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Hi! I'm just getting stared too. Summer was diagnosed by our ped. 2

weeks ago. I don't know for sure but I think it all depends on your

insurance company. some require that you have a referral from your

ped. and some don't. I would look at your policy and find out. My

insurance doesn't want to pay. Anything over 1000 must be pre-

authorized. My daughter is almost 5 months and I feel like we're

losing precious time. Have you tried the repositioning techniques?

denisha

florida

summer's mom

> Hello,

> I have a 3 month old son who has one eye that is thin and one

> that is wide. He also has a flat spot on the back of his head. My

> regular doctor blew off my concerns. I went online to research and

> sure enough it seems like he has mild to moderate plagiocephaly. I

> am from a really small town in Upstate New York so I decided to

take

> my son to a doctor in Syracuse. He knew nothing what so ever about

> plagiocephaly. He simply said my sons face was assymetrical.

> (Wasted trip)

> So what do I do now? Can I go straight to Cran Tech or should

I

> continue trying to get a referral from a doctor who actually knows

> about Plagiocephaly?

> Thanks for any advice,

> Collin's concerned Mommy

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Hi Mom & welcome to our group!!

You are doing a great job by finding out all this information on your

own - it's a shame your Dr. isn't being a better help to you & your

son, but that's unfortunately very common.

You asked if you should find a Dr. who will take your concerns

seriously or just go to Cranial Tehcnologies?? Cranial Technologies

offer free evaluations, but they are not able to band a child without

a prescription from a Dr.. You said you live in New York, I believe

then the closest Cranial Tech location to you would be the clinic in

Paramus NJ. Is that anywhere near you? In the mean time, keep

addressing your concerns with your pediatrician, bring in as much

information to him about plagio and whatever else you can find. If

he still won't take your concerns seriously, then perhaps it's time

to find a different Dr..

While you are waiting for Dr. appts & such, you could try

repositioning Collin. Visit www.plagiocephaly.org then click

repositioning tips. You could also find tips in our " bookmarks "

section of our group.

Good luck, - welcome again to our group. Please keep us posted on

your situation.

Debbie Abby's mom DOCGrad 6/01

MI

> Hello,

> I have a 3 month old son who has one eye that is thin and one

> that is wide. He also has a flat spot on the back of his head. My

> regular doctor blew off my concerns. I went online to research and

> sure enough it seems like he has mild to moderate plagiocephaly. I

> am from a really small town in Upstate New York so I decided to

take

> my son to a doctor in Syracuse. He knew nothing what so ever about

> plagiocephaly. He simply said my sons face was assymetrical.

> (Wasted trip)

> So what do I do now? Can I go straight to Cran Tech or should

I

> continue trying to get a referral from a doctor who actually knows

> about Plagiocephaly?

> Thanks for any advice,

> Collin's concerned Mommy

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Guest guest

Hi,

I think the best advice for you at the moment,whether or not you

continue with different teatment later, is for now reposition

Colin,safley but aggressivley.Keep him off of the flat part of his

head at all times,weather he is in bed or up.This is the only

treatment we use in New Zealand and it can have great results if you

are consistant with it.So at least until you decide what is next for

you and your son give it your best shot with repositioning.

Best of luck,, Mum to Ben in New Zealand

P.S Have a look at this site for a great repositioning device that I

am successfully using at the moment.www.safetsleep.com

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  • 1 year later...

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