Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Hey Everyone, I began this group in January. I saw my neurO on the 21st to ask about a script for LDN. He loooked aT me as if I grew a second head. At first, he didn't know what I was talking about and then stated I would be going from a proven treatment to an unproven treatment. Needless to say, he did not give me a script but referred me to rehab and a neuro eye doctor. I saw the rehad doctor yesterday and his only comeback was to try a different muscle relaxant. I saw my family doctor today and she is not comfortable writing it because she feels it is the neuro's job. Why the run around? I have been on Avonex, Betaseron and now Novantrome. If these are " so called " proven, what was the need to keep changing to a different med? What is the problem with allowing a person to try something different? Do they get a kickback from the drug companies? I know my insurance company paid $1200/month for the betaseron and the Novantron is about $1800 each infustion not including doctor visits and blood work The heart scan was about $2000 The ABC's can lead to greater depression, the Novantrone can lead to heart damage, the new muscle relaxant could lead to liver damage. But theae are all proven treatments. I am not ready to lie down without a fight. This is my life, my health and my sanity. My next step wil be to call one of the doctors for a phone consultation. My question is how long is the process of setting it up, talking to them and getting your prescripttions. Please advise. I am sorry for the length of this but I am just mad at the moment. Thanks Everyone Quote Link to comment Share on other sites More sharing options...
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