RE: question about copaxone and ldn..

[Guest guest]

Yes you can but why would you want to. Copaxone only slows the

progression of the disease and LDN stops the progression of the disease. do

you feel that Copaxone is doing something for you? Copaxone gave me

problems so I stopped after 4 months on it.

Marie

----- Original Message -----

From: " Alba " <colores_del_alma@...>

<low dose naltrexone >

Sent: Tuesday, January 06, 2004 11:22 AM

Subject: [low dose naltrexone] question about copaxone and ldn..

> Hello,

>

> Happy new year to all of you from France.

>

> A question for all those who can reply to me ! Can you take both

> copaxone and ldn?

>

> Thanks

>

> Alba

>

>

>

>

>

[Guest guest]

I also would like to see a "valid study", but $30 per month vs $1000 per month is a big incentive to never look at LDN again.

Dan

----- Original Message -----

From: son

Marie Deady;low dose naltrexone ;Alba

Sent: 1/6/2004 4:25:44 PM

Subject: RE: [low dose naltrexone] question about copaxone and ldn..

I haven’t seen any studies or research that shows that LDN “sTopS” ms. If it did stop the ms then why isn’t it being pushed by the NMSS?

I’m not trying to put down this idea or anything but I personally would like to see a valid research study saying that it “STOPS” the ms before I would consider going off any injectables.

son

Owner/ operator

Friends with MS.com

or join our email newsgroup:

FriendsWithMS/

-----Original Message-----From: Marie Deady [mailto:Mardea@...] Sent: Tuesday, January 06, 2004 1:52 PMlow dose naltrexone ; AlbaSubject: Re: [low dose naltrexone] question about copaxone and ldn..

Yes you can but why would you want to. Copaxone only slows theprogression of the disease and LDN stops the progression of the disease. doyou feel that Copaxone is doing something for you? Copaxone gave meproblems so I stopped after 4 months on it. Marie ----- Original Message ----- From: "Alba" <colores_del_alma@...> <low dose naltrexone > Sent: Tuesday, January 06, 2004 11:22 AM Subject: [low dose naltrexone] question about copaxone and ldn.. > Hello, > > Happy new year to all of you from France. > > A question for all those who can reply to me ! Can you take both > copaxone and ldn? > > Thanks > > Alba > > > > >

[Guest guest]

I haven’t

seen any studies or research that shows that LDN “sTopS” ms. If it did stop the ms then why isn’t it

being pushed by the NMSS?

I’m not

trying to put down this idea or anything but I personally would like to see a

valid research study saying that it “STOPS” the ms before I would

consider going off any injectables.

son

Owner/

operator

Friends with MS.com

or

join our email newsgroup:

FriendsWithMS/

-----Original Message-----

From: Marie Deady

[mailto:Mardea@...]

Sent: Tuesday, January 06, 2004

1:52 PM

To:

low dose naltrexone ; Alba

Subject: Re: [low dose naltrexone]

question about copaxone and ldn..

Yes you can but why would you want

to. Copaxone only slows the

progression of the disease and LDN stops the

progression of the disease. do

you feel that Copaxone is doing something for

you? Copaxone gave me

problems so I stopped after 4 months on it.

Marie

----- Original Message -----

From: " Alba "

<colores_del_alma@...>

To:

<low dose naltrexone >

Sent: Tuesday, January 06, 2004 11:22 AM

Subject: [low dose naltrexone] question about

copaxone and ldn..

> Hello,

>

> Happy new year to all of you from

France.

>

> A question for all those who can reply

to me ! Can you take both

> copaxone and ldn?

>

> Thanks

>

> Alba

>

>

>

>

>

[Guest guest]

Not much

to be gained by increased popularity of a cheap drug so I’m sure it will

be a long time before any study on LDN is conducted.

son

Owner/

operator

Friends with MS.com

or

join our email newsgroup:

FriendsWithMS/

-----Original Message-----

From: Glines

[mailto:deglines@...]

Sent: Tuesday, January 06, 2004 3:32 PM

son; Marie

Deady; low dose naltrexone ; Alba

Subject: RE: [low dose naltrexone]

question about copaxone and ldn..

I also would like to see a

" valid study " , but $30 per month vs $1000 per month is a big

incentive to never look at LDN again.

