Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 I've been observing the hashi's folks reactions to iodine for a while now. Basically what i've seen is that some hashi's folks can use iodine just fine with absolutely no problems...and some hashi's folks can't. There doesn't seem to be any literature on why this might be the case. I've speculated that it may have to do with whether TSH is suppressed, thus antibodies are suppressed. Because if antibodies are alive and well, the iodine could be stimulating the thyroid and thus exaccerbating the autoimmune condition (which is what so much medical literature says iodine can do in autoimmune thyroid disease). I've also speculated that it may be specific antibodies that cause a problem, those that can be common to both hashi's and graves's - TSH receptor or TSI antibodies. So these are just some thoughts. But if TSH is not suppressed with oral thyroid hormone meds and antibodies are at a level that indicate a high level of activity, I'd be cautious. Of course whenever i mention caution with iodine for Hashi's folks on a thyroid forum, this somehow gets translated to being scared of iodine...sorta like Abraham throws around the iodophobia term for anyone who disagrees or has questions. But I still think we really don't have enough information from the iodine docs on hashi's folks and rthoiodosupplementation to know the best protocol. That being said, I used to be unable to tolerate iodine until I begin supplementing with HC for adrenal insufficiency. It could be the HC squelched some antibodies? However I'm only able to take 1 drop of lugol's, which is a good preventative amount of course. But when I go to 2 drops, I experience severe frontal headache and runny nose. just my thoughts... cindi > > Been reading and reading and it says that iodine is great for > hypothyroidism which I thought was all I had till I did saliva tests > and found antibodies that show hashis. There are so many yes and > no's on the web about taking iodine if you have hashis....is it or > isn't it safe to take iodine if you have it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Dr Brownstein Uses it for people with Hashi's. My dad saw his partner (Dr. Nusbaum) and he took Iodoral and he had hashi's. iodine and hashis > Been reading and reading and it says that iodine is great for > hypothyroidism which I thought was all I had till I did saliva tests > and found antibodies that show hashis. There are so many yes and > no's on the web about taking iodine if you have hashis....is it or > isn't it safe to take iodine if you have it? > > > > Send Message: iodine > > Iodine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 He was on 120 mgs Armour and took 25 mgs of Iodoral. Unfortunately I can't give you long term effects. He was on it from May of last year until March of this year. He had a dissected aorta and died in March of this year. ----- Original Message ----- From: " Dia " <dia47@...> > How much does he take? Did it effect his thyroid medication at all? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 I don't have a dx for Hashi's, yet. I was on Iodoral for one month, at one tablet per day, and felt worse by the end of the month. My hypothyroid symptoms were getting worse. I'm doing a saliva test again to check thyroid and adrenals. I'm hoping to get on some Armour and then reintroduce Iodoral or Lugol's. My guess is that I need those thyroid meds and the amount of meds will need to be adjusted up and/or down while taking iodine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Hi Dia, I have hashi's and have been on 50mgs of Iodoral for approximately 7 months. For me, it has affected my thyroid medication. I started the Iodoral in October. By Thanksgiving, I began to start gradually backing down on my Armour. (I had been up to 150mgs.) I am now at 60 and 1/2mgs. I felt I had to back down because of feelings of breathlessness and heart palps. Those always subsided (for a couple of months) after I made yet another small decrease on my Armour. I have currently been adding more magnesium and celtic sea salt to my regimen in the hopes that I will be able to gradually up the Armour dose again. I have had a large weight gain (over the past month) that I am attributing to having to back down on that Armour. Hopefully .. because of the additional supplementation, I won't have those heart palps with my increases in Armour ..? I shall see! Best, GloDia <dia47@...> wrote: How much does he take? Did it effect his thyroid medication at all?ladybugsandbees wrote:>> Dr Brownstein Uses it for people with Hashi's. My dad saw his partner > (Dr.> Nusbaum) and he took Iodoral and he had hashi's.>> >> iodine and hashis>> > Been reading and reading and it says that iodine is great for> > hypothyroidism which I thought was all I had till I did saliva tests> > and found antibodies that show hashis. There are so many yes and> > no's on the web about taking iodine if you have hashis....is it or> > isn't it safe to take iodine if you have . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 This is interesting.... Please don't take this wrongly..I''m not criticizing but am wondering why you chose to back off on the armour instead of the iodoral? How much iodoral are you taking and how did you decide to take as much as you are? > > > > Dr Brownstein Uses it for people with Hashi's. My dad saw his partner > > (Dr. > > Nusbaum) and he took Iodoral and he had hashi's. > > > > > > > > iodine and hashis > > > > > Been reading and reading and it says that iodine is great for > > > hypothyroidism which I thought was all I had till I did saliva tests > > > and found antibodies that show hashis. There are so many yes and > > > no's on the web about taking iodine if you have hashis....is it or > > > isn't it safe to take iodine if you have > > > Recent Activity > > 31 > New Members > > Visit Your Group > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 - Interesting information...thank you....this is all so confusing... I just started with Isocort...am taking synthroid but trying to get hands on armour....you'd think it was some dangerous substance that would wipe out the world's population. I have tests....the blood test showed T4 at 1.18 (0.61-1.76) TSH 3.980 (the latest research shows upper range should stop at 3.0) OK...now the saliva tests showed TSH 600 (high being 86-120) T4 0.21 (0.17-0.42) T3 0.35 (0.28-1.10) TPO (antibodies) positive Have started gradually on the isocort cause the saliva showed depressed reading morning, noon and afternoon but elevated at night... So I have no idea what to do now.... -- In iodine , " cindi22595 " <cindi22595@...> wrote: > > I've been observing the hashi's folks reactions to iodine for a while > now. Basically what i've seen is that some hashi's folks can use > iodine just fine with absolutely no problems...and some hashi's folks > can't. There doesn't seem to be any literature on why this might be > the case. I've speculated that it may have to do with whether TSH is > suppressed, thus antibodies are suppressed. Because if antibodies are > alive and well, the iodine could be stimulating the thyroid and thus > exaccerbating the autoimmune condition (which is what so much medical > literature says iodine can do in autoimmune thyroid disease). I've > also speculated that it may be specific antibodies that cause a > problem, those that can be common to both hashi's and graves's - TSH > receptor or TSI antibodies. So these are just some thoughts. > > But if TSH is not suppressed with oral thyroid hormone meds and > antibodies are at a level that indicate a high level of activity, I'd > be cautious. Of course whenever i mention caution with iodine for > Hashi's folks on a thyroid forum, this somehow gets translated to being > scared of iodine...sorta like Abraham throws around the iodophobia term > for anyone who disagrees or has questions. But I still think we really > don't have enough information from the iodine docs on hashi's folks and > rthoiodosupplementation to know the best protocol. > > That being said, I used to be unable to tolerate iodine until I begin > supplementing with HC for adrenal insufficiency. It could be the HC > squelched some antibodies? However I'm only able to take 1 drop of > lugol's, which is a good preventative amount of course. But when I go > to 2 drops, I experience severe frontal headache and runny nose. > just my thoughts... > cindi > > > > > > > > Been reading and reading and it says that iodine is great for > > hypothyroidism which I thought was all I had till I did saliva tests > > and found antibodies that show hashis. There are so many yes and > > no's on the web about taking iodine if you have hashis....is it or > > isn't it safe to take iodine if you have it? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 I think Armour is hard to get because when we get it and get well, the docs's wallets get empty? :-) well...since you really don't know what kind of antibody count you have without blood serum test...but you know the hypo isn't yet well controlled....I might be inclined to at least get that TSH lowered first and improve the Frees. And then I'd start low with 12.5 mg. (lugol's or iodoral)and be alert to problems. this is not the advice you might get from others however...some say start with 50 mg. and then back down if you have problems. yea..confusing... cindi > > - > Interesting information...thank you....this is all so confusing... I > just started with Isocort...am taking synthroid but trying to get > hands on armour....you'd think it was some dangerous substance that > would wipe out the world's population. > > I have tests....the blood test showed T4 at 1.18 (0.61-1.76) > TSH 3.980 (the latest research shows upper range should stop at 3.0) > > OK...now the saliva tests showed > TSH 600 (high being 86-120) > T4 0.21 (0.17-0.42) > T3 0.35 (0.28-1.10) > TPO (antibodies) positive Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Thank you for the info and I'm so sorry for your loss..... ladybugsandbees wrote: > > He was on 120 mgs Armour and took 25 mgs of Iodoral. Unfortunately I > can't > give you long term effects. He was on it from May of last year until > March > of this year. He had a dissected aorta and died in March of this year. > > > > ----- Original Message ----- > From: " Dia " <dia47bellsouth (DOT) net <mailto:dia47%40bellsouth.net>> > > > How much does he take? Did it effect his thyroid medication at all? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Thank you. Steph Re: iodine and hashis > Thank you for the info and I'm so sorry for your loss..... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 I have hashi's and take 50 mgs. of iodine every day and have since last September. To be sure, I did start on the Isocort first and worked up to 8 per day and then took iodoral, and then introduced Armour, if I remember correctly. Memory can be here and gone, lol. I also might have started them at the same time, but anyway, I am continuing with it for now. I had thought I would be able to reduce my Armour, but I have not and recently went up to 5 grains. I didn't know I had hashi's at the time; it was diagnosed this year after my doc tested me for antibodies. I know I was deficient from my miserable sick childhood. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2007 Report Share Posted May 11, 2007 Hi Cindi, I'm just reading this post. I too have hashimotos and a TSha round 3ish.. got (unplanned) tested just after I consumed the salt, day after the larger dose of kelp.. so results will be rather meaningless, but still interesting. I did get that frontal headache and runny nose and irritated thryoid one I get when I consulme iodised salt actually.. but not smaller amounts of kelp). Awaiting blodd test results and its been good to see that your symptoms are similar Jan > > > > Been reading and reading and it says that iodine is great for > > hypothyroidism which I thought was all I had till I did saliva tests > > and found antibodies that show hashis. There are so many yes and > > no's on the web about taking iodine if you have hashis....is it or > > isn't it safe to take iodine if you have it? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2007 Report Share Posted May 14, 2007 I'm glad for this post - I've got hypothyroidism and when they tested for antibodies they found they were high - went on some supplements and brought the TSH back to normal, but then as soon as I got off it went to it's highest ever (TSH 22!) went back on but then they said to take Iodoral - but it worries me since I do have hashi's and also AF - think it might be best to be tested although the nutritionist said that the fact that my total T4 was low indicated I was low in iodine. I know this group generally is in favor of Iodoral - but not sure since I have these other things going on. They now want to do a I-123 thyroid scan will this tell me/them anything? > > > > > > Been reading and reading and it says that iodine is great for > > > hypothyroidism which I thought was all I had till I did saliva > tests > > > and found antibodies that show hashis. There are so many yes and > > > no's on the web about taking iodine if you have hashis....is it or > > > isn't it safe to take iodine if you have it? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2007 Report Share Posted May 14, 2007 well i'd say the saying you were low in iodine is only part of the story. it is true that in hashimoto's there can be thyroid cell damage and loss of iodine stores...but is that fixable if the thyroid gland has undergoing/undergone physical changes due to hashimoto's. does iodine fix it or does one have to take thyroid hormone replacement? so far, no one is claiming ( i don't think) that iodine alone will restore a damaged hashi's gland to a normal thyroid gland. And a fibrous lymphocytic infiltrated hashi's gland doesn't produce thyroid hormone properly. some have speculated that when a hashi's person goes on iodine therapy...and thus the iodine " stimulates " the thyroid gland...then the antibodies just attack causing more progressive destruction of the gland. an alternative is TSH suppressive therapy for hashi's...and then just take iodine for the needs of the rest of the body. i don't have the answers here...just thinking out loud...but i do wish the iodine docs would address some of these issues/questions. cindi > > I'm glad for this post - I've got hypothyroidism and when they > tested for antibodies they found they were high - went on some > supplements and brought the TSH back to normal, but then as soon as > I got off it went to it's highest ever (TSH 22!) went back on but > then they said to take Iodoral - but it worries me since I do have > hashi's and also AF - think it might be best to be tested although > the nutritionist said that the fact that my total T4 was low > indicated I was low in iodine. I know this group generally is in > favor of Iodoral - but not sure since I have these other things > going on. They now want to do a I-123 thyroid scan will this tell > me/them anything? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2007 Report Share Posted May 14, 2007 Thanks Cindi: Do you know anything about this I-123 Thyroid scan and what it might tell me about being hypo but also about having hashimoto's or what my level of iodine might be? Elaine > > > > I'm glad for this post - I've got hypothyroidism and when they > > tested for antibodies they found they were high - went on some > > supplements and brought the TSH back to normal, but then as soon > as > > I got off it went to it's highest ever (TSH 22!) went back on but > > then they said to take Iodoral - but it worries me since I do have > > hashi's and also AF - think it might be best to be tested although > > the nutritionist said that the fact that my total T4 was low > > indicated I was low in iodine. I know this group generally is in > > favor of Iodoral - but not sure since I have these other things > > going on. They now want to do a I-123 thyroid scan will this tell > > me/them anything? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2007 Report Share Posted May 14, 2007 why is he doing the scan? Personally, i'd avoid radioactive iodine testing...unless there's some specific reason that is being ordered that seems medically necessary. but to check for hashi's/hypo, I'd first be checking thyroid antibodies and Free levels. but someone else may know more about this. cindi > > Thanks Cindi: > > Do you know anything about this I-123 Thyroid scan and what it might > tell me about being hypo but also about having hashimoto's or what > my level of iodine might be? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 I have a thyroid ultrasound and my friend's daughter just had one too before they removed (last week)one of her thyroid nodules as they don't know why she grew a goitre at 21 in Bribane..or why is looks like a partly fluid filled cyst. She eats lots of sushi.. lives on it..so it can't be lack of iodine or I would have suggested it. anyway , just a suggestion to maybe ask if an ultrasound would be sufficient as well as the blood tests?..for starters? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2007 Report Share Posted May 15, 2007 nodules/goiter is iodine deficiency! She is trying to get what she needs through food but it is not enough. Hopefully it won't be too long b4 conventional medicine begins to use iodine therapeutically. I first encountered the idea that goiter is iodine deficiency in Thierry Hertoghe's book Hormone Solutions. Gracia I have a thyroid ultrasound and my friend's daughter just had one too before they removed (last week)one of her thyroid nodules as they don't know why she grew a goitre at 21 in Bribane..or why is looks like a partly fluid filled cyst. She eats lots of sushi.. lives on it..so it can't be lack of iodine or I would have suggested it.anyway , just a suggestion to maybe ask if an ultrasound would be sufficient as well as the blood tests?..for starters? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 Iodine Restriction in Patients with Hashimoto's Thyroiditis. Some evidence suggests that excess iodine triggers Hashimoto's thyroiditis. ------- Environmental triggers of Hashimotos Thyroiditis include iodine intake, bacterial and viral infections ------- Taking in too much iodine can also cause or worsen hypothyroidism. -------- Administration of iodine in almost any chemical form may induce an episode of thyrotoxicosis (IIH). This has been observed in epidemic incidence in several countries when iodine has been given as prophylaxis in a variety of vehicles, but the attack rate as recorded has been low. IIH is most commonly encountered in older persons with long standing nodular goiter and in regions of chronic iodine deficiency, but instances in the young have been recorded. It customarily occurs after an incremental rise in mean iodine intake in the course of programs for the prevention of iodine deficiency, or when iodine-containing drugs such as radiocontrast media or amiodarone are administered. The biological basis for IIH appears most often to be mutational events in thyroid cells that lead to autonomy of function. When the mass of cells with such an event becomes sufficient and iodine supply is increased, the subject may become thyrotoxic On 9/16/08 11:38 AM, " le " <danosova@...> wrote: > > > > Grin....hmmmm. Iodine may be bad you say? > > Quote Link to comment Share on other sites More sharing options...
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