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----- Original Message ----- From: tom bayuk

A Home away from Home a MS Support Board ; msersLife ; msalternatives ; mscured ; MSViews_Multiple_Sclerosis ; MS Information area. ; m.s.support@... ; Holy_Mother_Saints_Pray_For_Us

Sent: Tuesday, January 20, 2004 1:55 PM

Subject: [MSViews_Multiple_Sclerosis] Doctors

Hello to everyone,

I just thought that I would share my routine neurologist appointment that I had yesterday. I see a doc at a famous Boston hospital. I'm not sure if I should mention the name so I won't.

As most of you know I have avoided the ms drugs and med's for years and have utilized nutrition, exercise, supplements, etc. I am certainly not against that for those that believe that they are helpful. However, for me I have long ago decided against them because of the experimental nature and adverse side effects.

I have done well all these years ( 20) since being diagnosed. I did start taking LDN last July and had some immediate improvement within the first two days. There have not been any further improvements but those that I did notice have remained constant and I have not gotten any worse.

I printed out a wealth of info regarding LDN to bring to my doc. Much of the info was from several sources including the LDN website, the various doc's that prescribe LDN, many testimonials from those that take LDN, the pharmacies that compound the LDN, the new study at Penn State involving Crohn's Disease, the study about to be done in Ireland, etc.

I am sad to say that my doc was simply not very interested and rather cynical regarding he entire matter. Needless to say, this was most distressing to me. 20 years ago when I told a doc at that same clinic about all the vitamins I was taking, she laughed and said they wouldn't do any good. I kept taking them though and 15 years later that same doc asked me what I was taking and said that she had one ms patient that was doing well and that was me.

The point of this message is that if we ms'er's do not take control of our own health, we will be at the mercy of traditional medicine. Without getting political and for whatever the reason traditional medicine just not seem to be aware of or interested in the significant progress that is definitely occurring with ms.

I certainly do NOT advocate abandoning traditional medicine. However, I certainly do advocate that there is a definite place for Alternative medicine and ms. The burden is on us........the ms'er's to take control, educate ourselves and be immensely involved in this journey. If we do this we will win.

Regards,

TomLink for chat: MSViews_Multiple_Sclerosis/chat Photos:http://photos./group/MSViews_Multiple_Sclerosis/lstGroup Home: MSViews_Multiple_SclerosisMyMSViews Home: http://www.mymsviews.org Home: MSViews_Multiple_SclerosisMyMSViews Home: http://www.mymsviews.org

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