Update..

February 19, 2005

Hi Helen. I completely agree with you about waiting until Nick is completely

off of pred before making any decisions. My daughter's psych wants her to

avoid pred completely. She had to go on it this past summer and he wanted us to

call him anytime and give him updates. Her issues are different from Nick's,

recurrent depression and an anxiety disorder, and he felt the pred could

make her too unstable. I think it can go the other way also where it will look

like you have issues you don't really have, due to the pred. I would absolutely

wait, if I were you. He said it can make kids like manic also, which would

cause trouble with sitting still. Congratulations to Nick finishing speech!

That is great news. I am glad he is feeling well also. Kim

In a message dated 2/19/2005 11:09:05 AM Central Standard Time,

hburger64@... writes:

I had his conference at school Thursday night, i am sure at his

upcoming IEP meeting that they will again mention possible ADHD. I

have 2 kids with ADHD and I just dont see it with him. I really dont

want to take the ADHD thing any further until I get him totally off

the pred and stable on his other meds. Then if they still think

hes " squirrelly " then look into it more. What do you guys think?? I

just wonder if him not sitting still is more to do with the JRA or

ADHD?? its a difficult call. I just wonder if the SpEd teacher is

thinking that just because his older brothers have ADHD he must too

if hes a little more active than other kids in his class. ( I do

also have a 13 and 5 year old who do NOT have ADHD) At Nicks IEP I

am going to request an amazing 3rd grade teacher for him and have

him go on to 3rd grade. If hes still struggling at the end of 3rd,

ill have him repeat 3rd with her again. She really has a wonderful

way with the kids and makes each of them feel soo special. Shes just

the kind of teacher Nick needs to relight his love of school. If

anyone can do it, she can.

On to some great news, after 4 years in speech, is scoring

in the normal range in all testing. He will finish up with Speech a

2 weeks!!!!!! o...

February 19, 2005

Helen great news for Nick. and I say go for the

TKD and work at what ever pace you can Nick.

Stay mobile and limber....

hplta

Rusty

February 21, 2005

Helen,

How wonderful that is feeling up to going back to TKD! How

far did he get before he stopped? You said your older son was

testing for his purple belt so I know our colors are different.

is a high green belt (5th belt) and Josh will testing for his 4th

belt (green) on Saturday. When all this started we talked with the

Master about it and they've been very good about watching and

letting him determine what he's able to do. Hopefully once he gets

going on the mtx things will get better for him and he won't have to

miss so much.

We'll definitely try to stop by and say hello at the JAM - way to

go Nick on the fund raising!!

Hugs,

, Mom to (10-poly)

>

> Hi all,

>

> continues to do great.... just one day last week of minor

> knee pain that was very short lived. )))

>

> Today he is at TaeKwonDo with his older brother whos testing out

for

> his purple belt. use to do TKD but it all got too much

for

> him ( fatigue wise) and he dropped out a year ago. Hes now begging

> to go back ))) Which is just another sign to us that hes feeling

> soo much better. We will talk to his TKD instructor and see if he

> can try it for a month to see if hes going to be able to tolerate

> it. I'm excited, its been a long time since Nick has actually ask

to

> do anything remotely physical.

>

> The pred taper has been going great the last 2 weeks, tomorrow

will

> be his last dose of 3mg and then we will stay at 2.5mg for a few

> weeks just to make sure hes tolerated that drop and then ill try

> dropping a little more )))

>

> is excited about the JAM.. he has raised $1300 so far!!

> O.

>

> I had his conference at school Thursday night, i am sure at his

> upcoming IEP meeting that they will again mention possible ADHD. I

> have 2 kids with ADHD and I just dont see it with him. I really

dont

> want to take the ADHD thing any further until I get him totally

off

> the pred and stable on his other meds. Then if they still think

> hes " squirrelly " then look into it more. What do you guys think??

