LDN, neurologists, MS & Thyroid

[Guest guest]

How's that for a combination of topics?

I received a diagnosis of MS in Fall 2003. The local MS clinic wants me

on one of the ABC drugs. For a variety of reasons (I'm not convinced

they don't do more harm than good, I also have a needle phobia), I

don't think that's a good idea. I want to try Low Dose Naltrexone. I

asked my neurologist about it. (he isn't associated with the MS

clinic). He hadn't heard of it. I gave him print outs from

http://www.low dose naltrexone.org/ he is going to do some of his own

research & then talk about prescribing it. He wasn't comfortable

writing a prescription for something he knew nothing about.

Does anyone have any additional pointers for info that might be helpful

for me to give to my neurologist?

Then the extra complication is my thyroid. My brother had thyroid

cancer 13 years ago. He had it removed & he's been fine ever since.

With all of the MRIs I had with diagnosing the MS, they found a lump in

my throat that turned out to be thyroid cancer. I had it removed in

December. Now I'm on thyroid replacement.

I know this is all part of the endocrine system which affects the

immune system which is what LDN is supposed to help.

Is there anyone on this list who is taking LDN with either thyroid

problems or no thyroid? I'm wondering about any potential interaction

between LDN & the thyroid replacement. I see my endocrinologist next

week & I'll ask him the same thing.

[Guest guest]

Hi ,

> I received a diagnosis of MS in Fall 2003. The local MS clinic wants me

> on one of the ABC drugs. For a variety of reasons (I'm not convinced

> they don't do more harm than good, I also have a needle phobia), I

Me too (needle phobia), and I've been fighting my neurologist for

years about the abc drugs.. I refuse to take them because I'm not

convinced they would do me any good at all.

> don't think that's a good idea. I want to try Low Dose Naltrexone. I

Good I've been taking it since August with good results

> Does anyone have any additional pointers for info that might be helpful

> for me to give to my neurologist?

Not really, but good luck with that. I ended up calling Dr. Bihari

in NYC for my prescription.. my sister in California did the same,

and the pharmacy in NY mails the drug to her just like they do for me

here in upstate NY.

> Is there anyone on this list who is taking LDN with either thyroid

> problems or no thyroid? I'm wondering about any potential interaction

> between LDN & the thyroid replacement. I see my endocrinologist next

> week & I'll ask him the same thing.

I take Levoxyl for low thyroid, and Dr. Bihari told me that was no

problem.

Take care,

Janis

[Guest guest]

I have been on shythroid for over a year (before they found the MS) and we are considering stopping it, my Doc thinks that the symptoms of thyroid trouble may have been MS so more testing and we will see.

Anyone else have treatment and diagnosed disorders that turned oout to be MS?

Blessings,

Zil

[Guest guest]

I too have seen a Dr. about my back spasms, they would stop all my bending or twisting while at work. Most people that hadn't known me for years thought I was a hypochondriac or to say the least lazy. I found spasm halt at the grocery store ( I think it's a generic Robaxacet) and it worked as well as any expensive drug. My homeopathic practitioner claims that ever since two years after the Chernobyl nuclear accident most peoples thyroids are not working up to par and those of us with a compromised imunne (sp)system should get our thyroids reactivated. Since starting ldn. I have not had any spasms in my back but I still have tonic spasticity in my left leg, especially when I get up after sitting and try to move too fast, this would be a little faster than a turtle crawling on a cold day. Reg.

-------Original Message-------

From: low dose naltrexone

Date: 02/05/04 07:16:07

low dose naltrexone

Subject: Re: [low dose naltrexone] Re: LDN, neurologists, MS & Thyroid

I have been on shythroid for over a year (before they found the MS) and we are considering stopping it, my Doc thinks that the symptoms of thyroid trouble may have been MS so more testing and we will see.

Anyone else have treatment and diagnosed disorders that turned oout to be MS?

Blessings,

Zil

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Zill my first MS attack was put on scoliosis… which

my doctors now say I don’t even have! LOL

From: zillba@...

[mailto:zillba@...]

