Re: Re: Interferon an immunosuppressant?

[Guest guest]

I agree. Both Avonex and Rebiff gave me symptoms that made life miserable. Copaxone is OK with my system, but I am going for LDN, almost 3 weeks now and very happy with results!.

Lynda

----- Original Message -----

From: Antknee

'Dimitrios' ; low dose naltrexone

Sent: Tuesday, January 20, 2004 8:55 AM

Subject: RE: [low dose naltrexone] Re: Interferon an immunosuppressant?

Perhaps I should have prefaced my comment with the fact that my PERSONAL experience with Avonex was one in which the side effects of the drug (fever and chills rendering me bedridden for up to 36 hours) were FAR more debilitating than ANY of my MS symptoms. Moreover, during the brief period on which I was on Avonex therapy, I was FAR more susceptible to colds than I had ever been in my life.

Regards,

A

From: Dimitrios [mailto:dpoula1@...] Sent: Tuesday, January 20, 2004 6:38 AMlow dose naltrexone Subject: [low dose naltrexone] Re: Interferon an immunosuppressant?

See, this is what I mean by credibility issue. You've always learned where that beta-interferon was an "immuunsurpressant?" Where else did you "learn" that only 10% of people with ms respond positively to interferon? Both statements are the typical propaganda-like statements that we tend to actually believe. I really hope that LDN does what it is claiming to do. I do get irritated when I read these kind of things though. > > Interferon is used to treat mets (secondary tumours) from Kidney > cancer, as> > Kidney cancer is an immune system based cancer,> > and is chemo resistant.> > It is also my understanding that interferons are immunomodulators.> > I didn't realise this was written on the LDN website.> > Can someone tell me where it is written that Interferon is an> > immunosuppressant, as I> > can't seem to find it.> > It really does damage credibility.> > Could it be a typo? (I haven't read the context in which it is > written).> > Thanks> > in Australia.> > > > ----- Original Message ----- > > From: "Bou" <lswillia@b...>> > <low dose naltrexone >> > Sent: Tuesday, January 20, 2004 2:38 PM> > Subject: Re: [low dose naltrexone] Interferon an immunosuppressant?> > > > > > > It is my understanding that the interferons are, as you say,> > > immunomodulators. I, on the other hand, am on an > immunosuppressant,> > > Novantrone, as well as being on LDN.> > >> > > I do wish they'd change that immunosuppressant statement on the > LDN site.> > It> > > does damage credibility. I've seen MSers elsewhere raise their > eyebrows at> > > that, and rightly so.> > >> > > Galoux> > >> > >

[Guest guest]

I just had an MRI last Thursday. the first one since last year. I have

been on LDN since June 3rd, 2003. There are absolutely no changes since my

last MRI. That tells me that there is no progression in my disease. Thank

God and Thanks to LDN

Marie

----- Original Message -----

From: " Dimitrios " <dpoula1@...>

<low dose naltrexone >

Sent: Tuesday, January 20, 2004 6:38 AM

Subject: [low dose naltrexone] Re: Interferon an immunosuppressant?

> See, this is what I mean by credibility issue. You've always learned

> where that beta-interferon was an " immuunsurpressant? " Where else

> did you " learn " that only 10% of people with ms respond positively to

> interferon?

>

> Both statements are the typical propaganda-like statements that we

> tend to actually believe. I really hope that LDN does what it is

> claiming to do. I do get irritated when I read these kind of things

> though.

>

>

>

> > > Interferon is used to treat mets (secondary tumours) from Kidney

> > cancer, as

> > > Kidney cancer is an immune system based cancer,

> > > and is chemo resistant.

> > > It is also my understanding that interferons are immunomodulators.

> > > I didn't realise this was written on the LDN website.

> > > Can someone tell me where it is written that Interferon is an

> > > immunosuppressant, as I

> > > can't seem to find it.

> > > It really does damage credibility.

> > > Could it be a typo? (I haven't read the context in which it is

> > written).

> > > Thanks

> > > in Australia.

> > >

> > > ----- Original Message -----

> > > From: " Bou " <lswillia@b...>

> > > <low dose naltrexone >

> > > Sent: Tuesday, January 20, 2004 2:38 PM

> > > Subject: Re: [low dose naltrexone] Interferon an immunosuppressant?

> > >

> > >

> > > > It is my understanding that the interferons are, as you say,

> > > > immunomodulators. I, on the other hand, am on an

> > immunosuppressant,

> > > > Novantrone, as well as being on LDN.

> > > >

> > > > I do wish they'd change that immunosuppressant statement on the

> > LDN site.

> > > It

> > > > does damage credibility. I've seen MSers elsewhere raise their

> > eyebrows at

> > > > that, and rightly so.

