New here with some questions

[Guest guest]

- go to the Arthritis Foundation website. Has a lot of info on JRA.

Our daughter is systemic - had the fevers and the rash prior to diagnosis.

Good luck. Sandi Ken Hunter (9Systemic)

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[Guest guest]

hi -

Welcome to the board even though it's not for the greatest of reasons

however, this is a wonderful suportive place.

The symptoms that you describe sound very much like SystemicJRA and also a

very common diagnoistic course.... 'we think it's luekemia " .. no... now

it's this or that systemic disease... no, we don't know.. lol.

It commonly can take sometime to get a correct diagnosis as well since JRA

is a diagnosis of exclusion for the most part. The spiking daily fevers and

rash that comes and goes is a hallmark sign of Systemic JRA esp with the

pain. They probably think it's not Systemic because it's 'only' his knee

hurting but in many cases, this can happen too. Nothing is by the book even

if the doctors wish for it to be.

That's good they sent him to an Opthomologist to check for Iritis and

Uveitis.

Now, is he seeing a Pediatric Rheumatologist?

I wonder what 'criteria' they are waiting for with the JRA. It really sounds

like it more than it does SLE or MCTD. Unless there are other odd symptoms

that you didn't post about. The rash doesn't sound like SLE as that one

ussualy doesn't come and go.... and MCTD well. so far the symptoms you

mention fit SYsJRA.

Anyways, if you aren't seeing a board certified pediatric rheumy, I hope you

can get one seen soon.

Issadora (age 30 polyJRA since age 5, Fibromyalgia, and other crap)

On Dec 22, 2007 7:19 PM, nurse0300 <nurse0300@...> wrote:

> Hello all where to start with my many questions. My son is 7 and

> has been sick for 7 weeks now. This all started at haloween we

> thought that his fever and knee pain was a combo of just too much

> trick or treating and maybe the beginnings of a virus. So we just

> kinda sat back and thought awww this will just run its course but 2

> weeks later me and my husband kinda came to the same conclusion he

> isnt getting any better. Well to give you a little back round on

> symptoms he had high fever 104.2 severe knee pain and a rash. Well

> at week 2 we called our family MD who said oh probably a virus if no

> beter will see him next week. Well needless to say he was no better

> and we ended up going there he was tested for strep and also some

> blood work was done. We came out of that appt with 3 POSSIBLE

> diagnosis one being JRA, the others rheumatic fever and the last

> leukemia. We were sent to another 2nd opinion Dr got more blood

> work then he sent us to oncology/ hematology for ? leukemia, they

> did their work up yep more blood work his " cancer number was up " so

> they decided that the best possible thing they can do is a bone

> marow biopsy. So this was done they felt ummm no we think it is

> something rheumatologic so we are sending you there. We went there

> they said umm maybe JRA maybe lupus maybe MCTD. He did some lab work

> and ruled out Lupus. he thinks its JRA but not ALL of the criteria

> for this has been met. Ok that is the backround for my

> questions. How long was it before your children were diagnosed we

> were told it can take up to 6 months to get a deffinate diagnosis.

> Has this been the case with anyone else. My son is still having

> high fevers usually spikes 1-2 times a day some times as high as

> 105. He has this mottled looking rash on his chest back and thigs

> and a little on face it gets worse with heat/ cold or fevers. At

> other times it fades away. He c/o knee pain daily and back pain and

> complains more with the higher the fever. Is this a chacteristic

> that your childrens has had. We are going to see opthalomology the

> MD said he is really squinty. ? uvitis. IS your childrens labs all

> out of wack or are they pretty normal? sorry so long just one

> anxious mom with a sick kid for now 7 weeks!

>

>

>

>

>

--

" I am not sick. I am broken. But I am happy as long as I can paint. "

--Frida Kahlo

[Guest guest]

Hi ,

What you're describing sounds similar to what my son went through

initially. My son was 11 when he first got sick and it started with

what we thought was a virus. He had the fevers and rash too, his

only pain as far as joints are concerned was his ankle, then the toes

swelled but for the most part the big things were the fevers and the

rash, and generally feeling very weak and overall poor. We had the

bone marrow done too. It was shortly after that was done, when he

was then diagnosed with systemic jra. They pretty much had to rule

out everything else first. His sed rate and esr were high along with

his wbc. I will send you some pictures of his rash, although the

rash varies on each child.

I would suggest you make an appt with a pediatric rheumotologist as

soon as possible. The 6 month thing you were told is pretty old

school. If your son has systemic jra, all research supports getting

treatment started for the best outcome, the early the better. They

will try first line drugs, and if they don't work, they will go from

there. Please see the eye doctor. Although most systemic kids do

not get uvietis, some do....mine did. It's best to have him checked,

if he has uvietis they can treat it and it will also help to narrow

down the proper diagnosis for your son.

Good Luck.

(Christian 15, systemic.)

>

> Hello all where to start with my many questions. My son is 7 and

> has been sick for 7 weeks now. This all started at haloween we

> thought that his fever and knee pain was a combo of just too much

> trick or treating and maybe the beginnings of a virus. So we just

> kinda sat back and thought awww this will just run its course but 2

> weeks later me and my husband kinda came to the same conclusion he

> isnt getting any better. Well to give you a little back round on

> symptoms he had high fever 104.2 severe knee pain and a rash. Well

> at week 2 we called our family MD who said oh probably a virus if

no

> beter will see him next week. Well needless to say he was no better

> and we ended up going there he was tested for strep and also some

> blood work was done. We came out of that appt with 3 POSSIBLE

> diagnosis one being JRA, the others rheumatic fever and the last

> leukemia. We were sent to another 2nd opinion Dr got more blood

> work then he sent us to oncology/ hematology for ? leukemia, they

> did their work up yep more blood work his " cancer number was up " so

> they decided that the best possible thing they can do is a bone

> marow biopsy. So this was done they felt ummm no we think it is

> something rheumatologic so we are sending you there. We went there

> they said umm maybe JRA maybe lupus maybe MCTD. He did some lab

work

> and ruled out Lupus. he thinks its JRA but not ALL of the criteria

> for this has been met. Ok that is the backround for my

> questions. How long was it before your children were diagnosed

we

> were told it can take up to 6 months to get a deffinate diagnosis.

> Has this been the case with anyone else. My son is still having

> high fevers usually spikes 1-2 times a day some times as high as

> 105. He has this mottled looking rash on his chest back and thigs

> and a little on face it gets worse with heat/ cold or fevers. At

> other times it fades away. He c/o knee pain daily and back pain

and

> complains more with the higher the fever. Is this a chacteristic

> that your childrens has had. We are going to see opthalomology the

> MD said he is really squinty. ? uvitis. IS your childrens labs

all

> out of wack or are they pretty normal? sorry so long just one

> anxious mom with a sick kid for now 7 weeks!

