Re: Paranoia

June 24, 2000

Hi Deb,

Yes, I do get scared to be honest with you. I asked him if I was losing

my mind and he said no. It's the hep and my amonia level is probably

high as I am in end stage and hoping and praying for a liver. Although I

am functioning on 20% of my liver, my hepatologist says overall my blood

work is good except for sugar and WBC. My spleen is enlarged and I hurt

like hell all over but I force myself to go out every day and walk and

live. I will beat this as I am very strong-willed but to be honest with

you, the scariest things has been my loss of memory so your not the only

one. Hang in there!

Sue :-)

<When you get forgetful, do you also get scared? I do.......a

strange-sort-of

panic....like am i losing my mind?

I`m happy to know I`m not the only one.......

debmc>

June 24, 2000

Sue,

Are you on a transplant waiting list? If so, do you

mind me asking where, and how long you've been on the

list?

Jeanie

--- blue_eyes4you@... wrote:

> Hi Deb,

> Yes, I do get scared to be honest with you. I asked

> him if I was losing

> my mind and he said no. It's the hep and my amonia

> level is probably

> high as I am in end stage and hoping and praying for

> a liver. Although I

> am functioning on 20% of my liver, my hepatologist

> says overall my blood

> work is good except for sugar and WBC. My spleen is

> enlarged and I hurt

> like hell all over but I force myself to go out

> every day and walk and

> live. I will beat this as I am very strong-willed

> but to be honest with

> you, the scariest things has been my loss of memory

> so your not the only

> one. Hang in there!

> Sue :-)

>

> <When you get forgetful, do you also get scared? I

> do.......a

> strange-sort-of

> panic....like am i losing my mind?

> I`m happy to know I`m not the only one.......

> debmc>

>

------------------------------------------------------------------------

> Was the salesman clueless? Productopia has the

> answers.

>

1/4633/12/_/96144/_/961906495/

>

------------------------------------------------------------------------

>

__________________________________________________

June 24, 2000

Thanks so much Janet. I appreciate all the wonderful replies everyone

has sent to me. When I went to the hospital to see my mom, I have been

there numerous times, I wound up in Philadelphia which is two hours away

from the hospital. I was determined to find it and a nice boy at

Mc's (who probably thought I was nuts) gave me the directions and

I couldn't remember what he said so he wrote them down. I know what you

mean about AAAAAARRRGGG!

Sue :-)

June 25, 2000

Sorry-just trying to add some humor. Yes-I constantly forget stuff. I have

to drive back & forth to my house because I forgot something at home. One

time I went back 3 times for different things. I hope the neighbors don't

think I'm too crazy.

I know that I forget if I take my pills and have taken them twice. Thats

bad.

It drives me nuts (a short drive in my case), but I try to keep my humor

instead of getting upset at myself. I can't change it anyway. I do take

Ginkgo Bioba which is supposed to help the memory. I don't know how bad I

would be if I didn't take it and I'm afraid to find out.

Don't panic-just try to flow with it and adjust your life according to what

you're capable of.

My computer has become my backup to my mind and I put everything that I can

into it. Phone numbers, lists, Drs. appts. etc.

Bob Simons

Sr. Commander

Royal Rangers

Tucson, Az.

bsimons@...

http://abbacomputers.homepage.com/bob.htm

For I know the plans I have for you, " declares the LORD, " plans to prosper

you and not to harm you, plans to give you hope and a future. Jer 29:11

(NIV)

Re: Paranoia

> I don't think it's funny. Does anyone have trouble remembering things or

suffer from Obsessive Compulsive Disorder. I feel I have to check

everything in my house before going to work over and over and over. e.g. is

the coffee pot off, the curling iron off, the back door locked, I even

unplug things, toaster etc. Then before I get to the car I must do it again

to be sure I didn't forget anything. This has been happening for quite a

awhile and becoming a real problem. No I'm not on any drugs and I'm affraid

to take anything, I've heard so many horror stories about people taking mind

altering drugs. I want to know if this happens to anyone else with Hep C

and if there is any way to help it without drugs. ???

>

> >>> belinda@... 06/23/00 11:34AM >>>

> At 01:22 AM 6/23/2000 -0700, you wrote:

> >Why are you always following me and asking me those questions? No -I

don't

> >have paranoia-at least I don't remember having it.

