Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 >Carol, I also have a positive ANA (1:160), slightly elevated ESR and CRP was also elevated (not sure number). I really feel like it is autoimmune. I also have parotid gland issues and so they think it might be Sjogren's. I just feel like I am not getting anywhere. I have had symptoms for almost 20 years now. -Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2006 Report Share Posted October 12, 2006 Dawn: Get your doctor to do the ANCA and subsets. 20% is awfully high for Samter's Carol Re: Eosinophilia >Carol,I also have a positive ANA (1:160), slightly elevated ESR and CRP was also elevated (not sure number). I really feel like it is autoimmune. I also have parotid gland issues and so they think it might be Sjogren's. I just feel like I am not getting anywhere. I have had symptoms for almost 20 years now.-Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Hi, My daughter showed high eusinophils in her duodenum when she had an endoscopy early in her diagnosis. I was under the impression this was a sign of allergy as our recommendation was to see an allergist, which we did, and she tested negative for everything. We have also found nothing her diet or surroundings that seems to trigger an allergy of any sort. Unfortunately, I have no idea what her count was so not sure I'm much help. Alice (dagny 7 JRA) eosinophilia Anyone deal with this? My daughters lab showed she had 25 on her eosinophils with the normal range being 0 - 3. She does have dustmite allergies, which we have dealt with. She takes claritin every day because she is a rashy kid. No infection that I can find. She is going to see an immunologist next month, but was curious if any of you have gone through this. Thanks, ' & a 11 jia/uveitis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 Hi , What medicines does your daughter take? My son had a high eosinophil count a few years ago, and no one knew why. It took several months, but he finally ended up in the hospital with what everyone thought was pneumonia. It turned out he had eosinophils in his lungs which were causing a lung inflammation. The doctors thought it was caused by the methotrexate. I understand it is a very rare complication, and I don¹t think having high eosinophils means that you are going to get the lung inflammation. My son¹s eosinophils go higher now, and although they watch it, he seems to be doing ok. You are right that allergies can increase the eosinophils, so that may be the cause as well. Good luck. (and Ezra, ten year old systemic) On 2/6/07 9:59 PM, " " <lcdanceacademy@...> wrote: > > > > > Anyone deal with this? My daughters lab showed she had 25 on her > eosinophils with the normal range being 0 - 3. She does have dustmite > allergies, which we have dealt with. She takes claritin every day > because she is a rashy kid. No infection that I can find. She is > going to see an immunologist next month, but was curious if any of you > have gone through this. > > Thanks, ' & a 11 jia/uveitis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 how does one know if they have high eosinophil count?? I have been dx'd with bronchitis but it keeps re-occuring so wondering if it could be something else?? Donna Re: eosinophilia Hi , What medicines does your daughter take? My son had a high eosinophil count a few years ago, and no one knew why. It took several months, but he finally ended up in the hospital with what everyone thought was pneumonia. It turned out he had eosinophils in his lungs which were causing a lung inflammation. The doctors thought it was caused by the methotrexate. I understand it is a very rare complication, and I don¹t think having high eosinophils means that you are going to get the lung inflammation. My son¹s eosinophils go higher now, and although they watch it, he seems to be doing ok. You are right that allergies can increase the eosinophils, so that may be the cause as well. Good luck. (and Ezra, ten year old systemic) On 2/6/07 9:59 PM, " " <lcdanceacademy@...> wrote: > > > > > Anyone deal with this? My daughters lab showed she had 25 on her > eosinophils with the normal range being 0 - 3. She does have dustmite > allergies, which we have dealt with. She takes claritin every day > because she is a rashy kid. No infection that I can find. She is > going to see an immunologist next month, but was curious if any of you > have gone through this. > > Thanks, ' & a 11 jia/uveitis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 Hi Donna, It¡¯s a blood test. But it¡¯s very unusual, and you probably don¡¯t have it. Ezra had fevers and fatigue and what looked like pneumonia on the x-ray. Hope you feel better. On 2/7/07 11:09 AM, " ajaoky@... " <ajaoky@...