Re: Paranoia

[Guest guest]

Why are you always following me and asking me those questions? No -I don't

have paranoia-at least I don't remember having it. (Brain Fog)

Have you told your DR. about that and are you taking anything to help with

it. Who are you? No signature.

Are you on Rebetron?

Bob Simons

Sr. Commander

Royal Rangers

Tucson, Az.

bsimons@...

http://abbacomputers.homepage.com/bob.htm

For I know the plans I have for you, " declares the LORD, " plans to prosper

you and not to harm you, plans to give you hope and a future. Jer 29:11

(NIV)

Paranoia

> I am very anxious to know if anyone has had spells of paranoia? I've

> heard about Brain Fog, forgetfulness, but does anyone experience

> severe paranoia, suspiciousness, etc?

>

>

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[Guest guest]

At 01:22 AM 6/23/2000 -0700, you wrote:

>Why are you always following me and asking me those questions? No -I don't

>have paranoia-at least I don't remember having it.

Bob -

bless you for being my laugh of the day.

Belinda

[Guest guest]

,

No, brain fog is real. They don't fully understand it, but it goes away

when the hep does. There are definite questions in my mind about it though.

We know that hapatic encephelopathy occurs with end stage liver disease

and results in confusion, forgetfullness and actually, coma if it progresses

too far. This is the real brain fog. But there does seem to be something

else going on with hep that causes confusion, forgetfullness, depression and

fatigue in milder cases of hep that we all have come to accept as brain fog.

I would be open to

the idea that this may in part stem from a psychological cause, such as

profound deoression due to having a terminal illness, but I think for the

most part it is physiological and cannot be written off as a result of

having some kind of expectation of what normal is. If I get your point

right, you are saying that we think sharp, alert behavior is normal so when

we are confused or muddled we take that to be somehow amiss when it is not.

I disagree, I think confused, muddled thinking is amiss big time.

I couldn't agree more with your view that we tend to blame others or other

things though. It's human nature. I've even looked around for someone to

blame when I've bumped my head, enrages with pain and fury at whoever could

be responsible for such an insult to my being.

Would you care to clarify your point of view on the brain fog thing though?

Syd

>From: " " <michael.schrage@...>

>Reply-Hepatitis Cegroups

><Hepatitis Cegroups>

>Subject: Re: Paranoia

>Date: Fri, 23 Jun 2000 17:49:24 -0500

>

> What you are dealing with is not a mental condition but more a

>psychological attitude. You have accepted what others have told you about

>what " normal " is .

> All this recent talk about " brain fog " is just another excuse of a

>rationalized thinking and behavior.

> I worked with paranoid people in the mid seventies and as a clinician

>and I learned that Fear is the real problem. This recent talk about " Brain

>Fog " is to me another reluctance and acceptance that you are out of

>control.

>Bull shit! It's part of the " Blame game " .

> This race always tends to blame our actions and thoughts on either

>someone else or something else to give creditability to what we are feeling

>and we miss the point.

> It's a constant " feel good " attitude. Your compulsive and obsessive

>traits we all have in oneform or the other. You are no different than

>others.

> With Love,

>

>

>

>

>

> > I don't think it's funny. Does anyone have trouble remembering things

>or

>suffer from Obsessive Compulsive Disorder. I feel I have to check

>everything in my house before going to work over and over and over. e.g.

>is

>the coffee pot off, the curling iron off, the back door locked, I even

>unplug things, toaster etc. Then before I get to the car I must do it

>again

>to be sure I didn't forget anything. This has been happening for quite a

>awhile and becoming a real problem. No I'm not on any drugs and I'm

>affraid

>to take anything, I've heard so many horror stories about people taking

>mind

>altering drugs. I want to know if this happens to anyone else with Hep C

>and if there is any way to help it without drugs. ???

> >

> > >>> belinda@... 06/23/00 11:34AM >>>

> > At 01:22 AM 6/23/2000 -0700, you wrote:

> > >Why are you always following me and asking me those questions? No -I

>don't

> > >have paranoia-at least I don't remember having it.

> >

> > Bob -

> > bless you for being my laugh of the day.