>

> Bob -

> bless you for being my laugh of the day.

>

> Belinda

>

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June 25, 2000

Try also vitamin B1, thiamine, it is common to be low on this with liver

problems---comes in generic, otc, drug store brand 50-100mg, once daily.

Sue Ellen Bowman

Re: Paranoia

>

> > I don't think it's funny. Does anyone have trouble remembering things

or

> suffer from Obsessive Compulsive Disorder. I feel I have to check

> everything in my house before going to work over and over and over. e.g.

is

> the coffee pot off, the curling iron off, the back door locked, I even

> unplug things, toaster etc. Then before I get to the car I must do it

again

> to be sure I didn't forget anything. This has been happening for quite a

> awhile and becoming a real problem. No I'm not on any drugs and I'm

affraid

> to take anything, I've heard so many horror stories about people taking

mind

> altering drugs. I want to know if this happens to anyone else with Hep C

> and if there is any way to help it without drugs. ???

> >

> > >>> belinda@... 06/23/00 11:34AM >>>

> > At 01:22 AM 6/23/2000 -0700, you wrote:

> > >Why are you always following me and asking me those questions? No -I

> don't

> > >have paranoia-at least I don't remember having it.

> >

> > Bob -

> > bless you for being my laugh of the day.

> >

> > Belinda

> >

> > ------------------------------------------------------------------------

> > Over 1,000 solutions for allergies & asthma-gazoontite.com! Shop now!

> > 1/5490/12/_/96144/_/961778081/

> > ------------------------------------------------------------------------

> >

> > ------------------------------------------------------------------------

> > Shop at gazoontite.com & breathe happier and healthier! Click here!

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> > ------------------------------------------------------------------------

> >

>

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>

June 25, 2000

PS: I froget a lot also, but am over 50 and it is common in my friens, in my

age group, also. We call it CRAFT---can't remember a f------ thing!

Sue Ellen Bowman

Re: Paranoia

>

> > I don't think it's funny. Does anyone have trouble remembering things

or

> suffer from Obsessive Compulsive Disorder. I feel I have to check

> everything in my house before going to work over and over and over. e.g.

is

> the coffee pot off, the curling iron off, the back door locked, I even

> unplug things, toaster etc. Then before I get to the car I must do it

again

> to be sure I didn't forget anything. This has been happening for quite a

> awhile and becoming a real problem. No I'm not on any drugs and I'm

affraid

> to take anything, I've heard so many horror stories about people taking

mind

> altering drugs. I want to know if this happens to anyone else with Hep C

> and if there is any way to help it without drugs. ???

> >

> > >>> belinda@... 06/23/00 11:34AM >>>

> > At 01:22 AM 6/23/2000 -0700, you wrote:

> > >Why are you always following me and asking me those questions? No -I

> don't

> > >have paranoia-at least I don't remember having it.

> >

> > Bob -

> > bless you for being my laugh of the day.

> >

> > Belinda

> >

> > ------------------------------------------------------------------------

> > Over 1,000 solutions for allergies & asthma-gazoontite.com! Shop now!

> > 1/5490/12/_/96144/_/961778081/

> > ------------------------------------------------------------------------

> >

> > ------------------------------------------------------------------------

> > Shop at gazoontite.com & breathe happier and healthier! Click here!

> > 1/5491/12/_/96144/_/961778388/

> > ------------------------------------------------------------------------

> >

>

> ------------------------------------------------------------------------

> Click here for savings: beMANY!

> 1/4115/12/_/96144/_/961926415/

> ------------------------------------------------------------------------

>

June 25, 2000

Sue Ellen....

Or just CRS???? Can't remember s.....!!

Some B2 is great with the B1... actually B does best when you take the

whole complex atthe same time....

About Jefferson (in Philly).... yes, they are very good and part of the

Albert Einstein Health Care Foundation now....

If anyone is coming there, please let me know.... less than 2 hrs from

here and I know a lot about the area because I lived and worked

there....

*S*....... Merril

June 25, 2000

Great to hear, I am near Phila., also.