Dan

----- Original Message -----

From: son

Marie Deady;low dose naltrexone ;Alba

Sent: 1/6/2004 4:25:44 PM

Subject: RE:

[low dose naltrexone] question about copaxone and ldn..

I haven’t seen any studies or research that shows that

LDN “sTopS” ms.

If it did stop the ms then why isn’t it being pushed by the NMSS?

I’m not trying to put down this idea or anything but I personally

would like to see a valid research study saying that it “STOPS” the

ms before I would consider going off any injectables.

son

Owner/ operator

Friends with

MS.com

or join our email newsgroup:

FriendsWithMS/

-----Original Message-----

From: Marie Deady

[mailto:Mardea@...]

Sent: Tuesday, January 06, 2004 1:52 PM

To:

low dose naltrexone ; Alba

Subject: Re: [low dose naltrexone]

question about copaxone and ldn..

Yes you can but why would you want

to. Copaxone only slows the

progression of the disease and LDN stops the

progression of the disease. do

you feel that Copaxone is doing something for

you? Copaxone gave me

problems so I stopped after 4 months on it.

Marie

----- Original Message -----

From: " Alba " <colores_del_alma@...>

To:

<low dose naltrexone >

Sent: Tuesday, January 06, 2004 11:22 AM

Subject: [low dose naltrexone] question about

copaxone and ldn..

> Hello,

>

> Happy new year to all of you from France.

>

> A question for all those who can reply

to me ! Can you take both

> copaxone and ldn?

>

> Thanks

>

> Alba

>

>

>

>

>

[Guest guest]

,

That is your right to get proof about the LDN. Dr Bihari that has been researching it says that it stops the progression of the disease. I personally had a real hard time with Copaxone and was going downhill very fast on it. But if it works for you stay on it. Everyone is different. Good Luck

Marie

----- Original Message -----

From: son

'Marie Deady' ; low dose naltrexone ; 'Alba'

Sent: Tuesday, January 06, 2004 9:38 PM

Subject: RE: [low dose naltrexone] question about copaxone and ldn..

I haven’t seen any studies or research that shows that LDN “sTopS” ms. If it did stop the ms then why isn’t it being pushed by the NMSS?

I’m not trying to put down this idea or anything but I personally would like to see a valid research study saying that it “STOPS” the ms before I would consider going off any injectables.

son

Owner/ operator

Friends with MS.com

or join our email newsgroup:

FriendsWithMS/

-----Original Message-----From: Marie Deady [mailto:Mardea@...] Sent: Tuesday, January 06, 2004 1:52 PMlow dose naltrexone ; AlbaSubject: Re: [low dose naltrexone] question about copaxone and ldn..

Yes you can but why would you want to. Copaxone only slows theprogression of the disease and LDN stops the progression of the disease. doyou feel that Copaxone is doing something for you? Copaxone gave meproblems so I stopped after 4 months on it. Marie ----- Original Message ----- From: "Alba" <colores_del_alma@...> <low dose naltrexone > Sent: Tuesday, January 06, 2004 11:22 AM Subject: [low dose naltrexone] question about copaxone and ldn.. > Hello, > > Happy new year to all of you from France. > > A question for all those who can reply to me ! Can you take both > copaxone and ldn? > > Thanks > > Alba > > > > >

[Guest guest]

Hi Marie,

I'm on copaxone and the Best Bet Diet and am researching LDN alot the last few months and am considering starting it in the near future.

I understand totally that it's best to quit the CRAB's before starting LDN as they contradict eachother but your statement saying that LDN STOPS progresion seems a bit far fetched to me. Believe me I think it's great that so many people are doing so well on LDN and it excites me so much but I don't think that you could generalise and say that it stops progression totally.

By the way copaxone has done me no harm. I am very anti-drugs usually as I'm aware of the bad side affects of most drugs but copaxone does seem to be one of the better ones of the CRAB's in that it is more natural and the medicine in it acts as a decoy for the MS to attack instead of attacking our myelin. In what way did copaxone give you problems??? /the only problems if you could call them problems that i've had with copaxone is slight bruising and lumps after shots which heal fast. I use aloe vera gel chilled for lumps and Arnica Herbal cream is brilliant for the bruising.

