 300 mg). If she takes a higher dosage the herxheimer effect becomes severe. She 'pushes' herself on Fridays - that is, she will try a higher dose of minocycle, or start a new supplement, and see if she herxes badly. If she does, she backs off -- because she is in school and doing a lot better. The reason that D came by was to get information about the ISAC panel. During the conversation we found out that S's younger sister shows several of the same early symptoms as my youngest daughter (very easy to overheat). When I mentioned that my youngest daughter had borderline highs (1% more and it would have been a High) on her ISAC panel, D realized that her entire family should have the ISAC panel if S turns our positive (which all of us expect). D came to pick up some Immunepro and go over the various supplements so her daughter can get additional support for the success they are having with restoring their daughter's life to her. Most of our MD's CFIDS patients know each other (joys of living in a village!) and of those who were willing to try antibiotics (they were some that were not), all are showing improvement - with one possible exception, " A " - who is prettty severe (can't remember her own daughters' name on occasion), and may have chemical agricultural sprays as a co-factor. There are a few of the local CFIDS who are with resources, so they donated for " A " to have the ISAC panel. The results convinced her government case-worker to make it a personal crusade to find funding for all of the appropriate treatment and tests for " A " . The Kitsap medical assistants are hosting the 2001 conference for medical assistants in Washington state, and have approached me to present at the conference -- which I said I will. So the medical assistants who have seen the change in me, and our MD's other patients appear to be convienced about the 'protocol' working... antibiotics are part of it, but there is also anti-coagulants, modification of diet, supplement support etc. -- Laurie, just walked by, she arrived back just as D was leaving and mentioned that D gave her a very big hug in passing. D had never given Laurie a hug before... M Lassesen, M.S. ex " Dr.Gui (MSDN) " , " Dr. VB " cv: http://www.folkarts.com/kenl/ KenL@... Phone: 360 297.4717 Cell: 360 509.8970 Fax 520 832.6836 Ken Ken are there alot of other people you no that are using antiobitics? Are they getting better? The chenys protocol sems like alot of stuff to be on. Alos Majid Ali i no put people on about 30 different things a day. Has anyone ever heard of dr Abrishaim from Nj? This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2000 Report Share Posted October 1, 2000 wow that was a really interesting story. Al tho im confused on how i would go about doing this if i wanted to. Right now im working with a nauopath for cfs. My reg md has no clue what cfs is and my phychatrist is the one who wants to put my on doxyclycline because he thinks i might have lyme disease which i did not get tested for yet. But still wrote me out a persrciption for the dox which is strange. I dont think he has a clue what hes doing. So if i wanted to try this protocol where would i go from here? thanks --- Ken Lassesen <KenL@...> wrote: > , > Good timing for the question. Yesterday I had a > visitor : " S " (17yr old CFIDS girl with her mother " D " > and > younger sister) drop by to talk CFIDS. The last > time that I saw this S was in June when D asked > about > what treatment Laurie and I had been taking. S had > been going to a CFIDS specialist in Seattle for 3+ > year > with no major results. S had difficulty focussing, > spoke slowly, had difficulty gathering thoughts. > Earlier S > had been accepted into the local gifted-child > program of the school district - today, D and S are > battling the > school district for accomondation, problems with > attendance etc.... A couple of weeks later, I meet > with S's > dad (they are divorced) and went over the medical > publications and literature - he is the one that > comes up > with any extra money for D's CFIDS. He was willing > to go along with it (the literature and talking with > an > example of the treatment). They dropped the CFIDS > MD, and became a patient of our family practise MD > (fortunately, D's sister is also a patient, so they > slipped to the top of the waiting list as " family of > current > patients " ). > > Today, S was a shockingly different person: > alert, bright eyes, very quick on the uptake of > ideas, > excellent short term memory, moved naturally (rather > than the appearance of dragging herself around). S > has reached month 2 of antibiotics (minocycline) and > has developed skills in carefully handling the > herxheimer reaction. She is only doing 200 mg/day > (prescription is for 300 mg). If she takes a higher > dosage the herxheimer effect becomes severe. She > 'pushes' herself on Fridays - that is, she will try > a > higher dose of minocycle, or start a new supplement, > and see if she herxes badly. If she does, she > backs off -- because she is in school and doing a > lot better. > > > The reason that D came by was to get information > about the ISAC panel. During the conversation we > found > out that S's younger sister shows several of the > same early symptoms as my youngest daughter (very > easy > to overheat). When I mentioned that my youngest > daughter had borderline highs (1% more and it would > have been a High) on her ISAC panel, D realized that > her entire family should have the ISAC panel if S > turns > our positive (which all of us expect). D came to > pick up some Immunepro and go over the various > supplements so her