The F got added tp CRAFT, by my email group of women over 50---not a shy

bunch at all.

Sue Ellen Bowman

Re: Paranoia

> Sue Ellen....

>

> Or just CRS???? Can't remember s.....!!

>

> Some B2 is great with the B1... actually B does best when you take the

> whole complex atthe same time....

>

> About Jefferson (in Philly).... yes, they are very good and part of the

> Albert Einstein Health Care Foundation now....

>

> If anyone is coming there, please let me know.... less than 2 hrs from

> here and I know a lot about the area because I lived and worked

> there....

>

> *S*....... Merril

>

> ------------------------------------------------------------------------

> CLICK HERE AND START SAVING ON LONG DISTANCE BILLS TODAY!

> 1/4125/12/_/96144/_/961964543/

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June 26, 2000

What do you do? I mean what makes you know that you have OCD? How do you cope

with it. I'm looking for some suggestions others have done to make it a little

easier on them. I agree Zoloft is out. Too many scarry stories I've heard about

people on it, Prozac too. Thanks for your comments. Ruth

>>> dmcdol@... 06/23/00 06:42PM >>>

In a message dated 6/23/00 12:40:52 PM Eastern Daylight Time,

rwhite@... writes:

<< I want to know if this happens to anyone else with Hep C and if there is

any way to help it without drugs. ???

>>

I have OCD too...although I doubt it has anything to do with HCV. Some people

take zoloft for it, but I don`t like taking drugs unless necessary...hence, I

live with it.

debmc

------------------------------------------------------------------------

Over 1,000 solutions for allergies & asthma-gazoontite.com! Shop now!

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------------------------------------------------------------------------

June 26, 2000

Maybe wellbutrin or buspar.

Sue Ellen Bowman

Re: Paranoia

> What do you do? I mean what makes you know that you have OCD? How do you

cope with it. I'm looking for some suggestions others have done to make it

a little easier on them. I agree Zoloft is out. Too many scarry stories

I've heard about people on it, Prozac too. Thanks for your comments. Ruth

>

> >>> dmcdol@... 06/23/00 06:42PM >>>

> In a message dated 6/23/00 12:40:52 PM Eastern Daylight Time,

> rwhite@... writes:

>

> << I want to know if this happens to anyone else with Hep C and if there

is

> any way to help it without drugs. ???

> >>

> I have OCD too...although I doubt it has anything to do with HCV. Some

people

> take zoloft for it, but I don`t like taking drugs unless

necessary...hence, I

> live with it.

> debmc

>

> ------------------------------------------------------------------------

> Over 1,000 solutions for allergies & asthma-gazoontite.com! Shop now!

> 1/5490/12/_/96144/_/961803750/

> ------------------------------------------------------------------------

>

> ------------------------------------------------------------------------

> Was the salesman clueless? Productopia has the answers.

> 1/4633/12/_/96144/_/962035103/

> ------------------------------------------------------------------------

>

September 17, 2002

e,

I went through the same thing when my older daughter was complaining of wrist pain. My (at the time) usually non-understanding pediatrician was incredible. She spent quite a lot of time reassuring me that the chances were very slim, but that anything bore watching. Thankfully is fine, but for me, a slim chance is enough to take my child in to be checked. Hopefully as in our case, and most cases, it will be fine. Good luck.

Christy (Abbie, 13 systemic)

September 17, 2002

Hi e,

Your thoughts and worries are perfectly understandable.We know that the odds of another child getting JRA are slim ,but we also know it has happend before.Just keep an eye on him and see if he improves.I get the same way, only with s sister she gets leg pain at night about every two months.It usually lasts a few days and it never fails that when I put her up to the garage wall she has grown.Classic growing pains but makes me nervous anyway, and I do worry everytime she gets sick that something is going to happen.Worrying is one of the things moms do best.

