Re: Would LDN be helpful to me?

[Guest guest]

, I would strongly encourage you to go outside the "norm" and set up an appointment/telephone interview with one of the doctors on the list.

My husband is a disabled vet and I wrestled with VA docs for months until finally, I decided to color outside of the lines and go with my gut feeling. I am so glad I did. It was a pain to get medical records verifying the MS diagnosis, then getting them sent to Dr in Wisconsin, but well worth the effort.

Beginning the first day after taking LDN, my husband walked the length of our hallway unassisted. He has been in a wheelchair for nearly a year!

I'm not saying that everyday is like a day without MS, but what I am saying is, it has been an incredible blessing to us.

Good health be with you.

Dulinsky

[Guest guest]

YES YES YES! I wish I had known about LDN years ago. I would still be able

to ride my horse, run, and do many other things I just can't do now. With

what I've learned in the last week or so if I were diagnosed today with just

mild symptoms I'd be looking for an LDN prescription NOW. I heard about it

last summer and it sounded too good to be true, so I didn't pursue it. All

of the spasticity I'm experiencing now developed AFTER I first learned about

LDN but chose to pass it up. I regret not starting it then, but maybe my

muscles will loosen up in a while. Vision in my left eye has improved and

it doesn't ache all the time anymore.

Good luck to you and stay in touch.

----- Original Message -----

From: " noemkat " <noemkat@...>

<low dose naltrexone >

Sent: Sunday, February 15, 2004 5:16 AM

Subject: [low dose naltrexone] Would LDN be helpful to me?

> I've been lurking for a while now taking everything in that's been

> said and visiting websites. I'm 33 and I was dx officially 3/03 with

> MS and been on Avonex since 4/03. I don't have any

> problems with med, don't really like the shot but it's ok. The only

> symptoms of MS I have are numb and tingling feet. Last year I also

> couldn't feel my private area but after a course of IV steriods, that

> went away. I think my left eye is getting weaker and I'll ask my

> neuro next month at my appt.

>

> I'm planning on asking him if he's heard of LDN. We live in a

> smaller military town so I'm guessing he prolly hasn't. He seems

> like an Andy Griffith type but slower. Unfortunately he's my only

> game in town.

>

> I did just see my primary for an unrelated problem, told him about

> LDN and while he's fasinated, he didn't take the paperwork I had

> printed out nor would prescribe it because it has no clinical

> trials. I'm assuming I'll get the same story from my neuro.

>

> My question is, with the slight symptoms I have, do yall think I

> should try LDN even if I have to go through the dr. that's mentioned

> on this board?? I'm wondering if anyone else with mild symptoms has

> tried LDN and how it's helping them.

> Thanks,

>

>

>

>

>

>

>

>

>

[Guest guest]

,

If I were you, I wouldn't waste one minute! I would try ldn so fast it would make your head spin!!

Marcie

\In a message dated 2/15/2004 7:17:42 AM Central Standard Time, noemkat@... writes:

low dose naltrexone

I've been lurking for a while now taking everything in that's been said and visiting websites. I'm 33 and I was dx officially 3/03 with MS and been on Avonex since 4/03. I don't have any problems with med, don't really like the shot but it's ok. The only symptoms of MS I have are numb and tingling feet. Last year I also couldn't feel my private area but after a course of IV steriods, that went away. I think my left eye is getting weaker and I'll ask my neuro next month at my appt.

I'm planning on asking him if he's heard of LDN. We live in a smaller military town so I'm guessing he prolly hasn't. He seems like an Andy Griffith type but slower. Unfortunately he's my only game in town.

I did just see my primary for an unrelated problem, told him about LDN and while he's fasinated, he didn't take the paperwork I had printed out nor would prescribe it because it has no clinical trials. I'm assuming I'll get the same story from my neuro.