daughter can get additional > support for the success they are having with > restoring > their daughter's life to her. > > Most of our MD's CFIDS patients know each other > (joys of living in a village!) and of those who were > willing to try antibiotics (they were some that were > not), all are showing improvement - with one > possible exception, " A " - who is prettty severe > (can't remember her own daughters' name on > occasion), and > may have chemical agricultural sprays as a > co-factor. There are a few of the local CFIDS who > are > with resources, so they donated for " A " to have the > ISAC panel. The results convinced her > government case-worker to make it a personal crusade > to find funding for all of the appropriate treatment > > and tests for " A " . > > The Kitsap medical assistants are hosting the 2001 > conference for medical assistants in Washington > state, and have approached me to present at the > conference -- which I said I will. So the medical > assistants who have seen the change in me, and our > MD's other patients appear to be convienced about > the 'protocol' > working... antibiotics are part of it, but there is > also anti-coagulants, modification of diet, > supplement support etc. > > -- Laurie, just walked by, she arrived back just as > D was leaving and mentioned that D gave her a > very big hug in passing. D had never given Laurie a > hug before... > > > > M Lassesen, M.S. > ex " Dr.Gui (MSDN) " , " Dr. VB " > cv: http://www.folkarts.com/kenl/ > KenL@... > Phone: 360 297.4717 Cell: 360 509.8970 Fax 520 > 832.6836 > Ken > > > Ken > > are there alot of other people you no that are > using antiobitics? > Are they getting better? The chenys protocol sems > like alot of stuff > to be on. Alos Majid Ali i no put people on about > 30 different > things a day. Has anyone ever heard of dr > Abrishaim from Nj? > > > This list is intended for patients to share > personal experiences with each other, not to give > medical advice. If you are interested in any > treatment discussed here, please consult your > doctor. > > > > [Non-text portions of this message have been > removed] > > > -------------------------- eGroups Sponsor > > This list is intended for patients to share personal > experiences with each other, not to give medical > advice. If you are interested in any treatment > discussed here, please consult your doctor. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2000 Report Share Posted October 1, 2000 wow that was a really interesting story. Al tho im confused on how i would go about doing this if i wanted to. Right now im working with a nauopath for cfs. My reg md has no clue what cfs is and my phychatrist is the one who wants to put my on doxyclycline because he thinks i might have lyme disease which i did not get tested for yet. But still wrote me out a persrciption for the dox which is strange. I dont think he has a clue what hes doing. So if i wanted to try this protocol where would i go from here? thanks --- Ken Lassesen <KenL@...> wrote: > , > Good timing for the question. Yesterday I had a > visitor : " S " (17yr old CFIDS girl with her mother " D " > and > younger sister) drop by to talk CFIDS. The last > time that I saw this S was in June when D asked > about > what treatment Laurie and I had been taking. S had > been going to a CFIDS specialist in Seattle for 3+ > year > with no major results. S had difficulty focussing, > spoke slowly, had difficulty gathering thoughts. > Earlier S > had been accepted into the local gifted-child > program of the school district - today, D and S are > battling the > school district for accomondation, problems with > attendance etc.... A couple of weeks later, I meet > with S's > dad (they are divorced) and went over the medical > publications and literature - he is the one that > comes up > with any extra money for D's CFIDS. He was willing > to go along with it (the literature and talking with > an > example of the treatment). They dropped the CFIDS > MD, and became a patient of our family practise MD > (fortunately, D's sister is also a patient, so they > slipped to the top of the waiting list as " family of > current > patients " ). > > Today, S was a shockingly different person: > alert, bright eyes, very quick on the uptake of > ideas, > excellent short term memory, moved naturally (rather > than the appearance of dragging herself around). S > has reached month 2 of antibiotics (minocycline) and > has developed skills in carefully handling the > herxheimer reaction. She is only doing 200 mg/day > (prescription is for 300 mg). If she takes a higher > dosage the herxheimer effect becomes severe. She > 'pushes' herself on Fridays - that is, she will try > a > higher dose of minocycle, or start a new supplement, > and see if she herxes badly. If she does, she > backs off -- because she is in school and doing a > lot better. > > > The reason that D came by was to get information > about the ISAC panel. During the conversation we > found > out that S's younger sister shows several of the > same early symptoms as my youngest daughter (very > easy > to overheat). When I mentioned that my youngest > daughter had borderline highs (1% more and it would > have been a High) on her ISAC panel, D realized that > her entire family should have the ISAC panel if S > turns > our positive (which all of us expect). D came to > pick up some Immunepro and go over the various > supplements so her daughter can get additional > support for the success they are having with > restoring > their daughter's life to her. > > Most of our MD's CFIDS patients know each other > (joys of living in a