(No subject)

[Guest guest]

debby, i dont know how old you are, but my mum took pred. for most of her life,

she was the 1st woman in england to go on it, for asthma. her bones crumbled

and she went from 5ft 8inches to 4ft 10 inches, due to pred. her doctor

suggested hrt and calcium supplements, my doctor has done the same for me. I am

nearly 50 but have been on hrt since 40. There are natual remedies if you dont

fancy drugs.

love

anita

>

> From: " tdcc " <tdcc2000@...>

> Date: Mon 17/Feb/2003 19:21 GMT

> < >

> Subject: Re: [ ] (no subject)

>

> Hey ! It is SOOOOO good to hear from you! How tragic that you were told

people were tired of hearing of your ailments. They DONT understand! Only

here, do people understand!

>

> My year is also coming to a close...well, not until June, but I am going to

take March and April off so that I can recoup. So far, I have not developed the

diabetis and am trying to keep the sugar labs lower. So far, they are only

ranging in the 130-140...just on the border.

>

> As for the pain in the lower back. I was having that too, but the doctor

discovered it was bad bones, etc. The bones were beginning to crumble...my GP

thought it was from the prednisone. So, now I can say, for 2 days, now, I have

been OFF this medication. With luck, it may not have to be started again. Time

will tell.

>

> Good to hear from you....keep in contact, OK?

> Debby

> [ ] (no subject)

>

>

> Hi

>

> It has been sometime since I have written. This has been an exceptional

busy and hectic school year for me. I teach in Montna and head coach of the

speech and debate team and direct the plays. It has also been a little over a

year know that I was DX'd with AIH and discovered this wonderful group. I

started on 40mg of prednisone and quickly went down and stayed at 5 mg. However

a few months ago I was dx'd with diabetes - Type II. Treatment has been diet

and exercise and for the most part my numbers have been controllable. My liver

counts were slightly elevated and so I am back up to 7.5mg

>

> However, lately I have been getting these pains in my lower back. When I

experience these pains my blood sugar numbers tend to go up. I have also had a

problem with getting rid of staff.

>

> This group has been so great for me because you guys are the only ones that

dont make me feel bad about talking about my illnessesseseses. One of my

dearest friends, a pastor, also a diabetic, shocked me when she told me that

people were tired of me whining about all my ailments all the time. I know

people dont understand.

>

> I would love to hear from those of us who are experiencing anything similar.

AIH with diabetes. Thank you for your understanding.

>

>

>

> dx AIH 1/02

>

[Guest guest]

Bravo! And seconded ...

Andy, please keep your impotent threats to yourself. This isn't Canada but the United States. You let your imagination and wishes run away with you.

Nobody made any death threats here. Anyone the reading the email exhanges would laugh you out of any American court. You're a joke.

Do you even know the song "Instant Karma" by the Beatles (a pro-drug band from the 60s)? Do you know what karma is? Do you know what "keep using drugs and you will be six feet under" means? Or can't you figure it out? It means the DRUGS will do you in? Having trouble with American slang?

I love this.

Re: ANDY/Hey ANDY what ya pissed of about cause ya didnt get your medipot license?????Knows a bunch abouts ya now. KEEP UR CRAP IN CANADA eh???"Chance favors the prepared mind"Louis Pasteur** If you can't be a good example then you have to be a horrible warning** Da YOOPER

[Guest guest]

Hi my name is ! Your a ass hole.

Hi my name is ! shut the hell up.

Hi my name is ! Fuck you.

Hi my name is ! You suck.

Hi my name is ! I smoke pot but don't tell anyone. Jeanine will make fun of me.

Hi my name is ! I'm really sick in the head and I use these boards to relive my self.

