Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 Yash , are you a doctor? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 I asked that once. I was asked if I drink water EVERY DAY, if I EAT every day, if I brush my teeth EVERY DAY, if I open my EYES every day, if I breathe EVERY DAY, if I SLEEP every day. Ask someone taking Copaxone if they skip 3 days a month. I'm on 291 days in a row now. ----- Original Message ----- From: Tatiana low dose naltrexone Sent: Sunday, February 01, 2004 12:20 Subject: [low dose naltrexone] Re: LDN every night? NO, I AM NOT.......THAT IS WHY I AM ASKING.MY DOCTOR TOLD ME TO TAKE IT EVERY NIGHT, BUTI AM AFRID THAT'S NOT RIGHT, YOU NEED TO GIVE YOUR BODY SOME "REST".. > Yash , are you a doctor? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 Dr. Bihari starts with 4.5 mgs . He said that 20% of MSers must be fine tuned /tweaked.He either lowers or raises, usually lowers amount. If you read prior posts, seems like 90% had trouble getting script from their neuro.Do not give up, try your primary or one of the docs on the list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 Tatiana, the question was whether *Yash* is a doctor. Yash, what's the basis for what you said? It makes no sense to me. Galoux > NO, I AM NOT....... > THAT IS WHY I AM ASKING. > MY DOCTOR TOLD ME TO TAKE IT EVERY NIGHT, BUT > I AM AFRID THAT'S NOT RIGHT, YOU NEED TO GIVE YOUR > BODY SOME " REST " .. > > > > > Yash , are you a doctor? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 I don't understand how you " have the switch on all the time " ... doesn't the LDN actually briefly stop endorphin production so that your body responds by a temporary boost in production? It isn't as though the medication builds up in your body, like, for example, many of the hormone supplements that tend to be stored in body fat. I haven't yet talked to my doctor about LDN, have any of you had problems getting your doctor to prescribe? and have you started immediately at whatever dosage you are on, or did you start at 1.5 mg at first? ----- Original Message ----- From: " yashagrawal " <yashagrawal@...> <low dose naltrexone > Sent: Sunday, February 01, 2004 8:42 AM Subject: [low dose naltrexone] Re: LDN every night? > From a medical perspective, it is better to get your body used to > having a few days off LDN. This frees up the receptors, normalizes > things. Remember, how LDN acts is by generating an endorphin pulse. > If you have the switch on all the time, you will run out of juice. > > Yash > > > Hello! > > Sorry for my stupid question, but I still don't know > > Is it better to take LDN every night or should i take it > > 10 nights, then 3 nights off ??? > > I am so confused... > > > > Thank you! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 As I have said before the "side effects" of not taking it for one night are more than I can stand ! Reg. -------Original Message------- From: low dose naltrexone Date: 02/01/04 10:37:24 low dose naltrexone Subject: Re: [low dose naltrexone] Re: LDN every night? I asked that once. I was asked if I drink water EVERY DAY, if I EAT every day, if I brush my teeth EVERY DAY, if I open my EYES every day, if I breathe EVERY DAY, if I SLEEP every day. Ask someone taking Copaxone if they skip 3 days a month. I'm on 291 days in a row now. ----- Original Message ----- From: Tatiana low dose naltrexone Sent: Sunday, February 01, 2004 12:20 Subject: [low dose naltrexone] Re: LDN every night? NO, I AM NOT.......THAT IS WHY I AM ASKING.MY DOCTOR TOLD ME TO TAKE IT EVERY NIGHT, BUTI AM AFRID THAT'S NOT RIGHT, YOU NEED TO GIVE YOUR BODY SOME "REST".. > Yash , are you a doctor? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 I don’t know about Yash’s claim I know the idea is Lawrence’s to take a few days off perhaps someone can email him or go through his papers and find out why he feels it best. And the control issue was not directed at you. I had completely read the threads one of the remarks bothered me and yes I see control issues in it it was not you Galoux I said some people have control issues and it’s true there are some people I notice who feel because they are taking it a specific way that is the only way to do it. It’s come up several times and people talk as though they know it possibly better than anyone else. I appreciate seeing how someone feels things work for them or good information they have picked up from professionals etc… but I do notice that some people get very upset when you don’t do things exactly as they are doing them or exactly as they believe things work. Each person is welcome to their own interpretation of things and the route they choose to use as described by either Bihari or Lawrence or by their specific doctor. So although you feel no one is having control issues I disagree and for good reason I believe and I know I am entitled to my own opinion as you are yours. And while no one may be trying to make Tatiana feel badly from what I’ve read I have seen a little hostility at the idea that a break may be necessary as far as some are concerned. I love when people from this group help me with something due to their own experiences but have trouble with those who cannot be flexible enough to say yes others do it this way for views on that they will have to answer as for me this is what I do… etc… Some people are very strong in their convictions as to how LDN is to be taken to the point that sometimes they feel they are so right their feelings come across