Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Hi Dawn, Once you are on the LDN for a while, you may find that you don't need the pump. I have been on LDN for almost seven months and my spasticity has eased up quite a bit. I am on Tegretol for the spasms. I was taking 100 mg three to four times daily. Now I take it twice a day and somtimes forget to take it one of those times. I am hoping to get off of it totally someday. I had a problem with bacloflen. It made me seriously fatigued. One of my neuro's wanted me to try the pump but I had a problem with taking it orally so why wouldn't I have a problem with it in the pump. I was afraid that if I relaxed my muscles too much that I wouldn't be able to stand. If I were you I would see if you get some results with the LDN first before trying the pump. Good Luck Marie ----- Original Message ----- From: " Dawn " <dddumon@...> <low dose naltrexone > Sent: Monday, December 29, 2003 4:40 PM Subject: [low dose naltrexone] Baclofen Pump > I just started LDN on 12/15 and I was already scheduled for a > screening to see if I am a candidate for the baclofen pump for my > spasticity on 1/14. Is anyone else currently using the Bacolofen > pump as a form of treatment? I am going to continue on LDN since > everyone around me says I am walking better and I feel more > comfortable with my balance and gait already but I am still > considering this pump in addition to the LDN. Any feedback is > appreciated. > > ~ Dawn. > > Intrathecal Baclofen Pump Therapy > Baclofen is a medication commonly used to decrease spasticity related > to multiple sclerosis, spinal cord injuries, or other neurological > diseases. Spasticity is a muscle problem characterized by tight or > stiff muscles that may interfere with voluntary muscle movements. > > If anyone want to read mopre about this I found some information at: > http://my.webmd.com/content/article/57/66125? > src=Inktomi & condition=Multiple_Sclerosis > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 I agree about the pump. I am doing all I can to avoid it. I know a few who have the pump and are just balls of mush with a head on top. These people are on the pump because at one time they were unable to get out of a fetal position due to such tight spastic muscles. Now they are in able to sit but are complete mush. The oral form of baclofen takes longer to get through your system and at a high dose will cause fatigue and stomach upset. The reason you don’t get those side effects from the pump is because it never has to go through your system. The pump rests under your skin in your abdomen and a tube is directed directly to your spinal cord. The medication goes straight to the source. son Owner/ operator Friends with MS.com or join our email newsgroup: FriendsWithMS/ -----Original Message----- From: Marie Deady [mailto:Mardea@...] Sent: Tuesday, December 30, 2003 7:09 AM To: low dose naltrexone ; Dawn Subject: Re: [low dose naltrexone] Baclofen Pump Hi Dawn, Once you are on the LDN for a while, you may find that you don't need the pump. I have been on LDN for almost seven months and my spasticity has eased up quite a bit. I am on Tegretol for the spasms. I was taking 100 mg three to four times daily. Now I take it twice a day and somtimes forget to take it one of those times. I am hoping to get off of it totally someday. I had a problem with bacloflen. It made me seriously fatigued. One of my neuro's wanted me to try the pump but I had a problem with taking it orally so why wouldn't I have a problem with it in the pump. I was afraid that if I relaxed my muscles too much that I wouldn't be able to stand. If I were you I would see if you get some results with the LDN first before trying the pump. Good Luck Marie ----- Original Message ----- From: " Dawn " <dddumon@...> To: <low dose naltrexone > Sent: Monday, December 29, 2003 4:40 PM Subject: [low dose naltrexone] Baclofen Pump > I just started LDN on 12/15 and I was already scheduled for a > screening to see if I am a candidate for the baclofen pump for my > spasticity on 1/14. Is anyone else currently using the Bacolofen > pump as a form of treatment? I am going to continue on LDN since > everyone around me says I am walking better and I feel more > comfortable with my balance and gait already but I am still > considering this pump in addition to the LDN. Any feedback is > appreciated. > > ~ Dawn. > > Intrathecal Baclofen Pump Therapy > Baclofen is a medication commonly used to decrease spasticity related > to multiple sclerosis, spinal cord injuries, or other neurological > diseases. Spasticity is a muscle problem characterized by tight or > stiff muscles that may interfere with voluntary muscle movements. > > If anyone want to read mopre about this I found some information at: > http://my.webmd.com/content/article/57/66125? > src=Inktomi & condition=Multiple_Sclerosis > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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