Re: ANDY/Hey ANDY what ya pissed of about cause ya didnt get your medipot license?????Knows a bunch abouts ya now. KEEP UR CRAP IN CANADA eh???"Chance favors the prepared mind"Louis Pasteur** If you can't be a good example then you have to be a horrible warning** Da YOOPER

[Guest guest]

Can you take natural remedies if you wanted to.????anita

>

> From: " tdcc " <tdcc2000@...>

> Date: Tue 18/Feb/2003 02:52 GMT

> < >

> Subject: Re: Re: [ ] (no subject)

>

> anita, I have not taken hrt for about one year. Used to, but when the

> doctor discovered the elevated lft's I stopped everything because he siad

> that the problem was from the drugs I was taking. Then, I started them

> again, when nothing seemed to make the numbers go down. Then, last year,

> when the information said that taking hormones were not the best, I just

> stopped them. and never started them again.....no real problems at all

> either. I just don't want to take hormones. Have enought problmes to deal

> with.

>

> I don't want to take much more...one less pill to take!

> Debby

> [ ] (no subject)

> > >

> > >

> > > Hi

> > >

> > > It has been sometime since I have written. This has been an

> exceptional busy and hectic school year for me. I teach in Montna and head

> coach of the speech and debate team and direct the plays. It has also

> been a little over a year know that I was DX'd with AIH and discovered this

> wonderful group. I started on 40mg of prednisone and quickly went down and

> stayed at 5 mg. However a few months ago I was dx'd with diabetes - Type

> II. Treatment has been diet and exercise and for the most part my numbers

> have been controllable. My liver counts were slightly elevated and so I am

> back up to 7.5mg

> > >

> > > However, lately I have been getting these pains in my lower back.

> When I experience these pains my blood sugar numbers tend to go up. I have

> also had a problem with getting rid of staff.

> > >

> > > This group has been so great for me because you guys are the only ones

> that dont make me feel bad about talking about my illnessesseseses. One of

> my dearest friends, a pastor, also a diabetic, shocked me when she told me

> that people were tired of me whining about all my ailments all the time. I

> know people dont understand.

> > >

> > > I would love to hear from those of us who are experiencing anything

> similar. AIH with diabetes. Thank you for your understanding.

> > >

> > >

> > >

> > > dx AIH 1/02

> > >

[Guest guest]

You must. You've been at it 4 days now.....

Re: ANDY/Hey ANDY what ya pissed of about cause ya didnt get your medipot license?????Knows a bunch abouts ya now. KEEP UR CRAP IN CANADA eh???"Chance favors the prepared mind"Louis Pasteur** If you can't be a good example then you have to be a horrible warning** Da YOOPER

[Guest guest]

Oh, I do. I really do ...

Re: ANDY/Hey ANDY what ya pissed of about cause ya didnt get your medipot license?????Knows a bunch abouts ya now. KEEP UR CRAP IN CANADA eh???"Chance favors the prepared mind"Louis Pasteur** If you can't be a good example then you have to be a horrible warning** Da YOOPER

[Guest guest]

that does it you have trodden over my beloved beatles, "let it be"

Re: ANDY/Hey ANDY what ya pissed of about cause ya didnt get your medipot license?????Knows a bunch abouts ya now. KEEP UR CRAP IN CANADA eh???"Chance favors the prepared mind"Louis Pasteur** If you can't be a good example then you have to be a horrible warning** Da YOOPER

[Guest guest]

Ah, yes the Beatles. The pro-drug "band" that promoted the use of illegal drugs. What great men they were.

Re: ANDY/Hey ANDY what ya pissed of about cause ya didnt get your medipot license?????Knows a bunch abouts ya now. KEEP UR CRAP IN CANADA eh???"Chance favors the prepared mind"Louis Pasteur** If you can't be a good example then you have to be a horrible warning** Da YOOPER

[Guest guest]

go to www.ka.com or www.mapinc.org or www.safeaccess.com if she is researching, check out all the research not just what you feel safe knowing.

Re: ANDY/Hey ANDY what ya pissed of about cause ya didnt get your medipot license?????Knows a bunch abouts ya now. KEEP UR CRAP IN CANADA eh???"Chance favors the prepared mind"Louis Pasteur** If you can't be a good example then you have to be a horrible warning** Da YOOPER

[Guest guest]

You are so negative, insufferable and downright rude. I am sure there are few people who tolerate you--or perhaps this is the only forum you can actually be yourself....