with quite a lot of attitude. Anyhow my message was meant for Tatiana and it still stands as I wrote it please don’t take it to mean that everyone discussing the topic is controlling I only said “some people have control issues.” Thanks & hope your having a good one… for those watching the Super Bowl anyone have money on the game? LOL From: Bou [mailto:lswillia@...] Sent: Sunday, February 01, 2004 9:52 PM low dose naltrexone Subject: Re: [low dose naltrexone] Re: LDN every night? , no one is trying to make Tatiana feel bad, and no one is having control issues. Tatiana misunderstood that some remarks/questions here were directed to Yash--not to her. Yash said some things in response to Tatiana's question, some statements about it being medically best to stop LDN so as not to have an " endorphin switch " on all the time. This made no sense to me or to some others, and we'd like to know the basis of Yash's claim. That's all. Galoux Tatiana really don’t let others make you feel like crap over asking a simple question (some people have real control issues…). <snip> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 First of all, I couldn't give a flying F what anyone else on this planet does with LDN. Someone asks a question, I give MY answer, they can do what they want to do. I could care less about anyone else, I don't care what anyone else does, everyone has to make up their own mind and gather their own information. I wish them luck, I say what I think is helpful and accurate, and I share what I think someone may benefit from. That's all I can do. You ask a question, those people who wish to answer, will answer. Everyone is responsible to themselves. It's already been established that anyone's postings on this thing we call the internet are just their own opinions. Yes, SOME people have their own agenda. SOME people make money from what they say and do. All I can say for myself is I have no financial interest in anything I do, except for my job which has nothing to do with Sales of anything, and the stock market. Everything else I do, I pay for Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 You also asked me if I ever read back what I write. Yes, I do, all the time. The only thing I have to add is that 3.0 since day 1 may indeed not even be the best for me.... I don't know, yet. Perhaps 4.5 is better, I still do not know, since I haven't tried it yet. So all I know is 3.0 has been great, I can't imagine it being any better... but some day I will find out and compare. Then I'll know even more than I know now. But with what I've seen with 3.0, I haven't been eager or even all that curious to know what 4.5 would do for me. Who knows, maybe with 4.5 I'll be able to run again. Or maybe my neck spasms/pain with the cold air will go away. Or maybe my left shoulder blade will stop tingling and itching the way it does. Those are the only 3 things that haven't gone away or otherwise changed since starting LDN. I'm quite impressed with 3.0, but will be trialing 4.5 in the next few weeks with plenty of winter weather left, for comparison. But for now I went back to the 3.0 MG pills (yesterday) rather than 2 1.5's as I have for the last 3 months. There, now this message is about LDN, no tangent ----- Original Message ----- From: LarryGC low dose naltrexone Sent: Monday, February 02, 2004 02:25 Subject: Re: [low dose naltrexone] Re: LDN every night? I take it a specific way, it's the way that works for me, it's the way I tell others that I do it. That's the extent of it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 Hi Larry, I would like to ask you how long your left shoulder bothered you before taking LDN. I know it is not part of the conversation that you were replying to but the part of my body that bothered me the longest was myknees. When I started on LDN each one of my old symptoms came back at different times and I had a buzzing in my head after that symptom came back. Then I never felt that symptom again. My knees bothered me for quite a few years and the symptoms came back for about a week. All that week my head buzzed. I no longer have any problem with my knees. My buzzing might be the same as your tingling and your left shoulder may be refiring the nuerons in it. I am not a doctor, nurse or any other medical training. I am only commenting on things I am noticing. FlashyKathy ----- Original Message ----- From: LarryGC low dose naltrexone Sent: Monday, February 02, 2004 2:55 AM Subject: Re: [low dose naltrexone] Re: LDN every night? You also asked me if I ever read back what I write. Yes, I do, all the time. The only thing I have to add is that 3.0 since day 1 may indeed not even be the best for me.... I don't know, yet. Perhaps 4.5 is better, I still do not know, since I haven't tried it yet. So all I know is 3.0 has been great, I can't imagine it being any better... but some day I will find out and compare. Then I'll know even more than I know now. But with what I've seen with 3.0, I haven't been eager or even all that curious to know what 4.5 would do for me. Who knows, maybe with 4.5 I'll be able to run again. Or maybe my neck spasms/pain with the cold air will go away. Or maybe my left shoulder blade will stop tingling and itching the way it does. Those are the only 3 things that haven't gone away or otherwise changed since starting LDN. I'm quite impressed with 3.0, but will be trialing 4.5 in the next few weeks with plenty of winter weather left, for comparison. But for now I went back to the 3.0 MG