>

>

>

[Guest guest]

-we are seeing a ped iactric rhuemy at childrens in cincinnati ohio

-- In , Issadora <FlyfreeIzzie@...> wrote:

>

> hi -

> Welcome to the board even though it's not for the greatest of

reasons

> however, this is a wonderful suportive place.

>

> The symptoms that you describe sound very much like SystemicJRA

and also a

> very common diagnoistic course.... 'we think it's luekemia " ..

no... now

> it's this or that systemic disease... no, we don't know.. lol.

>

> It commonly can take sometime to get a correct diagnosis as well

since JRA

> is a diagnosis of exclusion for the most part. The spiking daily

fevers and

> rash that comes and goes is a hallmark sign of Systemic JRA esp

with the

> pain. They probably think it's not Systemic because it's 'only'

his knee

> hurting but in many cases, this can happen too. Nothing is by the

book even

> if the doctors wish for it to be.

>

> That's good they sent him to an Opthomologist to check for Iritis

and

> Uveitis.

>

> Now, is he seeing a Pediatric Rheumatologist?

>

> I wonder what 'criteria' they are waiting for with the JRA. It

really sounds

> like it more than it does SLE or MCTD. Unless there are other odd

symptoms

> that you didn't post about. The rash doesn't sound like SLE as

that one

> ussualy doesn't come and go.... and MCTD well. so far the symptoms

you

> mention fit SYsJRA.

>

> Anyways, if you aren't seeing a board certified pediatric rheumy,

I hope you

> can get one seen soon.

>

> Issadora (age 30 polyJRA since age 5, Fibromyalgia, and other crap)

>

> On Dec 22, 2007 7:19 PM, nurse0300 <nurse0300@...> wrote:

>

> > Hello all where to start with my many questions. My son is 7

and

> > has been sick for 7 weeks now. This all started at haloween we

> > thought that his fever and knee pain was a combo of just too much

> > trick or treating and maybe the beginnings of a virus. So we just

> > kinda sat back and thought awww this will just run its course

but 2

> > weeks later me and my husband kinda came to the same conclusion

he

> > isnt getting any better. Well to give you a little back round on

> > symptoms he had high fever 104.2 severe knee pain and a rash.

Well

> > at week 2 we called our family MD who said oh probably a virus

if no

> > beter will see him next week. Well needless to say he was no

better

> > and we ended up going there he was tested for strep and also some

> > blood work was done. We came out of that appt with 3 POSSIBLE

> > diagnosis one being JRA, the others rheumatic fever and the last

> > leukemia. We were sent to another 2nd opinion Dr got more blood

> > work then he sent us to oncology/ hematology for ? leukemia, they

> > did their work up yep more blood work his " cancer number was up "

so

> > they decided that the best possible thing they can do is a bone

> > marow biopsy. So this was done they felt ummm no we think it is

> > something rheumatologic so we are sending you there. We went

there

> > they said umm maybe JRA maybe lupus maybe MCTD. He did some lab

work

> > and ruled out Lupus. he thinks its JRA but not ALL of the

criteria

> > for this has been met. Ok that is the backround for my

> > questions. How long was it before your children were diagnosed we

> > were told it can take up to 6 months to get a deffinate

diagnosis.

> > Has this been the case with anyone else. My son is still having

> > high fevers usually spikes 1-2 times a day some times as high as

> > 105. He has this mottled looking rash on his chest back and thigs

> > and a little on face it gets worse with heat/ cold or fevers. At

> > other times it fades away. He c/o knee pain daily and back pain

and

> > complains more with the higher the fever. Is this a chacteristic

> > that your childrens has had. We are going to see opthalomology

the

> > MD said he is really squinty. ? uvitis. IS your childrens labs

all

> > out of wack or are they pretty normal? sorry so long just one

> > anxious mom with a sick kid for now 7 weeks!

> >

> >

> >

> >

> >

>

>

>

> --

> " I am not sick. I am broken. But I am happy as long as I can

paint. "

>

> --Frida Kahlo

>

>

>

[Guest guest]

Hi, and welcome to the group, although we all hate to hear of

another child with JRA. It sure does sound like systemic jra. Have you

looked at the pictures posted on the list to see if anything looks

similar to your son's rash? People have posted pics of their kid's

rashes, that may help you. You posted you are seeing a ped rheumy in

Cincinnati, there are many on the list that go there, so it seems like

you are in good hands. As for diagnosis, some people take years to get

an accurate diagnosis. For my son, it was 7 months and two orthopedic

specialists before arthritis was even mentioned, and then when I did my

own research, my ped said to get him to ped rheumy which is when he

finally got diagnosed with jra and another 6 months for the spondylitis

diagnosis. So it definitely can take time. It is important to get to

the ophthalmologist as you are doing. You have found a very supportive

group, so please feel free to ask questions or vent when you need to.

Michele ( 20, spondy)

________________________________

From: [mailto: ] On

Behalf Of nurse0300

Sent: Saturday, December 22, 2007 9:19 PM

Subject: new here with some questions

Hello all where to start with my many questions. My son is 7 and

has been sick for 7 weeks now. This all started at haloween we

thought that his fever and knee pain was a combo of just too much

trick or treating and maybe the beginnings of a virus. So we just

kinda sat back and thought awww this will just run its course but 2

weeks later me and my husband kinda came to the same conclusion he

isnt getting any better. Well to give you a little back round on

symptoms he had high fever 104.2 severe knee pain and a rash. Well

at week 2 we called our family MD who said oh probably a virus if no

beter will see him next week. Well needless to say he was no better

and we ended up going there he was tested for strep and also some

blood work was done. We came out of that appt with 3 POSSIBLE

diagnosis one being JRA, the others rheumatic fever and the last

leukemia. We were sent to another 2nd opinion Dr got more blood

work then he sent us to oncology/ hematology for ? leukemia, they

did their work up yep more blood work his " cancer number was up " so

they decided that the best possible thing they can do is a bone

marow biopsy. So this was done they felt ummm no we think it is

something rheumatologic so we are sending you there. We went there

they said umm maybe JRA maybe lupus maybe MCTD. He did some lab work

and ruled out Lupus. he thinks its JRA but not ALL of the criteria

for this has been met. Ok that is the backround for my

questions. How long was it before your children were diagnosed we

were told it can take up to 6 months to get a deffinate diagnosis.