Sent: Thursday, February 05, 2004

9:02 AM

To:

low dose naltrexone

Subject: Re: [low dose naltrexone]

Re: LDN, neurologists, MS & Thyroid

I have been

on shythroid for over a year (before they found the MS) and we are considering

stopping it, my Doc thinks that the symptoms of thyroid trouble may have been

MS so more testing and we will see.

Anyone else

have treatment and diagnosed disorders that turned oout to be MS?

Blessings,

Zil

[Guest guest]

Janis -------DO IT, and if you have half the healing I have had, it will

be worth it.

Lynda

----- Original Message -----

From: " jmklou " <janis@...>

> Hi Lynda,

>

>

> I think that's great.. I don't feel like the levoxyl is helping me

> much.. I still have incredible depression most of the time. If it

> weren't for my husband, I'd probably hide under the rug most days

> <grin>. I think I will check out the holistic doc after all.. it

> sounds very interesting!

>

> Take care,

> Janis

>

>

>

>

>

>

>

>

[Guest guest]

Yash,

My Dr. substituted Armour Thyroid (definitely a prescription item, but a

BETTER QUALITY) for Levoxyl. That is all. That I also take an adrenal

cortex compound is beside the point. There is NO OVER THE COUNTER THYROID

MEDS being discussed here.

Lynda

----- Original Message -----

From: " yashagrawal " <yashagrawal@...>

<low dose naltrexone >

Sent: Saturday, February 07, 2004 8:01 AM

Subject: [low dose naltrexone] Re: LDN, neurologists, MS & Thyroid

> I have not followed the full discussion, so I may be completely

> offbase here.., in anycase as I see it, there is no justification to

> taking over the counter thyroid meds as replacement for

> levothyroxine. The potential for harm, is just too high.

>

> Yash

>

> > > Re: Thyroid. I have been taking Levoxyl for low thyroid for

> about 3

> > >years. The holistic doctor that I consulted (who helped me start

> LDN

> >

> > That's interesting The holistic doctor, I mean.. my daughter

> has

> > been bugging me to go to one for ages <grin>

> >

> > >on Jan 1st) also said that Levoxyl has only one thyroid component

> (I

> > >don't know what this all means, but I believe it) so that the

> drug

> > >company can patent it, and he gave me a scrip for Armour Thyroid,

> and

> > > recommended that I supplement with a non prescription Adrenal

> Cortex

> > >which I have been doing. I started the LDN before the thyroid

> stuff,

> > >so I know what a fantastic help that has been, but the new

> thyroid

> > >mix has also given me new energy and helped me feel like a normal

> > >person. I take both and am doing very, very well.

> >

> > I think that's great.. I don't feel like the levoxyl is helping me

> > much.. I still have incredible depression most of the time. If it

> > weren't for my husband, I'd probably hide under the rug most days

> > <grin>. I think I will check out the holistic doc after all.. it

> > sounds very interesting!

> >

> > Take care,

> > Janis

>

>

>

>

>

>

[Guest guest]

Yash,

My Dr. substituted Armour Thyroid (definitely a prescription item, but a

BETTER QUALITY) for Levoxyl. That is all. That I also take an adrenal

cortex compound is beside the point. There is NO OVER THE COUNTER THYROID

MEDS being discussed here.

Lynda

----- Original Message -----

From: " yashagrawal " <yashagrawal@...>

<low dose naltrexone >

Sent: Saturday, February 07, 2004 8:01 AM

Subject: [low dose naltrexone] Re: LDN, neurologists, MS & Thyroid

> I have not followed the full discussion, so I may be completely

> offbase here.., in anycase as I see it, there is no justification to

> taking over the counter thyroid meds as replacement for

> levothyroxine. The potential for harm, is just too high.

>

> Yash

> " Lynda Phelps "

wrote:

> > > Re: Thyroid. I have been taking Levoxyl for low thyroid for

> about 3

> > >years. The holistic doctor that I consulted (who helped me start

> LDN

> >

> >

> > >on Jan 1st) also said that Levoxyl has only one thyroid component

> (I

> > >don't know what this all means, but I believe it) so that the

> drug

> > >company can patent it, and he gave me a scrip for Armour Thyroid,

> and

> > > recommended that I supplement with a non prescription Adrenal

> Cortex

> > >which I have been doing. I started the LDN before the thyroid

> stuff,

> > >so I know what a fantastic help that has been, but the new

> thyroid

> > >mix has also given me new energy and helped me feel like a normal

> > >person. I take both and am doing very, very well.