> >

> > Belinda

> >

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> >

> >

> >

> >

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[Guest guest]

I don't think it's funny. Does anyone have trouble remembering things or suffer

from Obsessive Compulsive Disorder. I feel I have to check everything in my

house before going to work over and over and over. e.g. is the coffee pot off,

the curling iron off, the back door locked, I even unplug things, toaster etc.

Then before I get to the car I must do it again to be sure I didn't forget

anything. This has been happening for quite a awhile and becoming a real

problem. No I'm not on any drugs and I'm affraid to take anything, I've heard

so many horror stories about people taking mind altering drugs. I want to know

if this happens to anyone else with Hep C and if there is any way to help it

without drugs. ???

>>> belinda@... 06/23/00 11:34AM >>>

At 01:22 AM 6/23/2000 -0700, you wrote:

>Why are you always following me and asking me those questions? No -I don't

>have paranoia-at least I don't remember having it.

Bob -

bless you for being my laugh of the day.

Belinda

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[Guest guest]

At 11:39 AM 6/23/2000 -0500, you wrote:

>I don't think it's funny.

Sorry, Ruth, didn't mean to make fun. I know it's a real problem -- my

husband's gotten pretty fiercely mean-tempered and jumpy on the Rebatron.

In fact, he accused me of some pretty off the wall things this morning that

I'm still having trouble trying to shrug off, although I know it's the

medications talking. Sometimes I just get tired of taking it all so #* & $

seriously (which doesn't mean I think it's not.)

Didn't mean to offend -

Belinda

[Guest guest]

RIGHT ON

>From: irishladi26@...

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Paranoia

>Date: Fri, 23 Jun 2000 20:52:28 EDT

>

>,

> I am not going to say I know everything about this dreadful disease but

>I

>am really ticked off at your response. There is nothing NORMAL about this

>disease at all. There are no definites!! " Brain Fog " is not an excuse at

>all. The Medical profession still has to learn all about this disease yet,

>so

>WHO are YOU to say it is not so? We all fear something and who wouldn't be

>afraid of this disease and all it's side effects, with or without

>treatment?

>This is very real and it is not excuse.

>I don't think your working with Paranoid People GIVES YOU THE LICENSE, to

>PRACTICE !!!! We all come here to ask questions and to let off steam and

>rant

>and rave about how this is getting to us and Our loved ones. To learn about

>new treatments etc.. Not to get HALF BAKED ANSWERS !! Granted not

>everything we feel has to do with Hep-c but how does one know if they don't

>ask? But before anyone answers, one should KNOW all they are talking about

>or

>explain it, as THEIR opinion only.

>Who are you to say anyone is OUT OF CONTROL? Do you know these people

>personally? It is Human Nature to want to blame someone for their

>sickness,

>but you know what it isn't even blaming, it is finding out WHY? WHEN?

>WHERE?

>None of this and the feelings, whether it be Medical or Emotional are

>BULLSHIT !! Again my first answer to you, YOU ARE WAY OUT OF LINE ON THIS

>BUDDY. I am curious WHAT RACE DO YOU BELONG TOO? Obviously not the HUMAN

>RACE, or you would have more compassion for the people who come here and

>ask

>for HELP. We are ALL different from each other that's what makes us UNIQUE.

> If I have offended any of the other readers I am sorry.

> Irishladi

________________________________________________________________________

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[Guest guest]

In a message dated 6/23/00 12:40:52 PM Eastern Daylight Time,

rwhite@... writes:

<< I want to know if this happens to anyone else with Hep C and if there is

any way to help it without drugs. ???

>>

I have OCD too...although I doubt it has anything to do with HCV. Some people

take zoloft for it, but I don`t like taking drugs unless necessary...hence, I

live with it.

debmc

[Guest guest]

I don't think OCD has anything to do with Hep-C. I am sorry if you are having

these problems but a little laughter is good. Laughter is the best

medicine,try it. Take Care, Irish~Pat

[Guest guest]

YOU ARE WAY OUT OF LINE ON THIS ONE BUDDY.......................

[Guest guest]

,

I am not going to say I know everything about this dreadful disease but I

am really ticked off at your response. There is nothing NORMAL about this

disease at all. There are no definites!! " Brain Fog " is not an excuse at

all. The Medical profession still has to learn all about this disease yet, so

WHO are YOU to say it is not so? We all fear something and who wouldn't be

afraid of this disease and all it's side effects, with or without treatment?