> wrote: > > > > > > how does one know if they have high eosinophil count?? I have been dx'd with > bronchitis but it keeps re-occuring so wondering if it could be something > else?? > Donna > > > Re: eosinophilia > > Hi , > > What medicines does your daughter take? My son had a high eosinophil count a > few years ago, and no one knew why. It took several months, but he finally > ended up in the hospital with what everyone thought was pneumonia. It turned > out he had eosinophils in his lungs which were causing a lung inflammation. > The doctors thought it was caused by the methotrexate. I understand it is a > very rare complication, and I don©öt think having high eosinophils means that > you are going to get the lung inflammation. My son©ös eosinophils go higher > now, and although they watch it, he seems to be doing ok. You are right that > allergies can increase the eosinophils, so that may be the cause as well. > Good luck. (and Ezra, ten year old systemic) > > On 2/6/07 9:59 PM, " " <lcdanceacademy@... > <mailto:lcdanceacademy%40> > wrote: > >> > >> > >> > >> > >> > Anyone deal with this? My daughters lab showed she had 25 on her >> > eosinophils with the normal range being 0 - 3. She does have dustmite >> > allergies, which we have dealt with. She takes claritin every day >> > because she is a rashy kid. No infection that I can find. She is >> > going to see an immunologist next month, but was curious if any of you >> > have gone through this. >> > >> > Thanks, ' & a 11 jia/uveitis >> > >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 Thank you . She was on Methotrexate for almost two years, but she has been on ivig infusions - only - for the last two years. The immunologist she is seeing is also an allergist. I guess it is common in some autoimmune conditions. The worry of every parent.....what else now? lol Hopefully it is nothing. ' & a 11 yr jia/uveitis <lisa_michael@...> wrote: Hi , What medicines does your daughter take? My son had a high eosinophil count a few years ago, and no one knew why. It took several months, but he finally ended up in the hospital with what everyone thought was pneumonia. It turned out he had eosinophils in his lungs which were causing a lung inflammation. The doctors thought it was caused by the methotrexate. I understand it is a very rare complication, and I don¹t think having high eosinophils means that you are going to get the lung inflammation. My son¹s eosinophils go higher now, and although they watch it, he seems to be doing ok. You are right that allergies can increase the eosinophils, so that may be the cause as well. Good luck. (and Ezra, ten year old systemic) On 2/6/07 9:59 PM, " " <lcdanceacademy@...> wrote: > > > > > Anyone deal with this? My daughters lab showed she had 25 on her > eosinophils with the normal range being 0 - 3. She does have dustmite > allergies, which we have dealt with. She takes claritin every day > because she is a rashy kid. No infection that I can find. She is > going to see an immunologist next month, but was curious if any of you > have gone through this. > > Thanks, ' & a 11 jia/uveitis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 I hope she can get off the prednisone, I think it's an awful drug too. By the way, I only got this because I checked the bulk file. I don't understand why some people's mail doesn't come through all the time. It's very annoying. Roni venizia1948 <nelsonck@...> wrote: Hi Roni, Thank you for sending this. I have a sister who is being treated for Eosinophilic pneumonia. What you sent really helps me to understand what this is. I am also going to send it to my sister. It may help her to understand better, also. You know how doctors can be when explaining. Anyway, she is on Prednisone, which is causing all kinds of other problems for her including diabetes. Supposedly there is another medication out there but she does not qualify for it. It has something to do with what her numbers are before she can qualify for it. All I know is she is very sick and I do not understand why THAT would not qualify her. Anyway, thank you again. It was very helpful. Venizia --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 I am glad you checked your bulk mail. This also happens to me. I received Nancie's in bulk also. Venizia -- In hypothyroidism , Roni Molin <matchermaam@...> wrote: > > I hope she can get off the prednisone, I think it's an awful drug too. > > By the way, I only got this because I checked the bulk file. I don't understand > why some people's mail doesn't come through all the time. It's very annoying. > > Roni > > venizia1948 <nelsonck@...