Re: ANDY/Hey ANDY what ya pissed of about cause ya didnt get your medipot license?????Knows a bunch abouts ya now. KEEP UR CRAP IN CANADA eh???"Chance favors the prepared mind"Louis Pasteur** If you can't be a good example then you have to be a horrible warning** Da YOOPER

[Guest guest]

Did I offend your musical taste by telling the truth? It seems telling the truth isn't allowed around here ... tsk tsk. Gee, next time I speak I will run it by the censorship committee beforehand.

You know, you get what you give in life. I don't know you, you don't know me. Let's keep it that way.

Gaulke

Re: [ ] (no subject)

You are so negative, insufferable and downright rude. I am sure there are few people who tolerate you--or perhaps this is the only forum you can actually be yourself....

[Guest guest]

Amy...great news that theyve finally found a reason for your pain and you're now being treated. You must have been in agony. Take care.

Jan

[ ] (no subject)

Hi All, I've been keeping up as best as I could the last several weeks but didn't have to energy to do much more that read. To all the new folks, welcome, you have come to a great family that is always full of information but more importantly, support. I've been having terrible bowel problems since Dec - Jerry and I tossed the Depends jokes for a bit, and I have been having lots of pain. First I was diagnosed with a bladder infection and we hoped that would help. Then my GI changed my diet and added metamucil in case it was the lactulose causing severe gas and it always makes you "run". Anyway the final straw came when I was visiting a friend in her classroom (no kids luckily) and I just lost it right there. The GI did some tests this time and then decided he needed to do an endoscopy. He found that I had a bleeding duodenum ulcer (just past the stomach) caused by h-pylori bacteria. He was very surprisesd because that is a bacteria that sounds like is usually found in very dirty places - not what I tend to expose myself , too. I am on major meds now and already, in 2 days, I feel better than I have in weeks! My husband tells me to not over do it but it's such a great feeling! I think infections are what will finally bring me to transplant - they are the reason I got on the list and I keep having them. I guess between the AIH, lupus and sjogrens my immune system can't handle anything. The big thing will be that you have to be infection free to receive a transplant - I feel like I need to live on antibiotics! Oh well, we'll cross that bridge sooner or later. I just wanted to share what I consider great news - some relief is found - I'm vindicated once again in that I recognized there was something wrong before anyone could diagnose it. Now just to figure out how to politely and firmly tell them to always look further )Take care!Amy

[Guest guest]

This is excellent information! Thanks Rhonda.

Rudy Ballentine is probably the best resource around as far as integrating medical knowledge from various medical practices from varuious cultures around the world and throughout history. I have learned more about healing the human body from the book, Radical Healing by Rudolph Ballentine, M.D. I strongly urge everyone to get a copy! The guy responsible for teaching me the basics to heal myself was a roommate of Rudy's in college, and got him started in the direction of Natural healing in med school 40 some years ago.

Give your body what it needs, and the rest will take care of itself.

Peace, Jeanine

http://hepchelp.homestead.com

First they ignore you,

then they laugh at you,

then they fight you,

then you win.

Mahatma Ghandi

Protect your PC - Click here for McAfee.com VirusScan Online

[Guest guest]

Remember the yellow book of his (Diet and Nutrition) from years ago? I believe he was a good friend of the Integral Yoga Institutes and Swami Satchidananda (my guru), and we offered his book thru my teaching center at the time it came out. He's the best, I agree! In Health, Satya

Re: [ ] (No Subject)

This is excellent information! Thanks Rhonda.

Rudy Ballentine is probably the best resource around as far as integrating medical knowledge from various medical practices from varuious cultures around the world and throughout history. I have learned more about healing the human body from the book, Radical Healing by Rudolph Ballentine, M.D. I strongly urge everyone to get a copy! The guy responsible for teaching me the basics to heal myself was a roommate of Rudy's in college, and got him started in the direction of Natural healing in med school 40 some years ago.