Message: 18 Date: Tue, 6 Jan 2004 16:51:32 -0500 From: "Marie Deady" <Mardea@...>Subject: Re: question about copaxone and ldn.. Yes you can but why would you want to. Copaxone only slows theprogression of the disease and LDN stops the progression of the disease. doyou feel that Copaxone is doing something for you? Copaxone gave meproblems so I stopped after 4 months on it. Marie

My Multiple Sclerosis Page

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[Guest guest]

I don't doubt Copaxone or Avonex or even other CRAB's could work,

more or less, for MSers. Even LDN doesn't work in absolute for all.

However, LDN definitely works for many!! The difference is that LDN

is very inexpensive and, as everybody agrees, it is almost harmless.

It is in the interest of everybody, LDN users or not, to urge

politicians or public organizations to run medical trials.

LDN could work even better and for even more persons if its mechanism

of why it helps so much some MS'ers could be studied thoroughly and

well understood.

Below is a fragment of a recent statement to the Independent by a

senior executive of the britain's biggest drug company

GlaxoKline:

(If you are a Copaxone or Avonex user that reported good benefits

from that therapy, good for you! you are one of the luckiest.

However, please avoid obstacle or discouraging hundreds of others

that, after failing such treatments, are now looking at alternatives)

" A senior executive with Britain's biggest drugs company has admitted

that most prescription medicines do not work on most people who take

them. Roses, worldwide vice-president of genetics at

GlaxoKline (GSK), said fewer than half of the patients

prescribed some of the most expensive drugs actually derived any

benefit from them. Dr Roses, an academic geneticist from Duke

University in North Carolina, spoke at a recent scientific meeting in

London where he cited figures on how well different classes of drugs

work in real patients.

Drugs for Alzheimer's disease work in fewer than one in three

patients, whereas those for cancer are only effective in a quarter of

patients. Drugs for migraines, for osteoporosis, and arthritis work

in about half the patients, Dr Roses said. Most drugs work in fewer

than one in two patients mainly because the recipients carry genes

that interfere in some way with the medicine, he said. " The vast

majority of drugs - more than 90 per cent - only work in 30 or 50 per

cent of the people, " Dr Roses said. " I wouldn't say that most drugs

don't work. I would say that most drugs work in 30 to 50 per cent of

people. Drugs out there on the market work, but they don't work in

everybody. "

Some industry analysts said Dr Roses's comments were reminiscent of

the 1991 gaffe by Gerald Ratner, the jewellery boss, who famously

said that his high street shops are successful because they

sold " total crap " . But others believe Dr Roses deserves credit for

being honest about a little-publicised fact known to the drugs

industry for many years. "

>

>

> OPINIONS ARE LIKE A- - HOLES.... EVERYBODY HAS ONE AND THEY ALL

STINK !!!!!

>

>

> |---------+---------------------------->

> | | " |

> | | son " |

> | | <mommyv3comcast (DOT) |

> | | net> |

> | | |

> | | 01/09/2004 07:50 |

> | | AM |

> | | |

> |---------+---------------------------->

> >-----------------------------------------------------------------

-------------------------------------------------------------|

>

|

|

> | " 'CK Connie King \(1452\)' "

<connie.king@a...>, " '' " <@y...>, |

> |

<low dose naltrexone >

|

> |

cc:

|

> | Subject: RE: [low dose naltrexone] Re: question about

copaxone and ldn.. |

> >-----------------------------------------------------------------

-------------------------------------------------------------|

>

>

>

>

> I am surprised at all the people who say copaxone is the most

effective.

> All studies and everything I've been told is that Beta is the

strongest and

> most effective then rebif then avonex and copaxone is the weakest

of them

> all. In fact, copaxone is typically given to people with benign

MS.

> Meaning people who have little to no symptoms, have had one attack

and

> never have another. Beta has shown to burn out the MS after 10

years of

> use according to some studies. I don't have documentation of this

but was

> told this at a seminar. The seminar was no sponsored by the makers

of beta

> by the way. It was given by a hospital some years ago in Philly.

U of

> Penn.

>

>

>

>

>

>

>

>

> -----Original Message-----

> From: CK Connie King (1452) [mailto:connie.king@a...]

> Sent: Friday, January 09, 2004 6:41 AM

> ; low dose naltrexone

> Subject: RE: [low dose naltrexone] Re: question about copaxone

and

> ldn..

