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Heard on the radio: older people who have memory loss may not be suffering

from Alzheimer's. A study has shown that some elderly who don't process

blood sugar properly, and some diabetics, will suffer memory loss.

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  • 4 years later...

Yes, I am still on Gleevec vacation. I am waiting on results of my

latest PCR test. I will see my local ONC the 24th for the results.

The last PCR test was positive in Nov, but not to the point of

concern other than repeat the test. I chose to wait until after the

holidays before repeating it as he thought that they might be

standariezing the tests again. If my results remain eleveated then I

will start taking 400mg Gleevec and repeat the PCR in 30 days. Since

my ONC emails all my results to Dr. K. I do not know if he has anyone

else on vacation. I did get word that if my platelets and RBC

plummets again that I will be able to get procrit if I need it this

time around instead of depending on transfusions. Will post again

after the results are in.

H.

dxd 2/03

400mg Gleevec 3/04

PCRU 11/04

Q-PCR undetectable 11/05

Iron Defiency Anemia 11/06

Gleevec Vacation 5/07

Zero club #530

>

> Hi ,

>

> Can you bring us up to date on your Gleevec vacation? Are you still

at PCRU?

> How often to you do a PCR test? Any plans of ending the vacation?

Does Dr.

> K. have other patients who are taking a break?

>

> Zavie

>

> Zavie (age 69)

> 67 Shoreham Avenue

> Ottawa, Canada, K2G 3X3

> dxd AUG/99

> INF OCT/99 to FEB/00, CHF

> No meds FEB/00 to JAN/01

> Gleevec since MAR/27/01 (400 mg)

> CCR SEP/01. #102 in Zero Club

> 2.8 log reduction Sep/05

> 3.0 log reduction Jan/06

> 2.9 log reduction Feb/07

> 3.2 log reduction Jun/07

> 3.6 log reduction Sep/07

> e-mail: zmiller@...

> Tel: 613-726-1117

> Fax: 309-296-0807

> Cell: 613-202-0204

> ID: zaviem

>

> _____

>

> From: [mailto: ] On Behalf

Of

> dickie_64012

> Sent: January 8, 2008 5:56 PM

>

> Subject: [ ] Memory Loss

>

> I would like to chime in on the problem also. While I do associate

> some memory loss to getting older (68). I also believe that I am

> concentrating on the at hand tasks that I completely block out

> anything else going on around me. My wife will start to tell me

> something I will stop her and ask her to start over again because

she

> did not have my full attention. Yes, I think Gleevec is part of the

> problem but not all. Since I have been on a Gleevec vacation since

> the end of May the fuzzies have gone away but I am not remembering

> any better. I have a complete paragraph ready to speak and by the

> time I get the first sentence out, I have completely lost my train

of

> thought. So I feel like there are many factors at work and am just

> trying to live with it and not let the flusteration get to me.

>

> H.

> dxd 2/03

> 400Mg Gleevec 3/03

> PCRU 11/04

> Q-PCR undetectable 11/05

> Gleevec induced Iron Defeiceny Anemia 11/06

> Gleevec Vacation 5/07

> Zero Club #350

>

>

>

>

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Hi Marcos:

I agree with you and appreciate your post. As you know, I am not the one with

CML, my husband is. However, I was reading all of the posts feeling like I can

totally relate...but I dont have CML!! Partly due to my husband's CML, and

partly due to life in general and other " issues " we deal with, I have alot of

stress in my life and sometimes it surfaces in the form of anxiety attacks.

During my stressful times, I dont eat as well, sleep less, and worry alot. And

I, too, have had many times where at work I am almost unable to function because

I cant remember what I am supposed to do with my mouse! (I am a Creative

Director for a design agency, and literally have been stopped in my tracks, deep

in the software that I know like the back of my hand because I suddenly cannot

remember how to complete a certain task). During the time of 's CML

diagnosis (and stroke and brain surgeries) I was also suffering major lack of

sleep due to the fact that we had a 2.5 month old baby (a nursing one at

that!)...and I was a zombie. A scared, anxious, tired, new mom thinking she was

losing her husband, who could barely form sentences, having panic attacks (never

before had them). The only reason I say this is wow!!!! stress has such a

massive effect on our bodies and I think most Americans dont give it too much

attention, sadly enough.

Before CML, never had anxiety issues or panic attacks. Never. And, yes,

before CML also never was on Gleevec and Sprycel (he actually has never

been on any medication and could count the times he even had to take aspirin on

his fingers). So, one could conclude that the anxiety might be due to these

medications. But, before being diagnosed, also was not a man living with

cancer, and dealing with all of the mental and physical issues that living with

cancer brings about. Being told he had a life threatening, life-long disease,

became life altering. So, often times we feel that who is to say what " side

effects " come from the drugs and what ones come from the realization and

acceptance of living with cancer.

@...: montereyunderwater@...: Thu, 10 Jan 2008

12:09:33 -0800Subject: Re: [ ] Memory Loss

On the memory attention issue our drug may or may not have some effectbut I

don't think there is a reason to get too afraid of notremembering a name or

word. Brain function is very affected by anumber of things, the major ones being

lack of sleep and stress. Ifyou don't sleep well, for whatever reason (cramps

are oftenmentioned), memory and attention are not going to be performing

well.Same thing for stress. A good example is in the army : fear, pressure,a

couple of hour sleep a night, and young fit and healthy peopleforget things they

are drilled to check or miss some obvious thinghappening around them while

focusing on something else. Pilots usecheck lists, not because they usually have

some brain disorder, but toavoid forgetting something critical if they are in a

hurry (also toavoid routine complacency). If I was concerned by bad memory

moments Iwould first ask myself if I sleep well.Marcos.On Jan 8, 2008 2:56 PM,

dickie_64012 <rbhuffman@...> wrote:>>>>> I would like to chime in on the

problem also. While I do associate> some memory loss to getting older (68). I

also believe that I am> concentrating on the at hand tasks that I completely

block out> anything else going on around me. My wife will start to tell me>

something I will stop her and ask her to start over again because she> did not

have my full attention. Yes, I think Gleevec is part of the> problem but not

all. Since I have been on a Gleevec vacation since> the end of May the fuzzies

have gone away but I am not remembering> any better. I have a complete paragraph

ready to speak and by the> time I get the first sentence out, I have completely

lost my train of> thought. So I feel like there are many factors at work and am

just> trying to live with it and not let the flusteration get to me.>>

H.> dxd 2/03> 400Mg Gleevec 3/03> PCRU 11/04> Q-PCR undetectable 11/05> Gleevec

induced Iron Defeiceny Anemia 11/06> Gleevec Vacation 5/07> Zero Club #350>> --

Marcos Perreau GuimaraesSuppes Brain LabVentura Hall - CSLIStanford

University220 Panama streetStanford CA 94305-4101650 614 2305650 630 5015

(cell)marcospg@...gmailwww.stanford.edu/~ma\

rcospg/

_________________________________________________________________

Get the power of Windows + Web with the new Windows Live.

http://www.windowslive.com?ocid=TXT_TAGHM_Wave2_powerofwindows_012008

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