I

> just wonder if him not sitting still is more to do with the JRA or

> ADHD?? its a difficult call. I just wonder if the SpEd teacher is

> thinking that just because his older brothers have ADHD he must

too

> if hes a little more active than other kids in his class. ( I do

> also have a 13 and 5 year old who do NOT have ADHD) At Nicks IEP I

> am going to request an amazing 3rd grade teacher for him and have

> him go on to 3rd grade. If hes still struggling at the end of 3rd,

> ill have him repeat 3rd with her again. She really has a wonderful

> way with the kids and makes each of them feel soo special. Shes

just

> the kind of teacher Nick needs to relight his love of school. If

> anyone can do it, she can.

>

> On to some great news, after 4 years in speech, is

scoring

> in the normal range in all testing. He will finish up with Speech

a

> 2 weeks!!!!!! o...

>

> Thats about all the news from here...

> Hope you all have a good weekend.

> HUgs Helen and (7,systemic)

February 21, 2005

Hello dear Helen,

Enjoyed finally hearing your voice the other day....well, I

definitely agree about waiting until steroids are off b/f jumping to

another diagnosis...You know, that steroids in high doses can even

cause psychosis (trust me not only is it a medical fact...but I saw

how ' personality was different on steroids). Tell the teachers

to just be patient! I'm glad to hear that things are going well on

the Enbrel....look forward to hearing about the big walk ($1300 way

to go Nick!!!) Our love, Marguerite and

>

> Hi all,

>

> continues to do great.... just one day last week of minor

> knee pain that was very short lived. )))

>

> Today he is at TaeKwonDo with his older brother whos testing out

for

> his purple belt. use to do TKD but it all got too much for

> him ( fatigue wise) and he dropped out a year ago. Hes now begging

> to go back ))) Which is just another sign to us that hes feeling

> soo much better. We will talk to his TKD instructor and see if he

> can try it for a month to see if hes going to be able to tolerate

> it. I'm excited, its been a long time since Nick has actually ask

to

> do anything remotely physical.

>

> The pred taper has been going great the last 2 weeks, tomorrow will

> be his last dose of 3mg and then we will stay at 2.5mg for a few

> weeks just to make sure hes tolerated that drop and then ill try

> dropping a little more )))

>

> is excited about the JAM.. he has raised $1300 so far!!

> O.

>

> I had his conference at school Thursday night, i am sure at his

> upcoming IEP meeting that they will again mention possible ADHD. I

> have 2 kids with ADHD and I just dont see it with him. I really

dont

> want to take the ADHD thing any further until I get him totally off

> the pred and stable on his other meds. Then if they still think

> hes " squirrelly " then look into it more. What do you guys think?? I

> just wonder if him not sitting still is more to do with the JRA or

> ADHD?? its a difficult call. I just wonder if the SpEd teacher is

> thinking that just because his older brothers have ADHD he must too

> if hes a little more active than other kids in his class. ( I do

> also have a 13 and 5 year old who do NOT have ADHD) At Nicks IEP I

> am going to request an amazing 3rd grade teacher for him and have

> him go on to 3rd grade. If hes still struggling at the end of 3rd,

> ill have him repeat 3rd with her again. She really has a wonderful

> way with the kids and makes each of them feel soo special. Shes

just

> the kind of teacher Nick needs to relight his love of school. If

> anyone can do it, she can.

>

> On to some great news, after 4 years in speech, is scoring

> in the normal range in all testing. He will finish up with Speech a

> 2 weeks!!!!!! o...

>

> Thats about all the news from here...

> Hope you all have a good weekend.

> HUgs Helen and (7,systemic)

February 22, 2005

--Kim...

Nick did TKD for about a year, he did enjoy it but it just got too

much for him fatigue wise plus too much standing about a year ago (

same time as his 1st flare) He had only gotten to his yellow belt.

Tonight is his 1st lesson again and hes pretty pumped.

Our ranking goes..White, yellow, yellow advanced, green, green

advanced, purple, purple advanced, red, brown, black.

look forward to meeting you on the 5th!!

hugs Helen and Ncholas (7,systemic)

- In , " " <earthmama2k@y...> wrote:

>

> Helen,

>

> How wonderful that is feeling up to going back to TKD!