Give your body what it needs, and the rest will take care of itself.

Peace, Jeanine

http://hepchelp.homestead.com

First they ignore you,

then they laugh at you,

then they fight you,

then you win.

Mahatma Ghandi

Protect your PC - Click here for McAfee.com VirusScan Online

[Guest guest]

Carolyn...... I have always beeb a little gun shy of herbals....I figure

if they are so good for us why do we need doctors?

Anyway I can't say that they can harm you as I am not a doctor....but

neither can I say they will help. Remember PBC is chronic and incurable,

but it is treatable.

If you try the diet don't do it in place of your meds.

It has been a life's lesson I have learned in my 60 yrs....that " if it

sounds to good to be true " ....it is.

Let us know if it helps (if you try it) and remember we are all praying

for you and your health.

love jerry

this is just my opinion.....doesm't mean i'm right.

[Guest guest]

Sees Candy is great...if you live in Calif.

Debby

[ ] (no subject)

Need help getting a fundraiser started. Please help me if you can. Thanks Marcy.

[Guest guest]

Harper,

I'm not totally sure if the rheumy felt I should stay away from unpastuerized cheeses and out of open bodies of water only because of the impact that prednisone has on my immune system or if it's also because of the liver disease. She totally caught me off guard. The situation came up when I asked her whether or not it would be okay for me to swim in open bodies of water. As I said earlier we scuba dive, which is out for me for the time being. I couldn't even lug my gear, let alone muster the energy to climb back in the boat after the dive. However, we also have an 18' runabout boat and we spend a lot of time on the river. The rheumy initially began lecturing me telling me that the sun is positively dangerous for anyone with lupus. I told her I've only had the lupus sunburn rash a few times over the last 7 years. She said that even without the rash, the sun can have serious consequences for someone with lupus. It was only after that lecture that she asked me why I would want to swim in open bodies of water, when I could swim in a clean pool. I explained the boat, water skiing, scuba, snorkeling, etc. She just said that swimming in open bodies of water would not be good for me right now. She then went on to say that on the same note, there were foods I needed to stay away from such as unpastuerized cheeses. She mentioned some bacterias that could be dangerous for someone on prednisone. However, I left the appt unsure as to whether the open bodies of water, unpastuerized cheeses (which I don't like anyway) will be okay once I'm no longer on prednisone or if they are out forever because of the liver disease. I have an appointment with a hepatologist at Vanderbilt in Nashville, TN on May 6th. I intend to get clarification from him. My rheumy tends to be overly cautious in my opinion - perhaps in part because her husband is an infectious disease specialist. She wasn't really that concerned about the fact that water activities and the sun are a VERY big part of my life. If they are truly dangerous for me, then I will give them up, but I want an another doctor's take on it. For now, I have decided I will stay away from open bodies of water at least until my prednisone is lowered and my liver enzymes are staying near normal.

W

[ ] (no subject)

Sophie wrote ......The wife of this family asked me later why I did not taste this lovely wine and I said as much as I'd love to, I had a liver disease. Turns out now that she believes I am contageous and that our house is not a safe place to visit with small children... At the moment I don't even want to think of calling her. But maybe I will. Maybe she is just a concerned mum but it's not a nice experience.Sophie, being "a concerned mom" isn't really an excuse for rudeness. Even if you were contagious, wouldn't you still be a human who deserved consideration, civility? I'm sorry you've run into this situation -- which isn't, I'm afraid, an unusual one.Harper Weston wrote: ......My rheumy was not keen on me swimming in the ocean, river, or quarry as long as I am on prednisone. She said I'm really not at an increased risk for every day illnesses such as colds, etc. However, she said that I am at an increased risk for some oddball bacterias that would not cause any problems for a healthy individual. She told me that I need to stay away from non-pastuerized cheeses such as brie, blue cheese, feta because they have bacteria that could be very dangerous for me. ...., when your doctor said to avoid these cheeses, was it solely on the basis of Prednisone use? That's quite interesting; I'd never heard that the bacteria could be a problem. Harper

[Guest guest]

...like Harper I have never heard of the unpasteurized cheese thing

either, but that doesn't mean it isn't true.

