Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Hi Parli, I am very interested in your progress and joined this group as a result of what you said on PLS-FRIENDS. Parli Lynn wrote: > Hi, > > this is Parli, I have PLS (Primary Lateral Sclerosis) and have been on > LDN for 14 days. I would like to let Dr. Bihari's office know that it > is helping me and maybe add it to the list. PLS is very rare, but I > thought it would be good to let them know. It is an upper motor > neuron disease. I also have tried to let my PLS website and ALS > website know that I am trying it. There doesn't seem to be much > interest, however I'm the lurker type and not very aggressive about > it. I'm going to try again this week. > thanks > Parli -- . ,-._|\ Covington / Oz \ \_,--.x/ v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 > Hi, > > this is Parli, I have PLS (Primary Lateral Sclerosis) and have been on LDN for 14 days. I would like to let Dr. Bihari's office know that it is helping me and maybe add it to the list. PLS is very rare, but I thought it would be good to let them know. It is an upper motor neuron disease. Parli, Dr. Bihari did not have a PC in the office when I was there, he's not tuned into the web. Your best bet would be to either fax him, his fax is +1 (212) 229 -9371 or send an email to the guy who runs the LDN site: email@... although he's on vacation until Feb. 8th. --Jeff Quote Link to comment Share on other sites More sharing options...
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