How

> far did he get before he stopped? You said your older son was

> testing for his purple belt so I know our colors are different.

> is a high green belt (5th belt) and Josh will testing for his 4th

> belt (green) on Saturday. When all this started we talked with the

> Master about it and they've been very good about watching and

> letting him determine what he's able to do. Hopefully once he gets

> going on the mtx things will get better for him and he won't have

to

> miss so much.

>

> We'll definitely try to stop by and say hello at the JAM - way to

> go Nick on the fund raising!!

>

> Hugs,

>

> , Mom to (10-poly)

>

> >

> > Hi all,

> >

> > continues to do great.... just one day last week of

minor

> > knee pain that was very short lived. )))

> >

> > Today he is at TaeKwonDo with his older brother whos testing out

> for

> > his purple belt. use to do TKD but it all got too much

> for

> > him ( fatigue wise) and he dropped out a year ago. Hes now

begging

> > to go back ))) Which is just another sign to us that hes

feeling

> > soo much better. We will talk to his TKD instructor and see if

he

> > can try it for a month to see if hes going to be able to

tolerate

> > it. I'm excited, its been a long time since Nick has actually

ask

> to

> > do anything remotely physical.

> >

> > The pred taper has been going great the last 2 weeks, tomorrow

> will

> > be his last dose of 3mg and then we will stay at 2.5mg for a few

> > weeks just to make sure hes tolerated that drop and then ill try

> > dropping a little more )))

> >

> > is excited about the JAM.. he has raised $1300 so far!!

> > O.

> >

> > I had his conference at school Thursday night, i am sure at his

> > upcoming IEP meeting that they will again mention possible ADHD.

I

> > have 2 kids with ADHD and I just dont see it with him. I really

> dont

> > want to take the ADHD thing any further until I get him totally

> off

> > the pred and stable on his other meds. Then if they still think

> > hes " squirrelly " then look into it more. What do you guys

think??

> I

> > just wonder if him not sitting still is more to do with the JRA

or

> > ADHD?? its a difficult call. I just wonder if the SpEd teacher

is

> > thinking that just because his older brothers have ADHD he must

> too

> > if hes a little more active than other kids in his class. ( I do

> > also have a 13 and 5 year old who do NOT have ADHD) At Nicks IEP

I

> > am going to request an amazing 3rd grade teacher for him and

have

> > him go on to 3rd grade. If hes still struggling at the end of

3rd,

> > ill have him repeat 3rd with her again. She really has a

wonderful

> > way with the kids and makes each of them feel soo special. Shes

> just

> > the kind of teacher Nick needs to relight his love of school. If

> > anyone can do it, she can.

> >

> > On to some great news, after 4 years in speech, is

> scoring

> > in the normal range in all testing. He will finish up with

Speech

> a

> > 2 weeks!!!!!! o...

> >

> > Thats about all the news from here...

> > Hope you all have a good weekend.

> > HUgs Helen and (7,systemic)

February 22, 2005

-Marguerite,

Thank you so much for calling the other week. Sorry it got a little

wild my end... you gotta love it whenever you pick up the phone and

5 kids decide thats the time they ALL want attention!!!!

I know they are going to bring up the whole ADHD issue at the IEP

next week. But ill stand my ground and wont let them railroad me

into getting him checked out until hes totally off the pred. Thanks

for the advice.

We are continuing the pred taper and all is going well.. we are now

on 2.5mg every day and so far so good!!! im excited.

Hugs to you all all.. hope continues to do awesome!!!