My question is, with the slight symptoms I have, do yall think I should try LDN even if I have to go through the dr. that's mentioned on this board?? I'm wondering if anyone else with mild symptoms has tried LDN and how it's helping them. Thanks,

[Guest guest]

I am sure that you will hear this from everyone Don't waste any more time it is so important that you stop this monster in it's tracks and regain all that you can. With a prompt intervention by ldn. there is great hope that m.s. will be a thing of the past for you. Reg.

-------Original Message-------

From: low dose naltrexone

Date: 02/15/04 06:16:39

low dose naltrexone

Subject: [low dose naltrexone] Would LDN be helpful to me?

I've been lurking for a while now taking everything in that's been said and visiting websites. I'm 33 and I was dx officially 3/03 with MS and been on Avonex since 4/03. I don't have any problems with med, don't really like the shot but it's ok. The only symptoms of MS I have are numb and tingling feet. Last year I also couldn't feel my private area but after a course of IV steriods, that went away. I think my left eye is getting weaker and I'll ask my neuro next month at my appt. I'm planning on asking him if he's heard of LDN. We live in a smaller military town so I'm guessing he prolly hasn't. He seems like an Andy Griffith type but slower. Unfortunately he's my only game in town.I did just see my primary for an unrelated problem, told him about LDN and while he's fasinated, he didn't take the paperwork I had printed out nor would prescribe it because it has no clinical trials. I'm assuming I'll get the same story from my neuro.My question is, with the slight symptoms I have, do yall think I should try LDN even if I have to go through the dr. that's mentioned on this board?? I'm wondering if anyone else with mild symptoms has tried LDN and how it's helping them. Thanks,

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

,

I've noticed you've gotten a large response to your recent

post " Would LDN be helpful to me? I've had MS for over 20 yrs, and

believe it or not I would consider myself one with mild symptoms.

That's not because I've been injecting myself with those awful

ABCR drugs, I've done it all with alternative treatments. To answer

your question, yes find a doc that can write you a perscription.

For nothing else but to stop the progression of your disease. Good

luck to you, we hope to hear how you're doing!

[Guest guest]

Hi ,

I would definitely start LDN. You have absolutely nothing to lose and everything to gain.

Regards,

Tom

[Guest guest]

:

I definitely recommend getting on LDN immediately if not sooner. I don't

think you will be sorry.

Noland

----- Original Message -----

From: " noemkat " <noemkat@...>

<low dose naltrexone >

Sent: Sunday, February 15, 2004 6:16 AM

Subject: [low dose naltrexone] Would LDN be helpful to me?

> I've been lurking for a while now taking everything in that's been

> said and visiting websites. I'm 33 and I was dx officially 3/03 with

> MS and been on Avonex since 4/03. I don't have any

> problems with med, don't really like the shot but it's ok. The only

> symptoms of MS I have are numb and tingling feet. Last year I also

> couldn't feel my private area but after a course of IV steriods, that

> went away. I think my left eye is getting weaker and I'll ask my

> neuro next month at my appt.

>

> I'm planning on asking him if he's heard of LDN. We live in a

> smaller military town so I'm guessing he prolly hasn't. He seems

> like an Andy Griffith type but slower. Unfortunately he's my only

> game in town.

>

> I did just see my primary for an unrelated problem, told him about

> LDN and while he's fasinated, he didn't take the paperwork I had

> printed out nor would prescribe it because it has no clinical

> trials. I'm assuming I'll get the same story from my neuro.

>

> My question is, with the slight symptoms I have, do yall think I

> should try LDN even if I have to go through the dr. that's mentioned

> on this board?? I'm wondering if anyone else with mild symptoms has

> tried LDN and how it's helping them.

> Thanks,

>

>

>

>

>

>

>

>

>

[Guest guest]

Noland. Have you got MS. What kind? I have SPMS and so far no meds. It appears that in the UK the neurologists don't think that SPMS reacts to any of the ABC drugs. So I am left with nothing. I have been trying Glyconutrients for about three months now. This is a sugar type dietary thing from the US but so far no good.l I have read many good reports about them but sop far nothing for me. I am anxious to try anything that might do me some good.

