Re: Potts disease

[Guest guest]

Someone in my chat room asked about Potts disease. I think it is a

form on bone disease, does anyone have any info about it?

J

>From: Geri Spang <spangs@...>

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>Subject: Re: [ ] Geri, 180-degree turnaround

>Date: Sat, 11 Sep 1999 14:18:00 -0700

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>From: Geri Spang <spangs@...>

>

>Barbara Ann,

> << Is it possible, the reason doctors keep people on meds despite normal

>lab values, is not only to prevent future attacks on a compromised liver,

>but also to eliminate the possible occurrence

>of other autoimmune diseases? >> I'm also a medical minimalist (Hey! I

>like that term.) I know it's not wise to take less than the prescribed

>amount of many drugs, especially antibiotics, but I've always taken the

>least possible amount and usually stopped a drug as soon as it looked like

>I was improving. There are theories that we (most of us) have developed a

>tolerance to antibiotics because they have been prescribed and used so

>freely over the past few decades. I have to wonder if the same could be

>true about the drugs we take to suppress our immune systems.

>

>Despite my medications having been static for several months, I'm noticing

>a return of some of the little problems I had pre-AIH. Light rashes,

>itching (not the liver kind, but skin sensitivity reactions). Does this

>mean my body is adjusting to the meds and allowing the autoimmune process

>to kick in again?

>

>I have a friend who has been battling a life threatening case of Systemic

>Lupus for almost four years. She's been on various meds including

>Prednisone from the start, yet she continues to develop new, fortunately

>lesser autoimmune conditions. I realize medical treatment in Europe can be

>different than in the US, but two of her brothers are physicians in

>California and her daughter is a doctor in Switzerland who has studied at

>UCLA. They monitor her treatment closely.

>

>It makes sense to me that autoimmunity is a condition that is fundamental

>to those of us who have autoimmune diseases. It's nothing we " caught " or

>developed. We were almost surely born with it and it's always going to be

>there as surely as our eye colors will remain the same. In a way, I see it

>as a series of fuses waiting to be lit. I notice that my doctors continue

>to keep their eyes open for other autoimmune diseases to develop. They

>have repeatedly tested me for Lupus, are now following me for possible

>development of Diabetes, are still unsure whether I have Sjogrens but

>haven't ruled it out, watch me for Rheumatoid Arthritis symptoms and are

>apparently alert to any changes. I know I'm luckier than some of us in

>that they never dismiss any changes in my condition, no matter how minor

>they seem. Every change merits lab tests to check possibilities.

>

>I'd be interested to hear what your doctor has to say about continued

>vulnerability to autoimmune diseases. There is a glaring lack of

>specialists with a full understanding of how this process works. I just

>received a newsletter from AARDA that states that there is a bill to create

>a NIH Office of Autoimmune Diseases. With public funding, perhaps there

>will be enough concern so that more physicians will go into that field as a

>specialty. Right now, too little is known by too few physicians and other

>medical professionals.

>

>I'll scan the article and send it or it should be available at the AARDA

>website: http://www.aarda.org.

>

>Take care,

>Geri

>

>

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