However I have been on Prograf for almost 8 yrs, which is a more

powerful immunosuppressant than prednisone, I think and one of the 1st

things I aasked the head hep of my team was what can I or can't I eat

and he he told me I could eat basically anything I liked...of course

I've come to find out that I have to forgo some types of shellfish but I

have eaten brie tec with no ill effects. That is interesting and I think

I shall ask my gastro about it the next appt. maybe they forgot to

mention certain cheeses or maybe they didn't think I looked like the

kind of person who would eat things like brie or feta...that I was

simplty a processed cheese man.

Thanks for the tidbit...(no pun)

love jerry

BTW does this include yogurt or is yogurt pasteurized...what te hell I

don't eat yogurt anyways..

[Guest guest]

I sent them an email a couple of days ago as well. I'll let you know

if I hear from them. Where are you located? We're just outside of

Dallas. Texas Hyperbarics is the closest facilty to us. As you

stated, the price is awesome so it might be too good to be true.

Hope not.

> Has anyone ever contacted Texas Hyperbarics? They have a awsome

website, I

> cannot get calls or e-mails returned. I guess it was to good to

be true!

>

>

>

[Guest guest]

Congratulations, !

This is the stuff that makes the sun come out!

Sophie

[Guest guest]

:

Isn't that a great feeling? My ALT and AST were in the 30's last month for the first time in years. Marty

[ ] (no subject)

Hi All,Just wanted to share my good news with you folks - you have certainly been there for me when the news wasn't always so good. Back in 1/2002, I was diagnosed with AIH and started on 40 mg of dear ol prednisone. I tapered off at a good steady rate. However once I hit the 5mg, my levels went back up and my doctor insisted on putting me on 7.5. Here was the deal - 2 months of normal numbers and I could go back to 5mg. Well, I did and it did. My doctor was reluctant because I have had some success with 7.5. Only if I sent him blood work in 30 days. Here's the good news, if you stuck through my tangents. After 30 days of 5mg, not only are my levels good but both ALT and AST numbers are smack, dab, in the middle - both in the 30's. I cant remember the last time my numbers were that low. I was jigging today I can tell you. Thanks for being there and embracing me in your loving support.AIH, dx'd 1/02

[Guest guest]

have a good day, jeannie

>From: "RUTH EMERSON"

>"Joyce" ,"melisa baker" ,"Rosemarie Boyd" ,"vivian" ,"debbie" ,"grandmajane122" ,"Hanknjean Dykeman" ,"irma" ,"jeannie" ,"pamela stall" ,"ramonjr gallegoes" ,"THEBECKSTER" ,"terry"