-------Original Message-------

From: low dose naltrexone

Date: 02/16/04 21:53:28

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

:

I definitely recommend getting on LDN immediately if not sooner. I don't

think you will be sorry.

Noland

----- Original Message -----

From: "noemkat" <noemkat@...>

<low dose naltrexone >

Sent: Sunday, February 15, 2004 6:16 AM

Subject: [low dose naltrexone] Would LDN be helpful to me?

> I've been lurking for a while now taking everything in that's been

> said and visiting websites. I'm 33 and I was dx officially 3/03 with

> MS and been on Avonex since 4/03. I don't have any

> problems with med, don't really like the shot but it's ok. The only

> symptoms of MS I have are numb and tingling feet. Last year I also

> couldn't feel my private area but after a course of IV steriods, that

> went away. I think my left eye is getting weaker and I'll ask my

> neuro next month at my appt.

>

> I'm planning on asking him if he's heard of LDN. We live in a

> smaller military town so I'm guessing he prolly hasn't. He seems

> like an Andy Griffith type but slower. Unfortunately he's my only

> game in town.

>

> I did just see my primary for an unrelated problem, told him about

> LDN and while he's fasinated, he didn't take the paperwork I had

> printed out nor would prescribe it because it has no clinical

> trials. I'm assuming I'll get the same story from my neuro.

>

> My question is, with the slight symptoms I have, do yall think I

> should try LDN even if I have to go through the dr. that's mentioned

> on this board?? I'm wondering if anyone else with mild symptoms has

> tried LDN and how it's helping them.

> Thanks,

>

>

>

>

>

>

>

>

>

[Guest guest]

Thank you Noland and everyone else for responding. Since yesterday

my eyes are acting up again so I have made an appt and will be

discussing this with my neuro. If I don't have success there, I will

be contacting a doctor from the list.

Blessings to all,

> :

>

> I definitely recommend getting on LDN immediately if not sooner. I

don't

> think you will be sorry.

>

> Noland

[Guest guest]

I would suggest LDN. My experience since November has been positive. I have SPMS and since June of 2001, I have had to use a walker and had to retire from work (I had worked for my local government for over 25 years! The thought of continuing progression of MS was very depressing. LDN is certainly not a miracle drug, but since starting LDN in November, I no longer have the pain that I was experiencing in my right leg or the increased difficulty walking. I am still SPMS but I am not planning for another exacerbation. Check out all the info and decide for yourself. ----- Original Message ----- From: peter SIMPSON Sent: Monday, February 16, 2004 5:14 PM low dose naltrexone Subject: Re: [low dose naltrexone] Would LDN be helpful to me? Noland. Have you got MS. What kind? I have SPMS and so far no meds. It appears that in the UK the neurologists don't think that SPMS reacts to any of the ABC drugs. So I am left with nothing. I have been trying Glyconutrients for about three months now. This is a sugar type dietary thing from the US but so far no good.l I have read many good reports about them but sop far nothing for me. I am anxious to try anything that might do me some good. -------Original Message------- From: low dose naltrexone Date: 02/16/04 21:53:28 low dose naltrexone Subject: Re: [low dose naltrexone] Would LDN be helpful to me? : I definitely recommend getting on LDN immediately if not sooner. I don't think you will be sorry. Noland ----- Original Message ----- From: "noemkat" <noemkat@...> <low dose naltrexone > Sent: Sunday, February 15, 2004 6:16 AM Subject: [low dose naltrexone] Would LDN be helpful to me? > I've been lurking for a while now taking everything in that's been > said and visiting websites I'm 33 and I was dx officially 3/03 with > MS and been on Avonex since 4/03. I don't have any > problems with med, don't really like the shot but it's ok. The only > symptoms of MS I have are numb and tingling feet. Last year I also > couldn't feel my private area but after a course of IV steriods, that > went away. I think my left eye is getting weaker and I'll ask my > neuro next month at my appt. > > I'm planning on asking him if he's heard of LDN. We live in a > smaller military town so I'm guessing he prolly hasn't He seems > like an Andy Griffith type but slower. Unfortunately he's my only > game in town. > > I did just see my primary for an unrelated problem, told him about > LDN and while he's fasinated, he didn't take the paperwork I had > printed out nor would prescribe it because it has no clinical > trials. I'm assuming I'll get the same story from my neuro. > > My question is, with the slight symptoms I have, do yall think I > should try LDN even if I have to go through the dr. that's mentioned > on this board?? I'm wondering if anyone else with mild symptoms has > tried LDN and how it's helping them. > Thanks, > > > > > > > > >

