Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Thanks for the info I wish I knew about the meeting earlier though, but only found out from your post on thursday which was too late for me to plan as I'm down in Waterford and had other plans for Friday already arranged. I actually was on the phone to MS Ireland in Dublin on Thursday asking them for information on any advances on LDN in Ireland and I was furious as they knew very little and I ended up informing them as much as I know. MS Ireland are pretty crap I've realised the last year and most MS Societies are as they are not allowed to mention any therapies or drugs that individuals find helpful that aren't already proven in trials. This drives me mad !!!! When I realised how biased MS Societies were around a year ago I turned to the MSRC which are far better. Their site is better than any society for information on all therapies and research and it's all done by people with MS themselves. Drug companies do not sponsor this site unlike MS Societies ! Dr. Bob Lawrence has some articles there on LDN and Diet. Message: 19 Date: Sat, 17 Jan 2004 00:04:31 -0000 From: "mboylebradley" <mboylebradley@...>Subject: Irish LDN ConferenceJudging from preliminary reports the LDN Conference in Galway was a huge success. Joyce I believe gave the talk of his life! He played a blinder. Most of my family and friends attended and were literally over whelmed by his speech. n Quinn could not attend but Lorna and Terry McDevitt flew from Scotland to contribute and were a huge asset. The conference room spilled out to the hallway and I believe most signed the petition. It is safe to say that 'The West is Awake!'. I am pumped! My Multiple Sclerosis Page Messenger - Communicate instantly..."Ping" your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Hi ... I understand your frustration and am delighted you took the time to educate on LDN. Don't give up on MS Ireland though. There are many wonderful people working hard there to figure out LDN and until they do they are being responsible with their advice. Chris from MS Dublin is up to speed. Many from the MS societies in Ireland actually have MS or a loved one with it ... they have a vested interest and are searching for the truth within the limits of the drug companies they rely on for funding. To be honest I really don't think those limits apply to those directly affected. They are all very keen on a trial. All the Best --- In low dose naltrexone , <@y...> wrote: > Thanks for the info I wish I knew about the meeting earlier though, but only found out from your post on thursday which was too late for me to plan as I'm down in Waterford and had other plans for Friday already arranged. > > I actually was on the phone to MS Ireland in Dublin on Thursday asking them for information on any advances on LDN in Ireland and I was furious as they knew very little and I ended up informing them as much as I know. > > MS Ireland are pretty crap I've realised the last year and most MS Societies are as they are not allowed to mention any therapies or drugs that individuals find helpful that aren't already proven in trials. This drives me mad !!!! > > When I realised how biased MS Societies were around a year ago I turned to the MSRC which are far better. Their site is better than any society for information on all therapies and research and it's all done by people with MS themselves. Drug companies do not sponsor this site unlike MS Societies ! Dr. Bob Lawrence has some articles there on LDN and Diet. > > > > Message: 19 > Date: Sat, 17 Jan 2004 00:04:31 -0000 > From: " mboylebradley " > <mboylebradley@v...> > Subject: Irish LDN Conference > > Judging from preliminary reports the LDN > Conference in Galway was a > huge success. Joyce I believe gave the > talk of his life! He > played a blinder. Most of my family and friends > attended and were > literally over whelmed by his speech. n > Quinn could not attend > but Lorna and Terry McDevitt flew from Scotland > to contribute and > were a huge asset. The conference room spilled > out to the hallway and > I believe most signed the petition. It is safe to > say that 'The West > is Awake!'. I am pumped! > > > > > > > > > > My Multiple Sclerosis Page > > > > > > > > > > --------------------------------- > Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
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