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Hi All, I just started on naltrexone 2 weeks ago but I was taking 25mg because I didn't know of a compounding pharmacy. In that two weeks my ON improved 95%, my pain improved 99% , my balance is better too. It hasn't helped the numbness much yet. I finally found a compounding pharmacy and I am down to 4.5mg. I had to get it down because my head felt like when your foot goes to sleep and wakes up and you have all the pins and needles in it. Doctor said it sounded like my neurons were firing up again. I forgot to say my fatigue is all gone. This has been the best I felt in 5 years so I am hooked on it!! I hope it just keeps improving. I was on a fast downward slope and have started on the trip back up. I just can't believe it has been in use this long and I just found out abaut it!! Hope everyone keeps improving. Have a good day.

Kathy

----- Original Message -----

From: jsgarvin

low dose naltrexone

Sent: Tuesday, January 13, 2004 9:30 PM

Subject: [low dose naltrexone] LDN:

Hi all, Just wanted to thank everyone for all their information, and those that I've

e-mailed directly, thank you for your responses, they have been very helpful.

I'm still one of the newbies here, only been on the ldn since the 11th of Dec.,

but i've been very fortunate in the belief that not only is this halting/stopping my

disease progression, but I've had some of that remarkable relief from some of the

symptoms. headache, gone, 2 1/2 years of migraines, wow! brainfog, pretty much

cleared up, can almost think straight again, dizziness/vertigo, pretty much gone,

balance, not bad, not bad. Burning pain/sensations and stabbing pains, very mild.

Legs are still weak, but can walk unaided now. need to strengthen them back.

Been taking Tai-Chi classes, and it was helping even before taking the ldn but

not as dramatically. We, (wife & I) sat through the whole 3 hours of "The Return

of the King" at the Movies and I didn't have to get up to "rush" to the bathroom

once. On top of all this, when I went to see my neuro last week...she wasnt really

impressed. She says she's glad it "appears" to be helping me, but she thinks it's

just a Placebo effect. She did renew my prescription for me, I'll give her that.

Ignorance and Apathy....I don't know, and I don't care, as long as it "appears" to

be working, I'm going to stick with it. Just hope everyone here has positive results

from it as well. Thank You again to everyone for all your posts and keeping us up

to date on what it is doing for you. As Tiny Tim said, May God Bless Us, Everyone.

(or something like that)

Jim

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  • 3 years later...

Hi Cap'n,

I am assuming you have MS. If that assumption is correct, you may find some

helpful hints in treating your fatigue and weakness at

http://tinyurl.com/grpm9

With best wishes,

Dudley Delany

dudley_delany

[low dose naltrexone] LDN:

My my...who would have ever thought...this silly little pill could

do so much. I sure didn't. I thought my life as I knew it was

over. Little did I know. Four years today, no further progression

and an 'almost' complete turnaround of symptoms. Thanks again to

all the 'old timers' from back then that encouraged me to try this.

Still have the fatigue and weakness. Nothing I've tried seems to do

anything much for those two, plus the heat intolerance but other

than that...life is good! To anyone still sitting on the fence, I

would urge you to read as much as you can about this, and then take

a leap of faith and try it. Can't hurt, and just might help.

Spread the word! :-) Now..back to my cave...

Cap'n Caveman

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Dear Cap'n,

Thank you SO much for sharing your experience! We all need those

success stories to keep us going. :)

Congrats to you and I hope you have many more wonderful years!

>

> My my...who would have ever thought...this silly little pill could

> do so much. I sure didn't. I thought my life as I knew it was

> over. Little did I know. Four years today, no further progression

> and an 'almost' complete turnaround of symptoms. Thanks again to

> all the 'old timers' from back then that encouraged me to try this.

> Still have the fatigue and weakness. Nothing I've tried seems to do

> anything much for those two, plus the heat intolerance but other

> than that...life is good! To anyone still sitting on the fence, I

> would urge you to read as much as you can about this, and then take

> a leap of faith and try it. Can't hurt, and just might help.

> Spread the word! :-) Now..back to my cave...

>

> Cap'n Caveman

>

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