[Guest guest]

I am trying to gather as information about LDN to make a decision as to whether or not to take it. Dr Lawrence from Cardiff is the only person the UK I have found that seems to be able to supply it. So far my emails to him have been returned.

Pat

-------Original Message-------

From: low dose naltrexone

Date: 02/17/04 00:48:16

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

I would suggest LDN. My experience since November has been positive. I have SPMS

and since June of 2001, I have had to use a walker and had to retire from work (I had

worked for my local government for over 25 years! The thought of continuing progression

of MS was very depressing. LDN is certainly not a miracle drug, but since starting LDN in

November, I no longer have the pain that I was experiencing in my right leg or the increased difficulty walking. I am still SPMS but I am not planning for another exacerbation. Check out all the info and decide for yourself.

----- Original Message -----

From: peter SIMPSON

Sent: Monday, February 16, 2004 5:14 PM

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

Noland. Have you got MS. What kind? I have SPMS and so far no meds. It appears that in the UK the neurologists don't think that SPMS reacts to any of the ABC drugs. So I am left with nothing. I have been trying Glyconutrients for about three months now. This is a sugar type dietary thing from the US but so far no good.l I have read many good reports about them but sop far nothi ng for me. I am anxious to try anything that might do me some good.

-------Original Message-------

From: low dose naltrexone

Date: 02/16/04 21:53:28

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

:

I definitely recommend getting on LDN immediately if not sooner. I don't

think you will be sorry.

Noland

----- Original Message -----

From: "noemkat" <noemkat@...>

<low dose naltrexone >

Sent: Sunday, February 15, 2004 6:16 AM

Subject: [low dose naltrexone] Would LDN be helpful to me?

> I've been lurking for a while now taking everything in that's been

> said and visiting websites I'm 33 and I was dx officially 3/03 with

> MS and been on Avonex since 4/03. I don't have any

> problems with med, don't really like the shot but it's ok. The only

> symptoms of MS I have are numb and tingling feet. Last year I also

> couldn't feel my private area but after a course of IV steriods, that

> went away. I think my left eye is getting weaker and I'll ask my

> neuro next month at my appt.

>

> I'm planning on asking him if he's heard of LDN. We live in a

> smaller military town so I'm guessing he prolly hasn't He seems

> like an Andy Griffith type but slower. Unfortunately he's my only

> game in town.

>

> I did just see my primary for an unrelated problem, told him about

> LDN and while he's fasinated, he didn't take the paperwork I had

> printed out nor would prescribe it because it has no clinical

> trials. I'm assuming I'll get the same story from my neuro.

>

> My question is, with the slight symptoms I have, do yall think I

> should try LDN even if I have to go through the dr. that's mentioned

> on this board?? I'm wondering if anyone els e with mild symptoms has

> tried LDN and how it's helping them.

> Thanks,

>

>

>

>

>

>

>

>

>

[Guest guest]

I, too, did the Glyconutrition thing. It's supposed to be a cure-all, but it wasn't for me and several others that I know who used it for various problems. It was kind of expensive to not see any results. I have PPMS and need a miracle! LDN has been the closest thing so far!

Marcie

\In a message dated 2/16/2004 4:15:05 PM Central Standard Time, psimpson@... writes:

Subj:Re: [low dose naltrexone] Would LDN be helpful to me?