This is very real and it is not excuse.

I don't think your working with Paranoid People GIVES YOU THE LICENSE, to

PRACTICE !!!! We all come here to ask questions and to let off steam and rant

and rave about how this is getting to us and Our loved ones. To learn about

new treatments etc.. Not to get HALF BAKED ANSWERS !! Granted not

everything we feel has to do with Hep-c but how does one know if they don't

ask? But before anyone answers, one should KNOW all they are talking about or

explain it, as THEIR opinion only.

Who are you to say anyone is OUT OF CONTROL? Do you know these people

personally? It is Human Nature to want to blame someone for their sickness,

but you know what it isn't even blaming, it is finding out WHY? WHEN? WHERE?

None of this and the feelings, whether it be Medical or Emotional are

BULLSHIT !! Again my first answer to you, YOU ARE WAY OUT OF LINE ON THIS

BUDDY. I am curious WHAT RACE DO YOU BELONG TOO? Obviously not the HUMAN

RACE, or you would have more compassion for the people who come here and ask

for HELP. We are ALL different from each other that's what makes us UNIQUE.

If I have offended any of the other readers I am sorry.

Irishladi

[Guest guest]

thank you

[Guest guest]

In a message dated 6/23/00 5:54:11 PM Pacific Daylight Time,

irishladi26@... writes:

<< Subj: Re: Paranoia

None of this and the feelings, whether it be Medical or Emotional are

BULLSHIT !! Again my first answer to you, YOU ARE WAY OUT OF LINE ON THIS

BUDDY. I am curious WHAT RACE DO YOU BELONG TOO? Obviously not the HUMAN

RACE, or you would have more compassion for the people who come here and ask

for HELP. We are ALL different from each other that's what makes us UNIQUE.

If I have offended any of the other readers I am sorry.

Irishladi

Hi Irish, Janet here!!! :) Only copied part of your message. High 5

girlfriend!!!

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Reply-Hepatitis Cegroups

Subject: Re: Paranoia

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>>

[Guest guest]

What you are dealing with is not a mental condition but more a

psychological attitude. You have accepted what others have told you about

what " normal " is .

All this recent talk about " brain fog " is just another excuse of a

rationalized thinking and behavior.

I worked with paranoid people in the mid seventies and as a clinician

and I learned that Fear is the real problem. This recent talk about " Brain

Fog " is to me another reluctance and acceptance that you are out of control.

Bull shit! It's part of the " Blame game " .

This race always tends to blame our actions and thoughts on either

someone else or something else to give creditability to what we are feeling

and we miss the point.

It's a constant " feel good " attitude. Your compulsive and obsessive

traits we all have in oneform or the other. You are no different than

others.

With Love,

> I don't think it's funny. Does anyone have trouble remembering things or

suffer from Obsessive Compulsive Disorder. I feel I have to check

everything in my house before going to work over and over and over. e.g. is

the coffee pot off, the curling iron off, the back door locked, I even

unplug things, toaster etc. Then before I get to the car I must do it again

to be sure I didn't forget anything. This has been happening for quite a

awhile and becoming a real problem. No I'm not on any drugs and I'm affraid

to take anything, I've heard so many horror stories about people taking mind

altering drugs. I want to know if this happens to anyone else with Hep C

and if there is any way to help it without drugs. ???

>

> >>> belinda@... 06/23/00 11:34AM >>>

> At 01:22 AM 6/23/2000 -0700, you wrote:

> >Why are you always following me and asking me those questions? No -I

don't

> >have paranoia-at least I don't remember having it.

>

> Bob -

> bless you for being my laugh of the day.

>

> Belinda

>

> ------------------------------------------------------------------------

> Over 1,000 solutions for allergies & asthma-gazoontite.com! Shop now!

> 1/5490/12/_/96144/_/961778081/

> ------------------------------------------------------------------------

>

>

>

>

>

> ------------------------------------------------------------------------

> Shop at gazoontite.com & breathe happier and healthier! Click here!

