Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 I first became interested in this group approx 8 months ago when there was only a handful of people posting. I don't know whether any ground-rules exist but we kind of agreed amongst ourselves that it was best if we stuck to the subject of LDN and our various experiences with it. As we were all fairly new to the drug there was a lot to be learned in terms of individuals' reactions to it and a lot of vital information was shared. How has this group managed to jump from being so supportive of each other to being so aggressive and attacking people both via the group emails and apparently by personal email? I appreciate that the various conditions that we are all living with can make us all very angry but can we not simply agree to disagree sometimes? I doubt if any of us are experts although I except that some appear to be more knowledgeable than others. LDN is still very much an unknown quantity and whether it gets trialed or not is besides the point - it is currently helping an awful lot of people and even if we don't see improvement we are hearing that progression has been halted. It would be wonderful if it were to be trialed and became readily available to all but I fear that scenario is probably some way into the future and the current discussions about whether the big 'pharmas', universities or research groups will take on the task is pointless unless someone is prepared to actually approach them and ask the question. In the meantime can we at least try and get this group back on track and stop the arguments - they are not helping anybody. No offence intended to anyone - let's be friends! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hi Sue, Thanks so much for your post, and I hope it puts a stop to all this bickering about the ABCRs and the possible LDN trials. I agree that an LDN trial for MS would be a positive thing to happen, but I don't believe that it is going to happen anytime soon. Love, Sally > I first became interested in this group approx 8 months ago when there was only a handful of people posting. I don't know whether any ground-rules exist but we kind of agreed amongst ourselves that it was best if we stuck to the subject of LDN and our various experiences with it. As we were all fairly new to the drug there was a lot to be learned in terms of individuals' reactions to it and a lot of vital information was shared. How has this group managed to jump from being so supportive of each other to being so aggressive and attacking people both via the group emails and apparently by personal email? I appreciate that the various conditions that we are all living with can make us all very angry but can we not simply agree to disagree sometimes? I doubt if any of us are experts although I except that some appear to be more knowledgeable than others. LDN is still very much an unknown quantity and whether it gets trialed or not is besides the point - it is currently helping an awful lot of people and even if we don't see improvement we are hearing that progression has been halted. It would be wonderful if it were to be trialed and became readily available to all but I fear that scenario is probably some way into the future and the current discussions about whether the big 'pharmas', universities or research groups will take on the task is pointless unless someone is prepared to actually approach them and ask the question. > > In the meantime can we at least try and get this group back on track and stop the arguments - they are not helping anybody. > > No offence intended to anyone - let's be friends! > > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Well said Sue I have been waiting patiently (or not) to put in my support of someone with a cool head on their shoulders,and I agree not just with you but also and others that try to calm the thread line. Why? Because if four months ago when Larry posted the "subversive" link to this site( I hope it was you) If I would have read all the disunity that I read now, I would have gone on my way, shrugged this off as misinformation, and would definetly be in a wheel chair full time now, and wearing attends.(shudder). Instead I only read good news and was surprised by a few(very few) negative posts, but I weighed all that was said and made up my mind to give ldn. a try.I , my family and brother and so many others around me with M.S. are on ldn.and glad I did. Now imagine what our world would be like if disharmony was this evident all the time? No doubt Pierre and Marie Curie would have had their disagrements,but did they advertise this? I am glad they didn't, Now I believe telling people to stop taking this drug or that, is not for us laymen to do.Each person can do their own research, I did. Has it been easy? No! But the benefits have far outweighed the drawbacks, As the lady said "Can't we all just get along?" Reg. -------Original Message------- From: Sue Goose Date: 01/20/04 11:51:02 low dose naltrexone Subject: [low dose naltrexone] Why the agression? I first became interested in this group approx 8 months ago when there was only a handful of people posting. I don't know whether any ground-rules exist but we kind of agreed amongst ourselves that it was best if we stuck to the subject of LDN and our various experiences with it. As we were all fairly new to the drug there was a lot to be learned in terms of individuals' reactions to it and a lot of vital information was shared. How has this group managed to jump from being so supportive of each other to being so aggressive and attacking people both via the group emails and apparently by personal email? I appreciate that the various conditions that we are all living with can make us all very angry but can we not simply agree to disagree sometimes? I doubt if any of us are experts although I except that some appear to be more knowledgeable than others. LDN is still very much an unknown quantity and whether it gets trialed or not is besides the point - it is currently helping an awful lot of people and even if we don't see improvement we are hearing that progression has been halted. It would be wonderful if it were to be trialed and became readily available to all but I fear that scenario is probably some way into the future and the current discussions about whether the big 'pharmas', universities or research groups will take on the task is pointless unless someone is prepared to actually approach them and ask the question. In the meantime can we at least try and get this group back on track and stop the arguments - they are not helping anybody. No offence intended to anyone - let's be friends! Sue Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.