Interferon an immunosuppressant? (Take 2)

[Guest guest]

Dearest Dimitrios,

Please forgive me. For some reason I felt like saying something about

myself to this group, since I value it very much. I don't have much to say

that reflects any real 'facts' about all this stuff, and I guess I didn't

understand that I had entered into an argument. I don't have a clue what

all these drugs really do, and I am sure that everyone reacts differently.

I am not taking a 'side,' and I am much to uninformed to " agree " about

immunity. In my pathetic attempt to share, all I wanted to say was that my

neurologist INSISTED that I stay on Avonex and then Rebiff long, long after

I told her that I was MISERABLE on them, and esp. Rebiff which caused big

time depression. So I have some anger at my neurologist about this, and so

spoke when I should have kept quiet.

My experience of LDN is positive. I know my restless legs stuff has

diminished. I know that my mental fatigue has diminished. I am gradually

becoming active in my life again, and I like what I am feeling. Much of it

I can't explain. I just " feel better. " I have RRMS, but I still walk and

talk, and on good days can 'pass' for normal. But I can't think well enough

to run my sewing machine, or plan what I would like to write (as plotting a

book for example). But as the days pass everything, thinking, and cooking,

and planning are becoming a little easier. That is what LDN is doing for

me.

Dimitrios, I believe that your approach has many fine qualities. You are a

person who is good at cutting through bullshit, and we need that very much

in these times, here and in the world in general. But as you are helping to

destroy ignorance, please temper your cutting through with compassion. I

know that I spoke without giving it real thought, but my qualities are not

like yours. I appreciate many things, including your intelligence, but I

continue to make mistakes of many kinds. Don't throw me away. I may not

know the science, or the rights and wrongs of drugs, etc., but I do know

about taking heart. And that is what I wish for everyone, that even in the

midst of conflict and letting the fools know that they are fools, we must

remember that we are all in the same boat. We all want to be well and

happy, and are searching for the way. May we be kind to one another. Each

in our own way we belong here. May everyone be happy. May everyone be free

from misery. May everyone have equanimity, free from hatred and attachment.

Love,

Lynda

----- Original Message -----

From: " Dimitrios " <dpoula1@...>

<low dose naltrexone >

Sent: Tuesday, January 20, 2004 11:30 AM

Subject: [low dose naltrexone] Interferon an immunosuppressant? (take 2)

> Look Lynda, you're not going to come on my thread and hijack my whole

> point. Just because you had side effects from interferons, like most

> people I might add, does not mean it " lowered " your immune system.

> Antknee originally wrote me to tell me that interferons lower

> immunity, now she wants to say that she was talking about her side

> effects and you " agree. "

>

> So I guess false alarm, huh? Pheww! For a minute there, I thought I

> was hearing something totally incorrect by the people we are trusting

> the most with our life. For a minute there I thought that Dr.

> Lawrence completely destroyed his credibility by referring to

> interferon as immunosuppressive, according to someone's post about

> their doctor visit with him. (Let us not forget the world famous

> metaphor of the candle and the water..whatever)

>

> Look people, I'm not saying LDN doesn't work and I'm not saying the

> side effects of the meds don't diminish quality of life. But,

> spreading falsehoods, and not admitting that you are spreading

> falsehoods (antknee and others), only hurts all of us in our quest to

> find out the truth about LDN. It hurts credibility. After

> credibility is damaged people tend to not want to listen anymore.

> e.g.-I am done ever having a conversation with antknee. You should

> have said, " I don't know for sure, but, it's been my experience that

> I have been more suspectible to colds AND BTW, I sure do hate those

> side effects. " But you didn't. When it comes to my ms, I like to

> live in the " no-spin " zone. So, in terms of offerring your input to

> me, you're out! Get it? Good!

>

> I just want the truth that we all should want. Right? If that

> statement is incorrect on the website, then it needs to be changed.

> The start of that change will be when we all stop " letting it

> slide. " This is a very serious disease. Right? Am I right? So,

> there should be no room for these incorrect statements being part of

> our " pledge of allegiance to LDN. "

>

> After we establish that it is wrong that interferon is

> immunosuppresive. Someone (someone with proper command of medical

> knowledge) should write, the website and ask them to re-evaluate

> whether interferon and LDN conteract one another. I'm not passing on

> disease modifying treatments until LDN is confirmed for efficacy.

>

> Oh, and some of you act like saying something about LDN is like

> saying something about your little cousin. LDN is some unconfirmed

> treatment that I am taking. If someone says something bad about it,

> I would like to hear rather than drown them out with the usual

> propaganda.

>

> > > > Interferon is used to treat mets (secondary tumours) from

> Kidney

> > > cancer, as

> > > > Kidney cancer is an immune system based cancer,

> > > > and is chemo resistant.

> > > > It is also my understanding that interferons are

> immunomodulators.

> > > > I didn't realise this was written on the LDN website.

