LDN and the A, B's and R's...

[Guest guest]

Hi Laurie,

You are very right when you say that we all just expressing our opinions

about these things. We are all kinda like a bunch of people in a sinking

boat trying to bail water I spose. My opinion is based on the finding of Dr.

Bihari who had been studying LDN and it's effects on certain things for some

15 years or so. He is the only one at this point that can truly say things

with any history to them...case histories. If he says that they would

counteract each other then I think we should all take that for what it is

worth. Not really sure what the other doctors could possibly be basing their

statements on. I understand exactly what you are saying about the fear of

something happening to you if you go off of your Rebif and only you can make

that choice. It surely is a leap of faith. As far as those others that are

taking the LDN concurrently with one of the AB & R. I really do hope that it

continues to help them but I would like to hear how they are doing a year

from now. To anyone who is reporting that they know of someone using this

type of therapy...please report back on their progress after say a few

months to a year. If we are to beleive the facts as they are presented by

Dr. Bihari, I suspect that the outcome will not be all that good. I think

you should do whatever you think is right for you......just be glad that you

at least have the facts and can make that decision based on the facts.

Others don't even have that option. Good luck to you and please let us know

how you make out. JoyceF

That's one of those opinion things I think, this is the same kind of

thing were trying to find out but all the Dr and pple are very spilt on

that. Without the studies we all want, no one is sure about if they

will counterreact each other, if fact as of now were not even sure that

LDN is accually gonna slow down MS, maybe it's just a symtom drug and

although you feel better now, 5, 10 years down the road it could stop

working and you could crash and burn, so to say. Without the studies

and accual scientific data with MRI's symtoms etc. no one can really be

sure about what is doing, I am glad they are starting studies on the LDN

in other counties now, and I'm hoping they will start them in the USA as

well.

I know several pple doing both LDN and one of the other meds, not

copaxine, that are improving and feeling better, walking better, losing

bladder problems, spastity etc. If the LDN is making the other med less

effective, but it is working, what's the harm, if it's not slowing down

the progression just managing symtoms better, then are you really better

off without the ab or r drugs too or does it really make a difference?

If they counterreact each other, then why are pple doing OK on both

drugs and feeling better? These are the questions we MS er's are

asking now, well some of us anyways.

I know, at 37 years old, as much as I want a cure and to feel better,

I would hate to think I went off my Rebif on the basis of what pple have

said w/o the accual data saying that it is proven to slow MS down. I

want the cure as much as everyone here(who has been affected by MS)!

This is the main reason I'm a part of this group, to gether useful info

and make some sort of educated disision on what I can do the keep

functioning and living a decent life. I got a long way to go as far as

life is concerned and would hate to do something to myself that may make

me any worse by the time I'm 50. I have faith in LDN and I want so

much to think it will help, but as to get off Rebif to do it is a pretty

scarey thought for me at this age.

GL to everyone,

Laurie aka Pets

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