Re: curious--why make your own?

[Guest guest]

To be honest it comes down to a control issue for me much more so

than the cost. I think that making your own LDN is a simple process

(I am actually looking at my kids polly pocket gear as potential 28mg

vessels!) ... I also think that the potential effects of a 3

month 'bad batch' is scary. It is also nice not to be reliant on a

doctor for a script. However, I am speaking in theory as I still use

Irmats for my husband, uncle and mom, all of whom get their script

from Dr Bihari ... I am getting there though and like to know that if

I had to 'brew' my own ... I could.

> I have been seeing a lot of postings of people mixing their own

LDN.

> Just curious, why? Wouldn't you prefer to know that a pharm. is

> providing quality control? I am pretty committed to directing my

own

> healthcare, and I have certainly aggravated my mainstream docs, but

I

> would not mix my own drugs, whether they be cough syrup or chemo.

[Guest guest]

That is great! Until LDN is a proven therapy it is a good thing that

everyone knows how to make their own ... it is not a big deal!

> I would never make my own, not unless I absolutely had to. For one

thing, MS

> has wrecked havoc on my right hand, which is my dominant hand. And

even

> though my MS is spinal, and thus I do not have cognitive problems,

I'm no

> chemist.

>

> I look at it this way: I'm an editor, and I'm constantly bemoaning

the fact

> that companies--even news organizations--have obviously failed to

spend a

> few bucks to have a professional edit or rewrite their text. They

think

> they're reasonably literate and thus look good enough--but often

they aren't

> and they don't. I figure the same kind of scenario applies to

myself and my

> meds.

>

> Galoux

[Guest guest]

I would never make my own, not unless I absolutely had to. For one thing, MS

has wrecked havoc on my right hand, which is my dominant hand. And even

though my MS is spinal, and thus I do not have cognitive problems, I'm no

chemist.

I look at it this way: I'm an editor, and I'm constantly bemoaning the fact

that companies--even news organizations--have obviously failed to spend a

few bucks to have a professional edit or rewrite their text. They think

they're reasonably literate and thus look good enough--but often they aren't

and they don't. I figure the same kind of scenario applies to myself and my

meds.

Galoux

[Guest guest]

> That is great! Until LDN is a proven therapy it is a good thing that

> everyone knows how to make their own ... it is not a big deal!

The thing is, , people here keep kvetching that their neuro won't

prescribe--although many of them do; mine did. But this list is *always*

providing the phone numbers of neuros who *will* prescribe, with no lying

about an addiction required, and they'll prescribe in the low dosages

desired. Outside of saving a few bucks--and places like Skip's charge very

little, and even my compounding pharmacy here at $20 a month is undeniably

CHEAP, CHEAP, CHEAP--what's the point? I engage the services of

professionals in one field or another all the time. I take my car to a

mechanic. If I've got tree roots in the plumbing, I call Roto-Rooter. And I

have a pharmacist make up my meds.

Galoux

[Guest guest]

Sfmariposa some places do not know how and are unwilling

to learn how to do it. There is a member of my MS group on MSN that is in Brazil and she

very much wants to take LDN but can’t find a place that will make it. I have

sent her all the information from Goodshape and the posts from here so she can

see she has hope as I know ReVia Naltrexone in full dosage is available like

ReVia in North America. For her she lives in a

place where disability means death, they do not have a lot of money and her

Father tells her she will soon die she has no hope so in her situation making

her own is at least a chance and it’s one that seems to work for many who

have to do it.

From: sfmariposa1

[mailto:SFmariposa@...]

Sent: Thursday, January 29, 2004

8:06 PM

low dose naltrexone

Subject: [low dose naltrexone]

curious--why make your own?

I have been seeing a lot of postings of people

mixing their own LDN.

Just curious, why? Wouldn't you prefer to

know that a pharm. is

providing quality control? I am pretty committed

to directing my own

healthcare, and I have certainly aggravated

my mainstream docs, but I

would not mix my own drugs, whether they be

cough syrup or chemo.

[Guest guest]

I made my own because here in Holland, LDN is not approved. My

neurologidt is against the use of LDN. I'm stubbern and wanted to,

so I bought ReVia thru a friend in Spain. In Spain you can buy

whatever you want in the pharmacy. Here in Holland just simple stuff

like coughsyrup and paracetamol.

So there I was with 28 tabs of ReVia 50mg. What to do? My pharmacy

(you can only have one, no other will help), wasn't able to help

because its illegal for them.

No other solution then to make your own. TG I now found the only

physician in Holland who do prescribes. Yesterday I received 100

caps of ReVia 2,5mg (the right doseage for me) with lactose filling.

Finally!

Chey

> Sfmariposa some places do not know how and are unwilling to learn

how to do

> it. There is a member of my MS group on MSN that is in Brazil and

she very

> much wants to take LDN but can't find a place that will make it. I

have sent

> her all the information from Goodshape and the posts from here so

she can

> see she has hope as I know ReVia Naltrexone in full dosage is

available like

> ReVia in North America. For her she lives in a place where

disability means

> death, they do not have a lot of money and her Father tells her

she will

> soon die she has no hope so in her situation making her own is at

least a

> chance and it's one that seems to work for many who have to do it.

>

>

>

> _____

>

> From: sfmariposa1 [mailto:SFmariposa@a...]

> Sent: Thursday, January 29, 2004 8:06 PM

> low dose naltrexone

> Subject: [low dose naltrexone] curious--why make your own?

>

>

>

> * I have been seeing a lot of postings of people mixing their

own LDN.

>

> Just curious, why? Wouldn't you prefer to know that a pharm. is

> providing quality control? I am pretty committed to directing my

own

> healthcare, and I have certainly aggravated my mainstream docs,

but I

> would not mix my own drugs, whether they be cough syrup or chemo.