Hugs

Becki and 4systemic

September 17, 2002

e-

How could you not be paranoid? I think we all are :-). My older daughter has complained of leg pain from time to time and I always feel a moment of panic. I know what you mean about not trusting your judgment as to what looks and feels normal. Before was diagnosed, I kept questioning whether her knee looked swollen and whether she was limping or were her legs two different lengths. My husband and I would go back and forth on whether I was imagining it or not. I wasn't. I wish I'd been quicker to go with my instincts because I was questioning little things for a while before I actually decided yes something is wrong. So if you think the knees are swollen and warm, pay attention to your instincts. I've never seen any physical evidence to make me question Breanne's complaints of leg pain, which have apparently just been normal growing pains. But I always tell her let's wait till the morning to see if it still hurts and if it does we'll go to the dr. I hope it's nothing and you are just being "paranoid. It probably is nothing. But if you still have questions in a day or two, I'd get it checked out just to be safe.

Diane (, 3, pauci)

September 17, 2002

Becki,

Isn't it funny how over-concerned we get when one of the kids gets sick now? Never fails to amaze me how I have gone from "You'll feel better after a good nights sleep", to "A sore throat? Maybe I should call the doctor." lol It's like I am someone else entirely.

Christy (Abbie, 13 systemic)

September 18, 2002

e,

Our prayers are with you that your little one gets over the pneumonia,and has no complications from it.I know pneumonia is not contagious in the traditional way,but with Joes altered immune system I pray she doesnt get it also.Your in our thoughts.

Love

Becki and 4systemic

September 20, 2002

It is comforting to see I am not the only " crazy " person out there. Maya now

goes to a special needs nursery 2 mornings per week and if any of the

children there have a cold then I don`t leave her. Once winter comes I doubt

that she will be attending much if she is as ill this winter as she was last

winter, but at least she has had the chance of having a " normal " life for a

few months.

Carol

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October 19, 2003

Kate:

I have the same exact thing happening to me, but it has been FOR YEARS. I had c-toma in my left and no problems with my right. Then, about 2-3 years ago my right ear started to plug up constantly and I'm constantly having to do the Valsalva maneuver (holding nose and blowing slightly). This works almost all the time, but I'm concerned because I've heard so many people talking about Eustachian tube dysfunction (which is most likely what this is) and that this may be a culprit of c-toma. At one point (although I was pregnant) I was told that Prednisone would clear this up, but never went on it! I'm concerned as much as you are! I'll be seeing my ENT to have a cleaning soon, so you bet I'll be bringing it up AGAIN!

Take care, I.merrycake777 <merrycake@...> wrote:

hiya everyone i realise that i'm most likely being paranoid here so just say if i am. this isn't about my "bad" ear, see for a couple of weeks my right ear has been constantly popping, whenever i open my mouth, move my jaw or swallow etc. and i'm not sure exactly how but i've noticed my hearing has shifted somehow, quieter yeah but i'm not really sure how. sometimes i get pains in it but it's never for long. i was wondering if you guys think i should mention it to the doc, i don't want to sound para. do you think because i have c-toma in my left ear i have a chance it could be in my right ear? its not discharging but i've heard it isn't always there. some advice would be great sorry if i sound stupid! take carekatexxx

October 23, 2003

i think it's different for everyone. i'm a bit more than half way

through my 2nd challange, and i've found that if i eat outside of the

1250-1400 range consistantly, i gain fat. i think i just have a really

slow rmr right now. the safe range for most people is 12-15 times their

body weigt- or their lean weight, depending on the method they choose.

you're just going to have to experiment, and find out what works best

for you.

cera

asiabird01 wrote:

> Hi all, told me that I need to eat more...I'm totally paranoid

> of eating more than 1200-1400 calories. How much are you guys eating?

> Thanks,

> asia

>

> *

October 23, 2003

Do you use Udo's oil or Flax oil? And if so, do you count those

calories?

>

> > Hi all, told me that I need to eat more...I'm totally

paranoid

> > of eating more than 1200-1400 calories. How much are you guys

eating?

> > Thanks,

> > asia

> >

> > *

October 23, 2003

i use a tablespoon of ground flax seed or oil a day, and no, i dont

count them.

cera

asiabird01 wrote:

> Do you use Udo's oil or Flax oil? And if so, do you count those

> calories?

>

> >

> > > Hi all, told me that I need to eat more...I'm totally

> paranoid

> > > of eating more than 1200-1400 calories. How much are you guys

> eating?