>Subject: Fw: (no subject) >Date: Sat, 24 May 2003 11:41:13 -0400 > > > (no subject) > > >Here's to T-bone steaks, yellow roses and friendship. READ THIS!!!! and then reread it. Especially the last part... > >I walked into the grocery store not particularly interested in buying groceries. I wasn't hungry. The pain of losing my husband of 7 years was still too raw. And this grocery store held so many sweet memories. > >He often came with me and almost every time he'd pretend to go off and look for something special. I knew what he was up to. I'd always spot him walking down the aisle with the three yellow roses in his hands. He knew I loved yellow roses. > > >With a heart filled with grief, I only wanted to buy my few items and leave, but even grocery shopping was different since he had passed on. Shopping for one took time, a little more thought than it had for two. Standing by the meat, I searched for the perfect small steak and remembered how he had loved his steak. > >Suddenly a woman came beside me. She was blonde, slim and lovely in a soft green pantsuit. I watched as she picked up a large pack of T-bones, dropped them in her basket, hesitated, and then put them back.. > >She turned to go and once again reached for the pack of steaks. She saw me watching her and she smiled. "My husband loves T-bones, but honestly, at these prices, I don't know." I swallowed the emotion down my throat and met her pale blue eyes. "My husband passed away eight days ago," I told her. > >Glancing at the package in her hands, I fought to control the tremble in my voice. "Buy him the steaks. And cherish every moment you have together." > >She shook her head and I saw the emotion in her eyes as she placed the package in her basket and wheeled away. > >I turned and pushed my cart across the length of the store to the dairy products. There I stood, trying to decide which size milk I should buy. > > > >Quart, I finally decided and moved on to the ice cream. If nothing else, I could always fix myself an ice cream cone. I placed the ice cream in my cart and looked down the aisle toward the front. > >I saw first the green suit, then recognized the pretty lady coming towards me. In her arms she carried a package. On her face was the brightest smile I had ever seen. I would swear a soft halo encircled her blonde hair as she kept walking toward me, her eyes holding mine. As she came closer, I saw what she held and tears began misting in my eyes. > >"These are for you," she said and placed three beautiful long stemmed yellow roses in my arms. "When you go through the line, they will know these are paid for." She leaned over and placed a gentle kiss on my cheek, then smiled again. > >I wanted to tell her what she'd done, what the roses meant, but still unable to speak, I watched as she walked away as tears clouded my vision. > >I looked down at the beautiful roses nestled in the green tissue wrapping and found it almost unreal. How did she know? Suddenly the answer seemed so clear. I wasn't alone. Oh, you haven't forgotten me, have you? I whispered, with tears in my eyes. He was still with me, and she was his angel. > >Every day be thankful for what you have and who you are. > >(Please read all of this, it is really nice) > >This is a simple request. If you appreciate life, send this to your friends, including the person that sent it to you. > >Even though I clutch my blanket and growl when the alarm rings. Thank you, Lord, that I can hear. There are many who are deaf. > >Even though I keep my eyes closed against the morning light as long as possible. Thank you, Lord, that I can see. Many are blind. > >Even though I huddle in my bed and put off rising. Thank you, Lord, that I have the strength to rise. There are many who are bedridden. > > >Even though the first hour of my day is hectic, when socks are lost, toast is burned and tempers are short, my children are so loud. > >Thank you, Lord, for my family. There are many who are lonely. > > >Even though our breakfast table never looks like the pictures in magazines and the menu is at times unbalanced. Thank you, Lord, for the food we have. There are many who are hungry. > >Even though the routine of my job often is monotonous. Thank you, Lord, for the opportunity to work. There are many who have no job. > >Even though I grumble and bemoan my fate from day to day and wish my circumstances were not so modest. Thank you, Lord, for life. > >Pass this on to the friends you know. It might help a bit to make this world a better place to live, right? A friend is someone we turn to when our spirits need a lift. A friend is someone to treasure. > >For friendship is a gift. A friend is someone who fills our lives with Beauty, Joy and Grace and makes the world we live in a better and happier place. > > > >YOU ARE MY FRIEND! Now send this to every friend you have and don't forget me. > > > > > > > MSN 8 helps ELIMINATE E-MAIL VIRUSES. Get 2 months FREE*.

[Guest guest]

Most of us are affected by shifts in barometric pressure, geophramic events

and full moons, our pineal gland senses all of these things.

See cause of autism on Chidlscreen (go to research) and read the malfunction

of pineal gland in autism, it may prove your right.

www.childscreen.org

Kathy

[ ] (no subject)

> I have a question in a group I am in for my son disorder a lot of the

> children have seizures and there has recently been some talk that some of

that

> parents think there children have more seizures when there is a full moon.

Does

> anyone feel this or does anyone know any thing about this.

> thanks

> Lori

>

>

>

[Guest guest]

Kathy

i can't seem to get into the site it keeps coming up with an error

Lori

[Guest guest]

Several neurologists have found this to be true -- not only parents. One

woman I know who was married to an epileptologist said his beeper went nuts

every time there was a full moon.

[ ] (no subject)

I have a question in a group I am in for my son disorder a lot of the

children have seizures and there has recently been some talk that some of

that

parents think there children have more seizures when there is a full moon.

Does

anyone feel this or does anyone know any thing about this.

thanks

Lori