(No subject)

[Guest guest]

My roommate has MS. I have been checking out

alternatives to the ABCR's when I came accrose the

LDN. She was diagnosed about three years ago and

began Avonex immediately. She also did steroids every

three months for the first year. She has only had one

verifiable exacerbation which occurred about 8 months

ago but has been gradually feeling worse, more pain,

more numbness, more tingling, more burning

sensations, and more fatigue.

She hasn't had the bad side effects from taking

the shot unless it is the Avonex that is causing the pain

etc.

When I read about the LDN it sounded too good

to be true so I have tried to verify as much information

about it as I could.

To date I have verified that Dr. Bihari did

graduate from Harvard Medical School and is Board

certified in psychiatry and neurology.

I also called Dr. Skip Lenz, the pharmacist in

Boca Raton and he verified that he did post the

information about the 10,000 patient months with only 3

exacerbations. Actually he told me the numbers are

now 16,000 patient months with 10 exacerbations.

It sounds great but am a little hesitant about

recommending that she give up something that has

been proven to work somewhat for something that has

had no clinical trials.

Is there anything any of you can tell me that

would help with the decision.

Have any of you had an exacerbation while on

LDN?

Thanks in advance for your help. Any information

would be greatly appreciated.

DianeDiane Painter

Staff Attorney

Joint Committee on Legislative Research

Rm 117-A, State Capitol Bldg

Jefferson City, MO 65101

573.751.4223

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