village!) and of those who were > willing to try antibiotics (they were some that were > not), all are showing improvement - with one > possible exception, " A " - who is prettty severe > (can't remember her own daughters' name on > occasion), and > may have chemical agricultural sprays as a > co-factor. There are a few of the local CFIDS who > are > with resources, so they donated for " A " to have the > ISAC panel. The results convinced her > government case-worker to make it a personal crusade > to find funding for all of the appropriate treatment > > and tests for " A " . > > The Kitsap medical assistants are hosting the 2001 > conference for medical assistants in Washington > state, and have approached me to present at the > conference -- which I said I will. So the medical > assistants who have seen the change in me, and our > MD's other patients appear to be convienced about > the 'protocol' > working... antibiotics are part of it, but there is > also anti-coagulants, modification of diet, > supplement support etc. > > -- Laurie, just walked by, she arrived back just as > D was leaving and mentioned that D gave her a > very big hug in passing. D had never given Laurie a > hug before... > > > > M Lassesen, M.S. > ex " Dr.Gui (MSDN) " , " Dr. VB " > cv: http://www.folkarts.com/kenl/ > KenL@... > Phone: 360 297.4717 Cell: 360 509.8970 Fax 520 > 832.6836 > Ken > > > Ken > > are there alot of other people you no that are > using antiobitics? > Are they getting better? The chenys protocol sems > like alot of stuff > to be on. Alos Majid Ali i no put people on about > 30 different > things a day. Has anyone ever heard of dr > Abrishaim from Nj? > > > This list is intended for patients to share > personal experiences with each other, not to give > medical advice. If you are interested in any > treatment discussed here, please consult your > doctor. > > > > [Non-text portions of this message have been > removed] > > > -------------------------- eGroups Sponsor > > This list is intended for patients to share personal > experiences with each other, not to give medical > advice. If you are interested in any treatment > discussed here, please consult your doctor. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2000 Report Share Posted October 1, 2000 My suggestion (given the reality of getting co-operation from MDs) ... is to use your psychologist to get your antibiotics. You may wish to educate him on Jadin's protocol so he will be willing to rotate antibiotics... given his profession, you may wish to print out the Dr. Bottelo section of the Syndey conferences: BECAUSE Bottello had a high % of psycharitric patients being cured by being put on a rickettsia protocol (the hypoxia induced mental illness that disappeared when the hypoxia disappears). From your MD, hit him with the ISAC panel and persuade him to order it. If it is positive than he will likely be willing to put you on heparin.- and your medical condition is " simplified " to a manageable scenario for him. M Lassesen, M.S. ex " Dr.Gui (MSDN) " , " Dr. VB " cv: http://www.folkarts.com/kenl/ KenL@... Phone: 360 297.4717 Cell: 360 509.8970 Fax 520 832.6836 Re: Ken wow that was a really interesting story. Al tho im confused on how i would go about doing this if i wanted to. Right now im working with a nauopath for cfs. My reg md has no clue what cfs is and my phychatrist is the one who wants to put my on doxyclycline because he thinks i might have lyme disease which i did not get tested for yet. But still wrote me out a persrciption for the dox which is strange. I dont think he has a clue what hes doing. So if i wanted to try this protocol where would i go from here? thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 Is Western Union (international) unavailable? Ruth In a message dated 10/6/2000 5:09:13 PM Central Daylight Time, bullocks@... writes: > > Ken, > > Where do you get the international money orders you send Stania? I've tried > the post office and a bank of america branch with no luck. I suppose I could > probably get one at a Cook office but they always charge such high > fees for everything. I'd like to try the Piracetum on my raynaud's symptoms > before the cooler weather hits. Steve Bullock > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 Ruth, Probably, but the probably charge $10 to send a $100 IMO. I'll have to check them out. Steve B. Re: Ken > Is Western Union (international) unavailable? > Ruth > > In a message dated 10/6/2000 5:09:13 PM Central Daylight Time, > bullocks@... writes: > > > > > Ken, > > > > Where do you get the international money orders you send Stania? I've > tried > > the post office and a bank of america branch with no luck. I suppose I > could > > probably get one at a Cook office but they always charge such high > > fees for everything. I'd like to try the Piracetum on my raynaud's > symptoms > > before the cooler weather hits. Steve Bullock > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 Ruth, Western Union is ok here - only expensive for the payer Stania -----Pùvodnà zpráva----- Od: RGray80533@... <RGray80533@...