Re: It has been a while

November 16, 2004

Hi Rosetta,

I am so sorry to hear that Dakota is having such a difficult time.

We were enjoying a nice flare-free periord ourselves for about 5

months. After such a long time of everything being normal you start

to get use to it and enjoy it. And then bam all familiar aches and

pains of jra resurface and there certainly is that time of sadness.

My daughter is also in a flare. Its been about a week now and I was

hoping that it was just related to the weather change and that she

would start to improve. So far she is just having more and more

joint pain.

I am going to call her doctor today and see if we might try

crutches. She is having severe knee, ankle and wrist pain. I

thought maybe if it would lessen some she could use crutches to get

around at school.

Well I hope things get better for Dakota soon. My youngest sister

just adopted a little boy a month ago. We have been praying that God

would bless her with a child for several years now. They named him

Dakota! :-)-

(Aundrea age 9 systemic)

-- In , " orwranglerbabe2002 "

<orwranglerbabe2002@y...> wrote:

>

> hello everyone it has been a while since we have posted and i

thought

> i might share some of our ups and downs . cody had been doing really

> well we thought that we might have this thing kicked in the butt .

but

> boy have we been wrong. he would have about four months that he

would

> do really well then have a flare then be better and flare again well

> he has had two bad flares and is having one right now in the last

four

> months . his fever has hit 105 once today and had been round 101 to

> 104 most of the day. he has slept most of his day . rhuemy says that

> we are going to try new meds now cause every time we have tried to

> come off the prelone he flares so we are going to have to try

> somethoing else/ i just about started crying as i left his regular

drs

> office i took him in hoping that he had a virus or some htat could

be

> treated and it would get better . i guess that is awful huh . doc

said

> tha he it wasnt anything he could find so that leaves us with inly

one

> thing left his jra. i think that i am over the shocked part and now

i

> am just getting angry how much more should he have to take . it is

> killing me to have to sit and watch and not to be able to do

anything

> .well enough about me . i hope that all that are feeling sown are

> feeling better and i will pray for you and those that arent i will

> pray that you stay that way

> thanks for listening

>

> rosetta (mom to Dakota 3 systemic)

November 16, 2004

-Rosetta,

I am sorry to read that Dakota is flaring right now. it seems that

an awful lot of our kids are, especially the systemic ones ((

I hope that Dakota starts to feel better really soon.

Hugs Helen and (7,systemic)

-- In , " orwranglerbabe2002 "

<orwranglerbabe2002@y...> wrote:

>

> hello everyone it has been a while since we have posted and i

thought

> i might share some of our ups and downs . cody had been doing

really

> well we thought that we might have this thing kicked in the butt .

but

> boy have we been wrong. he would have about four months that he

would

> do really well then have a flare then be better and flare again

well

> he has had two bad flares and is having one right now in the last

four

> months . his fever has hit 105 once today and had been round 101 to

> 104 most of the day. he has slept most of his day . rhuemy says

that

> we are going to try new meds now cause every time we have tried to

> come off the prelone he flares so we are going to have to try

> somethoing else/ i just about started crying as i left his regular

drs

> office i took him in hoping that he had a virus or some htat could

be

> treated and it would get better . i guess that is awful huh . doc

said

> tha he it wasnt anything he could find so that leaves us with inly

one

> thing left his jra. i think that i am over the shocked part and

now i

> am just getting angry how much more should he have to take . it is

> killing me to have to sit and watch and not to be able to do

anything

> .well enough about me . i hope that all that are feeling sown are

> feeling better and i will pray for you and those that arent i will

> pray that you stay that way

> thanks for listening

>

> rosetta (mom to Dakota 3 systemic)

September 3, 2008

What a cop-out on your doctor's part to say that to you. I had to

reply to this as I had the same q for my gynacologist a few months

ago. I've never had a problem with my weight until the past few years

when my thyroid started going low. I gave the blood tests to my gyno

and at that time hadn't seen an endo yet and hadn't gotten anyone to

say I was low enough for thyroid medicine (even though I was off the

low end of the test). His response to my weight question relating to

thyroid was " well you know the #1 reason why people gain weight in the

United States is?? It's from overeating.... " I thought to myself ...

and this QUACK calls himself a doctor??? If that's what he thinks that

I'm trying to overeat he clearly doesn't have a good understanding of

how the human body works at all.

Carol

>

> Hello,

> It has been a while since I have posted. With moving and then more

pain, I

> have not done much but read your posts.