Has this been the case with anyone else. My son is still having

high fevers usually spikes 1-2 times a day some times as high as

105. He has this mottled looking rash on his chest back and thigs

and a little on face it gets worse with heat/ cold or fevers. At

other times it fades away. He c/o knee pain daily and back pain and

complains more with the higher the fever. Is this a chacteristic

that your childrens has had. We are going to see opthalomology the

MD said he is really squinty. ? uvitis. IS your childrens labs all

out of wack or are they pretty normal? sorry so long just one

anxious mom with a sick kid for now 7 weeks!

[Guest guest]

,

I grew up near Dayton and lived in Cinci for a couple years too .

You are blessed to live so close to Cincinnati Children's --- there

are so many places in the US that don't have adequate Pediatric

specialists for these JRA related diseases.

I can only go from my own experience but yes indeed, it can take

several months to get the right diagnosis (sadly, some go years!).

We had a diagnosis for Isabelle (then 2 yrs old) within about 4

months. She also had the high fever, rash, and then her left knee

began to have swelling. It kept coming and going for a couple weeks

and only in the morning. We took her to her reg. Ped and same story

as yours, " could be Leukemia (yikes!), or a broken bone (had x-rays

with Ortho Ped. first to rule that out), then possible JRA. First

symptoms in Jan. but diagnosed in April '06).

All I can say is, hang in there! You are not alone; it's a lonely

place in the beginning because friends and family don't really " get

it " ---- having a child having ANY illness is a major stress and it

breaks our hearts as parents to know our child is hurting. It does

get easier and the first step in that direction is having an actual

diagnosis. Having something to point to and something concrete seems

to help us sleep better at night. Then for me, a second opinion with

another Ped. Rheumy was the answer to our prayers so even when you

get the diagnosis and treatment started, don't be afraid to get just

one more opinion on how to best help your son. I wish we hadn't

waited to do that...hindsight is 20/20...

My daughter is now on Methotrexate and is doing very well. It spread

to her ankles and other knee this year and we had to get agressive;

Ibuprofen wasn't enough in our case and Naprosyn made her very sick.

Knock on my head, Isabelle has been on a " medicated remission " for

almost 8 months now.

I hope you have your answers soon. All the best and may you have

your own Christmas Miracle....

-Hadley (Isabelle, 3.5 yrs. JRA)

> >

> > > Hello all where to start with my many questions. My son is 7

> and

> > > has been sick for 7 weeks now. This all started at haloween we

> > > thought that his fever and knee pain was a combo of just too

much

> > > trick or treating and maybe the beginnings of a virus. So we

just

> > > kinda sat back and thought awww this will just run its course

> but 2

> > > weeks later me and my husband kinda came to the same conclusion

> he

> > > isnt getting any better. Well to give you a little back round on

> > > symptoms he had high fever 104.2 severe knee pain and a rash.

> Well

> > > at week 2 we called our family MD who said oh probably a virus

> if no

> > > beter will see him next week. Well needless to say he was no

> better

> > > and we ended up going there he was tested for strep and also

some

> > > blood work was done. We came out of that appt with 3 POSSIBLE

> > > diagnosis one being JRA, the others rheumatic fever and the last

> > > leukemia. We were sent to another 2nd opinion Dr got more blood

> > > work then he sent us to oncology/ hematology for ? leukemia,

they

> > > did their work up yep more blood work his " cancer number was

up "

> so

> > > they decided that the best possible thing they can do is a bone

> > > marow biopsy. So this was done they felt ummm no we think it is

> > > something rheumatologic so we are sending you there. We went

> there

> > > they said umm maybe JRA maybe lupus maybe MCTD. He did some lab

> work

> > > and ruled out Lupus. he thinks its JRA but not ALL of the

> criteria

> > > for this has been met. Ok that is the backround for my

> > > questions. How long was it before your children were diagnosed

we

> > > were told it can take up to 6 months to get a deffinate

> diagnosis.

> > > Has this been the case with anyone else. My son is still having

> > > high fevers usually spikes 1-2 times a day some times as high as

> > > 105. He has this mottled looking rash on his chest back and

thigs

> > > and a little on face it gets worse with heat/ cold or fevers. At

> > > other times it fades away. He c/o knee pain daily and back pain

> and

> > > complains more with the higher the fever. Is this a chacteristic

> > > that your childrens has had. We are going to see opthalomology

> the

> > > MD said he is really squinty. ? uvitis. IS your childrens labs

> all

> > > out of wack or are they pretty normal? sorry so long just one

> > > anxious mom with a sick kid for now 7 weeks!

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> > --

> > " I am not sick. I am broken. But I am happy as long as I can

> paint. "

> >

> > --Frida Kahlo

> >

> >

> >

[Guest guest]

heather:

Welcome and be assured that Cincinnati Children's Hospital has one of the top

pediatric rheumatology departments in the nation! My Anabelle has been treated

there since her diagnosis of JIA/Uveitis since 18months old (we see Brent

Graham).

Please keep us updated and feel free to contact us with any questions!

Neal and Cheri, Anabelle 3 JIA and Uveitis

Lemmerman Periodontics, L.L.C.

J. Lemmerman D.M.D.

Neal E. Lemmerman D.M.D., M.S.

Diplomate of American Academy of Periodontology

1299 Kemper Meadow Dr 7109 Hamilton Mason Rd

Cincinnati, OH 45240 West Chester, OH 45069

513-851-9292 513-759-5800

FAX: 513-851-9316 FAX: 513-759-7975

www.lemmermanperiodontics.com

[Guest guest]

-We are seeing Dr Passeo I work for a group of 12 pediatricians and

they highly recommended him they said him and brent graham were

*the* best in ohio. We had an appt with Dr Passeo set for Jan the

heme dr took his case to him and he said i want to see them

tomorrow. so that was 3 weeks ago we are to go weekly until we get a

dx. I think that I would feel soooo much better if they could just

give him something to help motrin and tylenol just seem to not be

working as well as they have. We went to the zoo on sunday and half

way through he was crying that his feet and ankles hurt and he

coldnt go another step not to mention he also was crying because he

was hungary after just eating a big meal. I feel so bad taking him

places with a fever and rash people look at me like he is sick and

you are bringing him out how dare you I can not keep my kid indoors

for months until they get this thing figured out. He is having temp

spikes usually in the am and before bed rash is fading between these

times which it never has before. He also is complaining that his

shoulder is hurting and his eyes are feeling like somehting is in

them....sad to say but maybe these sx will fit and help with the

diagnosis. we go back to see dr passeo on thursday i am trying to

keep up with my diary which is so hard to do. I do have a question

his rash is now raised with his higher temps like the 105's is this

normal and typical. Dr Passeo is saying he *thinks* that this is

systimic.