> wrote: > Hi Roni, > > Thank you for sending this. I have a sister who is being treated for > Eosinophilic pneumonia. What you sent really helps me to understand > what this is. I am also going to send it to my sister. It may help > her to understand better, also. You know how doctors can be when > explaining. Anyway, she is on Prednisone, which is causing all kinds > of other problems for her including diabetes. Supposedly there is > another medication out there but she does not qualify for it. It has > something to do with what her numbers are before she can qualify for > it. All I know is she is very sick and I do not understand why THAT > would not qualify her. > > Anyway, thank you again. It was very helpful. > > Venizia > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 have you added my address to your address book? I have msn and I have to do that in order to keep contacts from going into the junk folder. it is a pain. nancie From: venizia1948 Sent: Wednesday, March 05, 2008 7:06 AM hypothyroidism Subject: Re: eosinophilia I am glad you checked your bulk mail. This also happens to me. I received Nancie's in bulk also. Venizia -- In hypothyroidism , Roni Molin <matchermaam@...> wrote: > > I hope she can get off the prednisone, I think it's an awful drug too. > > By the way, I only got this because I checked the bulk file. I don't understand > why some people's mail doesn't come through all the time. It's very annoying. > > Roni > > venizia1948 <nelsonck@...> wrote: > Hi Roni, > > Thank you for sending this. I have a sister who is being treated for > Eosinophilic pneumonia. What you sent really helps me to understand > what this is. I am also going to send it to my sister. It may help > her to understand better, also. You know how doctors can be when > explaining. Anyway, she is on Prednisone, which is causing all kinds > of other problems for her including diabetes. Supposedly there is > another medication out there but she does not qualify for it. It has > something to do with what her numbers are before she can qualify for > it. All I know is she is very sick and I do not understand why THAT > would not qualify her. > > Anyway, thank you again. It was very helpful. > > Venizia > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Putting in your address worked, but it says there is a syntax error in Venezia's address and it won't take it. Picky, Picky, Picky. LOL Roni nancie barnett <deifspirit@...> wrote: have you added my address to your address book? I have msn and I have to do that in order to keep contacts from going into the junk folder. it is a pain. nancie From: venizia1948 Sent: Wednesday, March 05, 2008 7:06 AM hypothyroidism Subject: Re: eosinophilia I am glad you checked your bulk mail. This also happens to me. I received Nancie's in bulk also. Venizia -- In hypothyroidism , Roni Molin <matchermaam@...> wrote: > > I hope she can get off the prednisone, I think it's an awful drug too. > > By the way, I only got this because I checked the bulk file. I don't understand > why some people's mail doesn't come through all the time. It's very annoying. > > Roni > > venizia1948 <nelsonck@...> wrote: > Hi Roni, > > Thank you for sending this. I have a sister who is being treated for > Eosinophilic pneumonia. What you sent really helps me to understand > what this is. I am also going to send it to my sister. It may help > her to understand better, also. You know how doctors can be when > explaining. Anyway, she is on Prednisone, which is causing all kinds > of other problems for her including diabetes. Supposedly there is > another medication out there but she does not qualify for it. It has > something to do with what her numbers are before she can qualify for > it. All I know is she is very sick and I do not understand why THAT > would not qualify her. > > Anyway, thank you again. It was very helpful. > > Venizia > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 It happens so seldom. I do not have anyone else in my address book and they are not a problem. Venizia -- In hypothyroidism , " nancie barnett " <deifspirit@...