Date:2/16/2004 4:15:05 PM Central Standard Time

From: psimpson@... (peter SIMPSON)

Reply-to: low dose naltrexone

low dose naltrexone

Noland. Have you got MS. What kind? I have SPMS and so far no meds. It appears that in the UK the neurologists don't think that SPMS reacts to any of the ABC drugs. So I am left with nothing. I have been trying Glyconutrients for about three months now. This is a sugar type dietary thing from the US but so far no good.l I have read many good reports about them but sop far nothing for me. I am anxious to try anything that might do me some good.

[Guest guest]

Hi Pete the CRABS do not work. I even have a quote from an MS Clinic doctor saying after the first year the interferons do not work. This was in an MS magazine and the I turn the page to find out copaxone doesn't work after the second year so don't worry about getting on these drugs. I too have SPMS and I have found the Naltrexone has worked fantastic. I can walk better, no fatigue, no pain. I feel great now. I was using a walker and was on my way to a wheelchair. So don't give up trying to get hold of this drug.

FlashyKathy

----- Original Message -----

From: peter SIMPSON

low dose naltrexone

Sent: Monday, February 16, 2004 5:13 PM

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

Noland. Have you got MS. What kind? I have SPMS and so far no meds. It appears that in the UK the neurologists don't think that SPMS reacts to any of the ABC drugs. So I am left with nothing. I have been trying Glyconutrients for about three months now. This is a sugar type dietary thing from the US but so far no good.l I have read many good reports about them but sop far nothing for me. I am anxious to try anything that might do me some good.

-------Original Message-------

From: low dose naltrexone

Date: 02/16/04 21:53:28

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

:

I definitely recommend getting on LDN immediately if not sooner. I don't

think you will be sorry.

Noland

----- Original Message -----

From: "noemkat" <noemkat@...>

<low dose naltrexone >

Sent: Sunday, February 15, 2004 6:16 AM

Subject: [low dose naltrexone] Would LDN be helpful to me?

> I've been lurking for a while now taking everything in that's been

> said and visiting websites. I'm 33 and I was dx officially 3/03 with

> MS and been on Avonex since 4/03. I don't have any

> problems with med, don't really like the shot but it's ok. The only

> symptoms of MS I have are numb and tingling feet. Last year I also

> couldn't feel my private area but after a course of IV steriods, that

> went away. I think my left eye is getting weaker and I'll ask my

> neuro next month at my appt.

>

> I'm planning on asking him if he's heard of LDN. We live in a

> smaller military town so I'm guessing he prolly hasn't. He seems

> like an Andy Griffith type but slower. Unfortunately he's my only

> game in town.

>

> I did just see my primary for an unrelated problem, told him about

> LDN and while he's fasinated, he didn't take the paperwork I had

> printed out nor would prescribe it because it has no clinical

> trials. I'm assuming I'll get the same story from my neuro.

>

> My question is, with the slight symptoms I have, do yall think I

> should try LDN even if I have to go through the dr. that's mentioned

> on this board?? I'm wondering if anyone else with mild symptoms has

> tried LDN and how it's helping them.

> Thanks,

>

>

>

>

>

>

>

>

>

[Guest guest]

No, I have Atypical Chronic Lymphocytic Leukemia (CLL) that I'm taking LDN for.

Being diabetic too, the Glyconutrients would not be good for me because of the sugar content. Cancer and diabetes both thrive on sugar. Furthermore, I question the benefit to be derived from the Glyconutrients because sugar is hard on the body.

Noland

----- Original Message -----

From: peter SIMPSON

low dose naltrexone

Sent: Monday, February 16, 2004 3:13 PM

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

Noland. Have you got MS. What kind? I have SPMS and so far no meds. It appears that in the UK the neurologists don't think that SPMS reacts to any of the ABC drugs. So I am left with nothing. I have been trying Glyconutrients for about three months now. This is a sugar type dietary thing from the US but so far no good.l I have read many good reports about them but sop far nothing for me. I am anxious to try anything that might do me some good.

-------Original Message-------

From: low dose naltrexone

Date: 02/16/04 21:53:28

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

:

I definitely recommend getting on LDN immediately if not sooner. I don't

think you will be sorry.