> > > >

> > > > Galoux

> > > >

> > > >

>

>

>

>

>

[Guest guest]

Perhaps I should have prefaced my comment with the fact that my PERSONAL experience with Avonex was one in which the side effects of the drug (fever and chills rendering me bedridden for up to 36 hours) were FAR more debilitating than ANY of my MS symptoms. Moreover, during the brief period on which I was on Avonex therapy, I was FAR more susceptible to colds than I had ever been in my life.

Regards,

A

From: Dimitrios [mailto:dpoula1@...] Sent: Tuesday, January 20, 2004 6:38 AMlow dose naltrexone Subject: [low dose naltrexone] Re: Interferon an immunosuppressant?

See, this is what I mean by credibility issue. You've always learned where that beta-interferon was an "immuunsurpressant?" Where else did you "learn" that only 10% of people with ms respond positively to interferon? Both statements are the typical propaganda-like statements that we tend to actually believe. I really hope that LDN does what it is claiming to do. I do get irritated when I read these kind of things though. > > Interferon is used to treat mets (secondary tumours) from Kidney > cancer, as> > Kidney cancer is an immune system based cancer,> > and is chemo resistant.> > It is also my understanding that interferons are immunomodulators.> > I didn't realise this was written on the LDN website.> > Can someone tell me where it is written that Interferon is an> > immunosuppressant, as I> > can't seem to find it.> > It really does damage credibility.> > Could it be a typo? (I haven't read the context in which it is > written).> > Thanks> > in Australia.> > > > ----- Original Message ----- > > From: "Bou" <lswillia@b...>> > <low dose naltrexone >> > Sent: Tuesday, January 20, 2004 2:38 PM> > Subject: Re: [low dose naltrexone] Interferon an immunosuppressant?> > > > > > > It is my understanding that the interferons are, as you say,> > > immunomodulators. I, on the other hand, am on an > immunosuppressant,> > > Novantrone, as well as being on LDN.> > >> > > I do wish they'd change that immunosuppressant statement on the > LDN site.> > It> > > does damage credibility. I've seen MSers elsewhere raise their > eyebrows at> > > that, and rightly so.> > >> > > Galoux> > >> > >

[Guest guest]

And I don't think anyone disagrees with that. Those are *well-known* side effects of A, B, and R. That's not the argument here. And yes, in many people with RRMS, those are more debilitating than the symptoms . . . at least the ones that a given RRMSer may have at that point in time. As for myself, someone who was not dx until SPMS had already set in and thus had no treatment, I'd have given my eyeteeth to be on Avonex. It's no fun, to be sure, to be bedridden for three days with flu-like symptoms--despite the fact that those symptoms usually pass away permanently after three to six months. I assure you that it is far less fun to wear a calf-length orthotic, have clubfoot as well as drop foot, optic neuritis attacks every couple of months, and have such arm/hand spasticity that you can barely put on a sweater or hold a spoon. And that's every day of my life, and likely always will be.

Galoux

Perhaps I should have prefaced my comment with the fact that my PERSONAL experience with Avonex was one in which the side effects of the drug (fever and chills rendering me bedridden for up to 36 hours) were FAR more debilitating than ANY of my MS symptoms. Moreover, during the brief period on which I was on Avonex therapy, I was FAR more susceptible to colds than I had ever been in my life.

Regards,

A

[Guest guest]

Hi Jen

I started the Dr. Roy Swank diet last May. then in July I had test and

found out that I was allergic to some foods. so I stayed away from them. I

also do excercise and supplements. I do have times when I cheat and don't

eat what I am suppose to but on the most part I am pretty rigid.

Marie

----- Original Message -----

From: " jendimas1 " <jdimas@...>

<low dose naltrexone >

Sent: Tuesday, January 20, 2004 8:48 AM

Subject: [low dose naltrexone] Re: Interferon an immunosuppressant?

> Marie,

> I am so happy for you!!

> Could you please tell me if LDN was the only thing that you did.

> Did you change your diet or take anything else?

> What dose of LDN do you use?

> Thanks

> Jen

>

>

>

>

>

[Guest guest]

Jen i forgot to tell you that i am on 4.5 mg of LDN

Marie

----- Original Message -----

From: " jendimas1 " <jdimas@...>

<low dose naltrexone >

Sent: Tuesday, January 20, 2004 8:48 AM

Subject: [low dose naltrexone] Re: Interferon an immunosuppressant?

> Marie,

> I am so happy for you!!

> Could you please tell me if LDN was the only thing that you did.

> Did you change your diet or take anything else?

> What dose of LDN do you use?

> Thanks

> Jen

>

>

>

>

>