Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Bravo Galoux !!!!!!!!!!!! ----- Original Message ----- From: Bou low dose naltrexone Sent: Friday, January 09, 2004 10:53 AM Subject: Re: [low dose naltrexone] Unbelievable.... I agree that this is a group interested in sharing info about LDN. I do not agree that positive reinforcement is necessary. And who are you, Joyce, to state that we as a group do not feel a need for clinical studies? Can you speak for every member of this group? Or even the majority? I'm an LDN user, and I would like to see those studies. As to why they haven't been conducted, no, we don't in fact all know why they haven't. We know why the drug companies don't--that's pretty obvious--but we don't know why universities, med schools, and independent researchers have not. I don't see how you can defend talking about Aspartame here--particularly making blanket warnings that haven't been proven or disproven--and yet take to task for making comments pertaining to LDN. That's what the group is about, after all--exchange of information on LDN. She isn't here to slam anyone or ridicule it or tell people not to take it. Would you also have people not post that they aren't seeing any effects or benefits? Or that they may have unpleasant side effects? This group should be for the free exchange of information and questions about LDN, as far as I understand the group. I don't see that a member should be told to keep her ideas to herself if they aren't in praise of it. Who is the moderator of this list, or does it have one? Perhaps the moderator can clear up this question of who can post what. If we can't speak freely about LDN and our own experiences, good or bad, praising or doubtful, then I'm unsubscribing. Galoux Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 I agree that this is a group interested in sharing info about LDN. I do not agree that positive reinforcement is necessary. And who are you, Joyce, to state that we as a group do not feel a need for clinical studies? Can you speak for every member of this group? Or even the majority? I'm an LDN user, and I would like to see those studies. As to why they haven't been conducted, no, we don't in fact all know why they haven't. We know why the drug companies don't--that's pretty obvious--but we don't know why universities, med schools, and independent researchers have not. I don't see how you can defend talking about Aspartame here--particularly making blanket warnings that haven't been proven or disproven--and yet take to task for making comments pertaining to LDN. That's what the group is about, after all--exchange of information on LDN. She isn't here to slam anyone or ridicule it or tell people not to take it. Would you also have people not post that they aren't seeing any effects or benefits? Or that they may have unpleasant side effects? This group should be for the free exchange of information and questions about LDN, as far as I understand the group. I don't see that a member should be told to keep her ideas to herself if they aren't in praise of it. Who is the moderator of this list, or does it have one? Perhaps the moderator can clear up this question of who can post what. If we can't speak freely about LDN and our own experiences, good or bad, praising or doubtful, then I'm unsubscribing. Galoux Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 I have a problem with anyone personally emailing me without my permission maybe we can make a group rule not to do this without asking a person first?? From: son [mailto:mommyv3@...] Sent: Thursday, January 08, 2004 10:45 PM 'pete/lisa'; low dose naltrexone Subject: RE: [low dose naltrexone] Unbelievable.... Yes thank you Galouz. I’ve gotten quite a bit of very rude and nasty emails from people on this group about the aspeteme thing. I came here to learn about LDN. Not just for myself but for those who ask me about it. I had hoped to hear more about LDN and was shocked when a few people privately emailed me with some very harsh comments. son Owner/ operator Friends with MS.com or join our email newsgroup: FriendsWithMS/ -----Original Message----- From: pete/lisa [mailto:petelisa@...] Sent: Thursday, January 08, 2004 3:44 PM low dose naltrexone Subject: Re: [low dose naltrexone] Unbelievable.... Bravo Galoux !!!!!!!!!!!! ----- Original Message ----- From: Bou low dose naltrexone@groupscom Sent: Friday, January 09, 2004 10:53 AM Subject: Re: [low dose naltrexone] Unbelievable.... I agree that this is a group interested in sharing info about LDN. I do not agree that positive reinforcement is necessary. And who are you, Joyce, to state that we as a group do not feel a need for clinical studies? Can you speak for every member of this group? Or even the majority? I'm an LDN user, and I would like to see those studies. As to why they haven't been conducted, no, we don't in fact all know why they haven't. We know why the drug companies don't--that's pretty obvious--but we don't know why universities, med schools, and independent researchers have not. I don't see how you can defend talking about Aspartame here--particularly making blanket warnings that haven't been proven or disproven--and yet take to task for making comments pertaining to LDN. That's what the group is about, after all--exchange of information on LDN. She isn't here to slam anyone or ridicule it or tell people not to take it. Would you also have people not post that they aren't seeing any effects or benefits? Or that they may have unpleasant side effects? This group should be for the free exchange of information and questions about LDN, as far as I understand the group. I don't see that a member should be told to keep her ideas to herself if they aren't in praise of it. Who is the moderator of this list, or does it have one? Perhaps the moderator can clear up this question of who can post what. If we can't speak freely about LDN and our own experiences, good or bad, praising or doubtful, then I'm unsubscribing. Galoux Groups Links · To visit your group on the web, go to: low dose naltrexone/ · To unsubscribe from this group, send an email to: low dose naltrexone-unsubscribe · Your use of is subject to the Terms of Service. Groups Links · To visit your group on the web, go to: low dose naltrexone/ · To unsubscribe from this group, send an email to: low dose naltrexone-unsubscribe · Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Yes thank you Galouz. I’ve gotten quite a bit of very rude and nasty emails from people on this group about the aspeteme thing. I came here to learn about LDN. Not just for myself but for those who ask me about it. I had hoped to hear more about LDN and was shocked when a few people privately emailed me with some very harsh comments. son Owner/ operator Friends with MS.com or join our email newsgroup: FriendsWithMS/ -----Original Message----- From: pete/lisa [mailto:petelisa@...] Sent: Thursday, January 08, 2004 3:44 PM To: low dose naltrexone Subject: Re: [low dose naltrexone] Unbelievable.... Bravo Galoux !!!!!!!!!!!! ----- Original Message ----- From: Bou low dose naltrexone Sent: Friday, January 09, 2004 10:53 AM Subject: Re: [low dose naltrexone] Unbelievable.... I agree that this is a group interested in sharing info about LDN. I do not agree that positive reinforcement is necessary. And who are you, Joyce, to state that we as a group do not feel a need for clinical studies? Can you speak for every member of this group? Or even the majority? I'm an LDN user, and I would like to see those studies. As to why they haven't been conducted, no, we don't in fact all know why they haven't. We know why the drug companies don't--that's pretty obvious--but we don't know why universities, med schools, and independent researchers have not. I don't see how you can defend talking about Aspartame here--particularly making blanket warnings that haven't been proven or disproven--and yet take to task for making comments pertaining to LDN. That's what the group is about, after all--exchange of information on LDN. She isn't here to slam anyone or ridicule it or tell people not to take it. Would you also have people not post that they aren't seeing any effects or benefits? Or that they may have unpleasant side effects? This group should be for the free exchange of information and questions about LDN, as far as I understand the group. I don't see that a member should be told to keep her ideas to herself if they aren't in praise of it. Who is the moderator of this list, or does it have one? Perhaps the moderator can clear up this question of who can post what. If we can't speak freely about LDN and our own experiences, good or bad, praising or doubtful, then I'm unsubscribing. Galoux Groups Links · To visit your group on the web, go to: low dose naltrexone/ · To unsubscribe from this group, send an email to: low dose naltrexone-unsubscribe · Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 On Thu, 8 Jan 2004 19:48:31 -0500, you wrote: >I have a problem with anyone personally emailing me without my permission >maybe we can make a group rule not to do this without asking a person >first?? > The problem is that the group is set up so that replies go to the individual rather than the group. I have never seen another group that is set up this way. IMO it is a stupid way to run a group. No amount of group rules will change the settings. Only the group owner can do that. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Well with over 700 members I can understand that though… I just wish people wouldn’t go off on me in personal emails… And sometimes good points get brought up after an original post to group starts something… so this is a sticky wicket to deal with… Does anyone know how many posts there would be if they did change things??? From: steve@... [mailto:steve@...] Sent: Tuesday, January 13, 2004 5:11 AM low dose naltrexone Subject: Re: [low dose naltrexone] Unbelievable.... On Thu, 8 Jan 2004 19:48:31 -0500, you wrote: >I have a problem with anyone personally emailing me without my permission >maybe we can make a group rule not to do this without asking a person >first?? > The problem is that the group is set up so that replies go to the individual rather than the group. I have never seen another group that is set up this way. IMO it is a stupid way to run a group. No amount of group rules will change the settings. Only the group owner can do that. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 You know, I continually read about someone not believing something because they haven't seen any "study" or "research" on it. I believe you have to be able to use reason and logic to interpret the degree of accuracy and unbiased opinions used in the "research" or "study". As an Engineer, I have done research and studies on various subjects over the years and have come to one conclusion. That is, "That figures don't lie but, liars figure." When I read a research paper, I want to know if it is "controlled research." In other words, who is "controlling" the research. I then know what bias is involved and how much fact I may be able to derive from it. Noland ----- Original Message ----- From: wkendz 32 mommyv3@... Cc: low dose naltrexone Sent: Thursday, January 08, 2004 2:29 PM Subject: [low dose naltrexone] Unbelievable.... Ok ...if you are not interested in trying the LDN please do not come in here making those comments about it not being studied. We all know that it has not been studied and we all certainly know why. This is a group that is interested in sharing info about LDN and positive reinforcement is quite necessary. Please keep those comments to yourself. We as a group do not feel the need for any clinical studies that may never come to tell us that it works. We don't need those negative comments. Oh and there is nothing wrong with hearing about Aspertame. Not everyone knows that this could be dangerous especially if you have MS. No one really knows at this point so nothing wrong with the warning. Please keep those negative comments to yourself...I know this will be hard for you but please do us that favor. JoyceF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Much of the research in places like the New England of Medicine is fraudulently placed there by the big pharmacy companies! B. ----- Original Message ----- From: Noland R. Durnell, P.E. low dose naltrexone Sent: Monday, January 19, 2004 4:29 PM Subject: Re: [low dose naltrexone] Unbelievable.... You know, I continually read about someone not believing something because they haven't seen any "study" or "research" on it. I believe you have to be able to use reason and logic to interpret the degree of accuracy and unbiased opinions used in the "research" or "study". As an Engineer, I have done research and studies on various subjects over the years and have come to one conclusion. That is, "That figures don't lie but, liars figure." When I read a research paper, I want to know if it is "controlled research." In other words, who is "controlling" the research. I then know what bias is involved and how much fact I may be able to derive from it. Noland ----- Original Message ----- From: wkendz 32 mommyv3@... Cc: low dose naltrexone Sent: Thursday, January 08, 2004 2:29 PM Subject: [low dose naltrexone] Unbelievable.... Ok ...if you are not interested in trying the LDN please do not come in here making those comments about it not being studied. We all know that it has not been studied and we all certainly know why. This is a group that is interested in sharing info about LDN and positive reinforcement is quite necessary. Please keep those comments to yourself. We as a group do not feel the need for any clinical studies that may never come to tell us that it works. We don't need those negative comments. Oh and there is nothing wrong with hearing about Aspertame. Not everyone knows that this could be dangerous especially if you have MS. No one really knows at this point so nothing wrong with the warning. Please keep those negative comments to yourself...I know this will be hard for you but please do us that favor. JoyceF Quote Link to comment Share on other sites More sharing options...
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