Hugs Helen and (7,systemic)

-- In , " margueritewestfall " <mwestfal@k...>

wrote:

>

> Hello dear Helen,

> Enjoyed finally hearing your voice the other day....well, I

> definitely agree about waiting until steroids are off b/f jumping

to

> another diagnosis...You know, that steroids in high doses can even

> cause psychosis (trust me not only is it a medical fact...but I

saw

> how ' personality was different on steroids). Tell the

teachers

> to just be patient! I'm glad to hear that things are going well on

> the Enbrel....look forward to hearing about the big walk ($1300

way

> to go Nick!!!) Our love, Marguerite and

> >

> > Hi all,

> >

> > continues to do great.... just one day last week of

minor

> > knee pain that was very short lived. )))

> >

> > Today he is at TaeKwonDo with his older brother whos testing out

> for

> > his purple belt. use to do TKD but it all got too much

for

> > him ( fatigue wise) and he dropped out a year ago. Hes now

begging

> > to go back ))) Which is just another sign to us that hes

feeling

> > soo much better. We will talk to his TKD instructor and see if

he

> > can try it for a month to see if hes going to be able to

tolerate

> > it. I'm excited, its been a long time since Nick has actually

ask

> to

> > do anything remotely physical.

> >

> > The pred taper has been going great the last 2 weeks, tomorrow

will

> > be his last dose of 3mg and then we will stay at 2.5mg for a few

> > weeks just to make sure hes tolerated that drop and then ill try

> > dropping a little more )))

> >

> > is excited about the JAM.. he has raised $1300 so far!!

> > O.

> >

> > I had his conference at school Thursday night, i am sure at his

> > upcoming IEP meeting that they will again mention possible ADHD.

I

> > have 2 kids with ADHD and I just dont see it with him. I really

> dont

> > want to take the ADHD thing any further until I get him totally

off

> > the pred and stable on his other meds. Then if they still think

> > hes " squirrelly " then look into it more. What do you guys

think?? I

> > just wonder if him not sitting still is more to do with the JRA

or

> > ADHD?? its a difficult call. I just wonder if the SpEd teacher

is

> > thinking that just because his older brothers have ADHD he must

too

> > if hes a little more active than other kids in his class. ( I do

> > also have a 13 and 5 year old who do NOT have ADHD) At Nicks IEP

I

> > am going to request an amazing 3rd grade teacher for him and

have

> > him go on to 3rd grade. If hes still struggling at the end of

3rd,

> > ill have him repeat 3rd with her again. She really has a

wonderful

> > way with the kids and makes each of them feel soo special. Shes

> just

> > the kind of teacher Nick needs to relight his love of school. If

> > anyone can do it, she can.

> >

> > On to some great news, after 4 years in speech, is

scoring

> > in the normal range in all testing. He will finish up with

Speech a

> > 2 weeks!!!!!! o...

> >

> > Thats about all the news from here...

> > Hope you all have a good weekend.

> > HUgs Helen and (7,systemic)

February 22, 2005

Go Nick Go!

Allie scored 2 goals Sunday night at her hockey game!

and Allie (8poly)

________________________________

From: hburger64 [mailto:hburger64@...]

Sent: Tuesday, February 22, 2005 9:19 AM

Subject: Re: Update..

--Kim...

Nick did TKD for about a year, he did enjoy it but it just got too

much for him fatigue wise plus too much standing about a year ago (

same time as his 1st flare) He had only gotten to his yellow belt.

Tonight is his 1st lesson again and hes pretty pumped.

Our ranking goes..White, yellow, yellow advanced, green, green

advanced, purple, purple advanced, red, brown, black.

look forward to meeting you on the 5th!!

hugs Helen and Ncholas (7,systemic)

- In , " " <earthmama2k@y...> wrote:

>

> Helen,

>

> How wonderful that is feeling up to going back to TKD!

How

> far did he get before he stopped? You said your older son was

> testing for his purple belt so I know our colors are different.

> is a high green belt (5th belt) and Josh will testing for his 4th

> belt (green) on Saturday. When all this started we talked with the

> Master about it and they've been very good about watching and

> letting him determine what he's able to do. Hopefully once he gets

> going on the mtx things will get better for him and he won't have

to

> miss so much.

>

> We'll definitely try to stop by and say hello at the JAM - way to

> go Nick on the fund raising!!