> > > > Can someone tell me where it is written that Interferon is an

> > > > immunosuppressant, as I

> > > > can't seem to find it.

> > > > It really does damage credibility.

> > > > Could it be a typo? (I haven't read the context in which it

> is

> > > written).

> > > > Thanks

> > > > in Australia.

> > > >

> > > > ----- Original Message -----

> > > > From: " Bou " <lswillia@b...>

> > > > <low dose naltrexone >

> > > > Sent: Tuesday, January 20, 2004 2:38 PM

> > > > Subject: Re: [low dose naltrexone] Interferon an

> immunosuppressant?

> > > >

> > > >

> > > > > It is my understanding that the interferons are, as you say,

> > > > > immunomodulators. I, on the other hand, am on an

> > > immunosuppressant,

> > > > > Novantrone, as well as being on LDN.

> > > > >

> > > > > I do wish they'd change that immunosuppressant statement on

> the

> > > LDN site.

> > > > It

> > > > > does damage credibility. I've seen MSers elsewhere raise

> their

> > > eyebrows at

> > > > > that, and rightly so.

> > > > >

> > > > > Galoux

> > > > >

> > > > >

> >

> >

> >

> > --------------------------------------------------------------------

> ----------

> >

[Guest guest]

Look Lynda, you're not going to come on my thread and hijack my whole

point. Just because you had side effects from interferons, like most

people I might add, does not mean it " lowered " your immune system.

Antknee originally wrote me to tell me that interferons lower

immunity, now she wants to say that she was talking about her side

effects and you " agree. "

So I guess false alarm, huh? Pheww! For a minute there, I thought I

was hearing something totally incorrect by the people we are trusting

the most with our life. For a minute there I thought that Dr.

Lawrence completely destroyed his credibility by referring to

interferon as immunosuppressive, according to someone's post about

their doctor visit with him. (Let us not forget the world famous

metaphor of the candle and the water..whatever)

Look people, I'm not saying LDN doesn't work and I'm not saying the

side effects of the meds don't diminish quality of life. But,

spreading falsehoods, and not admitting that you are spreading

falsehoods (antknee and others), only hurts all of us in our quest to

find out the truth about LDN. It hurts credibility. After

credibility is damaged people tend to not want to listen anymore.

e.g.-I am done ever having a conversation with antknee. You should

have said, " I don't know for sure, but, it's been my experience that

I have been more suspectible to colds AND BTW, I sure do hate those

side effects. " But you didn't. When it comes to my ms, I like to

live in the " no-spin " zone. So, in terms of offering your input to

me, you're out! Get it? Good!

I just want the truth like we all should want. Right? If that

statement is incorrect on the website, then it needs to be changed.

The start of that change will be when we all stop " letting it

slide. " This is a very serious disease. Right? Am I right? So,

there should be no room for these incorrect statements being part of

our " pledge of allegiance to LDN. "

After we establish that it is wrong that interferon is

immunosuppresive, someone (someone with proper command of medical

knowledge) should write the website and ask them to re-evaluate

whether interferon and LDN conteract one another. I'm not passing on

disease modifying treatments until LDN is confirmed for efficacy.

Oh, and some of you act like saying something about LDN is like

saying something about your little cousin. LDN is some unconfirmed

treatment that I am taking. If someone says something bad about it,

I would like to hear it rather than drown them out with the usual

propaganda.

> > > Interferon is used to treat mets (secondary tumours) from

Kidney

> > cancer, as

> > > Kidney cancer is an immune system based cancer,

> > > and is chemo resistant.

> > > It is also my understanding that interferons are

immunomodulators.

> > > I didn't realise this was written on the LDN website.

> > > Can someone tell me where it is written that Interferon is an

> > > immunosuppressant, as I

> > > can't seem to find it.

> > > It really does damage credibility.

> > > Could it be a typo? (I haven't read the context in which it

is

> > written).

> > > Thanks

> > > in Australia.

> > >

> > > ----- Original Message -----

> > > From: " Bou " <lswillia@b...>

> > > <low dose naltrexone >

> > > Sent: Tuesday, January 20, 2004 2:38 PM

> > > Subject: Re: [low dose naltrexone] Interferon an

immunosuppressant?

> > >

> > >

> > > > It is my understanding that the interferons are, as you say,

> > > > immunomodulators. I, on the other hand, am on an

> > immunosuppressant,

> > > > Novantrone, as well as being on LDN.

> > > >

> > > > I do wish they'd change that immunosuppressant statement on

the

> > LDN site.

> > > It

> > > > does damage credibility. I've seen MSers elsewhere raise

their

> > eyebrows at

> > > > that, and rightly so.

> > > >

> > > > Galoux

> > > >

> > > >

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

Websters dictionary defines 'modulate' as, to adjust or regulate to

a certain proportion, esp:to soften or tone DOWN. Sounds like

suppression to me!