Re: Re:erythema nodosum an MS connection?--msg for Kiki

[Guest guest]

I want to say Yes go for it explore all you can. I had shingles as a kid and so did my brother now we both have progressive M.S.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 03/02/04 10:54:20

low dose naltrexone

Subject: [low dose naltrexone] Re:erythema nodosum an MS connection?--msg for Kiki

Dear Kiki, This EN/MS connection should be explored. If there is such aconnection it makes research into EN that much more urgent. Right nowEN is considered to be more of an annoyance than a serious disorder.More often than not it is considered a "rash" and treated bydermatologists who have no idea what they are doing. If you also belong to any MS support Groups, could you ask aroundto see if EN preceeded the MS? I belong to many Groups for various AIdisorders, but not any MS Groups. If any members have seen thisconnection, please refer them to me. I am wondering if EN is like chicken pox that you recover fromand that reappears as shingles when you are older. Could EN and MShave this sort of realtionship? In the case of chicken pox a vaccineis now available --those people will never have shingles. Shingles ismuch more severe than childhood chickenpox. Always best to arrestthese things before they progress to the next level. Thanks for all your help, Kiki. So much good come from puttingour heads together. Love, > Thanks for getting back to me , interesting question youposed. Did > the injections bring on the MS? > I am not even sure what the injections were and my Dr. is long gone.I am so > angry with myself for not asking. I remember saying to him "pleasewrite down > what I have" because he had such a heavy accent, that is why Iremember EN.> I do remember, and my soon to be husband thought I was acting) When his > mother would hug me firmly around my waist and upper butt, it hurt.My upper but > hurt so I thought it was the injection site but it never went away.Do they give > steroids in the upper butt area? or could it have been anti biotic?or B-12? > I was 20 yrs old, very physically fit, I had studied to be a physical > education teacher. I did not feel any other symptoms till I was 42,on and off I had > sciatica but other than that I was very strong and healthy.> I don't know why I am rambling , but thanks for listening. Kiki

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[Guest guest]

Reg, just wanted to ask you if you have other siblings. Judy Gramm wrote a book on ms with info that Great Britian had done studies substantiating the benefits of siblings and your children taking evening primrose oil. There is suppose to be such a neuroprotective factor because of the GLA which is found in breast milk that the relatives who take it will never develop ms. Just found this to be very interesting and also know alot of people with ms were not breast fed so they did not develop as strong of an immune system. As far as chicken pox, etc. Dr. Neiper beleived ms can be caused from vacinations that lie dormant in the body till something triggers the manifestation of a dis-ease.Kathy.

----- Original Message -----

From: Reg Kreil

low dose naltrexone

Sent: Tuesday, March 02, 2004 4:50 PM

Subject: Re: [low dose naltrexone] Re:erythema nodosum an MS connection?--msg for Kiki

I want to say Yes go for it explore all you can. I had shingles as a kid and so did my brother now we both have progressive M.S.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 03/02/04 10:54:20

low dose naltrexone

Subject: [low dose naltrexone] Re:erythema nodosum an MS connection?--msg for Kiki

Dear Kiki, This EN/MS connection should be explored. If there is such aconnection it makes research into EN that much more urgent. Right nowEN is considered to be more of an annoyance than a serious disorder.More often than not it is considered a "rash" and treated bydermatologists who have no idea what they are doing. If you also belong to any MS support Groups, could you ask aroundto see if EN preceeded the MS? I belong to many Groups for various AIdisorders, but not any MS Groups. If any members have seen thisconnection, please refer them to me. I am wondering if EN is like chicken pox that you recover fromand that reappears as shingles when you are older. Could EN and MShave this sort of realtionship? In the case of chicken pox a vaccineis now available --those people will never have shingles. Shingles ismuch more severe than childhood chickenpox. Always best to arrestthese things before they progress to the next level. Thanks for all your help, Kiki. So much good come from puttingour heads together. Love, > Thanks for getting back to me , interesting question youposed. Did > the injections bring on the MS? > I am not even sure what the injections were and my Dr. is long gone.I am so > angry with myself for not asking. I remember saying to him "pleasewrite down > what I have" because he had such a heavy accent, that is why Iremember EN.> I do remember, and my soon to be husband thought I was acting) When his > mother would hug me firmly around my waist and upper butt, it hurt.My upper but > hurt so I thought it was the injection site but it never went away.Do they give > steroids in the upper butt area? or could it have been anti biotic?or B-12? > I was 20 yrs old, very physically fit, I had studied to be a physical > education teacher. I did not feel any other symptoms till I was 42,on and off I had > sciatica but other than that I was very strong and healthy.> I don't know why I am rambling , but thanks for listening. Kiki