>

> Hugs,

>

> , Mom to (10-poly)

>

> >

> > Hi all,

> >

> > continues to do great.... just one day last week of

minor

> > knee pain that was very short lived. )))

> >

> > Today he is at TaeKwonDo with his older brother whos testing out

> for

> > his purple belt. use to do TKD but it all got too much

> for

> > him ( fatigue wise) and he dropped out a year ago. Hes now

begging

> > to go back ))) Which is just another sign to us that hes

feeling

> > soo much better. We will talk to his TKD instructor and see if

he

> > can try it for a month to see if hes going to be able to

tolerate

> > it. I'm excited, its been a long time since Nick has actually

ask

> to

> > do anything remotely physical.

> >

> > The pred taper has been going great the last 2 weeks, tomorrow

> will

> > be his last dose of 3mg and then we will stay at 2.5mg for a few

> > weeks just to make sure hes tolerated that drop and then ill try

> > dropping a little more )))

> >

> > is excited about the JAM.. he has raised $1300 so far!!

> > O.

> >

> > I had his conference at school Thursday night, i am sure at his

> > upcoming IEP meeting that they will again mention possible ADHD.

I

> > have 2 kids with ADHD and I just dont see it with him. I really

> dont

> > want to take the ADHD thing any further until I get him totally

> off

> > the pred and stable on his other meds. Then if they still think

> > hes " squirrelly " then look into it more. What do you guys

think??

> I

> > just wonder if him not sitting still is more to do with the JRA

or

> > ADHD?? its a difficult call. I just wonder if the SpEd teacher

is

> > thinking that just because his older brothers have ADHD he must

> too

> > if hes a little more active than other kids in his class. ( I do

> > also have a 13 and 5 year old who do NOT have ADHD) At Nicks IEP

I

> > am going to request an amazing 3rd grade teacher for him and

have

> > him go on to 3rd grade. If hes still struggling at the end of

3rd,

> > ill have him repeat 3rd with her again. She really has a

wonderful

> > way with the kids and makes each of them feel soo special. Shes

> just

> > the kind of teacher Nick needs to relight his love of school. If

> > anyone can do it, she can.

> >

> > On to some great news, after 4 years in speech, is

> scoring

> > in the normal range in all testing. He will finish up with

Speech

> a

> > 2 weeks!!!!!! o...

> >

> > Thats about all the news from here...

> > Hope you all have a good weekend.

> > HUgs Helen and (7,systemic)

________________________________

February 23, 2005

-WTG Allie!!!!!

good for you!!!!

Hugs Helen and (7,systemic)

-- In , " Ray " <leslie@b...> wrote:

> Go Nick Go!

>

> Allie scored 2 goals Sunday night at her hockey game!

>

> and Allie (8poly)

>

> ________________________________

>

> From: hburger64 [mailto:hburger64@h...]

> Sent: Tuesday, February 22, 2005 9:19 AM

>

> Subject: Re: Update..

>

> --Kim...

>

> Nick did TKD for about a year, he did enjoy it but it just got too

> much for him fatigue wise plus too much standing about a year ago

(

> same time as his 1st flare) He had only gotten to his yellow belt.

> Tonight is his 1st lesson again and hes pretty pumped.

>

> Our ranking goes..White, yellow, yellow advanced, green, green

> advanced, purple, purple advanced, red, brown, black.

>

> look forward to meeting you on the 5th!!

>

> hugs Helen and Ncholas (7,systemic)

>

> - In , " " <earthmama2k@y...> wrote:

> >

> > Helen,

> >

> > How wonderful that is feeling up to going back to TKD!

> How

> > far did he get before he stopped? You said your older son was

> > testing for his purple belt so I know our colors are different.

>

> > is a high green belt (5th belt) and Josh will testing for his

4th

> > belt (green) on Saturday. When all this started we talked with

the

> > Master about it and they've been very good about watching

and

> > letting him determine what he's able to do. Hopefully once he

gets

> > going on the mtx things will get better for him and he won't

have

> to

> > miss so much.