> I do have a question please.

> I had my thyroid removed a few months ago. My family doctor said

don't worry

> about it no big deal, just take your meds,

> Well, I think it is a big deal. I have gained 30 pounds. Five years

ago I

> had stomach surgery and lost 112 pounds. I have not changed anything

in my life

> at all. And I have gained weight. My doctor said well calories is

what puts

> on the weight Norma. Thyroid has nothing to do with it.

> Anyone care to comment?

> Norma/Ohio

>

> **************It's only a deal if it's where you want to go. Find

your travel

> deal here.

> (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

>

September 3, 2008

My comment...Get a new doctor! Have you read the book Stop The Thyroid

Madness? You will find a lot of answer there. Or have you been to the

website of the same name?

Venizia

>

> Hello,

> It has been a while since I have posted. With moving and then more

pain, I

> have not done much but read your posts.

> I do have a question please.

> I had my thyroid removed a few months ago. My family doctor said

don't worry

> about it no big deal, just take your meds,

> Well, I think it is a big deal. I have gained 30 pounds. Five years

ago I

> had stomach surgery and lost 112 pounds. I have not changed anything

in my life

> at all. And I have gained weight. My doctor said well calories is

what puts

> on the weight Norma. Thyroid has nothing to do with it.

> Anyone care to comment?

> Norma/Ohio

>

> **************It's only a deal if it's where you want to go. Find

your travel

> deal here.

> (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

>

September 4, 2008

Norma, even tho your thyroid is now gone, your body will still

require ALL the thyroid hormones in order to function and survive.

I suspect since you got the run around from your " doctor " , you are

likely only taking a synthetic T4 drug rather than a " whole thyroid "

med (desiccated thyroid).

You are now " thyroidless " . I have been thyroidless since 1990.

How " I " got back on the road to " healthy " is by taking desiccated

thyroid (Armour www.armourthyroid.com) dosed up according to the

return of symptoms, and properly testing/treating weak adrenals.

Later on I added other things, but I can discuss that with you later

on either privately or on another forum.

Because of your new situation you will absolutely need to find a

better practitioner. What we've found on the thyroidless group

(thyroidless) is that we need to

contact any local " compounding " pharmacies in our areas, and ask them

fora list of those practitioners who are actively prescribing " both "

Armour Thyroid (or another brand of desiccated thyroid) " AND "

bioidentical hormones (BHRT), and then we contact those practitioners

to see who would be the best fit.

Please read this site from top to bottom:

http://www.stopthethyroidmadness.com

Sam

(thyroidless since 1990, healthy since 2005)

k9gang@...

>

> Hello,

> It has been a while since I have posted. With moving and then more

pain, I

> have not done much but read your posts.

> I do have a question please.

> I had my thyroid removed a few months ago. My family doctor said

don't worry

> about it no big deal, just take your meds,

> Well, I think it is a big deal. I have gained 30 pounds. Five

years ago I

> had stomach surgery and lost 112 pounds. I have not changed

anything in my life

> at all. And I have gained weight. My doctor said well calories is

what puts

> on the weight Norma. Thyroid has nothing to do with it.

> Anyone care to comment?

> Norma/Ohio

September 4, 2008

To be fair, the number one reason for overweight in the US IS

overeating. So the doc's statement doesn't make him a quack.

DS

Re: It has been a while

What a cop-out on your doctor's part to say that to you. I had to reply to

this as I had the same q for my gynacologist a few months ago. I've never

had a problem with my weight until the past few years when my thyroid

started going low. I gave the blood tests to my gyno and at that time

hadn't seen an endo yet and hadn't gotten anyone to say I was low enough for

thyroid medicine (even though I was off the low end of the test). His

response to my weight question relating to thyroid was " well you know the #1

reason why people gain weight in the United States is?? It's from

overeating.... " I thought to myself ...

and this QUACK calls himself a doctor??? If that's what he thinks that I'm

trying to overeat he clearly doesn't have a good understanding of how the

human body works at all.

Carol

>

> Hello,

> It has been a while since I have posted. With moving and then more

pain, I

> have not done much but read your posts.

> I do have a question please.

> I had my thyroid removed a few months ago. My family doctor said

don't worry

> about it no big deal, just take your meds, Well, I think it is a big

> deal. I have gained 30 pounds. Five years

ago I

> had stomach surgery and lost 112 pounds. I have not changed anything

in my life

> at all. And I have gained weight. My doctor said well calories is

what puts

> on the weight Norma. Thyroid has nothing to do with it.