Noland

----- Original Message -----

From: "noemkat" <noemkat@...>

<low dose naltrexone >

Sent: Sunday, February 15, 2004 6:16 AM

Subject: [low dose naltrexone] Would LDN be helpful to me?

> I've been lurking for a while now taking everything in that's been

> said and visiting websites. I'm 33 and I was dx officially 3/03 with

> MS and been on Avonex since 4/03. I don't have any

> problems with med, don't really like the shot but it's ok. The only

> symptoms of MS I have are numb and tingling feet. Last year I also

> couldn't feel my private area but after a course of IV steriods, that

> went away. I think my left eye is getting weaker and I'll ask my

> neuro next month at my appt.

>

> I'm planning on asking him if he's heard of LDN. We live in a

> smaller military town so I'm guessing he prolly hasn't. He seems

> like an Andy Griffith type but slower. Unfortunately he's my only

> game in town.

>

> I did just see my primary for an unrelated problem, told him about

> LDN and while he's fasinated, he didn't take the paperwork I had

> printed out nor would prescribe it because it has no clinical

> trials. I'm assuming I'll get the same story from my neuro.

>

> My question is, with the slight symptoms I have, do yall think I

> should try LDN even if I have to go through the dr. that's mentioned

> on this board?? I'm wondering if anyone else with mild symptoms has

> tried LDN and how it's helping them.

> Thanks,

>

>

>

>

>

>

>

>

>

[Guest guest]

Good heavens, Pat:

Don't give up. Stay the course until we can all figure out how to get you LDN. You won't be sorry.

Noland

----- Original Message -----

From: peter SIMPSON

low dose naltrexone

Sent: Tuesday, February 17, 2004 2:00 AM

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

I am trying to gather as information about LDN to make a decision as to whether or not to take it. Dr Lawrence from Cardiff is the only person the UK I have found that seems to be able to supply it. So far my emails to him have been returned.

Pat

-------Original Message-------

From: low dose naltrexone

Date: 02/17/04 00:48:16

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

I would suggest LDN. My experience since November has been positive. I have SPMS

and since June of 2001, I have had to use a walker and had to retire from work (I had

worked for my local government for over 25 years! The thought of continuing progression

of MS was very depressing. LDN is certainly not a miracle drug, but since starting LDN in

November, I no longer have the pain that I was experiencing in my right leg or the increased difficulty walking. I am still SPMS but I am not planning for another exacerbation. Check out all the info and decide for yourself.

----- Original Message -----

From: peter SIMPSON

Sent: Monday, February 16, 2004 5:14 PM

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

Noland. Have you got MS. What kind? I have SPMS and so far no meds. It appears that in the UK the neurologists don't think that SPMS reacts to any of the ABC drugs. So I am left with nothing. I have been trying Glyconutrients for about three months now. This is a sugar type dietary thing from the US but so far no good.l I have read many good reports about them but sop far nothi ng for me. I am anxious to try anything that might do me some good.

-------Original Message-------

From: low dose naltrexone

Date: 02/16/04 21:53:28

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

:

I definitely recommend getting on LDN immediately if not sooner. I don't

think you will be sorry.

Noland

----- Original Message -----

From: "noemkat" <noemkat@...>

<low dose naltrexone >

Sent: Sunday, February 15, 2004 6:16 AM

Subject: [low dose naltrexone] Would LDN be helpful to me?

> I've been lurking for a while now taking everything in that's been

> said and visiting websites I'm 33 and I was dx officially 3/03 with

> MS and been on Avonex since 4/03. I don't have any

> problems with med, don't really like the shot but it's ok. The only

> symptoms of MS I have are numb and tingling feet. Last year I also

> couldn't feel my private area but after a course of IV steriods, that

> went away. I think my left eye is getting weaker and I'll ask my

> neuro next month at my appt.

>

> I'm planning on asking him if he's heard of LDN. We live in a

> smaller military town so I'm guessing he prolly hasn't He seems

> like an Andy Griffith type but slower. Unfortunately he's my only

> game in town.