> > > Thanks,

> > > asia

> > >

> > > *

October 23, 2003

--- I think what cera said is good. you have to experiment to see

what works for you. I do not count calories just portions. but I

believe I may be eating up in the 2000 calorie range. I can't go much

lower without starving and I hate that feeling more than anything

now. I will be eating more than that now because I have added more

cardio and will need the extra calories to maintain my hard earned

muscle. but I can still loose fat with 2000 calories. my cals are

high because I add fat to my meals. each meal usually has some sort

of healthy fat because I have found my body just needs that. but..it

took alot of experimenting to find that out. I would have never

guessed. my fat comes in forms like peanut butter..avocados..low fat

mayo..low fat salad dressings. they are not full fat..but just enuff

healthy fat to keep me from not starving within one hour. but I

believe..if you look at the cals in versus cals out thing..I must be

burning enuff off to have some changes each challenge. and that..that

is because of the muscle I have gained. it is burning fat right now

as I just sit here on my arse typing to you. it is very active

tissue. just listen to your body. try adding more veggies..that can

help alot too. the last thing on earth you want to do is starve it.

don't be paranoid of eating too much..be paranoid of eating too

little. I think that is worse cause you do not want to loose muscle

and you will if you eat to little. that muscle is your fat burning

machine. I used to worry more about eating too much..now I worry

about not eating enuff. If I miss a meal..I freak out more than if

cheat a bit on a meal now. it scares me more to miss meals cause I

fear loosing muscle cause loss of muscle will make me loose some of

my bodys fat burning power. I feel like I cheat when I miss meals. it

is a huge new way to think..it has taken awhile to get into that

mentality. but eating enuff of what your body needs really really

does burn your fat. you convince your body to release the fat because

it knows it does not need to hold onto it. it will only want to hold

onto it if it thinks you are not going to feed it. eating the right

foods will only help you. so is extremely right you need to eat

more. I would die a painful death if I ate 1400 cals. just cause that

would not include any fats and I would suffer greatly..I just know

it! starving is very painful for me now...lol. so don't be

scared..you will have great results!

Kathi

In , " asiabird01 "

<asiabird01@y...> wrote:

> Hi all, told me that I need to eat more...I'm totally

paranoid

> of eating more than 1200-1400 calories. How much are you guys

eating?

> Thanks,

> asia

October 23, 2003

I don't want anybody to misread my advice. 1200-1400 calories may be an ideal

weight loss range for a lot of women. I told Asia that she needed to eat more

because on top of BFL, she plays 3 hours of volleyball several times a week. She

was also counting 2 tbsp of Udo's in her daily calorie totals. That means on a

given day, she might be exercising for 4 hours and only eating 900 cals worth of

food! That leads to a sluggish metabolism, serious cravings, out of control free

days, and a whole host of other problems that make it more difficult to lose

fat.

Just wanted to clarify. :-)

Paranoia

Hi all, told me that I need to eat more...I'm totally paranoid

of eating more than 1200-1400 calories. How much are you guys eating?

Thanks,

asia

October 23, 2003

Hey ,

oops, sorry I wasn't trying to miscommunicated what you said. For me,

your advice was awesome! Thank you so much!

> I don't want anybody to misread my advice. 1200-1400 calories may

be an ideal weight loss range for a lot of women. I told Asia that

she needed to eat more because on top of BFL, she plays 3 hours of

volleyball several times a week. She was also counting 2 tbsp of

Udo's in her daily calorie totals. That means on a given day, she

might be exercising for 4 hours and only eating 900 cals worth of

food! That leads to a sluggish metabolism, serious cravings, out of

control free days, and a whole host of other problems that make it

more difficult to lose fat.

>

> Just wanted to clarify. :-)

>

> Paranoia

>

> Hi all, told me that I need to eat more...I'm totally

paranoid

> of eating more than 1200-1400 calories. How much are you guys

eating?

> Thanks,

> asia

>

October 23, 2003

--- Okay..I don't want anyone to misread my advice either..don't eat

as much as me if it does not work for you..that just works for me. I

hope I did not sound like I was telling people to pig out. you just

have to eat enuff of what works for you. I've already been called a

big fat pig this week..but..oh well..lol. just have to do what works

for you.

Kathi

In , " Skwigg " <skwigg@k...>

wrote: