Re: A NOTE FROM DR WALFORD

[Guest guest]

here is an ALS site with some feedback posted on this subject. Two of the

posts suggest caution.

Steve

http://www.rideforlife.com/MT/archives/cover_story/000483.html#483

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I have contacted one of the lead neuropathologists at Mass General Hospital

with regard to this.

The quote from MGH is bogus.

Genentec has been very accomodating to the researchers-MGH has written the

protocol for the trial. Dr. Schwartz is trying to patent this. There is no

science behind this anecdotal " evidence " . My Dr. at MGH is not convinced

that the sympton reversal was as claimed.

Genentec is working with MGH but not with the good doctor.

Take it for what its worth.

Caveat Emptor, guys.

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According to Dr Schwartz,s web site, the doctor claims to have a patent for

something he calls neuropoietin - a mixture of thrombopoetin and thyroid

hormone- However, an on-line search of the US Patent Office shows no patents

granted for either neuropoietin nor are there any patents issued to Dr

R Schwartz. Something is very fishy here, and as a long-suffering ALS

patient, I do NOT like being played with in this way.

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[Guest guest]

Steve: Thanks for this info. Dr W reads our posts on occasion - but I'll

forward it to his personal mail as well............

on 4/12/2003 5:30 PM, Steve Richter at srichter@... wrote:

>

> here is an ALS site with some feedback posted on this subject. Two of the

> posts suggest caution.

>

> Steve

>

> http://www.rideforlife.com/MT/archives/cover_story/000483.html#483

>

> ---------------------------------------------------

>

> I have contacted one of the lead neuropathologists at Mass General Hospital

> with regard to this.

>

> The quote from MGH is bogus.

> Genentec has been very accomodating to the researchers-MGH has written the

> protocol for the trial. Dr. Schwartz is trying to patent this. There is no

> science behind this anecdotal " evidence " . My Dr. at MGH is not convinced

> that the sympton reversal was as claimed.

>

> Genentec is working with MGH but not with the good doctor.

>

> Take it for what its worth.

>

> Caveat Emptor, guys.

>

> -----------------------------------------------------------------

>

> According to Dr Schwartz,s web site, the doctor claims to have a patent for

> something he calls neuropoietin - a mixture of thrombopoetin and thyroid

> hormone- However, an on-line search of the US Patent Office shows no patents

> granted for either neuropoietin nor are there any patents issued to Dr

> R Schwartz. Something is very fishy here, and as a long-suffering ALS

> patient, I do NOT like being played with in this way.

>

> -----------------------------------------------------------------

>

>

>

>