pills (yesterday) rather than 2 1.5's as I have for the last 3 months. There, now this message is about LDN, no tangent Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 I golden Key you Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 You just did what the other person did. And what you said I should have done. I wrote my reply in direct response to her comments about me. Paranoid? I KNOW she was referring to me and so I was giving some insight. I'll reserve further comment to you because I wouldn't want to hurt your feelings. You're way off base, yet again. ----- Original Message ----- From: Sally low dose naltrexone Sent: Monday, February 02, 2004 17:22 Subject: [low dose naltrexone] Re: LDN every night? Please Larry, Get off of your paranoid soap box. This is a support forum for ill people and their quest for feeling better through the use od LDN, and the compassionate words of all our members. Apparently whoever found fault with your methods, did so in private and you should have responded in kind.....instead of spewing your venom here.I am serious, when I say, that you should probably coinsider seeing a neuropsycologist. We do not have the expertise to deal with your issues here, and we certainly don't need the added stress. Love and PrayersSallyC.--- "LarryGC" wrote:"I don't think I've ever made ANY comments about any other human being's personality, information, motive, agenda, or anything else about any other PERSON AT ALL, EVER, and I've been online since 1978." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 Since 3/02. I'll probably start the 4.5 this coming weekend. Will know in a few weeks if it'll help that, too. I think my shoulder problem is related to my lesions in my C5, which is not related to MS. My MS is in my head and an area in T5. I also have SBO in my L5 and I could never curl my toes on either foot. After about 2 months on LDN I discovered I can control and curl the toes on my left foot. Still can't fully control my right though. How long have you been taking LDN? Anyone notice a change in sense of smell? ----- Original Message ----- From: Kathy Penrose low dose naltrexone Sent: Monday, February 02, 2004 13:24 Subject: Re: [low dose naltrexone] Re: LDN every night? Hi Larry, I would like to ask you how long your left shoulder bothered you before taking LDN. I know it is not part of the conversation that you were replying to but the part of my body that bothered me the longest was myknees. When I started on LDN each one of my old symptoms came back at different times and I had a buzzing in my head after that symptom came back. Then I never felt that symptom again. My knees bothered me for quite a few years and the symptoms came back for about a week. All that week my head buzzed. I no longer have any problem with my knees. My buzzing might be the same as your tingling and your left shoulder may be refiring the nuerons in it. I am not a doctor, nurse or any other medical training. I am only commenting on things I am noticing. FlashyKathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 Sorry I read this to a point and stopped… I can only read so much of your stuff as it’s all repeat of what you’ve told me in the past so I know well enough about you etc... In fact the group doesn’t know but we already tried to discuss and resolve the issues. I am glad people have emailed you to make you feel better I know I already told you that first email that went to the group about how you sometimes come across whacky I apologized for and really only meant it for you. I tried talking to you about why you’ve been banned at places etc… but you wanted none of it it’s your way or the highway and you could care less how others can be offended by you. Now funny you should address this control issue… I don’t have a control issue and I have no ulterior motives. My thing is I want people to get helpful information in a friendly manner, that’s just me. If I read attitude or control like things in “someone’s” post that’s my perception and again I am allowed to have it as you are yours. I did not say it was your post that I found could be read in a pushy controlling way but as a matter of fact that is how you are you say emphasis not shouting.. Emphasis is emphasis it has the same impact at times and can be found that way not just by me by others as well. Anyhow I don’t reply directly to you any longer I have no want to, my first post that’s started this off was trying to make a member feel welcome and so that they would know that not everyone was so pushy or what have you. I didn’t say anyone in particular was any such way just generalized that some are. And it’s true as far as I am concerned… everyone is welcome to their own thoughts. As we have tried to discuss things and they cannot be worked out I would appreciate it if you didn’t direct email to me again just as I had stopped with you. Capiche? If you’d like to you can email me in my email (although I’d really appreciate you not doing that either) not in group you’ve had your slam back now even though I apologized to you before I’m glad you got it out of your system hopefully that’s the end of that and we can move on. I am a member here because I too take LDN because someone here sent me the links and said I would get good information I have gotten some great information I have had some wonderful emails from members and will continue to be a member you’ll just have to live with the fact that we are members at the same places and entitled to our own