> 1/5491/12/_/96144/_/961778388/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Thank you Janet Irish~Pat

[Guest guest]

I totally agree with you Irishlady! I'm new here. I left a list because

of that and it kind of made me want to leave this list because I have so

many questions to ask and I personally am scared to death. I have 3 kids

still to raise and I'm on transplant. Now they did an amonia level on me

so I know my brain is losing it somewhere and now I have fibro to go

along with it. I hope no one makes me feel ridiculous for saying this

but I couldn't remember what the four words were the doctor told me to

say. I felt totally stupid there and sure don't want to feel that way

here. Thank you for changing my mind on leaving.

luv,

Sue

[Guest guest]

Sue,

I'm glad you decided not to leave. Your reasons for

being here are right on .. to learn about this awful

disease and to share your feelings, including your

fear. While we do not have to agree with everybody

who posts here we do have to give them the right to be

arrogant and bombastic in their views. Please hang in

there. I'm sure you won't find anyone who is

interested in embarassing you or making you feel

stupid. We (or our spouses) are all in the same boat.

Jeanie

--- blue_eyes4you@... wrote:

> I totally agree with you Irishlady! I'm new here. I

> left a list because

> of that and it kind of made me want to leave this

> list because I have so

> many questions to ask and I personally am scared to

> death. I have 3 kids

> still to raise and I'm on transplant. Now they did

> an amonia level on me

> so I know my brain is losing it somewhere and now I

> have fibro to go

> along with it. I hope no one makes me feel

> ridiculous for saying this

> but I couldn't remember what the four words were the

> doctor told me to

> say. I felt totally stupid there and sure don't want

> to feel that way

> here. Thank you for changing my mind on leaving.

> luv,

> Sue

>

>

>

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__________________________________________________

[Guest guest]

Sue: Please don't leave. This is a very warm and informative group of men

and women from across the nation. Some have Hep C and some belong on behalf

of someone close to them who does. It's the only way many of us learn of

first-hand experiences with various treatments--conventional and alternative.

I've noticed " With Love, " drops an occasional line that he knows will

get a big reaction, and then he seems to disappear for months until the next

one. The brain is an organ and it too becomes ill or is affected by

illnesses of other parts of the body. And it too exhibits symptoms. For

instance, people who have inner ear infections lose their balance and can't

walk a straight line--that's real.

To the person ( " rwhite " ) who originally asked the group about OCD and

paranoia. Tell your doctor. You don't have to suffer with these. There are

medicines that magically eliminate the symptoms you're experiencing. My

niece has OCD, but with Anafranil (probably mis-spelled, but something like

that), she is free from performing the rituals. Of course people with Hep C

want to limit what they ingest that could affect the liver, but quality of

life is important too.

I wrote more than I meant to! Have a good weekend. Our grandbaby is coming

today. Can't wait.

Tree

[Guest guest]

Sue, I am glad you changed your mind in leaving. I guess in every place we go

whether it be the store,church,or the internet,we are going to find someone

who will talk, before thinking about what is being said. I say this in

general. I have been on this list for about 10 months. I have met some

wonderful people here who have been very helpful to me, for it is my husband

who has this disease. I have searched many sites clubs and lists. I am far

from perfect but if I feel strongly about something I speak my mind,

especially when I see someone's words hurting someone else.

A hint if you don't mind write down what the Doctor says from now on as you

are there for your visit or even if it is a phone call, the doctor will

understand and even if he doesn't, it is your memory and life he is telling

you about, you can do this. I am sorry for all your pain and I do wish it

would get better for you. Remember we are here for you and others who need to

be here. Don't let one bad APPLE spoil the whole bunch !! Take care,

Irishladi

[Guest guest]

Sue,

Glad you are staying. These lists can attract some fairly demented

individuals. The proper way to handle them is with your delete key once you

discover them to be beyond reason. You must cultivate the fighter within

you. Never give up, never quit, especially because of some demented jerk.

These kind are plentiful everywhere and you must get used to it.

" When you encounter an obstacle you go through it, around or over it, you do

not quit "

-Maurice Minnifield in the TV series Northern Exposure

Syd

>From: blue_eyes4you@...