> Komu: egroups <egroups> Datum: 10. øÃjna 2000 16:54 Pøedmìt: Re: Ken >Is Western Union (international) unavailable? >Ruth > >In a message dated 10/6/2000 5:09:13 PM Central Daylight Time, >bullocks@... writes: > >> >> Ken, >> >> Where do you get the international money orders you send Stania? I've >tried >> the post office and a bank of america branch with no luck. I suppose I >could >> probably get one at a Cook office but they always charge such high >> fees for everything. I'd like to try the Piracetum on my raynaud's >symptoms >> before the cooler weather hits. Steve Bullock >> > > >This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 We get our international money orders at the post office. We have to go to a larger town to do it though. Laurie Lassesen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 In a message dated 10/11/2000 2:30:32 AM Central Daylight Time, stanislava.muzikova@... writes: > > Ruth, Western Union is ok here - only expensive for the payer > Stania Thanks Stania, Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 Ken, Thanks, I'm glad to hear I didn't cause my current predicament. That would difficult to live with. I am taking a lot of Bromelain and will begin Heparin next Friday. Berg has suggested 4000 units 2x a day for a month then re-testing for myco, hhv6, etc. Steve B. Re: Question for the group > Choline is not a cause, but a treatment for a misdiagnosised > poisoning as CFIDS.... It was in 2000 Volume 2. > " Four Cases of Pesticide Poisoning, Presenting as ME, treated with a > Choline and Ascorbic Acid Mixture. " > > The treatment is very low risk and low cost (and no prescription)... > and thus attractive to attempt if there reason to suspect -- but $$$ > is lacking for testing. > > I agree with Berg analysis for long term CFIDS.... some form of DIC > (exhaustion of some coagulation component) is likely in a significant > number of long term cases -- the percentage is still unknown... > > I trust you are hitting bromelain hard... > > > > > Ken, > > > > I noticed your mentioning choline as a possible toxin causing CFS? > PS: Haven't taken any antibiotics, tested > > negative so far for all major pathogens, and Berg thinks I may have > > fibrinogen build-up from prior hypercoagulation but have had > illness so long > > that hypercoagulative state no longer present. He recommends > heparing 4000 > > units 2x/day for a month then re-testing for pathogens. > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 KEN, could you please change me to daily digest? I have tried to do this myself unsuccessfully, and now have been referred to you. thank you.amy _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 oh, oh! me, too, ken. can you do this for me too? rebecca (redelson@...) At 08:40 PM 2/13/02 +0000, you wrote: >KEN, could you please change me to daily digest? I have tried to do this >myself unsuccessfully, and now have been referred to you. thank you.amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Dear Lori, I didn't know that smell had to do with your mood and depression! I basicly haven't had any sense of smell for at least 21 years although lately I see a lot of hope. Ken << File: ATT00039.txt; charset = iso-8859-1 >> << File: ATT00040.htm; charset = ISO-8859-1 >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 I hear what you are saying - but I think we all need to be tolerant of people who are not computer savvy and just hit the forward key... Speaking of storage space - why did you attach the whole email to yours? I know sometimes we simply forget... ~guin RE: Fwd: Fw: Tomb of the Unknown Soldier] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 Ya got me... I did not trim the text, but also did not forward the attachments. Anyway... Someone said that Hotmail now has bigger free storage, but it hasn't kicked in for me. Just call me a grouch. In the meantime I wish all good health and a happy Autumn. I'm in the Berkshires and the leaves are shaping up to be splendorous. But I'm not sending photos ;-) Regards -- Ken ----- Original Message ----- From : Guin Van Dyke <guin@...> Reply-To : Sent : Monday, October 4, 2004 7:44 PM To : Subject : Re: Ken I hear what you are saying - but I think we all need to be tolerant of people who are not computer savvy and just hit the forward key... Speaking of storage space - why did you attach the whole email to yours? I know sometimes we simply forget... ~guin _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 hey ken,,, reconsider the flower thing....im sure most of us would like to what you are describing... bob in missippi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Kim, Yes, well...it is kind of a 'twofer!. It's always great to meet other flatbackers...and for me it was fun, illuminating and reassuring to meet up with others in person. The internet is great but it has it's limitations. I hope you have a great consult on Monday and tell us all about it when you are home. Take Care, Cam p.s. And it goes without saying that I hope you enjoy the bonus of meeting Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Ken, I agree with the others. Go. I see no reason not to. Dr. Hu will learn plenty from your visit and add that knowledge to what she learns from the MRI, even if she doesn't get the wet report until after your visit. Bonnie [ ] Re: Ken Ken,I hope as I am writing this you are getting done with your MRI. I hope it went well. I agree with . Unless something new happened today I would forge ahead and stay with your planned appoointment on Monday. I am sure that for the purpose of this appt. a "wet read" will suffice. Of course DrHu will reserve the right to ammend her recommendations after she gets the written report...but I bet she will have enough info before her to help you see where you "are".Time is of the essence for you as your insurance issues are going to get bigger if you don't decide to do something before it runs out. Waiting another week is going to put you under that much more pressure.Go!Wishing you smooth travels,Camp.s. And if you don't go Monday you won't get the bonus of meeting Kim!!! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.