>

>

>

>

>

> It can be so confusing sometimes. Has anyone actually seen

> statistics on which of the CRAB's is most effective? I've

seen 2

> doctors (ones that do not support LDN) this past two weeks,

and one

> supports Copaxone and the other says Avonex has had the best

results.

> I went off of Avonex and started LDN in March. I'd like to

try

> Copaxone since it's more compatible with LDN but am curious

as to

> it's effect vs. Avonex. Maybe everyone is just different

and what

> works for one won't work for the other. It would be nice if

there

> were more clear cut guidelines. But, LDN did NOT stop my

> progression completely. However, I certaily would not want

my

> experience to discourage anyone! Mentally, I've improved

> tremendously. I am, from what the doctors (the ones that

support

> LDN) say, maybe the only one that they've ever heard of that

LDN has

> not kept people from getting worse so I am certanly a

minority. Or,

> maybe we aren't hearing from some of the ones that are

progressing??

> Not sure. But, it sounds like LDN has the best track record.

> Anyone who has actually seen comparison result of the CRABS -

if you

> could share those with me, I'd be greatful.

>

>

>

>

>

> From: [mailto:@y...]

> Sent: Thursday, January 08, 2004 6:17 PM

> low dose naltrexone

> Subject: [low dose naltrexone] Re: question about copaxone and

ldn..

>

>

> Hi Marie,

>

>

>

>

>

> I'm on copaxone and the Best Bet Diet and am researching LDN

alot the

> last few months and am considering starting it in the near

future.

>

>

> I understand totally that it's best to quit the CRAB's before

> starting LDN as they contradict eachother but your statement

saying

> that LDN STOPS progresion seems a bit far fetched to me.

Believe me I

> think it's great that so many people are doing so well on LDN

and it

> excites me so much but I don't think that you could

generalise and

> say that it stops progression totally.

>

>

> By the way copaxone has done me no harm. I am very anti-drugs

usually

> as I'm aware of the bad side affects of most drugs but

copaxone does

> seem to be one of the better ones of the CRAB's in that it is

more

> natural and the medicine in it acts as a decoy for the MS to

attack

> instead of attacking our myelin. In what way did copaxone

give you

> problems??? /the only problems if you could call them

problems that

> i've had with copaxone is slight bruising and lumps after

shots which

> heal fast. I use aloe vera gel chilled for lumps and Arnica

Herbal

> cream is brilliant for the bruising.

>

>

>

>

>

>

>

>

> Message: 18

> Date: Tue, 6 Jan 2004 16:51:32 -0500

> From: " Marie Deady " <Mardea@b...>

> Subject: Re: question about copaxone and ldn..

>

>

> Yes you can but why would you want to.

> Copaxone only slows the

> progression of the disease and LDN stops the

> progression of the disease. do

> you feel that Copaxone is doing something for

> you? Copaxone gave me

> problems so I stopped after 4 months on it.

> Marie

>

>

>

>

>

>

>

>

>

> (Embedded image moved to file: pic28476.gif) My Multiple

Sclerosis

> Page

>

>

> Proud member of:

>

>

> Jooley's Joint

>

>

> MS Friends

>

>

> Wosib Causes Garden

>

>

> Phenomenal Women of the Web

>

>

>

>

>

> Messenger - Communicate instantly... " Ping " your

friends today!

> Download Messenger Now

>

>

>

>

>

>

[Guest guest]

Hi and all,

My computer's a big mess at the moment as I lost all my favourites and some files when it all went mad around a week ago and we still havent' it all sorted.

Anyway I was looking for this news article for ye which I eventually found; about trial results on the CRAB's drugs which was published in the Journal of Neurology the last few months and shows that copaxone seems to be more effective than the intereferons. Here's the link http://biz./iw/031029/059168.html

Rep. Ireland son <mommyv3@...> wrote:

I am surprised at all the people who say copaxone is the most effective. All studies and everything I’ve been told is that Beta is the strongest and most effective then rebif then avonex and copaxone is the weakest of them all. In fact, copaxone is typically given to people with benign MS. Meaning people who have little to no symptoms, have had one attack and never have another. Beta has shown to burn out the MS after 10 years of use according to some studies. I don’t have documentation of this but was told this at a seminar. The seminar was no sponsored by the

makers of beta by the way. It was given by a hospital some years ago in Philly. U of Penn.

My Multiple Sclerosis Page

Messenger - Communicate instantly..."Ping" your friends today! Download Messenger Now