>Reply-Hepatitis Cegroups

>Hepatitis Cegroups

>Subject: Re: Paranoia

>Date: Sat, 24 Jun 2000 01:41:54 -0400 (EDT)

>

>I totally agree with you Irishlady! I'm new here. I left a list because

>of that and it kind of made me want to leave this list because I have so

>many questions to ask and I personally am scared to death. I have 3 kids

>still to raise and I'm on transplant. Now they did an amonia level on me

>so I know my brain is losing it somewhere and now I have fibro to go

>along with it. I hope no one makes me feel ridiculous for saying this

>but I couldn't remember what the four words were the doctor told me to

>say. I felt totally stupid there and sure don't want to feel that way

>here. Thank you for changing my mind on leaving.

>luv,

>Sue

>

________________________________________________________________________

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[Guest guest]

In a message dated 6/24/00 1:42:28 AM Eastern Daylight Time,

blue_eyes4you@... writes:

<< ope no one makes me feel ridiculous for saying this

but I couldn't remember what the four words were the doctor told me to

say. I felt totally stupid there and sure don't want to feel that way

here. >>

When you get forgetful, do you also get scared? I do.......a strange-sort-of

panic....like am i losing my mind?

I`m happy to know I`m not the only one.......

debmc

[Guest guest]

Syd....

well said....

Merril

[Guest guest]

Sue, I am glad that you are going to stick around. I'm Janet and a hearty

welcome to the group. I don't write alot but I'm always in the back ground.

Tree is right about the support that you receive here.

Sometimes I get scared too. I have been diagnosed with Hep-C for about 3 yrs

now, I think. See I've got brain fog too. Half the time I suffer from CRS

(Can't remember squat).

I've had a biopsy done, Genotype test and my share of PCR tests (Viral load).

I was on Rebretron (Interferon 3 X per wk and 4 caps of Ribivirin) treatment

last year. The treatment for me was brutal. However I am considering either

going back on or hope the new treatment reaches me. I'm not sure yet.

After treatment, I went on a BUNCH of vitamins, minerals and herbs. (still

take most of them). Well gang I feel stupid. I got my PCR test back and my

viral load is up to 11 million. My enzymes are almost normal. This is a very

disturbing disease and mostly I try to live my life to the fullest and not

dwell on every ache.

But today I wanna scream so I am venting here. I knew that I was starting to

feel like sh** again but didn't want to even do another PCR because of fear

about the outcome. Of course I will have to go back on treatment (unless a

miracle happens and maybe this IS the MIRACLE ie:treatment)

About 2 or 3 weeks ago my d/h and I were out driving around (house hunting)

and I wanted to go by my Mom's old house and we headed toward the area that I

lived all my teen years and I got soooooooo lost!!! I had been in that

neighborhood a couple of months before, so it was not like it had changed.

Anyway I felt completely disoriented, I couldn't think, I couldn't remember

where that house was.

FRUSTRATION!!!!!!!!!!!! Thank God that my d/h was driving. I just cried.

Then I got Pis*ed off and looked for about an hour and FINALLY found it.

ARGH!!!!! I wanted to scream.

Please do NOT think you are alone, you are not alone in your fears. Believe

me, If I didn't have faith in God, I would' ve gone COMPLETELY crazy.

Speaking of that, sometimes I do feel like I am losing it when I can't

remember simple things. I cannot believe that I am the same intelligent

person that I was before. Sometimes we all feel helpless, But remember we are

here for you~~~~~~~~Janet

[Guest guest]

Thank you Jeanie. I understand everyone has their own views and feelings

about hep but to outright make fun of someone is not very nice. To me

that was not an opinion or a view, it was mocking. I have found this

list very informative and would love to be involved and not lurk but

when people make fun of someone it kinda holds you back.

Sue

<I'm glad you decided not to leave.  Your reasons for

being here are right on .. to learn about this awful

disease and to share your feelings, including your>

[Guest guest]

Hi Tree,

I'm not going anywhere. I understand now that some people just have to

cause a ruckus like you said and I need the support.

Thanks again

Sue :-)

[Guest guest]

Sue,

Glad to hear that you are sticking with us. We are

usually a much nicer group than what you have

witnessed the past two days. I hope we can give you

the support that you need.

Jeanie

--- blue_eyes4you@... wrote:

> Hi Tree,

> I'm not going anywhere. I understand now that some

> people just have to

> cause a ruckus like you said and I need the support.

> Thanks again

> Sue :-)

>

>

>

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>

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>

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