-- In , Neal Lemmerman <neallemmerman@...>

wrote:

>

> heather:

>

> Welcome and be assured that Cincinnati Children's Hospital has one

of the top pediatric rheumatology departments in the nation! My

Anabelle has been treated there since her diagnosis of JIA/Uveitis

since 18months old (we see Brent Graham).

>

> Please keep us updated and feel free to contact us with any

questions!

>

> Neal and Cheri, Anabelle 3 JIA and Uveitis

>

>

>

> Lemmerman Periodontics, L.L.C.

> J. Lemmerman D.M.D.

> Neal E. Lemmerman D.M.D., M.S.

> Diplomate of American Academy of Periodontology

> 1299 Kemper Meadow Dr 7109 Hamilton Mason Rd

> Cincinnati, OH 45240 West Chester, OH 45069

> 513-851-9292 513-759-5800

> FAX: 513-851-9316 FAX: 513-759-7975

> www.lemmermanperiodontics.com

>

>

[Guest guest]

Hi ,

What you have described as far as your son's symptoms go sound like

systemic jra to me too. My daughter's symptoms were almost exactly

the same-except one thing we noticed was that during her " non-fever "

times, she seemed to perk back up and act like she wasn't sick.

Keeping a diary of symptoms will help the drs. figure out his

diagnosis faster-so you are doing the right things. I know the worry

is pretty awful in the beginning, but it sounds like you are on the

right track, and you are seeing some of the best drs. you can. My

daughter's rash would sometimes look like hives, and sometimes just a

molted look, and would come out worse with fever or after a bath. It

was months before it went away, and I can totally relate to the

feeling that people are shying away from you in public because your

child has " something. " Hang in there, it will get better.

((hugs))

Tracey and Madi (2yr systemic)

> >

> > heather:

> >

> > Welcome and be assured that Cincinnati Children's Hospital has

one

> of the top pediatric rheumatology departments in the nation! My

> Anabelle has been treated there since her diagnosis of JIA/Uveitis

> since 18months old (we see Brent Graham).

> >

> > Please keep us updated and feel free to contact us with any

> questions!

> >

> > Neal and Cheri, Anabelle 3 JIA and Uveitis

> >

> >

> >

> > Lemmerman Periodontics, L.L.C.

> > J. Lemmerman D.M.D.

> > Neal E. Lemmerman D.M.D., M.S.

> > Diplomate of American Academy of Periodontology

> > 1299 Kemper Meadow Dr 7109 Hamilton Mason Rd

> > Cincinnati, OH 45240 West Chester, OH 45069

> > 513-851-9292 513-759-5800

> > FAX: 513-851-9316 FAX: 513-759-7975

> > www.lemmermanperiodontics.com

> >

> >

[Guest guest]

wow whe you say that when her fevers were gone and she sould act

totally ok that really hits home. when our family calls and he is

having fever and is so sick they are like poor thing. but when we go

around them and he is without fevers they are like see he isnt sick

hes fine now....i just want to scream are you guys saying I am lying

or what. lol...i know that other feel this way too! was your

daughters lab all out of wack. Calebs are not that back which is

very surprising to all of us. however for some strange reason his c

3 and c4 were low. sed rate was a little high in the beginning but

ok now but the dr said that if he asymptomatic at the draw time that

this could make a diff. I just want an answer and get him some meds

so he can feel better and the most important thing so he can feel

normal!

> > >

> > > heather:

> > >

> > > Welcome and be assured that Cincinnati Children's Hospital has

> one

> > of the top pediatric rheumatology departments in the nation! My

> > Anabelle has been treated there since her diagnosis of

JIA/Uveitis

> > since 18months old (we see Brent Graham).

> > >

> > > Please keep us updated and feel free to contact us with any

> > questions!

> > >

> > > Neal and Cheri, Anabelle 3 JIA and Uveitis

> > >

> > >

> > >

> > > Lemmerman Periodontics, L.L.C.

> > > J. Lemmerman D.M.D.

> > > Neal E. Lemmerman D.M.D., M.S.

> > > Diplomate of American Academy of Periodontology

> > > 1299 Kemper Meadow Dr 7109 Hamilton Mason Rd

> > > Cincinnati, OH 45240 West Chester, OH 45069

> > > 513-851-9292 513-759-5800

> > > FAX: 513-851-9316 FAX: 513-759-7975

> > > www.lemmermanperiodontics.com

> > >

> > >

[Guest guest]

My son sees Dr. Passo ( I assume you meant him) at Cincinnati Children's and he

is great! He is very careful and methodical, but he will stick by your child and

make sure he feels better soon.

and Rob 18 JAS

Re: new here with some questions

> heather:

>

> Welcome and be assured that Cincinnati Children's Hospital has

> one of the top pediatric rheumatology departments in the

> nation! My Anabelle has been treated there since her

> diagnosis of JIA/Uveitis since 18months old (we see Brent Graham).

>

> Please keep us updated and feel free to contact us with any questions!

>

> Neal and Cheri, Anabelle 3 JIA and Uveitis

>

>

>

> Lemmerman Periodontics, L.L.C.

> J. Lemmerman D.M.D.

> Neal E. Lemmerman D.M.D., M.S.

> Diplomate of American Academy of Periodontology

> 1299 Kemper Meadow

> Dr 7109 Hamilton Mason Rd

> Cincinnati, OH

> 45240 West Chester, OH 45069

> 513-851-

> 9292 513-759-5800

> FAX: 513-851-

> 9316 FAX: 513-759-7975

> www.lemmermanperiodontics.com

>

>

[Guest guest]

yep that is who i was talking about I am glad to hear another good

opinion of him!

>

> My son sees Dr. Passo ( I assume you meant him) at Cincinnati

Children's and he is great! He is very careful and methodical, but

he will stick by your child and make sure he feels better soon.

> and Rob 18 JAS

>

> Re: new here with some questions

>

>

> > heather:

> >

> > Welcome and be assured that Cincinnati Children's Hospital has

> > one of the top pediatric rheumatology departments in the

> > nation! My Anabelle has been treated there since her

> > diagnosis of JIA/Uveitis since 18months old (we see Brent

Graham).

> >

> > Please keep us updated and feel free to contact us with any

questions!

> >

> > Neal and Cheri, Anabelle 3 JIA and Uveitis

> >

> >

> >

> > Lemmerman Periodontics, L.L.C.

> > J. Lemmerman D.M.D.

> > Neal E. Lemmerman D.M.D., M.S.

> > Diplomate of American Academy of Periodontology

> > 1299 Kemper Meadow

> > Dr 7109 Hamilton Mason Rd

> > Cincinnati, OH

> > 45240 West Chester, OH 45069

> > 513-851-

> > 9292 513-759-5800

> > FAX: 513-851-

> > 9316 FAX: 513-759-7975

> > www.lemmermanperiodontics.com

> >

> >

[Guest guest]

Welcome,

I know I ma chiming in late here and I am not sure if any one has mentioned it,

but along with a diary pleae try and take as many pictures as you can of any

rashes, swollen joints, or anything that seems out of the ordinary. A lot of

these will NOT be there when you see a doctor and these are just more puzzle

pieces to aid them in Dx'ing your child.

The fevers can be frustrating. Nick would always be fine at his peds office mid

morning or mid afternoon, but come home and at around 5.00pm you could actually

watch his ears turn bright red and watch his body slump from sitting in front of

the TV, to a fetal position facing away from the TV. He would go from a normal

temp to 104-105 in minutes.

4 /2 years into this and I'm still armed with my trusty ear thermonator and nick

will still get cyclinic fevers when his medications are not at the right level.

Good luck and let us know what you find out.Hugs..Helen DH Dan

(24)(17)(15)Zachary(12)(9) (8)

@...: nurse0300@...: Tue, 25 Dec 2007

23:36:07 +0000Subject: Re: new here with some questions

wow whe you say that when her fevers were gone and she sould act totally ok that

really hits home. when our family calls and he is having fever and is so sick

they are like poor thing. but when we go around them and he is without fevers

they are like see he isnt sick hes fine now....i just want to scream are you

guys saying I am lying or what. lol...i know that other feel this way too! was

your daughters lab all out of wack. Calebs are not that back which is very

surprising to all of us. however for some strange reason his c 3 and c4 were

low. sed rate was a little high in the beginning but ok now but the dr said that

if he asymptomatic at the draw time that this could make a diff. I just want an

answer and get him some meds so he can feel better and the most important thing

so he can feel normal! > > > > > > > > > Hello all where to start with

my many questions. My son is 7 > > > and> > > > > has been sick for 7 weeks now.

This all started at haloween we> > > > > thought that his fever and knee pain

was a combo of just too > > much> > > > > trick or treating and maybe the

beginnings of a virus. So we > > just> > > > > kinda sat back and thought awww

this will just run its course > > > but 2> > > > > weeks later me and my husband

kinda came to the same > > conclusion > > > he> > > > > isnt getting any better.

Well to give you a little back round > > on> > > > > symptoms he had high fever

104.2 severe knee pain and a rash. > > > Well> > > > > at week 2 we called our

family MD who said oh probably a > virus > > > if no> > > > > beter will see him

next week. Well needless to say he was no > > > better> > > > > and we ended up

going there he was tested for strep and also > > some> > > > > blood work was

done. We came out of that appt with 3 POSSIBLE> > > > > diagnosis one being JRA,

the others rheumatic fever and the > > last> > > > > leukemia. We were sent to

another 2nd opinion Dr got more > blood> > > > > work then he sent us to

oncology/ hematology for ? leukemia, > > they> > > > > did their work up yep

more blood work his " cancer number was > > up " > > > so> > > > > they decided

that the best possible thing they can do is a > bone> > > > > marow biopsy. So

this was done they felt ummm no we think it > is> > > > > something

rheumatologic so we are sending you there. We went > > > there> > > > > they

said umm maybe JRA maybe lupus maybe MCTD. He did some > > lab > > > work> > > >

> and ruled out Lupus. he thinks its JRA but not ALL of the > > > criteria> > >

> > for this has been met. Ok that is the backround for my> > > > > questions.

How long was it before your children were > diagnosed > > we> > > > > were told

it can take up to 6 months to get a deffinate > > > diagnosis.> > > > > Has this

been the case with anyone else. My son is still > having> > > > > high fevers

usually spikes 1-2 times a day some times as high > > as> > > > > 105. He has

this mottled looking rash on his chest back and > > thigs> > > > > and a little

on face it gets worse with heat/ cold or fevers. > > At> > > > > other times it

fades away. He c/o knee pain daily and back > > pain > > > and> > > > >

complains more with the higher the fever. Is this a > > chacteristic> > > > >

that your childrens has had. We are going to see > opthalomology > > > the> > >

> > MD said he is really squinty. ? uvitis. IS your childrens > labs > > > all>

> > > > out of wack or are they pretty normal? sorry so long just one> > > > >

anxious mom with a sick kid for now 7 weeks!> > > > >> > > > > > > > > >>

> > > > > > > > >> > > > > > > > > > > > > > > > -- > > > > " I am not sick. I am

broken. But I am happy as long as I can > > > paint. " > > > > > > > > --Frida

Kahlo> > > > > > > > > > > > [Non-text portions of this message have been

removed]> > > >> > > > > > > > > > > > > > > > > > > > >

__________________________________________________________> > _______________> >

> Looking for last minute shopping deals? > > > Find them fast with

Search. > > http://tools.search./newsearch/category.php?> >

category=shopping> > > > > > [Non-text portions of this message have been

removed]> > >> >>

_________________________________________________________________

The best games are on Xbox 360. Click here for a special offer on an Xbox 360

Console.

http://www.xbox.com/en-US/hardware/wheretobuy/

[Guest guest]

-

Madi's labs were really out of whack-her sed rate was 140+, white

count high, platelets high, and she was anemic. I'm wondering if

that's not the hold up with your son's diagnosis since his labs are

fairly normal. I don't think that's typical, but it's not unheard

of. As for the c3 and c4-Madi had hers tested too, but I never knew

the results, and no one explained why they tested them-do you know

reason for testing that?

I sure hope he felt good for Christmas. It's hard to watch your

child in pain and not be able to do anything about it. I hope the

docs can figure something out soon so you can start him on something

to make him feel better.

Tracey and Madi (2yr sytemic)

> > > >

> > > > heather:

> > > >

> > > > Welcome and be assured that Cincinnati Children's Hospital

has

> > one

> > > of the top pediatric rheumatology departments in the nation!

My

> > > Anabelle has been treated there since her diagnosis of

> JIA/Uveitis

> > > since 18months old (we see Brent Graham).

> > > >

> > > > Please keep us updated and feel free to contact us with any

> > > questions!

> > > >

> > > > Neal and Cheri, Anabelle 3 JIA and Uveitis

> > > >

> > > >

> > > >

> > > > Lemmerman Periodontics, L.L.C.

> > > > J. Lemmerman D.M.D.

> > > > Neal E. Lemmerman D.M.D., M.S.

> > > > Diplomate of American Academy of Periodontology

> > > > 1299 Kemper Meadow Dr 7109 Hamilton Mason Rd

> > > > Cincinnati, OH 45240 West Chester, OH 45069

> > > > 513-851-9292 513-759-5800

> > > > FAX: 513-851-9316 FAX: 513-759-7975

> > > > www.lemmermanperiodontics.com

> > > >

> > > >

[Guest guest]

c3 and c4 are some sort of markers as far as i can understand. they can help

determine lupus or something systemic in nature is the way i understood it. We

seen the rheumy yesterday he said that if his week this week is like last week

he thinks he is goiong to go ahead with the dx of systemic JRA. He says that he

feels that this is what it is but since this is a disease of exclusion he wants

to cover all of the bases before starting him on meds that he does not need. he

said as far as the physical aspects he fits this to a tee but dosent want to

jump without knowing for sure that everything else has been looked at. what meds

did they start your child on? he kinda touched on this yesterday and was like

well we go more into depth on this next week if his week was the same as last.

He slept and had knee/backa nd shoulder pain most of the day on christmas. He

asked for a heating pad for christmas LOL thats funny but not. I guess when you

child has been sick this long you

have to find some humor in it! Where are you from we live in the cincinnati

area are are seeing an MD at childrens which is great! He wants to err on the

side of caution which i agree with this but its like hurry up and wait to

finally get a dx for him.

ztaimw <nsigns@...> wrote: -

Madi's labs were really out of whack-her sed rate was 140+, white

count high, platelets high, and she was anemic. I'm wondering if

that's not the hold up with your son's diagnosis since his labs are

fairly normal. I don't think that's typical, but it's not unheard

of. As for the c3 and c4-Madi had hers tested too, but I never knew

the results, and no one explained why they tested them-do you know

reason for testing that?

I sure hope he felt good for Christmas. It's hard to watch your

child in pain and not be able to do anything about it. I hope the

docs can figure something out soon so you can start him on something

to make him feel better.

Tracey and Madi (2yr sytemic)

> > > >

> > > > heather:

> > > >

> > > > Welcome and be assured that Cincinnati Children's Hospital

has

> > one

> > > of the top pediatric rheumatology departments in the nation!

My

> > > Anabelle has been treated there since her diagnosis of

> JIA/Uveitis

> > > since 18months old (we see Brent Graham).

> > > >

> > > > Please keep us updated and feel free to contact us with any

> > > questions!

> > > >

> > > > Neal and Cheri, Anabelle 3 JIA and Uveitis

> > > >

> > > >

> > > >

> > > > Lemmerman Periodontics, L.L.C.

> > > > J. Lemmerman D.M.D.

> > > > Neal E. Lemmerman D.M.D., M.S.

> > > > Diplomate of American Academy of Periodontology

> > > > 1299 Kemper Meadow Dr 7109 Hamilton Mason Rd

> > > > Cincinnati, OH 45240 West Chester, OH 45069

> > > > 513-851-9292 513-759-5800

> > > > FAX: 513-851-9316 FAX: 513-759-7975

> > > > www.lemmermanperiodontics.com

> > > >

> > > >

[Guest guest]

Hi everyone...I am hypothyroid and my naturopathic MD put me on

synthetic compounded time-release T3 (1 MCG) a little over 2 months

ago. I have noticed no improvement whatsoever in my symptoms...I still

feel dizzy, have headaches every day, no energy, sleep over 12 hours a

day, have an enlarged thyroid (ultrasound confirmed) and I am freezing

all the time despite the fact that it's now warm where I live. My labs

came back great...my TSH has dropped from 3.87 to 1.44 and my free T3

and T4 are in good range. I asked him yesterday at my follow-up visit

if I could switch to Armour and he flat-out said no, that he would

never give it to me because he suspects that my thyroid disease is

autoimmune and he said that Armour would cause any autoimmune issues

to get much worse. Does anyone else know if this is the case? I know a

few others who take Armour and have Hashi's and have done wonderfully

on it. Also, does anyone think that hydrocortisone could be helpful in

my situation? That is another possibility that I am investigating.

Thanks!

Mackenzie

[Guest guest]

OMG! What is wrong with these doctors????? You need to fire him, like

yesterday. Where in the world did he get his information? Also, why only

T3? This makes no sense to me, but maybe, just maybe it will to others.

Find a good doc! www.stopthethyroidmadness.com

-- New here with some questions

Hi everyone...I am hypothyroid and my naturopathic MD put me on

synthetic compounded time-release T3 (1 MCG) a little over 2 months

ago. I have noticed no improvement whatsoever in my symptoms...I still

feel dizzy, have headaches every day, no energy, sleep over 12 hours a

day, have an enlarged thyroid (ultrasound confirmed) and I am freezing

all the time despite the fact that it's now warm where I live. My labs

came back great...my TSH has dropped from 3.87 to 1.44 and my free T3

and T4 are in good range. I asked him yesterday at my follow-up visit

if I could switch to Armour and he flat-out said no, that he would

never give it to me because he suspects that my thyroid disease is

autoimmune and he said that Armour would cause any autoimmune issues

to get much worse. Does anyone else know if this is the case? I know a

few others who take Armour and have Hashi's and have done wonderfully

on it. Also, does anyone think that hydrocortisone could be helpful in

my situation? That is another possibility that I am investigating.

Thanks!

Mackenzie

[Guest guest]

Hey where is hypo group? What has changed? Where is Gracia and Sam?

venizia1948 <nelsonck@...> wrote:

Hi Mackenzie!

I was one of the ones that was on Synthroid for over 20 hrs. This

past April after finding a new doctor was put on Armour. It was the

best thing I ever did. For the first time I can say I feel human

again. I lost over 12# but I need to lose more and do not seem to be

able to. However, I would never go back to a synthetic thyroid med.

If your doctor will not prescribe Armour, ask him if he will prescribe

Naturethroid. It is natural of course but also hypoallergenic from

what I understand. I think it is basically the same as Armour but

maybe your doctor won't know that. Good luck to you and keep us

posted. You may need to find a different doctor. I went to three

before I found one that would listen to me.