> wrote: > > have you added my address to your address book? I have msn and I have to do that in order to keep contacts from going into the junk folder. it is a pain. > nancie > > > From: venizia1948 > Sent: Wednesday, March 05, 2008 7:06 AM > hypothyroidism > Subject: Re: eosinophilia > > > I am glad you checked your bulk mail. This also happens to me. I > received Nancie's in bulk also. > > Venizia > > -- In hypothyroidism , Roni Molin <matchermaam@> wrote: > > > > I hope she can get off the prednisone, I think it's an awful drug too. > > > > By the way, I only got this because I checked the bulk file. > I don't understand > > why some people's mail doesn't come through all the time. It's > very annoying. > > > > Roni > > > > venizia1948 <nelsonck@> wrote: > > Hi Roni, > > > > Thank you for sending this. I have a sister who is being treated for > > Eosinophilic pneumonia. What you sent really helps me to understand > > what this is. I am also going to send it to my sister. It may help > > her to understand better, also. You know how doctors can be when > > explaining. Anyway, she is on Prednisone, which is causing all kinds > > of other problems for her including diabetes. Supposedly there is > > another medication out there but she does not qualify for it. It has > > something to do with what her numbers are before she can qualify for > > it. All I know is she is very sick and I do not understand why THAT > > would not qualify her. > > > > Anyway, thank you again. It was very helpful. > > > > Venizia > > > > > > > > > > > > > > --------------------------------- > > Never miss a thing. Make your homepage. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 Hi wkapikorn,Could you please explain that diagnosis. I have seen that written also. Have you had a blood test done for eosinophilia? If so, what was the reading for eos there?Breda EOSINOPHILIA Yesterday, I received my pathology report from my surgery a couple of weeks ago (3rd surgery) and the finding was: Chronic polypoid rhinosinusitis with marked eosinophilia. A new word for my vocabulary - "eosinophilia. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 Kateatcu & Wkapikorn,I just asked because doctor is monitoring for CSS and I am trying to get a handle on all issues. Initial diagnosis was Samter's but is now querying perhaps there is something else going on.Breda EOSINOPHILIA> > > Yesterday, I received my pathology report from my surgery a couple of weeks ago (3rd surgery) and the finding was: Chronic polypoid rhinosinusitis with marked eosinophilia. A new word for my vocabulary - "eosinophilia. "> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 An absolute eosinophil count is a blood test that measures the number of white blood cells called eosinophils. Eosinophils become active when you have certain allergic diseases, infections, and other medical conditions. That definition comes directly from a medical explanation handout I received when I received some bloodwork a few years ago that showed a very high count of Eosinophils. Since that time, I have found that I always have a very high Eosinophil count. My ENT and Respiratory Specialist both explain that people with Samters typically stay in a viral state because even when we feel that we are without a sinus or lung infectoin, we may have a low-grade infection that stays present all the time. Not very comforting information, I know. Hope this helps. Jane From: wkapikorn <wkapikorn@...>Subject: EOSINOPHILIAsamters Date: Saturday, June 21, 2008, 10:17 AM Yesterday, I received my pathology report from my surgery a couple of weeks ago (3rd surgery) and the finding was: Chronic polypoid rhinosinusitis with marked eosinophilia. A new word for my vocabulary - "eosinophilia. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 Eosinophils are a subset of white blood cells that multiply under certain situations. If you want to see what they look like, and more : http://en.wikipedia.org/wiki/Eosinophil_granulocyte Samter's is a disease involving notably the following cell types : eosinophils, mast-cells and T-helper-2 lymphocytes. Most nasal polyps are essentially made of eosinophils. So, having a high eosinophil count is entirely consistent with Samter's. It is good to be aware that, theoretically, this Samter-derived eosinophilia could mask other eosinophilic states ; for instance, if you had a parasitic worm, it would also shoot up the eosinophils, and you would not see it because you would believe the high eosinophil count to be entirely due to Samter's. > > From: wkapikorn wkapikorn@... > Subject: EOSINOPHILIA > samters > Date: Saturday, June 21, 2008, 10:17 AM > > > > > > > > > > > > Yesterday, I received my pathology report from my surgery a couple of weeks ago (3rd surgery) and the finding was: Chronic polypoid rhinosinusitis with marked eosinophilia. A new word for my vocabulary - " eosinophilia. " > Quote Link to comment Share on other sites More sharing options...
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