>

> I did just see my primary for an unrelated problem, told him about

> LDN and while he's fasinated, he didn't take the paperwork I had

> printed out nor would prescribe it because it has no clinical

> trials. I'm assuming I'll get the same story from my neuro.

>

> My question is, with the slight symptoms I have, do yall think I

> should try LDN even if I have to go through the dr. that's mentioned

> on this board?? I'm wondering if anyone els e with mild symptoms has

> tried LDN and how it's helping them.

> Thanks,

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Pat do you have a family doctor? They seem the most agreeable to prescribe LDN. Even if he prescribes the 50 mg dose you can crush it up or find a compounding pharmacy to do it. Don't give up trying to get it. It is all that works till they find a cure.

----- Original Message -----

From: Noland R. Durnell, P.E.

low dose naltrexone

Sent: Tuesday, February 17, 2004 3:37 PM

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

Good heavens, Pat:

Don't give up. Stay the course until we can all figure out how to get you LDN. You won't be sorry.

Noland

----- Original Message -----

From: peter SIMPSON

low dose naltrexone

Sent: Tuesday, February 17, 2004 2:00 AM

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

I am trying to gather as information about LDN to make a decision as to whether or not to take it. Dr Lawrence from Cardiff is the only person the UK I have found that seems to be able to supply it. So far my emails to him have been returned.

Pat

-------Original Message-------

From: low dose naltrexone

Date: 02/17/04 00:48:16

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

I would suggest LDN. My experience since November has been positive. I have SPMS

and since June of 2001, I have had to use a walker and had to retire from work (I had

worked for my local government for over 25 years! The thought of continuing progression

of MS was very depressing. LDN is certainly not a miracle drug, but since starting LDN in

November, I no longer have the pain that I was experiencing in my right leg or the increased difficulty walking. I am still SPMS but I am not planning for another exacerbation. Check out all the info and decide for yourself.

----- Original Message -----

From: peter SIMPSON

Sent: Monday, February 16, 2004 5:14 PM

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

Noland. Have you got MS. What kind? I have SPMS and so far no meds. It appears that in the UK the neurologists don't think that SPMS reacts to any of the ABC drugs. So I am left with nothing. I have been trying Glyconutrients for about three months now. This is a sugar type dietary thing from the US but so far no good.l I have read many good reports about them but sop far nothi ng for me. I am anxious to try anything that might do me some good.

-------Original Message-------

From: low dose naltrexone

Date: 02/16/04 21:53:28

low dose naltrexone

Subject: Re: [low dose naltrexone] Would LDN be helpful to me?

:

I definitely recommend getting on LDN immediately if not sooner. I don't

think you will be sorry.

Noland

----- Original Message -----

From: "noemkat" <noemkat@...>

<low dose naltrexone >

Sent: Sunday, February 15, 2004 6:16 AM

Subject: [low dose naltrexone] Would LDN be helpful to me?

> I've been lurking for a while now taking everything in that's been

> said and visiting websites I'm 33 and I was dx officially 3/03 with

> MS and been on Avonex since 4/03. I don't have any

> problems with med, don't really like the shot but it's ok. The only

> symptoms of MS I have are numb and tingling feet. Last year I also

> couldn't feel my private area but after a course of IV steriods, that

> went away. I think my left eye is getting weaker and I'll ask my

> neuro next month at my appt.

>

> I'm planning on asking him if he's heard of LDN. We live in a

> smaller military town so I'm guessing he prolly hasn't He seems

> like an Andy Griffith type but slower. Unfortunately he's my only

> game in town.

>

> I did just see my primary for an unrelated problem, told him about

> LDN and while he's fasinated, he didn't take the paperwork I had

> printed out nor would prescribe it because it has no clinical

> trials. I'm assuming I'll get the same story from my neuro.

>

> My question is, with the slight symptoms I have, do yall think I

> should try LDN even if I have to go through the dr. that's mentioned

> on this board?? I'm wondering if anyone els e with mild symptoms has

> tried LDN and how it's helping them.

> Thanks,

>

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