opinions and perhaps read that last post as not directed to anyone in particular just a comment in general and supportive of a new member interested in taking LDN and finding out what information she can PERIOD It was not aimed at you! It was not about you! Not everything is about LARRY… As for whoever told you I was the new queen of LDN I don’t believe you I think this went totally high school and because I had mentioned someone had spoken to me about your attitude and behaviour you made it up too bad you couldn’t get that I was trying to tell you because I wanted to help you see why some people were not comfortable with you. Instead it turned into you getting ticked at me for bringing it up... Anyhow that’s over with and as I said I’d appreciate that if you had something more to say to me you don’t do it in group of course it’s your right to go on it’s your freedom but I’ll just be deleting emails that have your name on them, I’ve already tried to talk with you about all this and I already know what the outcome will be every bloody time! Sincerely, Rainbolt From: LarryGC [mailto:larrygc@...] Sent: Monday, February 02, 2004 2:26 AM low dose naltrexone Subject: Re: [low dose naltrexone] Re: LDN every night? First of all, I couldn't give a flying F what anyone else on this planet does with LDN. Someone asks a question, I give MY answer, they can do what they want to do. I could care less about anyone else, I don't care what anyone else does, everyone has to make up their own mind and gather their own information. I wish them luck, I say what I think is helpful and accurate, and I share what I think someone may benefit from. That's all I can do. You ask a question, those people who wish to answer, will answer. Everyone is responsible to themselves. It's already been established that anyone's postings on this thing we call the internet are just their own opinions. Yes, SOME people have their own agenda. SOME people make money from what they say and do. All I can say for myself is I have no financial interest in anything I do, except for my job which has nothing to do with Sales of anything, and the stock market. Everything else I do, I pay for. The only control issues are your own. You misread what someone's intentions are, apply your own feelings to them, and then react based on your own reaction in the first place. Go look in a mirror, maybe it's your control issues at play. If someone takes LDN the way I talk about, or some other way, it doesn't bother me one bit. I have no control over anyone else's bodily input, and the only 2 people on this entire planet that I SHOULD, I don't have control over, nor do I fight for it. I just deal with it and hope for the best. But that's a whole other issue and has nothing to do with LDN and really isn't anyone else's concern. There is no hostility, there is no control, there is no attitude, nothing of the sort. As a matter of fact, no less than 8 people have read your words attacking me, and NOT ONE of them agrees with YOU. Not one of them can tell me they SEE what you see. You don't like what I say? FINE. Say it how you think it should be said. But there is no reason to increase stress levels on anyone's part. We are on the SAME SIDE, unless YOU have an ulterior motive. The Fact is, I am on LDN since 4/17/03. I have ONLY taken 3.0 MG per night, 292 nights now, in a row. I have not taken a break, I have not MISSED a night, but I have missed the window 4 times, but if Daylight Savings Time is adjusted for, then I only missed it ONCE. I took one time at 9:30PM, but it was DST, so that may have been 8:30PM Planetary Local Time. I took it 3 times after 3AM, but twice it was still DST, so that may have been within the window... 0330 EDT really being 0230 EST. So only once did I take it at 4:30AM EST, otherwise I've not missed a dose, inside the 9p-3a window. I do not get UPSET when people don't do things the way I think it should be done, any perception of that is a misperception, period. As I said, I could care less. Someone asks, I answer. Someone makes a comment, I may comment back. What they do with that answer and commentary is up to them. This isn't a competition to see who can give the politically correct answer with sugar on top. I'm not here to please anyone. I'm sorry if you don't like what you see as my attitude. It's your problem, not mine. I'm not here to make people feel better about a bad situation. You can do all that if you want. I just share what I share, take it or delete it. I have not told anyone else they were wrong, I've only said what I think. I don't think I've ever made ANY comments about any other human being's personality, information, motive, agenda, or anything else about any other PERSON AT ALL, EVER, and I've been online since 1978. I may have thought someone was a jerk or had no idea what they were talking about, or had the wrong idea, but I've never insulted anyone, accused them of anything, or told them what I thought their character flaws were. I just address the issue at hand. I don't need to say any more than I say, I don't need to live up to YOUR standards, I don't need to sugar coat things. You either take my input or ignore my input. You read a message online, delete it, or react to it, ignore it, or think it's valuable information. That's up to the reader. I know what other people have said about taking breaks or not taking breaks, I don't need to judge and agree or disagree with what others say and do. I only give My input, my opinion, my