Re: Need to hear good MS stories

[Guest guest]

Bill-

I know the first year of the DX is very tough. It has been over 4 years for

me now, and I still have a hard time accepting this. I really feel the LDN

has stopped my progression. Unfortunately I only started a few months ago

and am dealing with weak and painful legs and feet. I am trying

acupuncture, herbs and IVIG. All I can say is that it is great that the you

found out about LDN so soon. Stay with it and I am sure you can have that

musical career you are working on. I hope to see you on some music awards

show someday.

Stay positive and don't lose hope. That's half the battle!

low dose naltrexone wrote:

> There is 1 message in this issue.

>

> Topics in this digest:

>

> 1. Need to hear your good MS (and others too!) stories on LDN...

> From: Bill Meikle <bcmeikle@...>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 1

> Date: Wed, 14 Jan 2004 22:06:49 -0800

> From: Bill Meikle <bcmeikle@...>

> Subject: Need to hear your good MS (and others too!) stories on LDN...

>

> > Hey guys. I've been having a bad day as far as my mental well being

> > goes. I'm on LDN for a week now and the Swank Diet, and I'm pretty

> > unaffected so far physically (had an attack that put my left arm

> > outta commision that is resolving itself well about 3 months ago),

> > but was just dx'd two months ago with RR at 28. I'm doing my best

> > to suck it up, but I've just been blindsided by this, no fam history

> > of any autoimmune disease at all, very active, yada yada....

> >

> > I am a guitarist and singer who was (still is? ) on my way to a

> > promising career. It's not who I am, but I certainly love it and

> > consider myself lucky to have found my passion in life.

> >

> > I need to hear some positive stories from all of you. I think we

> > should make this a group not only to share ideas and information

> > but, first and foremost, try and foster a real positive

> > environment. Not to say we're not, but the successes need to be

> > heard, and often. Just my 2 cents on that.

> >

> > But I DO need to hear the good word out there. I'm an only child

> > and I have two very loving parents who would give the world for me;

> > I'm very fortunate in that respect. I do my best to be positive,

> > but somedays ya have a hard time doing that, and it can take its

> > toll on those around you. Today felt like one of those days for me.

> >

> > Sorry to give this the MS support group slant, I know that chafes

> > some of you. I do like to hear what else is being helped out

> > there. I've already sent LDN info to people who have friends or

> > family dealing with Crohn's and Wengner's.

> Hey.

>

> I made a page of reading on LDN

>

> http://www.vrhotwires.com/Bill_Meikle/MS/LDNandMS.html

>

> I made an MS site.

>

> http://www.vrhotwires.com/ms.html

>

> I play music.

> http://www.vrhotwires.com/Bill_Meikle/music/music.html

>

> when I was in my 20's I played in a band in canada that had a gold

> record and won a juno called idle eyes.

> Now I'm over 40 and have MS. Bummer.

>

> 2 summers ago My fingers would go limp and I couldn't play. So I

> started playing again after

> at least a decade. Now I haven't experienced that power loss in

> months...

>

> LDN might be an answer but reviving the neural pathways that are

> atrophying helps too.

>

> doo doo doo.

>

> --

> ********************

> Bill Meikle

>

> 'nice nice, very nice, so many different people in the same device'

> Kurt Vonnegut jr. -'Cat's Cradle'

>

> Check vrhotwires and nodemedia, qtvr authoring tools for the inquisitive

> qtvrtist... at http://www.vrhotwires.com

>

> subscribe to the vrhotwires/vrscript list:

> vrscripting/

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> ------------------------------------------------------------------------

>

[Guest guest]

Thanks guys. In response to the various questions, I just started

on the 3 mg dose a week ago with no problems so far. I had a

headache that seemed to last for a while but I think that was due to

something else. Sleep has been fine, but I was always a deep

sleeper.

I'm definitely curious about the 4.5mg and will probably try that

next month as I seem to have no problem with the 3. It sounds as

though that's the dosage at which people are seeing real

improvement. Aside from my arm which I can use for just about

everything but playing guitar, I get around fine and don't have any

weakness or fatigue. I'm a little heat sensitive and my eyes do

bother me a bit; not dizzy but a sensation of unreality, like I've

had about two beers or so; it's hard to describe. Thankfully I've

had enough practice in that state, so it's not a huge deal. But

it is aggravating and I'd like that to clear up.

I've combined the supplementation of the BBD with the guidelines of

the Swank diet; I really do like my dairy which I've switched to all

low/no fat. I'd go with the BBD all the way, but I think I'll get an

ELISA test first to see what I can keep. It seems all that's left

to eat on the BBD is grass, dirt and rice. I've heard they can

show false sensitivities as well which is a weakness of the test.

From all the reading I've done though it's apparent that diet is

very important and I will do my best to stick with it.

Keep 'em coming guys! I don't think I'm the only one here who's

happy to hear the success stories. I've got docs who are watching

me too; I may be the only patient they have on this. Let's give 'em

something to talk about!