> Anyone care to comment?

> Norma/Ohio

>

> **************It's only a deal if it's where you want to go. Find

your travel

> deal here.

> (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

>

September 4, 2008

BOLOGNA ! ! ! !

On Wed, Sep 3, 2008 at 9:55 PM, <pmiller864@...> wrote:

> Hello,

> It has been a while since I have posted. With moving and then more pain, I

> have not done much but read your posts.

> I do have a question please.

> I had my thyroid removed a few months ago. My family doctor said don't

> worry

> about it no big deal, just take your meds,

> Well, I think it is a big deal. I have gained 30 pounds. Five years ago I

> had stomach surgery and lost 112 pounds. I have not changed anything in my

> life

> at all. And I have gained weight. My doctor said well calories is what puts

>

> on the weight Norma. Thyroid has nothing to do with it.

> Anyone care to comment?

> Norma/Ohio

>

> **************It's only a deal if it's where you want to go. Find your

> travel

> deal here.

> (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

>

September 4, 2008

Oh my. Doctors.....

Read the " stop the thyroid madness " website.

It sounds like you should be on Armour thyroid to

replace the hormones your body is not capable of making.

I too gained 20 lbs for no reason within two years of having

a child. I lost it by exercise & dietary changes but

you need to (And I need to & am working on it) fix the source of

the problem which is doing labs to figure out

how much hormones you are missing of each & then to replace them.

Be Well,

Ali

On Sep 3, 2008, at 6:55 PM, pmiller864@... wrote:

> Hello,

> It has been a while since I have posted. With moving and then more

> pain, I

> have not done much but read your posts.

> I do have a question please.

> I had my thyroid removed a few months ago. My family doctor said

> don't worry

> about it no big deal, just take your meds,

> Well, I think it is a big deal. I have gained 30 pounds. Five years

> ago I

> had stomach surgery and lost 112 pounds. I have not changed

> anything in my life

> at all. And I have gained weight. My doctor said well calories is

> what puts

> on the weight Norma. Thyroid has nothing to do with it.

> Anyone care to comment?

> Norma/Ohio

>

> **************It's only a deal if it's where you want to go. Find

> your travel

> deal here.

> (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

>

September 4, 2008

You're missing the point. Yes that is the technical reason that you

are overweight but he clearly has no idea how the body works and what

makes a person overeat. It's something called parasites, hormones,

etc.... Simply stating " overeating " is a cop-out answer big time. I

like doctors that give me answers!!!!

I want to be fixed, not pacified!!!!

They are supposed to know more than me right??

Carol

> >

> > Hello,

> > It has been a while since I have posted. With moving and then more

> pain, I

> > have not done much but read your posts.

> > I do have a question please.

> > I had my thyroid removed a few months ago. My family doctor said

> don't worry

> > about it no big deal, just take your meds, Well, I think it is a big

> > deal. I have gained 30 pounds. Five years

> ago I

> > had stomach surgery and lost 112 pounds. I have not changed anything

> in my life

> > at all. And I have gained weight. My doctor said well calories is

> what puts

> > on the weight Norma. Thyroid has nothing to do with it.

> > Anyone care to comment?

> > Norma/Ohio

> >

> > **************It's only a deal if it's where you want to go. Find

> your travel

> > deal here.

> > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

> >

September 4, 2008

I have heard it¹s slowing metabolism as we age and lack of exercise.

But I am talking about the over 30/40 crowd...

sue

On 9/4/08 11:27 AM, " Dusty " <dusty@...> wrote:

>

> To be fair, the number one reason for overweight in the US IS

> overeating. So the doc's statement doesn't make him a quack.

>

> DS

>

September 4, 2008

I eat LESS than I ever did and work out 4 times a week and until I started

working out was GAINING weight monthly.

I have read that after 40 (I am 50) you have to work out 30 minutes a day to

MAINTAIN weight and AN HOUR per day to lose weight....

sue

On 9/4/08 12:44 PM, " wildman350smom " <carolb@...> wrote:

>

> You're missing the point. Yes that is the technical reason that you

> are overweight but he clearly has no idea how the body works and what

> makes a person overeat. It's something called parasites, hormones,

> etc.... Simply stating " overeating " is a cop-out answer big time. I

> like doctors that give me answers!!!!

> I want to be fixed, not pacified!!!!