> >

> > We'll definitely try to stop by and say hello at the JAM - way

to

> > go Nick on the fund raising!!

> >

> > Hugs,

> >

> > , Mom to (10-poly)

> >

> > >

> > > Hi all,

> > >

> > > continues to do great.... just one day last week of

> minor

> > > knee pain that was very short lived. )))

> > >

> > > Today he is at TaeKwonDo with his older brother whos testing

out

> > for

> > > his purple belt. use to do TKD but it all got too

much

> > for

> > > him ( fatigue wise) and he dropped out a year ago. Hes now

> begging

> > > to go back ))) Which is just another sign to us that hes

> feeling

> > > soo much better. We will talk to his TKD instructor and see if

> he

> > > can try it for a month to see if hes going to be able to

> tolerate

> > > it. I'm excited, its been a long time since Nick has actually

> ask

> > to

> > > do anything remotely physical.

> > >

> > > The pred taper has been going great the last 2 weeks, tomorrow

> > will

> > > be his last dose of 3mg and then we will stay at 2.5mg for a

few

> > > weeks just to make sure hes tolerated that drop and then ill

try

> > > dropping a little more )))

> > >

> > > is excited about the JAM.. he has raised $1300 so

far!!

> > > O.

> > >

> > > I had his conference at school Thursday night, i am sure at

his

> > > upcoming IEP meeting that they will again mention possible

ADHD.

> I

> > > have 2 kids with ADHD and I just dont see it with him. I

really

> > dont

> > > want to take the ADHD thing any further until I get him

totally

> > off

> > > the pred and stable on his other meds. Then if they still

think

> > > hes " squirrelly " then look into it more. What do you guys

> think??

> > I

> > > just wonder if him not sitting still is more to do with the

JRA

> or

> > > ADHD?? its a difficult call. I just wonder if the SpEd teacher

> is

> > > thinking that just because his older brothers have ADHD he

must

> > too

> > > if hes a little more active than other kids in his class. ( I

do

> > > also have a 13 and 5 year old who do NOT have ADHD) At Nicks

IEP

> I

> > > am going to request an amazing 3rd grade teacher for him and

> have

> > > him go on to 3rd grade. If hes still struggling at the end of

> 3rd,

> > > ill have him repeat 3rd with her again. She really has a

> wonderful

> > > way with the kids and makes each of them feel soo special.

Shes

> > just

> > > the kind of teacher Nick needs to relight his love of school.

If

> > > anyone can do it, she can.

> > >

> > > On to some great news, after 4 years in speech, is

> > scoring

> > > in the normal range in all testing. He will finish up with

> Speech

> > a

> > > 2 weeks!!!!!! o...

> > >

> > > Thats about all the news from here...

> > > Hope you all have a good weekend.

> > > HUgs Helen and (7,systemic)

>

> ________________________________

>

February 24, 2005

Whoo Hoo! Way to go Allie!

Alia and Caroline, age 3, poly and uveitis

Re: Update..

--Kim...

Nick did TKD for about a year, he did enjoy it but it just got too

much for him fatigue wise plus too much standing about a year ago (

same time as his 1st flare) He had only gotten to his yellow belt.

Tonight is his 1st lesson again and hes pretty pumped.

Our ranking goes..White, yellow, yellow advanced, green, green

advanced, purple, purple advanced, red, brown, black.

look forward to meeting you on the 5th!!

hugs Helen and Ncholas (7,systemic)

- In , " " <earthmama2k@y...> wrote:

>

> Helen,

>

> How wonderful that is feeling up to going back to TKD!

How

> far did he get before he stopped? You said your older son was

> testing for his purple belt so I know our colors are different.

> is a high green belt (5th belt) and Josh will testing for his 4th

> belt (green) on Saturday. When all this started we talked with the

> Master about it and they've been very good about watching and

> letting him determine what he's able to do. Hopefully once he gets

> going on the mtx things will get better for him and he won't have

to

> miss so much.