Venizia

-- In hypothyroidism , " celticprincess93 "

<celticprincess93@...> wrote:

>

> Hi everyone...I am hypothyroid and my naturopathic MD put me on

> synthetic compounded time-release T3 (1 MCG) a little over 2 months

> ago. I have noticed no improvement whatsoever in my symptoms...I still

> feel dizzy, have headaches every day, no energy, sleep over 12 hours a

> day, have an enlarged thyroid (ultrasound confirmed) and I am freezing

> all the time despite the fact that it's now warm where I live. My labs

> came back great...my TSH has dropped from 3.87 to 1.44 and my free T3

> and T4 are in good range. I asked him yesterday at my follow-up visit

> if I could switch to Armour and he flat-out said no, that he would

> never give it to me because he suspects that my thyroid disease is

> autoimmune and he said that Armour would cause any autoimmune issues

> to get much worse. Does anyone else know if this is the case? I know a

> few others who take Armour and have Hashi's and have done wonderfully

> on it. Also, does anyone think that hydrocortisone could be helpful in

> my situation? That is another possibility that I am investigating.

>

> Thanks!

>

> Mackenzie

>

---------------------------------

Rise to the challenge for Sport Relief with for Good

[Guest guest]

Isn't Gracia on vacation in Europe? I don't know where Sam might be. Wow,

wouldn't it be

wild if they are both the same person?

Roni

Suzanne Booth <suegeoboo@...> wrote:

Hey where is hypo group? What has changed? Where is Gracia and Sam?

venizia1948 <nelsonck@...> wrote:

Hi Mackenzie!

I was one of the ones that was on Synthroid for over 20 hrs. This

past April after finding a new doctor was put on Armour. It was the

best thing I ever did. For the first time I can say I feel human

again. I lost over 12# but I need to lose more and do not seem to be

able to. However, I would never go back to a synthetic thyroid med.

If your doctor will not prescribe Armour, ask him if he will prescribe

Naturethroid. It is natural of course but also hypoallergenic from

what I understand. I think it is basically the same as Armour but

maybe your doctor won't know that. Good luck to you and keep us

posted. You may need to find a different doctor. I went to three

before I found one that would listen to me.

Venizia

-- In hypothyroidism , " celticprincess93 "

<celticprincess93@...> wrote:

>

> Hi everyone...I am hypothyroid and my naturopathic MD put me on

> synthetic compounded time-release T3 (1 MCG) a little over 2 months

> ago. I have noticed no improvement whatsoever in my symptoms...I still

> feel dizzy, have headaches every day, no energy, sleep over 12 hours a

> day, have an enlarged thyroid (ultrasound confirmed) and I am freezing

> all the time despite the fact that it's now warm where I live. My labs

> came back great...my TSH has dropped from 3.87 to 1.44 and my free T3

> and T4 are in good range. I asked him yesterday at my follow-up visit

> if I could switch to Armour and he flat-out said no, that he would

> never give it to me because he suspects that my thyroid disease is

> autoimmune and he said that Armour would cause any autoimmune issues

> to get much worse. Does anyone else know if this is the case? I know a

> few others who take Armour and have Hashi's and have done wonderfully

> on it. Also, does anyone think that hydrocortisone could be helpful in

> my situation? That is another possibility that I am investigating.

>

> Thanks!

>

> Mackenzie

>

---------------------------------

Rise to the challenge for Sport Relief with for Good

[Guest guest]

gracia is on holiday in germany and I don't know about sam- maybe she is just

busy with life.

nancie

From: Suzanne Booth

Sent: Monday, March 10, 2008 1:14 PM

hypothyroidism

Subject: Re: Re: New here with some questions

Hey where is hypo group? What has changed? Where is Gracia and Sam?

venizia1948 <nelsonck@...> wrote:

Hi Mackenzie!

I was one of the ones that was on Synthroid for over 20 hrs. This

past April after finding a new doctor was put on Armour. It was the

best thing I ever did. For the first time I can say I feel human

again. I lost over 12# but I need to lose more and do not seem to be

able to. However, I would never go back to a synthetic thyroid med.

If your doctor will not prescribe Armour, ask him if he will prescribe

Naturethroid. It is natural of course but also hypoallergenic from

what I understand. I think it is basically the same as Armour but

maybe your doctor won't know that. Good luck to you and keep us

posted. You may need to find a different doctor. I went to three

before I found one that would listen to me.

Venizia

-- In hypothyroidism , " celticprincess93 "

<celticprincess93@...> wrote:

>

> Hi everyone...I am hypothyroid and my naturopathic MD put me on

> synthetic compounded time-release T3 (1 MCG) a little over 2 months

> ago. I have noticed no improvement whatsoever in my symptoms...I still

> feel dizzy, have headaches every day, no energy, sleep over 12 hours a

> day, have an enlarged thyroid (ultrasound confirmed) and I am freezing

> all the time despite the fact that it's now warm where I live. My labs

> came back great...my TSH has dropped from 3.87 to 1.44 and my free T3

> and T4 are in good range. I asked him yesterday at my follow-up visit

> if I could switch to Armour and he flat-out said no, that he would

> never give it to me because he suspects that my thyroid disease is

> autoimmune and he said that Armour would cause any autoimmune issues

> to get much worse. Does anyone else know if this is the case? I know a

> few others who take Armour and have Hashi's and have done wonderfully

> on it. Also, does anyone think that hydrocortisone could be helpful in

> my situation? That is another possibility that I am investigating.

>

> Thanks!

>

> Mackenzie

>

---------------------------------

Rise to the challenge for Sport Relief with for Good

[Guest guest]

Hi Crystal, I actually found my doctor at the STTM Website. He is a

naturopathic medical doctor (more alternative than allopathic for

sure), so I figured that he would know what he was talking about. I

guess I will have to fork out the cash to see a new doctor. So far the

new dose of 1.25 MCG of T3 has given me a little improvement in my

energy, but nothing close to what it should be at. Thanks for

confirming that Armour shouldn't be a bad thing in my situation...

M

>

> OMG! What is wrong with these doctors????? You need to fire him, like

> yesterday. Where in the world did he get his information? Also,

why only

> T3? This makes no sense to me, but maybe, just maybe it will to

others.

> Find a good doc! www.stopthethyroidmadness.com

>

> -- New here with some questions

>

> Hi everyone...I am hypothyroid and my naturopathic MD put me on

> synthetic compounded time-release T3 (1 MCG) a little over 2 months

> ago. I have noticed no improvement whatsoever in my symptoms...I still

> feel dizzy, have headaches every day, no energy, sleep over 12 hours a

> day, have an enlarged thyroid (ultrasound confirmed) and I am freezing

> all the time despite the fact that it's now warm where I live. My labs

> came back great...my TSH has dropped from 3.87 to 1.44 and my free T3

> and T4 are in good range. I asked him yesterday at my follow-up visit

> if I could switch to Armour and he flat-out said no, that he would

> never give it to me because he suspects that my thyroid disease is

> autoimmune and he said that Armour would cause any autoimmune issues

> to get much worse. Does anyone else know if this is the case? I know a

> few others who take Armour and have Hashi's and have done wonderfully

> on it. Also, does anyone think that hydrocortisone could be helpful in

> my situation? That is another possibility that I am investigating.