> >

> > I think that's great.. I don't feel like the levoxyl is helping me

> > much.. I still have incredible depression most of the time. If it

> > weren't for my husband, I'd probably hide under the rug most days

> > <grin>. I think I will check out the holistic doc after all.. it

> > sounds very interesting!

> >

> > Take care,

> > Janis

>

>

>

>

>

>

[Guest guest]

Hi Ann,

> Hi Janis, My name is MNary nd I have a thyroid problem and I'm

on a thyroid medicine symmatrel is the name of it and I am also on LDN

and my doctor is suppose to do a blood test on me next week when I go

back to him so we'll see how it comes out. Good luck to you. Ann

I've taken symmatrel, but that's the name of non-generic Amantadine,

right? It's normally used to fight the flu, and for Parkinson's and

MS patients, as well. Is that the same one you mean?

Anyway, I hope all goes well with your blood test

Take care,

Janis

[Guest guest]

Hi Lynda,

> Re: Thyroid. I have been taking Levoxyl for low thyroid for about 3

>years. The holistic doctor that I consulted (who helped me start LDN

That's interesting The holistic doctor, I mean.. my daughter has

been bugging me to go to one for ages <grin>

>on Jan 1st) also said that Levoxyl has only one thyroid component (I

>don't know what this all means, but I believe it) so that the drug

>company can patent it, and he gave me a scrip for Armour Thyroid, and

> recommended that I supplement with a non prescription Adrenal Cortex

>which I have been doing. I started the LDN before the thyroid stuff,

>so I know what a fantastic help that has been, but the new thyroid

>mix has also given me new energy and helped me feel like a normal

>person. I take both and am doing very, very well.

I think that's great.. I don't feel like the levoxyl is helping me

much.. I still have incredible depression most of the time. If it

weren't for my husband, I'd probably hide under the rug most days

<grin>. I think I will check out the holistic doc after all.. it

sounds very interesting!

Take care,

Janis

[Guest guest]

I have not followed the full discussion, so I may be completely

offbase here.., in anycase as I see it, there is no justification to

taking over the counter thyroid meds as replacement for

levothyroxine. The potential for harm, is just too high.

Yash

> > Re: Thyroid. I have been taking Levoxyl for low thyroid for

about 3

> >years. The holistic doctor that I consulted (who helped me start

LDN

>

> That's interesting The holistic doctor, I mean.. my daughter

has

> been bugging me to go to one for ages <grin>

>

> >on Jan 1st) also said that Levoxyl has only one thyroid component

(I

> >don't know what this all means, but I believe it) so that the

drug

> >company can patent it, and he gave me a scrip for Armour Thyroid,

and

> > recommended that I supplement with a non prescription Adrenal

Cortex

> >which I have been doing. I started the LDN before the thyroid

stuff,

> >so I know what a fantastic help that has been, but the new

thyroid

> >mix has also given me new energy and helped me feel like a normal

> >person. I take both and am doing very, very well.

>

> I think that's great.. I don't feel like the levoxyl is helping me

> much.. I still have incredible depression most of the time. If it

> weren't for my husband, I'd probably hide under the rug most days

> <grin>. I think I will check out the holistic doc after all.. it

> sounds very interesting!

>

> Take care,

> Janis

[Guest guest]

Hi Lynda,

> Janis -------DO IT, and if you have half the healing I have had,

it will

> be worth it.

True I'll let you know how it turns out.. Now I'm definitely

encouraged <grin>

Take care,

Janis

>

> Lynda

> ----- Original Message -----

> From: " jmklou " <janis@f...>

>

> > Hi Lynda,

> >

> >

> > I think that's great.. I don't feel like the levoxyl is helping me

> > much.. I still have incredible depression most of the time. If it

> > weren't for my husband, I'd probably hide under the rug most days

> > <grin>. I think I will check out the holistic doc after all.. it

> > sounds very interesting!

> >

> > Take care,

> > Janis

> >

> >

> >

> >

> >

> >

> >

> >