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[Guest guest]

Kathy Yes I also have two younger sisters by eight years and so far they have not exhibited any symptoms so they figure that they are out of the woods,now isn't it interesting that you say vaccines could be the culprit,as in their age group there are very few M.S. cases but ours are pandemic. At least in this health unit. I have said before that I am glad that I have M.S. and not my sisters it is easyer for me to accept that I am disabled then for me too see them that way!

I think that knowing there is now a drug that stops the progresion and doesn't involve needles or have any bad side effects makes me sleep better, for my four sons sake and for my grandchildrens sake. This has been a great blessing to me,I didn't want to leave my sons with that legacy.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 03/03/04 14:41:53

low dose naltrexone

Subject: Re: [low dose naltrexone] Re:erythema nodosum an MS connection?--msg for Kiki

Reg, just wanted to ask you if you have other siblings. Judy Gramm wrote a book on ms with info that Great Britian had done studies substantiating the benefits of siblings and your children taking evening primrose oil. There is suppose to be such a neuroprotective factor because of the GLA which is found in breast milk that the relatives who take it will never develop ms. Just found this to be very interesting and also know alot of people with ms were not breast fed so they did not develop as strong of an immune system. As far as chicken pox, etc. Dr. Neiper beleived ms can be caused from vacinations that lie dormant in the body till something triggers the manifestation of a dis-ease.Kathy.

----- Original Message -----

From: Reg Kreil

low dose naltrexone

Sent: Tuesday, March 02, 2004 4:50 PM

Subject: Re: [low dose naltrexone] Re:erythema nodosum an MS connection?--msg for Kiki

I want to say Yes go for it explore all you can. I had shingles as a kid and so did my brother now we both have progressive M.S.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 03/02/04 10:54:20

low dose naltrexone

Subject: [low dose naltrexone] Re:erythema nodosum an MS connection?--msg for Kiki

Dear Kiki, This EN/MS connection should be explored. If there is such aconnection it makes research into EN that much more urgent. Right nowEN is considered to be more of an annoyance than a serious disorder.More often than not it is considered a "rash" and treated bydermatologists who have no idea what they are doing. If you also belong to any MS support Groups, could you ask aroundto see if EN preceeded the MS? I belong to many Groups for various AIdisorders, but not any MS Groups. If any members have seen thisconnection, please refer them to me. I am wondering if EN is like chicken pox that you recover fromand that reappears as shingles when you are older. Could EN and MShave this sort of realtionship? In the case of chicken pox a vaccineis now available --those people will never have shingles. Shingles ismuch more severe than childhood chickenpox. Always best to arrestthese things before they progress to the next level. Thanks for all your help, Kiki. So much good come from puttingour heads together. Love, > Thanks for getting back to me , interesting question youposed. Did > the injections bring on the MS? > I am not even sure what the injections were and my Dr. is long gone.I am so > angry with myself for not asking. I remember saying to him "pleasewrite down > what I have" because he had such a heavy accent, that is why Iremember EN.> I do remember, and my soon to be husband thought I was acting) When his > mother would hug me firmly around my waist and upper butt, it hurt.My upper but > hurt so I thought it was the injection site but it never went away.Do they give > steroids in the upper butt area? or could it have been anti biotic?or B-12? > I was 20 yrs old, very physically fit, I had studied to be a physical > education teacher. I did not feel any other symptoms till I was 42,on and off I had > sciatica but other than that I was very strong and healthy.> I don't know why I am rambling , but thanks for listening. Kiki

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