>

> Thanks!

>

> Mackenzie

>

>

>

>

>

>

[Guest guest]

My doctor too has mentioned that auto-immune folks have a higher

chance of a bad reaction to pig organs, so she put me on Thyrolar to

boost my T3. My TSH is almost nonexistant, as in a HPA axis

(hypothalamus) problem.

They must be basing this auto-immune reaction idea on some

study/ies? But she did put me on Iodine, which has also been

shown to cause problems with Hashi type goiters such as mine...

Marla

>

> OMG! What is wrong with these doctors????? You need to fire him,

like

> yesterday. Where in the world did he get his information? Also,

why only

> T3? This makes no sense to me, but maybe, just maybe it will to

others.

> Find a good doc! www.stopthethyroidmadness.com

>

> -- New here with some questions

>

> Hi everyone...I am hypothyroid and my naturopathic MD put me on

> synthetic compounded time-release T3 (1 MCG) a little over 2 months

> ago. I have noticed no improvement whatsoever in my symptoms...I

still

> feel dizzy, have headaches every day, no energy, sleep over 12

hours a

> day, have an enlarged thyroid (ultrasound confirmed) and I am

freezing

> all the time despite the fact that it's now warm where I live. My

labs

> came back great...my TSH has dropped from 3.87 to 1.44 and my free

T3

> and T4 are in good range. I asked him yesterday at my follow-up

visit

> if I could switch to Armour and he flat-out said no, that he would

> never give it to me because he suspects that my thyroid disease is

> autoimmune and he said that Armour would cause any autoimmune

issues

> to get much worse. Does anyone else know if this is the case? I

know a

> few others who take Armour and have Hashi's and have done

wonderfully

> on it. Also, does anyone think that hydrocortisone could be

helpful in

> my situation? That is another possibility that I am investigating.

>

> Thanks!

>

> Mackenzie

>

>

>

>

>

>

[Guest guest]

you need to take a thyroid med that has both T3 and T4 in it. otherwise it is

just as bad as taking a T4 only medication. the body needs both hormones to work

properly. I agree with crystal that you need to find a different provider or

self-treat.

before you start taking hydrocortisone which is a steroid, you need to test your

adrenals- to see if you need steroids. personally, I would never take steroids

especially hydrocortisone because it will screw your body up with the side

effects. but, that is because I have had a very bad experience with them...

nancie

From: Crystal

Sent: Wednesday, March 05, 2008 10:35 PM

hypothyroidism

Subject: Re: New here with some questions

OMG! What is wrong with these doctors????? You need to fire him, like

yesterday. Where in the world did he get his information? Also, why only

T3? This makes no sense to me, but maybe, just maybe it will to others.

Find a good doc! www.stopthethyroidmadness.com

-- New here with some questions

Hi everyone...I am hypothyroid and my naturopathic MD put me on

synthetic compounded time-release T3 (1 MCG) a little over 2 months

ago. I have noticed no improvement whatsoever in my symptoms...I still

feel dizzy, have headaches every day, no energy, sleep over 12 hours a

day, have an enlarged thyroid (ultrasound confirmed) and I am freezing

all the time despite the fact that it's now warm where I live. My labs

came back great...my TSH has dropped from 3.87 to 1.44 and my free T3

and T4 are in good range. I asked him yesterday at my follow-up visit

if I could switch to Armour and he flat-out said no, that he would

never give it to me because he suspects that my thyroid disease is

autoimmune and he said that Armour would cause any autoimmune issues

to get much worse. Does anyone else know if this is the case? I know a

few others who take Armour and have Hashi's and have done wonderfully

on it. Also, does anyone think that hydrocortisone could be helpful in

my situation? That is another possibility that I am investigating.

Thanks!

Mackenzie

[Guest guest]

Brownstein believes that hashis is caused by selnium and iodine deficiencies.

maybe hashis is another illness that allopathic medicine has gotten wrong. you

won't have a prob with iodine if you get enough of the right formula.

Gracia

My doctor too has mentioned that auto-immune folks have a higher

chance of a bad reaction to pig organs, so she put me on Thyrolar to

boost my T3. My TSH is almost nonexistant, as in a HPA axis

(hypothalamus) problem.

They must be basing this auto-immune reaction idea on some

study/ies? But she did put me on Iodine, which has also been

shown to cause problems with Hashi type goiters such as mine...

Marla

---

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.

[Guest guest]

hydrocortisone is a lifesaver with absolutely no side effects at the

physiological dose. Armour + cortef + Iodoral are the wonder drugs for me.

See Safe Uses of Cortisol by Jefferies MD.

Gracia

you need to take a thyroid med that has both T3 and T4 in it. otherwise it is

just as bad as taking a T4 only medication. the body needs both hormones to work

properly. I agree with crystal that you need to find a different provider or

self-treat.

before you start taking hydrocortisone which is a steroid, you need to test

your adrenals- to see if you need steroids. personally, I would never take

steroids especially hydrocortisone because it will screw your body up with the

side effects. but, that is because I have had a very bad experience with them...

nancie

From: Crystal

Sent: Wednesday, March 05, 2008 10:35 PM

hypothyroidism

Subject: Re: New here with some questions

OMG! What is wrong with these doctors????? You need to fire him, like

yesterday. Where in the world did he get his information? Also, why only

T3? This makes no sense to me, but maybe, just maybe it will to others.

Find a good doc! www.stopthethyroidmadness.com

-- New here with some questions

Hi everyone...I am hypothyroid and my naturopathic MD put me on

synthetic compounded time-release T3 (1 MCG) a little over 2 months

ago. I have noticed no improvement whatsoever in my symptoms...I still

feel dizzy, have headaches every day, no energy, sleep over 12 hours a

day, have an enlarged thyroid (ultrasound confirmed) and I am freezing

all the time despite the fact that it's now warm where I live. My labs

came back great...my TSH has dropped from 3.87 to 1.44 and my free T3

and T4 are in good range. I asked him yesterday at my follow-up visit

if I could switch to Armour and he flat-out said no, that he would

never give it to me because he suspects that my thyroid disease is

autoimmune and he said that Armour would cause any autoimmune issues

to get much worse. Does anyone else know if this is the case? I know a

few others who take Armour and have Hashi's and have done wonderfully

on it. Also, does anyone think that hydrocortisone could be helpful in

my situation? That is another possibility that I am investigating.

Thanks!

Mackenzie