>

> We'll definitely try to stop by and say hello at the JAM - way to

> go Nick on the fund raising!!

>

> Hugs,

>

> , Mom to (10-poly)

>

> >

> > Hi all,

> >

> > continues to do great.... just one day last week of

minor

> > knee pain that was very short lived. )))

> >

> > Today he is at TaeKwonDo with his older brother whos testing out

> for

> > his purple belt. use to do TKD but it all got too much

> for

> > him ( fatigue wise) and he dropped out a year ago. Hes now

begging

> > to go back ))) Which is just another sign to us that hes

feeling

> > soo much better. We will talk to his TKD instructor and see if

he

> > can try it for a month to see if hes going to be able to

tolerate

> > it. I'm excited, its been a long time since Nick has actually

ask

> to

> > do anything remotely physical.

> >

> > The pred taper has been going great the last 2 weeks, tomorrow

> will

> > be his last dose of 3mg and then we will stay at 2.5mg for a few

> > weeks just to make sure hes tolerated that drop and then ill try

> > dropping a little more )))

> >

> > is excited about the JAM.. he has raised $1300 so far!!

> > O.

> >

> > I had his conference at school Thursday night, i am sure at his

> > upcoming IEP meeting that they will again mention possible ADHD.

I

> > have 2 kids with ADHD and I just dont see it with him. I really

> dont

> > want to take the ADHD thing any further until I get him totally

> off

> > the pred and stable on his other meds. Then if they still think

> > hes " squirrelly " then look into it more. What do you guys

think??

> I

> > just wonder if him not sitting still is more to do with the JRA

or

> > ADHD?? its a difficult call. I just wonder if the SpEd teacher

is

> > thinking that just because his older brothers have ADHD he must

> too

> > if hes a little more active than other kids in his class. ( I do

> > also have a 13 and 5 year old who do NOT have ADHD) At Nicks IEP

I

> > am going to request an amazing 3rd grade teacher for him and

have

> > him go on to 3rd grade. If hes still struggling at the end of

3rd,

> > ill have him repeat 3rd with her again. She really has a

wonderful

> > way with the kids and makes each of them feel soo special. Shes

> just

> > the kind of teacher Nick needs to relight his love of school. If

> > anyone can do it, she can.

> >

> > On to some great news, after 4 years in speech, is

> scoring

> > in the normal range in all testing. He will finish up with

Speech

> a

> > 2 weeks!!!!!! o...

> >

> > Thats about all the news from here...

> > Hope you all have a good weekend.

> > HUgs Helen and (7,systemic)

________________________________

February 24, 2005

Helen,

You are bursting at the seams with good news!!!! I'm so glad to

hear all of it.

Stacia and Hunter 8 systemic, iritis

February 24, 2005

Helen - I am soo glad to hear how well is doing. That is wonderful

news! Yipee! How's the Prednisone taper coming along??

Wow - $1300! Nick Rocks! I am going to sitting at the parenting booth with

you at JAM. Alan is selling the magnets so we don't need to worry about

that. I told them I could do the whole hour. If you aren't going to have

anyone for Nick to hang out with he can hang with Caroline. Let me know!

Alia and Caroline, age 3, poly and uveitis

Update..

Hi all,

continues to do great.... just one day last week of minor

knee pain that was very short lived. )))

Today he is at TaeKwonDo with his older brother whos testing out for

his purple belt. use to do TKD but it all got too much for

him ( fatigue wise) and he dropped out a year ago. Hes now begging

to go back ))) Which is just another sign to us that hes feeling

soo much better. We will talk to his TKD instructor and see if he

can try it for a month to see if hes going to be able to tolerate

it. I'm excited, its been a long time since Nick has actually ask to

do anything remotely physical.

The pred taper has been going great the last 2 weeks, tomorrow will

be his last dose of 3mg and then we will stay at 2.5mg for a few

weeks just to make sure hes tolerated that drop and then ill try

dropping a little more )))

is excited about the JAM.. he has raised $1300 so far!!

O.