Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Hi-- I am writing for my brother who has primary progressive MS. He's been on LDN since October, 2003 (getting it from Skipp's Pharmacy). During the past two months his symptoms have been getting worse: he used to be able to walk without a cane, but now he needs to use it even inside his house. My brother is wondering whether there are others with PP MS who are not being helped. He is also wondering if it's possible he was misdiagnosed. I've heard that some people with advanced Lyme Disease have been diagnosed as MS. He had an test for Lyme which came back negative, but I've heard these may give false readings. Any ideas?? Thanks, S. (on LDN since Nov, 2002 for Nonhodgkins Lymphoma) Quote Link to comment Share on other sites More sharing options...
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