> They are supposed to know more than me right??

> Carol

September 4, 2008

And if you are menopausal- it is the lack of estrogen. Estrogen plays a BIG

part in your metabolism.

-- Re: Re: It has been a while

I have heard it¹s slowing metabolism as we age and lack of exercise.

But I am talking about the over 30/40 crowd...

sue

On 9/4/08 11:27 AM, " Dusty " <dusty@...> wrote:

>

> To be fair, the number one reason for overweight in the US IS

> overeating. So the doc's statement doesn't make him a quack.

>

> DS

>

September 4, 2008

Naw, I didn't miss the point at all. From your post I don't believe it is

" clear " at all that he has no idea how the body works. Overeating =

overweight..... for a huge number of folks here in the U.S. Parasites,

hormones etc... are NOT the number 1 reason for overweight. So he didn't

cop out - you just interpreted his answer the wrong way, because his answer

was correct. Realistically speaking, his comment was intended to pacify -

it was no doubt intended to suggest that you first investigate your eating

habits before you blame him (the doc) for your weight gain.

I want to be thin again too, but I'm going to tell you the truth that at

my age (60) I move less, use tons less energy and therefore no matter what I

eat, I'm going to gain. At my age, I'm no longer willing to give up

chocolate, ice cream, chicken wings, birthday cakes, bacon, bagels w/cream

cheese etc. (these things aren't my whole diet, but I no longer refuse them

in order to be thin again). I b-tched and complained to my doc that I was

getting fat and he wasn't medicating me properly - so he had me keep a food

and drink diary and buy a book which listed fats, sugars, fiber and

calories. I also had to write on each days page what I did for 'excercise'.

I can tell you that I was appalled at the amount of calories I was consuming

- and the lack of movement I was enjoying. This was one heck of a wake up

call for me and I have since joined a gym and am trying to space out my

treats so that I eat more of the healthy things more frequently than I had

been. I suspect if we were all keep such a diary, we would find that we

are over consuming based on the amount of activity we expend.

Before a ghazillion people write and say " Oh no- I'm sure its my thyroid " I

am completely aware that thyroid problems can affect our weight

(metabolism). I'm just saying that it sure was an eye opener for me and I

stopped accusing my doc of being all sorts of stupid!

DS

Re: It has been a while

You're missing the point. Yes that is the technical reason that you are

overweight but he clearly has no idea how the body works and what makes a

person overeat. It's something called parasites, hormones, etc.... Simply

stating " overeating " is a cop-out answer big time. I like doctors that give

me answers!!!!

I want to be fixed, not pacified!!!!

They are supposed to know more than me right??

Carol

> >

> > Hello,

> > It has been a while since I have posted. With moving and then more

> pain, I

> > have not done much but read your posts.

> > I do have a question please.

> > I had my thyroid removed a few months ago. My family doctor said

> don't worry

> > about it no big deal, just take your meds, Well, I think it is a big

> > deal. I have gained 30 pounds. Five years

> ago I

> > had stomach surgery and lost 112 pounds. I have not changed anything

> in my life

> > at all. And I have gained weight. My doctor said well calories is

> what puts

> > on the weight Norma. Thyroid has nothing to do with it.

> > Anyone care to comment?

> > Norma/Ohio

> >

> > **************It's only a deal if it's where you want to go. Find

> your travel

> > deal here.

> > (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

> >

September 4, 2008

Are you on any thyroid hormone at all?

-- It has been a while

Hello,

It has been a while since I have posted. With moving and then more pain, I

have not done much but read your posts.

I do have a question please.

I had my thyroid removed a few months ago. My family doctor said don't worry

about it no big deal, just take your meds,

Well, I think it is a big deal. I have gained 30 pounds. Five years ago I

had stomach surgery and lost 112 pounds. I have not changed anything in my

life

at all. And I have gained weight. My doctor said well calories is what puts

on the weight Norma. Thyroid has nothing to do with it.

Anyone care to comment?

Norma/Ohio

**************It's only a deal if it's where you want to go. Find your

travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

September 7, 2008

I know lots of ppl on low calorie, low fat, etc etc diets--perpetually dieting

etc--never feeling well and never losing weight.

I eat whatever I want when I want (but I also like real food). I use cream

in my coffee. today I ate 5! croissants with butter, banana, ham and cheese.

I have enough energy to work 50 hrs a week and thank goddess never feel

compelled to go " work out " .

Gracia