ideas. Anything Implied or Obvious is to the readers eyes. I only put it out there. I'm not responsible for YOUR interpretation of my personality, actions, input, facts, or figures. If you disagree with something I write, feel free to correct it, but your opinions about ME have nothing to do with the information I provide. What I type is either right, or wrong, and when I'm wrong, people correct it, and if it's wrong, oh well, so be it. I tried to be helpful, sometimes it doesn't work. But it seems obvious to many, based on the feedback I've received, that SOME people see my intentions are pure, honest, and intended to be helpful. All I can say is when I post a message it's because I believe what I'm saying. I would never purposely mislead someone, I don't need to, never tried to, don't plan to. As far as the LDN related groups need to be concerned with any of my messages is that I am just a person taking LDN, and that's it. Take it or leave it. For the record, this message was sent with smiles. NO anger, just matter of factly. CAPS used for emphasis, not shouting. I take it a specific way, it's the way that works for me, it's the way I tell others that I do it. That's the extent of it. Have a Nice Day ----- Original Message ----- From: I AM CANADIAN low dose naltrexone@groupscom Sent: Sunday, February 01, 2004 21:52 Subject: RE: [low dose naltrexone] Re: LDN every night? I don’t know about Yash’s claim I know the idea is Lawrence’s to take a few days off perhaps someone can email him or go through his papers and find out why he feels it best. And the control issue was not directed at you. I had completely read the threads one of the remarks bothered me and yes I see control issues in it it was not you Galoux I said some people have control issues and it’s true there are some people I notice who feel because they are taking it a specific way that is the only way to do it. It’s come up several times and people talk as though they know it possibly better than anyone else. I appreciate seeing how someone feels things work for them or good information they have picked up from professionals etc… but I do notice that some people get very upset when you don’t do things exactly as they are doing them or exactly as they believe things work. Each person is welcome to their own interpretation of things and the route they choose to use as described by either Bihari or Lawrence or by their specific doctor. So although you feel no one is having control issues I disagree and for good reason I believe and I know I am entitled to my own opinion as you are yours. And while no one may be trying to make Tatiana feel badly from what I’ve read I have seen a little hostility at the idea that a break may be necessary as far as some are concerned. I love when people from this group help me with something due to their own experiences but have trouble with those who cannot be flexible enough to say yes others do it this way for views on that they will have to answer as for me this is what I do… etc… Some people are very strong in their convictions as to how LDN is to be taken to the point that sometimes they feel they are so right their feelings come across with quite a lot of attitude. Anyhow my message was meant for Tatiana and it still stands as I wrote it please don’t take it to mean that everyone discussing the topic is controlling I only said “some people have control issues.” Thanks & hope your having a good one… for those watching the Super Bowl anyone have money on the game? LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 A lot of people have had problems getting their Doctor to write a prescription for LDN. However, perseverance pays off. People have started at various levels of usage. I started at 4.5 mg and found I couldn't tolerate the leg cramps so dropped to 3 mg with no problems. I intend to increase the dosage in the very near future to see if my legs will tolerate a stronger dose. Noland ----- Original Message ----- From: " " <jatrac1@...> <low dose naltrexone > Sent: Sunday, February 01, 2004 12:04 PM Subject: Re: [low dose naltrexone] Re: LDN every night? > I don't understand how you " have the switch on all the time " ... doesn't the > LDN actually briefly stop endorphin production so that your body responds by > a temporary boost in production? It isn't as though the medication builds > up in your body, like, for example, many of the hormone supplements that > tend to be stored in body fat. > > I haven't yet talked to my doctor about LDN, have any of you had problems > getting your doctor to prescribe? and have you started immediately at > whatever dosage you are on, or did you start at 1.5 mg at first? > > > ----- Original Message ----- > From: " yashagrawal " <yashagrawal@...> > <low dose naltrexone > > Sent: Sunday, February 01, 2004 8:42 AM > Subject: [low dose naltrexone] Re: LDN every night? > > > > From a medical perspective, it is better to get your body used to > > having a few days off LDN. This frees up the receptors, normalizes > > things. Remember, how LDN acts is by generating an endorphin pulse. > > If you have the switch on all the time, you will run out of juice. > > > > Yash > > > > > Hello! > > > Sorry for my stupid question, but I still don't know > > > Is it better to take LDN every night or should i take it > > > 10 nights, then 3 nights off ??? > > > I am so confused... > > > > > > Thank you! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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